Ke haka pono wale nei kāu keiki iā ʻoe? He 'Absence Seizure' paha ia! E kamaʻilio kāua?

Ua ʻike anei ʻoe i kāu keiki liʻiliʻi e nānā koke mai ana iā ʻoe ma hope o ka pāʻani ʻana a i ʻole ka hoʻolohe ʻana i kahi mea āu e ʻōlelo nei? Me he mea lā ʻaʻole ʻo ia ma kēia ao. ʻAʻole ʻo ia e pane mai iā ʻoe ke kamaʻilio ʻoe me ia. Ma hope o kekahi mau kekona, ua hoʻi ʻo ia i ka maʻamau. Manaʻo paha ʻoe, "Auē, ua nalowale wale ʻo ia i loko o ka honua moeʻuhane." Akā i kekahi manawa, ʻaʻole ia he maʻalahi e like me kā mākou e manaʻo nei. He ʻano paha kēia i kapa ʻia he absence seizure .

He aha kēia 'Absence Seizure'? I ka ʻōlelo maʻalahi loa...

ʻO ka maʻi ʻeha, i ʻike ʻia hoʻi he petit mal seizure, he ʻano pōkole loa ia e like me ka maʻi ʻeha. Hana ia i ka wā ʻaʻole ʻoe i ʻike iki i kou wahi e puni ana. No ka laʻana, ke hana nei ʻoe i kekahi mea, ke kamaʻilio nei me kekahi, a i ʻole e hoʻolohe ana i kekahi mea, a laila kū koke ʻoe . Hoʻomaka ia me ka ʻole o ka ʻōlelo aʻo , ʻo ka maʻamau he ʻekolu a ʻumikūmālima kekona. A laila hoʻomau ʻoe i kahi āu i haʻalele ai, me he mea lā ʻaʻohe mea i hana ʻia.

I kēia manawa, inā ʻike kekahi mea ʻike ʻole i kēia, manaʻo paha lākou e moeʻuhane ana ʻoe, a i ʻole aia kou manaʻo ma kahi ʻē aʻe, a i ʻole ʻoe e hoʻolohe ʻole ana i ka mea e ʻōlelo ʻia nei. Akā ʻo ka mea e hana nei, he hopu liʻiliʻi i loko o kou lolo, he ʻano like me ka hopu ʻana. ʻO kēia 'Absence Seizure' he ʻano hopu maʻamau . ʻElua ʻano o kēia, "maʻamau" a me "ʻaʻohe maʻi". ʻO ka mea maikaʻi loa, hiki i ke kauka ke kōkua i ka hoʻomalu ʻana i kēia ʻano me ka lāʻau lapaʻau.

Pehea ka maʻamau o nā maʻi hoʻomaha? ʻO wai ka mea e loaʻa pinepine ai iā lākou?

Ma ke ʻano helu, ua manaʻo ʻia ma waena o ʻeono a me ʻewalu o kēlā me kēia 100,000 mau keiki ma lalo o 15 mau makahiki e loaʻa i kēia 'absence seizure' i kēlā me kēia makahiki. Eia naʻe, ʻaʻole ia he mea maʻamau i waena o nā pākeke. ʻIke pinepine ʻia ia i waena o nā keiki ʻōpio.

He aha nā hōʻailona o kēia maʻi? Pehea ʻoe e ʻike ai?

ʻO nā hōʻailona o ka loaʻa ʻana o ka absence:

• I ka manawa koke, no kekahi manawa pōkole, haka pono ʻoe, e like me ka "haka hakahaka."
• Ke nalowale nei koʻu ʻike i nā mea e hana nei a puni iaʻu.
• Ua pau loa nā mea āu i hana ai i kou wā ma ke ʻoki Caesarean (e like me ke kamaʻilio ʻana a me ka hele wāwae).
• I kekahi manawa aia paha ka ʻimo ʻana o ka maka, ke kīloi ʻana o ke poʻo, a i ʻole nā ​​neʻe ʻana o nā lima a i ʻole ka waha me ka makemake ʻole (e like me ke kuʻi ʻana i nā lehelehe). Kāhea mākou i kēia mau "neʻe ʻakomi".

Ma hope o ka pau ʻana o ka hana a Kaisara:

• Hiki iā ʻoe ke hana hou i kāu mea i waiho ai.
• Manaʻo paha ʻoe ua nele ʻoe i nā mea e hana nei a puni ʻoe.
• I kekahi manawa, ʻaʻole paha ʻoe e ʻike i kekahi mea i hana ʻia., Manaʻo wau e noʻonoʻo pono ana au a me ka ʻuhane maikaʻi.

Hiki ke ʻike ʻia kēia mau hōʻailona i nā manawa he nui i ka lā, a i ʻole hiki ke loaʻa pinepine ʻole, e like me hoʻokahi manawa i kēlā me kēia mau pule a i ʻole nā ​​​​mahina.

Ua ʻike anei ʻoe i ka wā o ka maʻi kuʻi (dissection seizure)?

ʻAʻole. ʻAʻole ʻoe i ʻike i ka wā o ka loaʻa ʻana o ka maʻi hopu. Ma muli o ka loaʻa ʻana o nā hōʻailona i loko o kekahi mau kekona, hiki i kēia hoʻopilikia manawa pōkole ke hoʻopilikia a ʻaʻole paha i ke kamaʻilio ʻana a i ʻole ka hana āu e hana nei. A laila hiki iā ʻoe ke hoʻi i ia mea ke pau ka loaʻa ʻana o ka maʻi hopu.

Eia nō naʻe, inā loaʻa iā ʻoe ʻelua a ʻoi aku paha mau hopu ʻana i ka lālani, hiki iā ʻoe ke huikau a hoʻopilikia ʻia e nā mea ʻē aʻe a puni ʻoe. No ka laʻana, hiki iā ʻoe ke poina i nā kuhikuhi mai kāu kumu a i ʻole kekahi mea a kekahi i ʻōlelo ai i loko o kahi kamaʻilio ʻana i kou wā e loaʻa ana i kahi hopu ʻana.

ʻEhia ka lōʻihi o kēia Kaisara?

ʻO ka maʻamau, ʻo ka "maʻi hoʻokahe maʻamau" ke mau nei mai ʻekolu a ʻumikūmālima kekona (``3-15 kekona``). Hiki i ka "maʻi hoʻokahe atypical" ke mau no ka manawa lōʻihi.

No ke aha e loaʻa ai nā maʻi ʻeha? He aha ke kumu?

I ka ʻōlelo maʻalahi, ua hana ʻia ia e ka pahū koke ʻana o ka hana uila mai nā neurons i loko o kou lolo . Loaʻa i kēia mau neurons nā kuhikuhi hewa a hoʻouna i nā hōʻailona uila he nui i nā ʻāpana like ʻole o ka lolo.

Manaʻo nā kānaka noiʻi aia paha kahi ʻāpana genetic i kēia maʻi. Ke hoʻomau nei ka noiʻi ʻana i ke ʻano o ka hoʻoili ʻia ʻana o ke ʻano mai kēlā hanauna a i kēia hanauna a me nā genes kikoʻī e pili ana.

He aha nā mea hoʻoulu no kēia kūlana?

ʻO nā mea hoʻonāukiuki nā mea i kou wahi e hiki ai ke hoʻoulu i kēia mau hōʻailona. Hiki i nā mea e like me kēia ke kōkua i ka loaʻa ʻana o kahi maʻi ʻeha:

• Nā kukui ʻālohilohi a ʻālohilohi.
• Ka hanu nui ʻana a me ka hohonu (hyperventilating) .

ʻO wai ka mea i ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i kēia?

Aia paha ʻoe i ka pilikia kiʻekiʻe o ka loaʻa ʻana o kahi absence seizure inā ʻoe:

• ʻO ka loaʻa ʻana o kekahi ʻano hopu ʻana (e like me "grand mal seizures", "myoclonus", a i ʻole "atonic seizures").
• ʻO kekahi mau lāʻau lapaʻau hopu (e like me ka phenytoin, carbamazepine, a me gabapentin) hiki ke hoʻonui i ka pilikia o nā hopu ʻana.

Nā mea e pono ai ʻoe e ʻike e pili ana i nā maʻi ʻōpū i nā keiki

ʻOiai hiki ke loaʻa nā ʻōhū ʻana i kēlā me kēia makahiki, ʻoi aku ka maʻamau o ia mau mea i nā keiki ʻōpio. Hoʻomaka pinepine lākou ma waena o nā makahiki 3 a me 13, me ka nui o ka hanana ma kahi o 6-7 mau makahiki.

He mea weliweli anei ka loaʻa ʻana o ka maʻi ʻaʻohe?

"ʻO ka maʻamau, ʻaʻole kēia he mea weliweli."

ʻO kēia no ka mea he pōkole pinepine lākou, a he kakaikahi nā haʻalulu. No ka laʻana, inā loaʻa iā ʻoe kahi haʻalulu absence i kou kū ʻana, ʻaʻole paha ʻoe e hāʻule i ka honua. Akā, e noho ʻoe ma kou wahi no kekahi mau kekona.

He aha nā pilikia e hiki ai i kēia ke hana?

Ma muli o ke ʻano o ka hopu ʻana o ka absence i loaʻa iā ʻoe a me ka pinepine o kona hana ʻana, hiki i kēia mau mea ke hana:

• He paʻakikī ke noʻonoʻo pono.
• Ka paʻakikī i ka hahai ʻana i nā kuhikuhi.
• Ke paʻakikī nei ke aʻo ʻana ma ke kula.
• Hiki mai nā ʻeha ulia pōpilikia.

Eia kekahi, ʻo nā hana e pono ai ka nānā piha - e like me ka hoʻokele kaʻa, ka ʻauʻau ʻana, a me ka hele wāwae - ʻaʻole paha e palekana a hiki i ka wā e kaohi ʻia ai ke kūlana. E kuhikuhi kāu kauka i ka lāʻau lapaʻau e kaohi i kāu mau hōʻailona, ​​a hiki iā ʻoe ke hana i kēia mau hana me ka palekana. E aʻo pū kāu kauka iā ʻoe pehea e noho palekana ai inā loaʻa iā ʻoe kēia kūlana.

Pehea e ʻike pololei ai ke kauka i kahi maʻi ʻōpū?

E ʻike ke kauka i kahi maʻi ʻeha ma hope o ka hoʻokolokolo kino a me nā hoʻokolohua ʻē aʻe. I ka wā o ka hoʻokolokolo, e nīnau kāu kauka iā ʻoe e pili ana i kāu mau hōʻailona. He mea nui e hoʻomanaʻo i nā hōʻailona āu e ʻike nei a me nā mea i hana ʻia ma mua, i ka wā, a ma hope o ka maʻi ʻeha. Inā hana ʻia kēia mau hanana ma ke kula a i ʻole ka hana, e kamaʻilio me kekahi āu e noho pū ai me ka manawa nui a nīnau inā ua ʻike lākou i kekahi ʻano ʻē.

Hiki iā ʻoe ke hana i nā hoʻokolohua penei:

• Hoʻāʻo Hyperventilation: ʻO ka hanu nui ʻana (hyperventilating) hiki ke hoʻoulu i kahi ʻōhū absence. E noi aku ke kauka iā ʻoe a i ʻole kāu keiki e puhi mau ma kahi ʻāpana pepa a i ʻole kahi chime makani pāʻani no kahi o ʻelua mau minuke.
• Hoʻāʻo EEG (electroencephalogram): Ma kēia hoʻāʻo, kau ʻia nā mea ʻike ma ka ʻili o kou poʻo a nānā ʻia ka hana uila i loko o kou lolo. ʻIke ʻia nā hopu ʻana o ka lolo e kahi ʻano nalu lolo kikoʻī.
• MRI (magnetic resonance imaging) a i ʻole CT scan (computed tomography scan): Ke nānā nei kēia mau hoʻokolohua kiʻi i nā mea ʻino i loko o ka lolo e hiki ai ke hoʻoulu i ka hopu ʻana.
• Nā hoʻāʻo koko a me ka mimi: Hiki i kāu kauka ke kauoha i kēia mau hoʻāʻo e ʻike inā aia kekahi maʻi olakino ʻē aʻe e hoʻoulu ai i ka hopu ʻana.

I ka manawa pinepine, ʻo ka poʻe i ʻike ʻole e loaʻa ana iā ʻoe kahi maʻi ʻōpū e kuhihewa paha he hana hoʻopunipuni a he moeʻuhane paha. No nā mea he nui, hiki i kēia kuhihewa ke alakaʻi i ka lohi o ka ʻike ʻana.

He aha ka ʻokoʻa ma waena o nā hopu ʻana o ka maʻi "Typical" a me "Atypical"?

Aia ʻelua ʻano o ka maʻi ʻaʻohe hopena: 'typical' a me 'atypical'.

• I loko o kahi maʻi kuʻi maʻamau, ʻo ka mea wale nō e hana ʻia, ʻo ia kou haka pono ʻana a nalowale ka ʻike.
• I nā maʻi ʻeha ʻole maʻamau, ʻike paha ʻoe i nā ʻano kino ʻē aʻe, e like me ka haka pono ʻana a me ka nalowale ʻana o ka ʻike, a me ka ʻālohilohi ʻana o nā maka a me ka haʻalulu ʻana o ka lima. ʻOi aku ka lōʻihi o kēia mau mea ma mua o nā mea maʻamau. Hoʻopili pinepine ʻia nā maʻi ʻeha ʻole maʻamau me nā ʻano maʻi ʻē aʻe a ʻoi aku ka nui o ka hoʻopilikia ʻana i nā keiki me nā pilikia aʻo a me ka maʻi epilepsy koʻikoʻi.

He aha nā lāʻau lapaʻau no kēia?

Hoʻōla ʻia nā maʻi ʻeha me nā lāʻau antiseizure . E loiloi kāu kauka i kāu mau hōʻailona a paipai i kahi lāʻau kūpono iā ʻoe.

I kekahi mau hihia, inā ʻaʻole ʻoe e pane maikaʻi i ka lāʻau lapaʻau, hiki i kāu kauka ke ʻōlelo aku i kahi papaʻai ketogenic . He papaʻai momona kiʻekiʻe kēia, haʻahaʻa-carb. ʻOiai he kakaikahi nā hōʻike lapaʻau e kākoʻo i nā pono o kēia ʻano papaʻai no kēia ʻano maʻi kanesa, he mea kōkua paha ia no kekahi poʻe.

Inā ʻaʻole hiki ke kaohi ʻia nā hōʻailona me nā lāʻau lapaʻau a me nā loli o ke ʻano o ka nohona, hiki i ke kauka ke noʻonoʻo i ke ʻoki kino .

Nā lāʻau lapaʻau i hāʻawi ʻia

Hiki i ke kauka ke kuhikuhi i kekahi o kēia mau lāʻau lapaʻau e mālama ai i nā maʻi ʻōpū:

• ʻEthosuximide (Zarontin ®)
• ʻO Lamotrigine (Lamictal ®)
• ʻO Topiramate (Topamax ®)
• ʻO Valproate (Depakene ®)

ʻAʻole hoʻohana pinepine ʻia kekahi mau lāʻau anticonvulsant - no ka laʻana, phenytoin, carbamazepine, gabapentin, pregabalin, a me vigabatrin - e mālama i nā maʻi ʻeha. Hiki iā lākou ke hoʻonui i ka maʻi ʻeha.

E hōʻoia e hoʻomaopopo i kāu kauka inā e ʻoi aku ka ʻino o kāu mau hōʻailona a i ʻole inā loaʻa iā ʻoe kekahi mau hopena ʻaoʻao mai kāu lāʻau lapaʻau. Hiki iā ʻoe ke loaʻa ka hōʻoluʻolu ma ka hoʻololi ʻana i ka nui o ka lāʻau a i ʻole ke hoʻololi ʻana i kahi lāʻau lapaʻau ʻē aʻe.

ʻO wai ka hui lapaʻau e kōkua ana iā ʻoe?

E kōkua kahi hui o nā loea iā ʻoe e hoʻokele i kāu mau maʻi ʻeha. Hiki i kēia hui ke komo pū me:

• Nā kauka lolo
• Nā kauka ʻohana (Nā kauka mālama mua - PCP)
• Nā mea lapaʻau meaʻai
• Nā loea olakino noʻonoʻo

Hiki ke pale ʻia nā maʻi ʻōpū?

ʻO ka mea pōʻino, ʻaʻohe ala e pale aku ai i nā maʻi ʻaʻohe ma kahi mua. ʻO ke kumu nui o kēia o nā kumu genetic. Eia nō naʻe, i ka wā e ʻike ʻia ai, ʻo ke ala maikaʻi loa e pale aku ai i nā maʻi ʻaʻohe, ʻo ia ka lawe ʻana i kāu lāʻau lapaʻau e like me ke kauoha a e noho pili loa me kāu kauka.

He aha ka mea e manaʻo ai kekahi me ka maʻi absence seizure?

ʻOiai he pōkole ko lākou ola, he mea hoʻopilikia loa nā maʻi ʻeha. Loaʻa paha iā ʻoe i nā manawa pinepine ʻole. Hōʻike kekahi poʻe he 10 a 30 mau maʻi ʻeha i ka lā. I kekahi manawa, ʻoi aku hoʻi i nā keiki, hiki ke loaʻa nā haneli o nā maʻi ʻeha i ka lā. Hiki iā lākou ke hoʻopilikia i kou hiki ke aʻo a noʻonoʻo i kahi hana. Eia nō naʻe, aia nā koho lapaʻau maikaʻi, a hiki i nā lāʻau lapaʻau ke hoʻomalu pono i nā hōʻailona.

He nui nā keiki e ulu aʻe ma mua o ko lākou mau maʻi ʻaʻohe maʻi i ka wā ʻōpio. ʻOi aku hoʻi, ʻo nā keiki i loaʻa wale i nā maʻi ʻaʻohe maʻi ʻē aʻe a ʻaʻohe ʻano maʻi ʻē aʻe, ʻoi aku ka nui o ka ulu ʻana ma mua o lākou.

Hiki i nā maʻi ʻeha ke loaʻa ka hopena nui i kou olakino noʻonoʻo, ka hilinaʻi iā ʻoe iho, a me ka manaʻo ponoʻī. He nui ka poʻe e ʻike he mea kōkua ke kamaʻilio me ke kākāʻōlelo olakino noʻonoʻo i ka wā e loaʻa ana nā lāʻau lapaʻau ʻē aʻe.

Pehea e ʻike pono ai iaʻu inā he moeʻuhane wale nō kaʻu keiki a i ʻole he maʻi ʻōpū (absense seizure)?

He nīnau koʻikoʻi loa kēia. ʻO kahi ala wikiwiki e ʻike ai inā e moeʻuhane ana kāu keiki, ʻo ia ke kamaʻilio me ia.

• Moeʻuhane: ʻO ka maʻamau, loaʻa mai ia mai ka luhi, a hoʻomaka mālie. Inā ʻoe e kamaʻilio me ia, e pane mai paha ʻo ia iā ʻoe.
• Ka Hopu ʻAʻohe: Inā loaʻa i kāu keiki kahi 'hopu ʻaʻohe', ʻaʻole hiki iā lākou ke pane aku iā ʻoe i ka wā o ka hopu ʻana. ʻO ko lākou nalowale ʻana o ka nānā he koke a ʻaʻole hiki ke hoʻōki.

E noʻonoʻo e pāʻani ana kāu keiki. Inā ʻoe e kāhea i ko lākou inoa a nānā lākou iā ʻoe a nīnau, "He aha ka pilikia, e Māmā/Pāpā?", he manaʻo wale nō paha ia. Eia nō naʻe, inā e hoʻomau lākou i ka haka pono ʻana iā ʻoe me ka pane ʻole ʻana ma hope o kou kāhea ʻana iā lākou i nā manawa he nui, he maʻi hoʻomaha paha ia.

He aha ka ʻokoʻa ma waena o ka Childhood Absence Epilepsy (CAE) a me kahi maʻi ʻeha maʻamau?

ʻO nā kumu nui e hoʻoholo ai inā ua hoʻokaʻawale ʻia kahi hopu ʻana o ka absence ma ke ʻano he Childhood Absence Epilepsy (CAE) :

• Makahiki o ka hoʻomaka ʻana: Hoʻomaka nā hōʻailona o CAE i ka wā kamaliʻi, ma waena o nā makahiki 3 a me 8.
• Ka hana hou ʻana o nā hōʻailona: Hiki ke hana pinepine ʻia nā hopu ʻana e kū mai ana me CAE, i nā manawa he nui i ka lā, i kekahi manawa a hiki i 200 mau manawa i ka lā.
• Nā ʻano o nā hōʻailona: Hoʻomaka koke nā hōʻailona CAE a mau no kekahi mau kekona.

Hiki ke loaʻa nā maʻi ʻeha me ka ʻole o ka ʻike mua ʻia ʻana o ka maʻi epilepsy. No ka laʻana, hiki ke loaʻa nā maʻi ʻeha i kēlā me kēia makahiki, ʻokoʻa ke alapine (frequency), a ʻaʻole paha e loaʻa ma ke ʻano kikoʻī.

I ka manawa hea e pono ai iaʻu ke ʻike i ke kauka?

Inā manaʻo ʻoe ke loaʻa nei iā ʻoe nā hōʻailona o ka maʻi ʻeha, e ʻike pono i ke kauka. ʻO ka maʻamau, ʻo ka mea āu e noho pū ai me ka manawa nui ka mea mua e ʻike i kēia mau hōʻailona, ​​​​no ka mea, ʻaʻole paha ʻoe e ʻike e hana nei lākou iā ʻoe.

Inā ua ʻike mua ke kauka iā ʻoe me nā maʻi ʻeha, e hoʻomaopopo i kāu kauka inā loaʻa iā ʻoe kekahi mau hōʻailona hou, inā e ʻoi aku ka ʻino o kāu mau hōʻailona, ​​​​a inā ʻike ʻoe i nā hopena ʻaoʻao mai kāu lāʻau lapaʻau.

He aha nā nīnau koʻikoʻi e nīnau aku ai i ke kauka?

Hiki paha iā ʻoe ke nīnau i kāu kauka i nā nīnau e like me kēia:

• No ke aha i loaʻa ai iaʻu/i kaʻu keiki kēia mau ʻehaʻeha?
• He aha nā hana palekana noʻu/kaʻu keiki e hana ai? He aha kaʻu e pale aku ai?
• Pehea lā e hiki ai iā kākou ke pale aku i kēia 'absence seizure' mai ka hanana ʻana i ka wā e hiki mai ana?
• He aha ke ʻano o ka lāʻau lapaʻau āu e paipai nei?
• Aia kekahi mau hopena ʻaoʻao mai ka lāʻau lapaʻau?

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

Hiki ke huikau a hoʻonāukiuki ka noho ʻana me nā hōʻailona o ka maʻi ʻeha haʻalele. ʻOiai ʻaʻole hiki iā ʻoe ke wānana i ka wā e hiki mai ai lākou, hiki iā lākou ke lawe koke iā ʻoe mai nā mea āu e hana nei. E noʻonoʻo, ke hoʻolohe nei ʻoe i kahi ʻakaʻaka a loaʻa kahi maʻi ʻeha ma mua o kou hiki ke ʻōlelo i ka pane kūpono... Ke ala ʻoe, ke ʻakaʻaka nei nā mea a puni ʻoe, akā ʻaʻole hiki iā ʻoe ke ʻike i ke kumu.

He pōkole ke ola o nā hopu ʻana o ka absence, akā hiki ke hana pinepine ʻia a hiki i nā haneli i ka lā. Akā , mai hopohopo. Hiki i ke kauka ke kōkua iā ʻoe e hoʻokele i kēia ʻano hopu. Hiki i nā lāʻau antiseizure ke hōʻemi i nā hōʻailona. E ʻae kēia iā ʻoe e noho mākaukau a pili i ke ao a puni ʻoe i nā manawa a pau.

Inā loaʻa iā ʻoe kekahi kānalua iki ua loaʻa iā ʻoe a i ʻole kāu keiki kekahi o kēia mau hōʻailona, ​​e ʻoluʻolu e ʻimi i ke kōkua lapaʻau. Hiki i ka ʻike mua ʻana a me ka mālama kūpono ke maʻalahi i ke ola.

ʻōʻō ʻole , petit mal, hopu ʻana, hopu ʻana, pediatrics, hana uila o ka lolo, EEG, maʻi epilepsy