ʻO nā mea e pono ai ʻoe e ʻike e pili ana i ka Adenoid Cystic Carcinoma (ACC)

Inā ʻike ʻoe i kahi mea ʻē e like me kahi puʻupuʻu ma kekahi wahi o kou kino, ʻoiai inā ʻaʻole ia e ʻeha, he mea maʻamau ke manaʻo iki i ka makaʻu a i ʻole ka hoihoi, ʻeā? A i ʻole inā e hoʻomau ana kekahi mea e like me ka loli o kou leo ​​a i ʻole ka paʻakikī i ka moni ʻana, hopohopo iki mākou. I ia mau manawa, he mea nui loa ka makaʻala i kēia ʻano maʻi kanesa kakaʻikahi a mākou e kamaʻilio nei i kēia lā i kapa ʻia ʻo adenoid cystic carcinoma, a i ʻole "ACC" no ka pōkole.

He aha ka adenoid cystic carcinoma (ACC)? E hoʻomaopopo maʻalahi kākou!

I ka ʻōlelo maʻalahi, he ʻano maʻi ʻokoʻa loa ka Adenoid Cystic Carcinoma, ʻo ia hoʻi, he ʻano maʻi ʻaʻai kakaʻikahi. Hoʻomohala pinepine ia i loko o kā mākou mau kelepa salivary a i ʻole ma nā wahi e like me ke poʻo a me ka ʻāʻī. Eia nō naʻe, i kekahi manawa hiki ke ulu i nā wahi ʻē aʻe o ke kino, no ka laʻana, i loko o ka ʻili, ka ʻiʻo umauma, ka cervix, a i ʻole ka prostate gland.

Aia kēia mau puʻupuʻu "(ACC)", hiki iā lākou ke paʻa, poepoe, hakahaka. Hiki iā lākou ke loaʻa kahi ʻano lua, e like me kēlā "Swiss cheese" . E noʻonoʻo, ʻokoʻa iki ke ʻano o kēia mau hunaola kanesa.

Hoʻoulu pinepine kēia mau puʻupuʻu ACC i ka lohi . ʻO ia hoʻi, ʻaʻole lākou e ulu nui i ka manawa hoʻokahi. Eia nō naʻe, i ka hala ʻana o ka manawa, hiki iā lākou ke lilo i mea huhū loa a hana i mea hiki ʻole ke wānana ʻia. ʻO ia hoʻi, inā e wehe ʻia ke kanesa me ke ʻoki ʻana, ʻoi aku ka nui o ka hiki ke hoʻi hou mai ma hope. ʻO ka ʻoiaʻiʻo, he nui ka poʻe me ka adenoid cystic carcinoma e loaʻa hou ana i loko o ʻelima a ʻumi mau makahiki. ʻO ia ke kumu, inā ua ʻike ʻia ʻoe me kēia maʻi, he mea nui e hoʻomau i nā scans a me nā nānā ʻana e nānā i kou kūlana.

Pehea ka maʻamau o kēia kūlana? Pono anei au e hopohopo?

ʻO ka ʻoiaʻiʻo, he ʻano maʻi kanesa kakaikahi loa ka adenoid cystic carcinoma. He 1% ia o nā maʻi kanesa āpau o ke poʻo a me ka ʻāʻī. Hoʻopilikia ia ma kahi o 4.5 no 100,000 poʻe o ka heluna kanaka. No ka laʻana, ma ʻAmelika Hui Pū ʻIa, ua ʻike ʻia he 1,200 poʻe me kēia maʻi i kēlā me kēia makahiki.

ʻO ka hapa pinepine, ulu ka ACC i nā kānaka ma waena o 40 a me 60 mau makahiki. ʻOi aku ka maʻamau o kēia ʻano i nā wahine. No laila, e like me kāu e ʻike ai, ʻaʻole ia he mea maʻamau loa.

He aha nā hōʻailona o kēia? Loaʻa iaʻu kēia mau mea pū kekahi?

ʻOkoʻa nā hōʻailona o ka adenoid cystic carcinoma ma muli o ka nui o ka puʻupuʻu a me kona wahi . Hiki iā ʻoe ke ʻike i kēia mau mea:

• He puʻupuʻu ʻeha ʻole ma kekahi wahi o ke kino.
• Paʻakikī ka hanu ʻana.
• Paʻakikī ke ale ʻana.
• Ka leo haʻalulu.
• Ka nāwaliwali o nā ʻiʻo.
• Paʻa ka ihu.
• Kahe ke koko o ka ihu.
• ʻEha (i kekahi mau hihia).
• Nā loli o ka ʻike.

Akā e hoʻomanaʻo, no ka mea, he maʻi kanesa lohi ka ulu ʻana o ACC, ʻaʻole ia e hōʻike mau i nā hōʻailona . Hiki iā ia ke kū me ka ʻole o nā hōʻailona. No laila he mea nui e ʻimi i ka ʻōlelo aʻoaʻo lapaʻau inā ʻike ʻoe i kekahi mea ʻē.

No ke aha e hana ʻia ai kēia? He aha nā kumu?

ʻO kaʻoiaʻiʻo, ʻaʻole maopopo i nā loea ke kumu o ka adenoid cystic carcinoma . Manaʻo lākou he kumu ia e kekahi mau hoʻololi genetic e kū mai ana i ka hala ʻana o ka manawa. ʻO ka mea nui, ʻaʻole ʻo ACC kahi maʻi hoʻoilina , a ʻaʻohe kumu pilikia i ʻike ʻia no ia mea. ʻO ia hoʻi, ʻaʻole pono ʻoe e hopohopo e pili ana i ka "ʻO kēia anei kaʻu i hana ai i hoʻokumu ai i kēia?"

He aha nā pilikia e hiki ke loaʻa mai ka ACC?

Hiki i ka adenoid cystic carcinoma ke laha (metastasize) ma ke kino holoʻokoʻa ma nā ʻano nui ʻelua. He mea kēia e hopohopo ai.

1. Ke komo ʻana o ka perineural: I nā hihia he nui o ka ACC, hoʻouka nā hunaola kanesa i nā olonā nerve e hoʻopuni ana i ka puʻupuʻu. Hana malū kēia a hiki ke paʻakikī i nā kauka ke ʻike, ʻoiai me nā scan a i ʻole i ka wā o ke ʻoki ʻana.

2. Hohola ma ke kahe koko: Hiki i nā hunaola kanesa e hemo ana mai kahi puʻupuʻu ke hele i nā ʻāpana ʻē aʻe o ke kino ma o kou kahe koko.

ʻO kēia ʻano adenoid cystic carcinoma, ʻo ia hoʻi ke kahua 4 , e laha pinepine ana i nā māmā a me ke akepaʻa . ʻAʻole e like me nā ʻano maʻi ʻē aʻe, ʻaʻole laha pinepine ʻo ACC i nā lymph nodes. Eia nō naʻe, hiki ke hana ʻia ma 5% a 10% o nā hihia.

Pehea e ʻike ʻia ai kēia maʻi? (Diagnosis)

Inā kānalua kāu kauka he adenoid cystic carcinoma paha kou, e hana paha ʻo ia i kahi biopsy . ʻO ia hoʻi ke lawe ʻana i kahi hāpana liʻiliʻi o kou ʻiʻo a hoʻouna iā ia i kahi lab no ka hoʻāʻo ʻana. Hiki i ke kauka ke hana i hoʻokahi a ʻoi aku paha mau hoʻokolohua kiʻi, e like me:

• Nā scan CT (nā scan tomography i helu ʻia)
• MRI (kiʻi hoʻohuihui magnetic)
• Nā scan PET (nā scan tomography hoʻokuʻu positron)
• Ultrasound

No ka mea he maʻi laha ʻole ka ACC, hiki ke lōʻihi ka manawa e ʻike ai i ka maʻi . Hiki ke lōʻihi i kekahi mau hoʻāʻo ma mua o ka loaʻa ʻana o kahi hōʻailona a hoʻomaka i ka mālama ʻana. No laila, he mea nui e hoʻomanawanui a mai hopohopo.

He aha nā lāʻau lapaʻau no ka ACC?

ʻO ka mālama ʻana no ka adenoid cystic carcinoma e pili ana i kahi o ke kanesa a inā ua pālahalaha . Aia kekahi mau koho lapaʻau nui:

• ʻO ke ʻoki kino:ʻO ke ʻoki kino ke ʻano lapaʻau mua no ka adenoid cystic carcinoma. ʻO ka pahuhopu ka wehe ʻana i ka nui o ka puʻupuʻu e like me ka hiki. I kekahi mau hihia, pono paha i kāu kauka lapaʻau ke wehe i nā lymph nodes a i ʻole kekahi ʻāpana o ke aʻalolo.
• Lapaʻau radiation: Kōkua kēia i ka pepehi ʻana i nā hunaola kanesa i koe ma hope o ke ʻoki ʻana. A i ʻole, hiki ke hāʻawi ʻia ka radiation therapy ma ke ʻano he lāʻau hoʻokahi.
• Chemotherapy: Hoʻohana ʻia nā lāʻau lapaʻau e like me cisplatin, vinorelbine, paclitaxel, a me carboplatin e mālama i nā kūlana holomua a metastatic paha (ACC).
• Lapaʻau i kuhikuhi ʻia: ʻO nā lāʻau lapaʻau e like me ka lenvatinib a me ka sunitinib e ālai i ka hana o nā protein e kōkua i ka ulu ʻana o ka maʻi kanesa. Hoʻohana nā kauka i kēia mau lāʻau lapaʻau i kuhikuhi ʻia i nā hihia o ka ACC holomua a laha paha.

Aia kekahi ala e pale aku ai i kēia?

No ka mea, ʻaʻohe kumu pilikia i ʻike ʻia no (ACC), ʻaʻohe ala e hōʻemi ai i kou pilikia i kēia manawa . Eia kekahi, ʻaʻohe ala e pale aku ai i ka ulu hou ʻana o (ACC). He mea paʻakikī iki kēia, akā ʻo ia ke ʻano i kēia manawa.

He aha ka manaʻo no ACC? (Outlook)

He kanesa lohi ka ulu ʻana o ka adenoid cystic carcinoma. Ma muli o kēia, hiki i nā kauka ke ʻike mua iā ia a mālama pono iā ia. Eia nō naʻe, e like me kā mākou i ʻōlelo ai ma mua, he mea maʻamau no ka ACC ke hoʻi hou ma hope o nā makahiki he nui - hiki ke noho ma kahi like me ia ma mua, a i ʻole hiki ke noho ma kahi ʻāpana ʻē aʻe o ke kino. Ke hana ia, hiki ke paʻakikī ke mālama.

E aʻo kākou e pili ana i nā helu ola.

ʻO ka nui o ke ola ʻana o ʻelima makahiki no ka poʻe me ka adenoid cystic carcinoma he 80.4% . ʻO ke ʻano kēia he 80.4% o ka poʻe me ke ʻano e ola mau ana ma hope o ʻelima mau makahiki. ʻO ka nui o ke ola ʻana o 10 makahiki he 61.3% .

E hoʻomanaʻo, he mau kuhi wale nō kēia mau helu ola. ʻAʻole lākou e haʻi pololei iā ʻoe i ka lōʻihi o kou ola ʻana a i ʻole pehea ʻoe e pane ai i ka lāʻau lapaʻau. ʻOi aku ka maikaʻi o ke kamaʻilio ʻana me kāu kauka no ka ʻike hou aku.

Pehea wau e mālama ai iaʻu iho? He mea nui loa ke olakino noʻonoʻo!

No ka mea he maʻi kakaikahi ka ACC, hiki ke lōʻihi ka manawa e loaʻa ai kahi hōʻailona. Hiki iā ia ke hoʻopilikia maoli i kou olakino noʻonoʻo a me kou naʻau . No laila, ʻo ke kamaʻilio ʻana me ke kākāʻōlelo a mea hoʻoponopono paha e hiki ke kōkua iā ʻoe e hana ma o nā manaʻo paʻakikī āu e loaʻa nei. He nui ka poʻe e ʻike he kōkua nā hui kākoʻo.Hiki iā ʻoe ke loaʻa ka hoʻomaha mai ke kaumaha ma o ke mele a i ʻole nā ​​papa hana noʻeau. E ho'āʻo e hōʻemi i ke kaumaha ma o nā hoʻomaʻamaʻa noʻonoʻo, e like me ka noʻonoʻo ʻana .

Āhea ʻoe e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe ka adenoid cystic carcinoma, e haʻi koke i kāu kauka inā loaʻa iā ʻoe nā hōʻailona hou a i ʻole inā e ʻoi aku ka ʻino o kāu mau hōʻailona . ʻO ka loli ʻana o nā hōʻailona ke ʻano o ka ulu ʻana o kāu kanesa. No laila, mai hoʻowahāwahā i kekahi mea, ʻoiai he mea liʻiliʻi.

He aha nā nīnau koʻikoʻi e nīnau aku ai i ke kauka?

Eia kekahi mau nīnau hiki iā ʻoe ke nīnau i kāu kauka e pili ana iā ACC:

• Aia i hea ka puʻupuʻu kanesa?
• He aha nā hōʻailona e hiki iaʻu ke ʻike?
• Ua laha anei ke kanesa i nā ʻāpana ʻē aʻe o koʻu kino?
• Hiki ke wehe ʻia ke puʻupuʻu me ke ʻoki ʻana?
• E pono anei iaʻu ka lāʻau lapaʻau radiation?
• Hiki iaʻu ke hele i ka hana i ka wā e mālama ʻia ai ka maʻi kanesa?
• ʻEhia ka lōʻihi o ka mālama ʻana?

Mai makaʻu e nīnau i nā nīnau e like me kēia. He mea nui loa e kamaʻilio me kāu kauka e pili ana i nā mea āpau i kou manaʻo.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

He mea hoʻololi ola ka loaʻa ʻana o kahi hōʻailona o ka adenoid cystic carcinoma. Hoʻomaka pinepine ka mālama mua ʻana . Eia nō naʻe, hiki ke paʻakikī ke hoʻoponopono i ka maopopo ʻole e hele pū me ia. Pono ka manawa e aʻo ai e noho me ka adenoid cystic carcinoma.

ʻO ka mea nui loa, ʻo ia ka ʻike ʻaʻole ʻoe hoʻokahi. E noʻonoʻo e hui pū me kahi hui kākoʻo kahi e hiki ai iā ʻoe ke kamaʻilio me nā poʻe i loaʻa i nā mea like me ʻoe. Aia mau kāu kauka no ʻoe. E hilinaʻi iā lākou a noi i nā kumuwaiwai a me ke kōkua āu e pono ai. Ma ka loaʻa ʻana o nā nānā mau ʻana a me ka hahai ʻana i kā lākou ʻōlelo aʻoaʻo, hiki iā ʻoe ke holomua me kēia maʻi.

ʻO ka maʻi kanesa adenoid cystic, ACC, maʻi kanesa, maʻi kanesa poʻo a me ka ʻāʻī, maʻi kanesa salivary gland, nā hōʻailona maʻi kanesa, ka mālama ʻana i ka maʻi kanesa