Ua hopohopo paha ʻoe i ka wā e ʻūlū koke ai kāu keiki a nalowale paha ka ʻike? A i ʻole ke nānā pono nei kāu keiki iā ʻoe no kekahi manawa, me ka pane ʻole i kāu mau ʻōlelo? He mea maʻamau no ka makua a makua paha ke makaʻu nui i ka wā e ʻike ai lākou i nā mea e like me kēia. I kēia lā e kamaʻilio mākou e pili ana i ka maʻi epilepsy, a i ʻole e like me ka kapa ʻana o kekahi, he ʻano hiki ke loaʻa i nā keiki. Mai hopohopo, inā ua ʻike pono ʻia mākou e pili ana i kēia, hiki iā mākou ke hoʻoponopono maikaʻi i kēia kūlana.
He aha ka maʻalahi o ka maʻi epilepsy?
ʻAe, e nānā mua kākou i ke ʻano o ka maʻi ʻepilepsy. I ka ʻōlelo maʻalahi, ʻo ka maʻi ʻepilepsy
kahi maʻi i hoʻokumu ʻia e kahi haunaele uila pōkole i loko o ka lolo o ke keiki. Hoʻokaʻaʻike ko mākou mau ʻāpana lolo kekahi i kekahi ma o nā leka uila liʻiliʻi. E noʻonoʻo, i ka manawa koke, aia kahi pilikia liʻiliʻi i loko o kēia ʻōnaehana leka uila, a nui nā leka uila e hoʻouna ʻia ana me ka ʻole o ka manawa. ʻO ia ka manawa
e loaʻa ai kahi 'hōʻeha'. Ua ʻike paha ʻoe i kahi mea i loaʻa i ka huhū e nalowale ana ka ʻike a me ka convulsion. Eia naʻe, ʻaʻole like nā hōʻeha āpau. Loaʻa i kekahi mau keiki ka huhū ke kali ʻoe, a i ʻole e manaʻo paha lākou i kahi huikau.
ʻO ka mea nui, ʻaʻole i nā manawa a pau e loaʻa ai i ke keiki kahi hopu ʻana, ma muli ia o ka maʻi epilepsy . I mea e hoʻoholo ai ke kauka he maʻi epilepsy ke keiki, pono i ke keiki ke loaʻa ma mua o hoʻokahi hopu ʻana, me ka ʻole o kekahi maʻi olakino ʻē aʻe. I kekahi manawa kapa nā kauka i kēia 'pediatric epilepsy' a i ʻole ' seizure disorder '.
He aha nā ʻano epilepsy i nā keiki?
Aia nā ʻano maʻi epilepsy like ʻole e hiki i nā keiki ke loaʻa. E nānā kākou i kekahi o nā ʻano maʻamau:
- ʻO ka maʻi ʻepilepsy ʻole: Ma kēia, nānā koke ke keiki iā ʻoe no kekahi manawa, me he mea lā ʻaʻole ʻike i ke kaiapuni. Ke ʻōlelo ʻoe, ʻaʻole pane ke keiki. Ua like ia me ka nānā ʻana i kahi kiʻiʻoniʻoni a laila 'hoʻomaha' koke. Hoʻi ke keiki i ka maʻamau i loko o kekahi mau kekona.
- ʻO ka maʻi epilepsy Rolandic (epilepsy i kaupalena ʻia iā ia iho me nā kui centrotemporal): Loaʻa kēia ʻano ma kahi o 15% o nā keiki me ka maʻi epilepsy. Loaʻa pinepine nā hopu ʻana i ka wā e hiamoe ai a i ʻole e ala ana i ke kakahiaka. Aia paha he mau neʻe ʻana i hiki ʻole ke kāohi ʻia ma kekahi ʻaoʻao o ke kino, ʻoiai ka maka a me ka lima. Hiki ke paheʻe ʻia ka ʻōlelo.
- ʻO ka maʻi epilepsy myoclonic ʻōpio: ʻO kēia ka mea maʻamau i ka wā ʻōpio. Holo koke nā lima a me nā wāwae, me he mea lā ua uila ʻia. Hiki ke hana ʻia kēia ke ala ʻoe i ke kakahiaka.
- ʻO nā ʻūmiʻi pēpē (West syndrome): He ʻano maʻalahi kēia o ka maʻi epilepsy e hoʻopilikia i nā pēpē. Loaʻa ia i ka wā e hiamoe ai a i ʻole e ala ana. I ka manawa koke, kūlou ke kino o ke keiki i mua, ʻūlū, a kīkoʻo nā lima a me nā wāwae. He mau kekona wale nō kēia paʻa ʻana, akā hiki ke hana i nā manawa he nui i ka lālani, me kahi hoʻomaha pōkole ma waena.
- ʻO ka maʻi Lennox-Gastaut (LGS): He ʻano ʻoi aku ka koʻikoʻi o kēia. I kēia, hiki i nā ʻiʻo o ke keiki ke ʻū koke a laila hoʻomaha hou. I kekahi manawa e nalowale paha ko lākou ʻike, huikau, a ʻaʻole pane i ka ʻōlelo.
Pehea ka maʻamau o ka maʻi epilepsy i waena o nā keiki?
Aia ma mua o 3 miliona mau kānaka me ka maʻi epilepsy ma ʻAmelika Hui Pū ʻIa wale nō, 450,000 o lākou he mau keiki ma lalo o 17 mau makahiki. No laila, ʻaʻole kēia he maʻi maʻamau.
He aha nā hōʻailona mua o ka epilepsy i kahi keiki?
ʻO ka hōʻailona nui o ka maʻi epilepsy he hopu ʻana. Ma mua o ka hiki ʻana mai o kahi hopu ʻana, hiki iā ʻoe ke ʻike i nā hōʻailona mua e like me:
- Manaʻo e like me kou nalowale ʻana o ka ʻike i kou wahi a puni.
- Manaʻo huikau.
- Nānā wale ʻoe (nānā hakahaka).
- Nā loli i ka lohe, ka ʻike , ka ʻono, a i ʻole ke ʻala.
- Manaʻo ʻoluʻolu ʻole, e like me ka ʻeha ʻōpū a i ʻole kahi loli o ka mahana o ke kino.
Eia nō naʻe, i kekahi manawa hiki ke hiki koke mai kahi maʻi me ka ʻole o nā hōʻailona mua.
He aha nā hōʻailona e ʻike ai ke keiki i ka wā e loaʻa ai ka maʻi ʻōʻō?
ʻO nā hōʻailona e kū mai ana i ka wā o ka hopu ʻana he mau minuke wale nō ia. ʻO nā hōʻailona maʻamau:
- Ka nalowale ʻana o ka ʻike a i ʻole ka hāʻule ʻana i ka ʻike.
- ʻŪlili ʻana o nā ʻiʻo i kāohi ʻole ʻia, ka ūlili ʻana, a i ʻole ka neʻe mau ʻana o kahi ʻāpana o ke kino ma ke ʻano like.
- Ka hiki ʻole ke ʻōlelo, ke kuʻi ʻana i nā lehelehe, a i ʻole nā neʻe nau ʻana.
- Nā palpitations o ka puʻuwai .
- Ka hanu wikiwiki ʻana.
Hiki ke ʻokoʻa ke ʻano o ka maʻi ʻeha mai kēlā kanaka a kēia kanaka. ʻAʻole ia e pili mau i ka haʻalulu. Eia nō naʻe, nui ka poʻe e ʻike i nā hōʻailona like a like paha me kēlā me kēia maʻi ʻeha.
Hiki ke paʻakikī ke ʻike i kahi kūpono i loko o kahi pēpē ʻōpio ma mua o kahi pēpē ʻelemakule iki. No laila, he mea nui loa iā ʻoe, ke kahu mālama, e makaʻala pono i kekahi ʻano hana ʻē, pehea ka lōʻihi o ka hana ʻana, a e hōʻike iā ia i ke kauka o kāu keiki.
Ma hope o ka pau ʻana o ke kino,
manaʻo ke keiki i ka luhi a me ka huikau.E ʻike paha ʻoe. E nalowale paha kou hoʻomanaʻo i ka mea i hana ʻia. He mea maʻamau nō hoʻi
ka ʻeha poʻo ma hope o ka hahau ʻana.
I ka makahiki hea e hoʻomaka pinepine ai nā hōʻailona o ka maʻi epilepsy?
ʻOkoʻa kēia ma muli o ke ʻano o ka maʻi epilepsy i loaʻa i ke keiki. Hoʻomaka kekahi mau hōʻailona i ka wā kamaliʻi, aʻo kekahi e hoʻomaka paha i ka wā kula a i ʻole ka wā ʻōpio.
He aha ke kumu o ka maʻi epilepsy i nā keiki?
E like me kā mākou i ʻōlelo ai ma mua, ua hoʻokumu ʻia ka maʻi epilepsy e kahi maʻi i kāohi ʻole ʻia i ka hana uila o ka lolo o ke keiki. E noʻonoʻo e pili ana i ia mea, hele ka uila ma waena o nā ʻāpana lolo. Pēlā ke kamaʻilio ʻana o nā ʻāpana me kekahi. I kekahi manawa, lilo kēia uila i mea ʻē, e hoʻololi ana i nā leka i hoʻouna ʻia ma waena o nā ʻāpana. ʻO kēlā ʻano ʻē ke kumu o nā hōʻailona manawa pōkole o kahi kūpono. Ke hiki i ka lolo ke hoʻouna hou i nā leka kūpono, nalowale kēlā mau hōʻailona. Aia kekahi mau mea e hiki ke kōkua i ka ulu ʻana o ka maʻi epilepsy:
- ʻEha poʻo a i ʻole ka pōʻino o ka lolo.
- Nā ʻeha hānau.
- ʻO kahi maʻi (e like me nā maʻi lolo e like me ka meningitis a i ʻole ka encephalitis).
- He ʻano ʻē i kū mai i ka wā o ka ulu ʻana o ka lolo i ka wā o ke pēpē i loko o ka ʻōpū.
- Ke ʻano hoʻoilina.
I kekahi manawa, ʻaʻohe kumu maopopo no ka maʻi ʻepilepsy. Hiki paha ke lilo i mea kūlike wale nō. He mea kēia e noiʻi hou ʻia nei.
ʻO wai ka mea i ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i ka maʻi epilepsy?
Hiki i kāu keiki ke piʻi iki aʻe ka pilikia o ka loaʻa ʻana o ka maʻi epilepsy inā loaʻa iā lākou a i ʻole kekahi o kēia mau mea:
- Ka loaʻa ʻana o kahi lālā o ka ʻohana (hoahānau pili) me ka maʻi epilepsy (predisposition genetic).
- Inā ua loaʻa iā ʻoe kahi ʻeha poʻo nui ma mua.
- Inā ua loaʻa iā ʻoe kahi maʻi lolo ma mua.
- Inā he mau maʻi a pilikia paha kou ʻōnaehana nerve ʻē aʻe.
He aha nā pilikia e hiki ke kū mai ma muli o ka epilepsy?
Hiki i ka maʻi ʻepilepsy ke hoʻopilikia i
ke olakino kino a me ka noʻonoʻo o ke keiki. ʻO nā pilikia maʻamau:
- ʻEha kino (e like me ka hāʻule ʻana i ka wā e paʻi ai).
- Makaʻu i ka loaʻa ʻana o kahi kūpono ʻē aʻe.
- Nā pilikia hiamoe.
- Ka haʻahaʻa o ka manaʻo ponoʻī.
- Paʻakikī i ka noʻonoʻo ʻana.
- Kaumaha a me ka Hopohopo.
I ka wā e paʻi ai, ʻoiai inā nalowale ka ʻike o ke keiki a hāʻule, aia kahi pilikia nui o ka ʻeha. Inā ʻike ʻoe i nā hōʻailona o ka paʻi ʻana,
e lawe koke i ke keiki i kahi palekana. E hoʻomoe iā lākou ma ka papahele a
pale iā lākou mai nā ʻili paʻakikī, nā mea ʻoi, nā mea kaumaha, a i ʻole nā mea āpau e hāʻule ma luna o lākou. A hiki i ka pau ʻana o ka paʻi ʻana
E kau i kahi mea palupalu, e like me ke kapa moe a i ʻole ka pālule, ma lalo o ke poʻo o ke keiki. E paʻa i ke keiki a mai ho'āʻo e hoʻōki i nā haʻalulu. Hoʻopau pinepine ʻia ke kūlana i loko o kekahi mau minuke. Inā ʻoi aku ka lōʻihi o ke kūlana ma mua o ʻelima mau minuke, e nīnau i kāu kauka i ka mea e hana ai. He mea weliweli anei ka maʻi epilepsy no nā keiki?
ʻOi aku ka ʻino o kekahi mau ʻano maʻi epilepsy, a hiki i ko lākou mau hōʻailona ke hoʻoweliweli i ke ola. Hiki i nā pilikia koʻikoʻi ke komo pū me:- Ke kīnā noʻonoʻo.
- Status epilepticus: He kūlana kēia kahi e loaʻa mau ai nā hopu ʻana, a i ʻole ke loaʻa kekahi hopu ʻana me ka ʻole o ka manawa kūpono e hoʻōla ai. He pilikia weliweli loa kēia a hoʻoweliweli i ke ola.
- Ka pōʻino o ka lolo a i ʻole ka make.
Hiki i nā kauka ke mālama i kāu keiki a kōkua i ka kaohi ʻana i nā hōʻailona e pale aku i kēia mau pilikia e hoʻoweliweli ana i ke ola. Ke hoʻomau nei ka noiʻi, hiki i nā lāʻau lapaʻau hou ke hōʻemi i ka pilikia o kāu keiki. Pehea e ʻike pono ai i ka epilepsy?
E nānā ke kauka i ke keiki a hana i kekahi mau hoʻokolohua e hoʻoholo ai inā he maʻi epilepsy ko lākou. Hiki i kēia mau hoʻokolohua ke komo pū me:- Hoʻokolokolo kino: Ma kēia, loaʻa i ke kauka ka ʻike e pili ana i ke olakino laulā o ke keiki, nā hōʻailona, a me ka mōʻaukala olakino ʻohana.
- Hoʻokolohua neurological: Nānā kēia i ka hana ʻana o ka lolo a me ka ʻōnaehana nerve o ke keiki.
- Nā hoʻāʻo koko: Hiki ke hana i nā hoʻāʻo koko e ʻike inā he kumu ʻē aʻe no nā hōʻailona.
- Nā hoʻāʻo kiʻi: No ka laʻana, hiki i nā hoʻokolohua e like me MRI (Magnetic Resonance Imaging) ke hāʻawi i ka ʻike hou aku e pili ana i ka hana o ka lolo o ke keiki.
- Electroencephalogram (EEG): He hoʻāʻo ʻeha ʻole kēia e ana i ka hana uila o ka lolo o ke keiki. Hana ʻia ia ma ke kau ʻana i nā mea ʻike liʻiliʻi i ke poʻo.
Hiki i kēia mau hoʻokolohua ke kōkua i ke kauka e hoʻomaopopo i ke kumu o ka hopu ʻana o ke keiki a inā he mau maʻi ʻē aʻe. Hiki ke lōʻihi ka manawa e hiki ai i kahi hopena paʻa ʻo ka maʻi epilepsy ke kumu, a ʻaʻole ia e hana koke. He aha nā lāʻau lapaʻau no ka maʻi epilepsy?
Hiki ke hoʻohana ʻia nā lāʻau lapaʻau no ka epilepsy i nā keiki:- Lāʻau lapaʻau antiseizure: Hoʻomalu wale kēia mau lāʻau i nā hōʻailona o ka maʻi epilepsy a hōʻemi i ke alapine o nā hopu ʻana, ʻaʻole lākou e hoʻōla i ke kumu o ka maʻi epilepsy. Kōkua kēia mau lāʻau lapaʻau i ka pale ʻana i ka hana uila maʻamau ʻole i loko o ka lolo, akā hana wale lākou inā aia ka lāʻau lapaʻau i loko o ke koko. No laila, he mea nui loa e hāʻawi i kāu keiki i ka lāʻau lapaʻau e like me ke kuhikuhi ʻia, a i ka manawa kūpono.
- ʻO ke ʻoki kino:Inā ʻaʻole holo pono ka lāʻau lapaʻau, hiki i nā kauka ke ʻōlelo aku i ke ʻoki kino lolo kūikawā e kuhikuhi i ke kumu o ka maʻi epilepsy.
- Nā mea lapaʻau i hoʻokomo ʻia: Ke ʻole ka hopena o nā lāʻau lapaʻau, hoʻohana ʻia nā mea lapaʻau ʻenehana kiʻekiʻe e kāohi i nā hōʻailona epilepsy. ʻO nā mea hana maʻamau ka Vagus nerve stimulator a i ʻole ka Deep brain stimulator. Hoʻouna kēia mau mea hoʻoulu i nā au uila i nā ʻāpana kikoʻī o ka lolo, e hoʻoponopono ana i ke ʻano o ka hana ʻana o nā hunaola lolo.
- ʻAi Ketogenic: Hiki i ka ʻai ketogenic ke kōkua no kekahi mau keiki me ka maʻi epilepsy paʻakikī ke kāohi. He papa ʻai momona kiʻekiʻe kēia, haʻahaʻa-kalapona. ʻOi aku ka maikaʻi o ka hana ʻana ma lalo o ka nānā ʻana o kahi hui lapaʻau.
ʻAʻole paha e hana kahi lāʻau lapaʻau e pono ai no kekahi keiki i kekahi. No laila, pono paha i ka hui lapaʻau ke hoʻāʻo i kekahi mau lāʻau lapaʻau like ʻole a hiki i ka loaʻa ʻana o ka mea e pono ai no ke keiki. He aha kaʻu e ʻike ai ma ke ʻano he makua i ka hāʻawi ʻana i kaʻu keiki i ka lāʻau epilepsy?
Inā ke lawe nei kāu keiki i ka lāʻau lapaʻau no ka maʻi epilepsy, hiki iā ʻoe ke hana pū me ke kauka e hōʻoia i ka lawe pololei ʻana i ka lāʻau lapaʻau. E makaʻala loa i kēia mau mea:- E ʻike pono i ka manawa e hāʻawi ai i ka lāʻau lapaʻau (ehia mau manawa i ka lā, inā paha e hāʻawi pū me ka meaʻai, a pēlā aku).
- E ʻike i ka mea e hana ai inā poina iā ʻoe ke hāʻawi i kāu keiki i ka lāʻau lapaʻau .
- E ʻike inā pono nā hoʻāʻo koko no kekahi mau lāʻau lapaʻau.
- E makaʻala i nā hopena ʻaoʻao o nā lāʻau lapaʻau a me nā mea e hana ai inā loaʻa.
- E nīnau i kāu kauka i ka mea e hana ai inā loaʻa i kāu keiki ke kuni a maʻi paha . I kekahi manawa hiki i ke kuni ke kumu i ka ʻeha.
- E hoʻomaopopo i ke kula e lawe ana kāu keiki i ka lāʻau lapaʻau no ka maʻi epilepsy a, inā pono, e hoʻonohonoho e hāʻawi i ka lāʻau lapaʻau ma ke kula.
- E hōʻoia i loaʻa iā ʻoe kahi hoʻolālā hoʻopakele hopu inā loaʻa iā ʻoe kahi hopu ma ke kula.
Aia kekahi mau hopena ʻaoʻao o ka lāʻau lapaʻau?
ʻOkoʻa nā hopena ʻaoʻao mai kēlā me kēia lāʻau lapaʻau a i kekahi. Eia nō naʻe, hiki i kekahi mau lāʻau antiseizure ke hana i nā mea e like me:- Hiamoe.
- Nā loli i ka hana o ke akepaʻa o ke keiki a i ʻole ka hana o ka iwi ʻiʻo.
- Nā ʻūhū ʻili.
- ʻeha ka ʻōpū.
- Nā loli i ka makemake.
E nīnau i kāu kauka e pili ana i nā hopena ʻaoʻao o ka lāʻau lapaʻau a kāu keiki e lawe nei. Hiki ke emi kēia mau hopena ʻaoʻao i ka hala ʻana o ka manawa ke hoʻomaʻamaʻa ke kino o kāu keiki i ka lāʻau lapaʻau. Inā loaʻa nā hopena ʻaoʻao o kāu keiki, e kamaʻilio me kāu hui lapaʻau e hōʻoia i ka kūpono o ka lāʻau lapaʻau iā lākou.Hiki ke pale ʻia ka maʻi epilepsy i nā keiki?
ʻAʻohe ala e pale aku ai i nā kumu āpau o ka maʻi epilepsy. Eia nō naʻe, hiki iā ʻoe ke kōkua i kāu keiki e hōʻemi i ko lākou pilikia o ka loaʻa ʻana o ka maʻi epilepsy ma ka pale ʻana i nā ʻeha poʻo . No ka laʻana, ma ka hoʻokomo ʻana i kāu keiki i nā mea pale i ka wā e pāʻani ana. Inā hāpai ʻoe, hiki iā ʻoe ke hoʻāʻo e pale i nā ʻeha hānau ma ka loaʻa ʻana o ka mālama olakino e pono ai ma mua o ka hānau ʻana o kāu pēpē. Eia naʻe, ʻaʻohe mea pehea ʻoe e akahele ai, hiki nō ke loaʻa nā ʻeha poʻo. He aha ka manaʻolana no kahi keiki me ka epilepsy?
E ʻokoʻa ka wānana ma muli o ke ʻano o ka maʻi epilepsy i loaʻa i kāu keiki a me ke alapine o nā hopu ʻana, no laila e kamaʻilio me ke kauka o kāu keiki e pili ana i kēia. ʻO ka ʻike mua a me ka mālama ʻana he mea nui ia no ka hoʻokō ʻana i nā hopena maikaʻi loa. I kekahi manawa, hiki i kekahi mau hopu ke hoʻoweliweli i ke ola a hiki ke alakaʻi i ka make i manaʻo ʻole ʻia. Ke nalowale nei anei ka maʻi ʻepilepsy o nā kamaliʻi i ko kākou wā ʻelemakule?
Ma mua o 60% o nā keiki e ulu aʻe ma mua o ko lākou hiki ʻana i ka wā makua. Pono paha kekahi poʻe e noho me a mālama i ke kūlana no ke koena o ko lākou ola. ʻOi aku ka nui o ka ulu ʻana o kekahi mau ʻano maʻi epilepsy ma mua o nā mea ʻē aʻe. Hiki i ke keiki me ka maʻi ʻepilepsy ke ola i kahi ola maʻamau?
Hiki i nā keiki he nui me ka maʻi epilepsy ke ola maʻamau, me ka hoʻopilikia ʻole ʻia e like me nā keiki ʻē aʻe o ko lākou mau makahiki. Ma kahi o 70% o nā keiki i ʻike ʻia me ka maʻi epilepsy ʻaʻohe loli koʻikoʻi i ko lākou ulu ʻana a i ʻole nā hana o kēlā me kēia lā. ʻO ka ʻokoʻa wale nō paha, pono lākou e lawe i ka lāʻau lapaʻau i nā manawa a pau. Eia nō naʻe, he mea maʻamau no nā keiki i ʻike ʻia me ka maʻi epilepsy ke manaʻo i ka huhū, ka hilahila, a me ka hoʻokaʻawale ʻia . ʻO kēia no ka mea hiki iā lākou ke manaʻo ua hoʻohilahila ʻia lākou e nā poʻe ʻē aʻe i ko lākou kūlana. Hiki i ka maʻi epilepsy ke alakaʻi i ka haʻahaʻa o ka manaʻo ponoʻī, ke kaumaha, a me ka hopohopo . No laila, loaʻa i nā keiki he nui ka hōʻoluʻolu nui mai ke kamaʻilio ʻana me kahi kākā'ōlelo olakino noʻonoʻo e pili ana i ka maikaʻi o ka noʻonoʻo o kā lākou keiki. Eia kekahi, ʻo ke aloha a me ke kākoʻo a lākou e loaʻa ai mai ko lākou mau mākua, nā mea mālama, a me ka hui lapaʻau he mea nui loa ia i ka hoʻoponopono ʻana i nā pilikia o kēia kūlana. E kōkua anei ka ʻai Keto i kaʻu keiki me ka maʻi epilepsy?
Ua ʻike kekahi mau keiki he hiki i ka hana ʻana i nā hoʻololi ʻana i ka meaʻai e kāohi i kā lākou mau hōʻailona epilepsy ke kōkua. ʻO ka ʻai ketogenic (a i ʻole ka ʻai Keto) he ʻai momona kiʻekiʻe, haʻahaʻa-carbohydrate. Hiki i kāu kauka ke paipai i kēia hoʻolālā ʻai no kāu keiki. Manaʻo ʻia e hoʻololi i ke ʻano o ka hoʻohana ʻana a me ka hoʻohana ʻana o ka lolo o kāu keiki i ka ikehu. E haʻi aku kāu kauka iā ʻoe inā pono ʻoe e hana i kekahi mau hoʻololi i ka ʻai a kāu keiki. Pehea e mālama ai i kaʻu keiki me ka maʻi epilepsy?
Ma ke ʻano he mea mālama no kahi keiki me ka maʻi epilepsy, he mea maʻamau ke hopohopo no ka palekana o kāu keiki inā loaʻa koke iā lākou kahi hopu. Nui nā mea hiki iā ʻoe ke hana e pale aku i kāu keiki he mea kōkua nō hoʻi no nā keiki me ka ʻole o ka epilepsy. Inā mālama maikaʻi ʻia nā hopu o kāu keiki, palekana ka hapa nui o nā hana no kāu keiki. Eia nō naʻe, e haʻi aku kāu kauka iā ʻoe inā palekana kekahi mau haʻuki a i ʻole nā hana no kāu keiki. E hoʻomanaʻo i kēia mau mea i ka wā e mālama ai i kāu keiki:- E komo i nā lako palekana i ka wā e pāʻani ana a me nā hana haʻuki. Eia kekahi laʻana, e komo i ka mahiole i ka wā e holo paikikala ana.
- E hōʻoia i kekahi e kiaʻi ana i ke keiki i ko lākou pāʻani ʻana, hoʻoikaika kino ʻana, a i ʻole e hana ana i nā hana ʻē aʻe. Pono nā mea mālama e makaʻala i ke kūlana olakino o ke keiki a ʻike i ka mea e hana ai inā loaʻa iā lākou ka maʻi.
- Inā loaʻa i kāu keiki ʻōpio kahi maʻi ʻōʻili, e nīnau i kāu kauka ma mua o ka ʻae ʻana iā lākou e hoʻokele. ʻOkoʻa nā ʻōlelo aʻoaʻo hoʻokele ma muli o ka ʻāina/mokuʻāina.
- Mai hoʻokuʻu i kāu keiki e hiamoe ma luna o ka moena moe luna. E makaʻala i nā pilikia ʻē aʻe e pili ana i ke kiʻekiʻe (e laʻa, piʻi pōhaku, piʻi lāʻau).
Nā mea e makaʻala nui ai i ka wā e hana ai me ka wai, e like me ka ʻauʻau ʻana (Nā ʻōlelo aʻoaʻo palekana wai)
Inā ʻoe e mālama ana i kahi keiki me ka maʻi epilepsy, e hoʻomanaʻo i kēia mau ʻōlelo aʻoaʻo palekana e pili ana i ka wai:- E waiho i nā puka o ka lumi ʻauʻau me ka wehe ʻole ʻia. E hoʻomaopopo i ke koena o ka ʻohana e pono ana kāu keiki i ka pilikino ma ka lumi ʻauʻau.
- E kiaʻi i kāu keiki i nā manawa a pau e kokoke ana ʻo ia i ka wai, ma ka home a ma waho paha. ʻO kēia kekahi o nā mea e like me ka ʻauʻau a i ʻole ka loko ʻauʻau ma ka pā hale.
- Mai hoʻouna aku i kahi keiki me ka maʻi ahulau e ʻauʻau a ʻauʻau wale nō paha.
- E nānā inā e hana pono ana ka ʻauwai o ka ʻauʻau.
- E mālama i ka pae wai i loko o ka ʻauʻau i haʻahaʻa.
- E mālama i ka mahana o ka wai i haʻahaʻa (i mea e pale ai i ka wela o ka ʻili).
- No nā keiki makua , e hoʻokomo i kahi noho ʻauʻau a ʻauʻau paha. ʻOi aku ka maikaʻi inā he kaula palekana ka noho.
- E mālama i nā lako uila a pau mai ka poho holoi a i ʻole ka ʻauʻau.
Inā loaʻa i kāu keiki kahi ʻōʻō i ka wā e ʻauʻau ana , e lawe koke iā lākou mai loko mai o ka wai a nānā i ka hanu ʻana a me ka pulse. Inā hewa kekahi mea, e kāhea koke aku i ke kauka a i ʻole nā lawelawe ulia pōpilikia. I ka manawa hea e pono ai ʻoe e ʻike i ke kauka?
E ʻike i ke kauka inā loaʻa i kāu keiki kekahi o kēia mau mea:- Inā piʻi ka alapine (frequency) o ke kūpono.
- Inā ʻo ka lāʻau lapaʻau e pale ai i ke kūpono ke kumu o nā hopena ʻaoʻao.
- Inā ʻoe e ʻike nei i nā hōʻailona e like me ke kaumaha a me ka hopohopo paha.
- Inā ua lohi ʻoe i ka hōʻea ʻana i nā pae hoʻomohala kūpono no kou mau makahiki.
I kahi Keʻena Lapaʻau Pōpilikia (ETU)Āhea ʻoe e makemake ai e hele?
Inā ʻike kāu keiki i kekahi o kēia mau hōʻailona, e kāhea iā 911 (a i ʻole kāu helu pilikia kūloko) a lawe koke iā lākou i kahi lumi pilikia:- Inā loaʻa iā ʻoe kahi maʻi ʻeha no ka manawa mua i kou ola.
- Inā ʻoe e ʻeha i ka wā o ke kuʻi ʻana.
- Inā ʻoi aku ka lōʻihi o ke kau ʻana ma mua o ʻelima mau minuke.
- Inā hiki mai kekahi maʻi hou ma mua o ka ho'ōla ʻia ʻana o ka mea mua.
- Inā noho ʻoe i ka ʻike ʻole no nā minuke he 10-15 ma hope o ka pau ʻana o ka hopu ʻana.
- Inā ʻoi aku ma mua o 30 mau minuke e hoʻōla ai mai kahi ʻeha.
He kūlana weliweli ka status epilepticus . ʻO ia hoʻi, ua loaʻa i kahi keiki kahi hopu no ka manawa lōʻihi, a i ʻole ke hele lākou mai kekahi hopu a i kekahi me ka loaʻa ʻole o ka manawa e hoʻōla pono ai. He pilikia hoʻoweliweli ola kēia, no laila pono koke ke kōkua lapaʻau. No nā hopu mau, hiki ke hāʻawi ʻia nā "lāʻau hoʻopakele" kūikawā e nā mea mālama, e like me nā mākua a i ʻole nā kumu (ma ke ʻano rectal a i ʻole he ihu spray). E nīnau i kāu kauka inā kūpono i kāu keiki ke loaʻa kēia ʻano lāʻau hoʻopakele. He aha nā nīnau koʻikoʻi e nīnau aku ai i ke kauka?
- He aha ke ʻano o ka maʻi epilepsy i loaʻa i kaʻu keiki?
- He aha nā hōʻailona e pono iaʻu e nānā?
- He aha nā hopena ʻaoʻao o ka lāʻau lapaʻau?
- Pono anei kaʻu keiki i ke ʻoki kino?
- He aha kaʻu e hana ai inā loaʻa iaʻu kahi maʻi?
- Pehea e hoʻomaopopo ai i ke kula e pili ana i ke kūlana o kaʻu keiki?
- Hiki i kaʻu keiki ke pāʻani haʻuki?
Leka Hoʻihoʻi Hope Loa
He paʻakikī ka mālama ʻana i kahi keiki, akā ʻoi aku ka paʻakikī o ka mālama ʻana i kahi keiki me ka maʻi epilepsy. He mea maʻamau ka manaʻo huhū, huikau, a hopohopo e pili ana i nā mea a kāu keiki e hele nei. Mai makaʻu. E hana pū nā kauka o kāu keiki e kōkua iā ʻoe e hoʻomaopopo i ke kūlana a alakaʻi iā ʻoe i ke ʻano e kōkua ai i kāu keiki i ko lākou ulu ʻana. E kelepona i kāu hui lapaʻau inā he mau nīnau kāu e pili ana i ka hōʻailona o kāu keiki, a inā ʻike ʻoe i kekahi mau hopena ʻaoʻao, nā hōʻailona hou, a i ʻole nā hōʻailona e ʻoi aʻe ana.
Ke hoʻomau nei ka noiʻi i ke kōkua ʻana i nā keiki me ka maʻi epilepsy e ola hauʻoli a hoʻokō i nā wā kamaliʻi me ka ʻole o ka hoʻopilikia nui ʻana i ko lākou ola o kēlā me kēia lā. ʻAʻole ʻoe hoʻokahi, e kiʻi i ke kōkua āu e pono ai.
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