He paʻakikī anei i kāu keiki liʻiliʻi ke kū i ka ʻōpala? E kamaʻilio kākou e pili ana i ka Anorectal Malformation!

Makemake nui mākou i nā mea āpau e pili ana i kā mākou pēpē hānau hou, ʻeā? ʻO nā mea nui loa, inā paha e hānai pono ana ka pēpē i ka waiū umauma, e hiamoe maikaʻi ana, a e ʻō ana i ka manawa kūpono. No laila, inā paʻakikī kāu pēpē i ka ʻō ʻana, a inā ʻaʻole ʻo ia e ʻō no kekahi mau lā, he mea maʻamau iā ʻoe ma ke ʻano he makuahine ke hopohopo nui. I kekahi manawa ʻo ke kumu o kēia he kīnā i ka anus a me ka rectum i loaʻa i ka wā hānau. I kēia lā e kamaʻilio mākou e pili ana i kekahi ʻano maʻi, ʻo ia hoʻi, (Anorectal Malformation).

He aha kēia kīnā hānau o ka anus a me ka rectum (Anorectal Malformation)?

I ka ʻōlelo maʻalahi, ʻo ka "(Anorectal Malformation)" ʻo ia ka wā ʻaʻole i hana pono ʻia ka anus a me ka rectum o ke pēpē i ko lākou ulu ʻana i loko o ka ʻōpū. Ua ʻike anei ʻoe ʻo ka anus a me ka rectum nā ʻāpana hope ʻelua o kā mākou ʻōnaehana hoʻoheheʻe?

E noʻonoʻo i kēia: Hiki i kekahi mau pēpē me kēia maʻi ke loaʻa kahi anus haiki loa, a ʻaʻohe paha o lākou anus. Hiki i kekahi ke loaʻa kahi ʻiʻo e uhi ana i ka anus a i ʻole ka rectum. Eia kekahi, i kekahi manawa ua pili pono ʻole ka anus o ke pēpē i nā ʻāpana ʻē aʻe o ke kino.

He mea maopopo ke manaʻo nui i ka makaʻu a me ka hopohopo ke ʻike ʻoe ua loaʻa i kāu pēpē kēia maʻi. No ka mea, inā ʻaʻole mālama pono ʻia, hiki i ka pēpē ke loaʻa nā poloka ʻōpū. Hiki i kēia ke paʻakikī loa i ka neʻe ʻana o ka ʻōpū, a hiki ʻole paha. Akā ʻo ka mea maikaʻi loa, hiki ke mālama ʻia ka hapa nui o kēia mau maʻi me ke ʻoki ʻana ma hope koke iho o ka hānau ʻana o ka pēpē, maʻamau i loko o kekahi mau lā, a maikaʻi nā hopena.

He aha ka manaʻo o "Anus" a me "Rectum"?

ʻO ka huaʻōlelo "anorectal" he hui pū ʻana o nā huaʻōlelo "anus" a me "rectum. " ʻO kou rectum ka ʻāpana hope loa o kou ʻōpū nui, aia ma luna pono o kou anus. ʻO kou anus ka puka e puka aku ai nā feces i kou kino.

Ke hoʻokahe mākou, puka ka ʻōpala i waho o ke kino ma o ka anus. No laila, inā he pilikia me kēia anus a i ʻole ka rectum, hiki iā ia ke hana i nā pilikia me ka hoʻokahe ʻana.

Pehea ka maʻamau o kēia ʻano?

ʻO kēia mau kūlana, i kapa ʻia ʻo "Anorectal Malformations", he mea kākaʻikahi loa ia. ʻOiai ma kahi ʻāina e like me ʻAmelika, hoʻokahi wale nō i loko o 5,000 mau pēpē i hānau ʻia me kēia maʻi.

He aha nā hōʻailona o kahi kīnā hānau o ka anus a me ka rectum?

ʻIke pinepine ke kauka i kēia kūlana i ka nānā ʻana i kahi pēpē hānau hou. E ʻike paha ke kauka he haiki ka anus, a ʻaʻole paha i kau ʻia ka anus. A i ʻole aia ka puka anal o ke pēpē ma kahi ʻē ma kahi o kahi e pono ai.

Inā ʻaʻole ʻike mua ʻia kēia maʻi, hiki i ke keiki ke hōʻike i nā hōʻailona e like me:

• ʻAʻole hiki ke hoʻokahe i ka ʻōpū (constipation).
• Ke kahe ʻana o ka ʻōpala mai ka vagina o ke pēpē a i ʻole ka ʻōpala i ʻike ʻia i loko o ka mimi (i nā kaikamahine).
• Ke kahe nei ka mimi mai ka anus o ke pēpē.

Aia kekahi mau ʻano like ʻole o nā Anorectal Malformations?

ʻAe, aia kekahi mau ʻano nui o kēia maʻi. E nānā kākou i ke ʻano o lākou:

• Cloaca: ʻO kēia ka manawa e loaʻa ai ka puka like o ka urethra a me ka anus. (ʻIke wale ʻia kēia ʻano i nā kaikamahine)
• Nā Fistulas: ʻO kēia ka manawa e pili pono ʻole ai ka anus o ke pēpē i nā ʻāpana ʻē aʻe o ko lākou kino, e like me ka urethra, ka ʻōpū mimi, ka vagina, a i ʻole ka perineum (ka ʻili ma waena o ka anus a me nā genitals).
• Anus imperforate: He kūlana kēia kahi i pili ʻole ai ka anus a me ka rectum kekahi i kekahi. ʻO ia hoʻi, ʻaʻohe puka anal.

No ke aha e hiki ai kēia i nā kamaliʻi liʻiliʻi?

ʻAʻole maopopo i nā loea ke kumu o ka malformation anorectal, akā manaʻoʻiʻo kekahi poʻe e hiki i kekahi mau loli genetic e kū mai ana i ka wā hāpai ke kōkua i ke kūlana.

Hiki i nā keiki me kēia mau "Anorectal Malformations" ke hoʻomohala i nā pilikia olakino ʻē aʻe?

I kekahi manawa, ʻae. Hiki i nā keiki me kēia mau "Anorectal Malformations" ke loaʻa i nā pilikia olakino ʻē aʻe. Eia kekahi mau laʻana:

• Ke kūlana Down syndrome.
• Nā maʻi ʻē aʻe o ka ʻōnaehana hoʻoheheʻe (Gastrointestinal (GI) diseases).
• Kekahi mau maʻi iwi kuamoʻo.
• ʻO ka maʻi Townes-Brocks: He kūlana hoʻoilina kēia. I kēia kūlana, ʻaʻohe paha ka anus a i ʻole ua ālai loa ʻia (imperforate). Hiki ke ʻano ʻē ʻia nā lima a me nā pepeiao.
• Nā pilikia o ke ala mimi.
• ʻO ka maʻi VATER (hui VACTERL): He kūlana kēia e hoʻopilikia ai i kekahi mau ʻōnaehana i loko o ke kino. No ka laʻana, hiki ke hoʻopilikia ʻia ka iwi kuamoʻo, ka puʻuwai, ka ʻōnaehana hoʻoheheʻe ʻana, nā puʻupaʻa, a me nā lālā.

Pehea e ʻike pono ʻia ai kēia maʻi?

ʻO ka maʻamau, ʻike nā kauka i kēia kūlana ma o ka hoʻokolokolo kino. Eia kekahi, hiki ke hoʻohana ʻia kekahi mau hoʻokolohua kiʻi e hōʻoia hou a nānā i ke kūlana. ʻO kekahi o kēia mau hoʻokolohua:

• ʻEnema Barium: ʻO kēia hoʻāʻo e pili ana i ke kau ʻana i kahi wai i loko o ka rectum e uhi i loko o ke ala ʻai. ʻAe kēia i nā ʻōpū e ʻike maopopo ʻia ma kahi X-ray.
• Hoʻāʻo Barium ale / Esophagram: Ma kēia hoʻāʻo, ale ʻia kahi wai a ʻike maopopo ʻia nā ʻāpana o luna o ka ʻōnaehana hoʻoheheʻe me kahi X-ray.
• Nā scan CT:Hoʻohana ʻia nā kamepiula a me nā kukuna X e kiʻi i nā kiʻi o loko o ke kino.
• Nā MRI: E hoʻohana i nā magnet a me nā nalu lekiō e nānā i loko o ke kino.
• Nā Ultrasounds: E hoʻohana i nā nalu kani alapine kiʻekiʻe e nānā i nā ʻōpū o loko.
• Nā kukuna-X: E hoʻohana i kahi mahele haʻahaʻa o ka radiation e kiʻi i nā kiʻi o loko o ke kino.

Pehea e mālama ʻia ai kēia mau (Anorectal Malformations)?

Hoʻōla pinepine nā kauka i kēia kūlana me ke ʻoki kino . I kekahi manawa, hiki i kahi ʻoki kino hoʻokahi ke wehe i kahi ala i haiki a wehe paha i ka membrane e uhi ana i ka anus o ke pēpē. Hiki iā lākou ke hana i kahi ʻoki kino i kapa ʻia he anoplasty, kahi e hana hou ai i ka anus o ke pēpē.

I kēia manawa, e noʻonoʻo, inā loaʻa i kahi pēpē kahi maʻi "Imperforate anus", hana nā kauka ʻoki i kekahi mau ʻokiʻoki ma nā pae e hoʻopili ai i ka anus i ka rectum. ʻO kēia mau ʻokiʻoki:

1. Colostomy: Ma kēia kaʻina hana, hoʻokaʻawale ke kauka lapaʻau i ka ʻōpū nui i ʻelua ʻāpana a lawe mai i nā wēlau ma o ʻelua puka i loko o ka ʻōpū. A laila pono ke pēpē e ʻaʻahu i nā ʻeke hōʻiliʻili e hōʻiliʻili i ka ʻōpala ma waho o ke kino. Hele ka ʻōpala a me ka mucus (kahi wai e like me ka mucus) ma o kēia mau ʻeke.

2. Hoʻoponopono ʻana i ka anorectal: ʻO ka maʻamau, i ka wā he mau mahina o ka pēpē, hoʻopili nā kauka ʻoki i ka anus a me ka rectum. Ma hope o kēia ʻoki ʻana, e hoʻomau ka puka ʻana o ka ʻōpala ma o ka ʻeke colostomy a hiki i ka wā e ola ai ka pēpē.

3. Pani ʻana o ke kolostomy: ʻElua a ʻekolu mahina ma hope o ke ʻoki lua, hana ʻia kekahi ʻoki ʻē aʻe e wehe i ka ʻeke kolostomy. Ma hope o kēlā, e hoʻomaka ke keiki e hoʻomoe ma o ka anus i loko o kekahi mau lā.

E makaʻu paha ʻoe ke lohe ʻoe e pili ana i kēia mau ʻoki kino. Akā e hoʻomanaʻo ua hana ʻia kēia mau mea no ka hoʻomaikaʻi ʻana i ka wā e hiki mai ana o ke keiki. E wehewehe nā kauka i nā mea āpau iā ʻoe.

He aha nā pilikia a i ʻole nā ​​hopena ʻaoʻao e hiki mai ana ma hope o kēia mau lāʻau lapaʻau?

ʻOi aku ka paʻakikī o ka hoʻomaʻamaʻa ʻana i ka lua no nā keiki i hana ʻia i ke ʻoki kino e hoʻoponopono i ka malformation anorectal ma mua o nā keiki ʻē aʻe. Loaʻa paha iā lākou ka paʻakikī i ka hoʻomalu ʻana i ko lākou neʻe ʻana o ka ʻōpū a i ʻole e loaʻa paha iā lākou ka paʻa mau. Ua hōʻike ʻia hoʻi ʻo ka poʻe i hana ʻia i kēia ʻoki kino i ko lākou wā kamaliʻi e loaʻa pinepine iā lākou ka hana moekolohe i ko lākou wā makua.

Hiki ke pale ʻia kēia (Anorectal Malformation)?

ʻAʻohe ala maoli e pale aku ai i kahi keiki mai ka hānau ʻana me kēia (Anorectal Malformation). Eia naʻe, ma hope o ka mālama ʻana, hiki iā ʻoe ke kōkua i kāu keiki e ola i kahi ola maikaʻi.

Inā ʻike ʻoe e loaʻa ana i kāu keiki nā pilikia ma hope o ka mālama ʻana - e like me ka constipation - e lawe koke iā ia i ke kauka. Hiki i ke kauka o kāu keiki ke kuhikuhi i nā laxatives, nā hoʻololi ʻai, a i ʻole nā ​​​​lāʻau lapaʻau ʻē aʻe e kōkua i ka hōʻemi ʻana i nā hōʻailona. Hiki iā ia ke paipai i kahi papahana hoʻokele ʻōpū inā pilikia kāu keiki i ka kaohi ʻana i kā lākou neʻe ʻana o ka ʻōpū.

ʻO wai ka mea i hoʻopilikia nui ʻia e kēia kūlana?

ʻOi aku ka maʻamau o nā anorectal malformations i nā keikikāne ma mua o nā kaikamahine.

Eia kekahi, ʻoi aku ka nui o ka loaʻa ʻana o kekahi keiki me ke ʻano maʻi ʻē aʻe i nā mākua i loaʻa mua i ke keiki me ke ʻano maʻi ʻē aʻe. Inā loaʻa iā ʻoe ke keiki me ke ʻano maʻi, ʻo ka manawa kūpono e loaʻa pū ai i kāu keiki aʻe kahi maʻi ʻē aʻe ma kahi o 1 i loko o 100.

He aha ka manaʻo no kēia kūlana?

Hoʻōla ʻia ka hapa nui o nā pēpē i hānau ʻia me ka Anorectal Malformation i loko o nā lā mua o ke ola. Hoʻōla maikaʻi ka hapa nui o nā keiki ma hope o ke ʻoki ʻana a ʻaʻohe pilikia.

Hiki i kekahi mau keiki ke hoʻomau i ka paʻa ʻana o ka ʻōpū a i ʻole ka paʻakikī i ka kaohi ʻana i ko lākou neʻe ʻana o ka ʻōpū ma hope o ke ʻoki ʻana. I ia mau hihia, hiki ke kōkua nā lāʻau lapaʻau kikoʻī - e like me ka "papahana hoʻokele ʻōpū" i ʻōlelo mua ʻia.

Āhea ʻoe e ʻike ai i ke kauka o kāu keiki?

Inā loaʻa i kāu pēpē kekahi o kēia mau hōʻailona, ​​e ʻike koke i ke kauka:

• Inā ʻaʻole ʻoe e ʻōpō iki.
• Inā loaʻa iā ʻoe ka paʻa ʻana o ka ʻōpū.
• Inā puka mai ka ʻōpala mai loko mai o ka vagina (i nā kaikamahine).
• Inā he mau kaha i ʻike ʻia o nā feces i loko o ka mimi.
• Inā kahe ka mimi mai ka anus.

He aha nā nīnau āu e nīnau ai i ke kauka o kāu keiki?

Inā he Anorectal Malformation kāu keiki, a i ʻole manaʻo ʻoe he loaʻa paha iā lākou, hiki iā ʻoe ke nīnau i ke kauka o kāu keiki i kēia mau nīnau:

• He aha nā hoʻokolohua e hana ʻia e hōʻoia i kahi Anorectal Malformation?
• Pono anei kaʻu keiki i ke ʻoki kino e mālama ai i kēia?
• He aha nā hōʻailona o nā pilikia e hiki mai ana ma hope o ke ʻoki kino?
• Pehea e hiki ai iaʻu ke kōkua i kaʻu pēpē e pale i ka paʻa ʻana o ka ʻōpū?
• Pehea e ʻike ai au inā pono kaʻu keiki i kahi "papahana hoʻokele ʻōpū"?

ʻO ka mea hope loa, nā mea nui e hoʻomanaʻo (Leka Lawe-Home)

ʻO ka malformation anorectal kahi kūlana i ulu pono ʻole ai ka anus a i ʻole ka rectum o kahi pēpē i ka wā hānau. Hiki ke lilo i mea weliweli ke ʻike ʻana he maʻi hānau ʻia kāu pēpē. Eia nō naʻe, hiki i ke ʻoki kino ke hoʻoponopono i ka pilikia i loko o kekahi mau lā o ka hānau ʻana. ʻO ke ʻano o ke ʻoki kino e pono ai kāu pēpē e pili ana i ke ʻano o ka hemahema a me kona nui. Hoʻōla maikaʻi ka hapa nui o nā pēpē ma hope o ka mālama ʻana.No laila, mai makaʻu, e hahai i ka ʻōlelo aʻo a ke kauka, a e maikaʻi nā mea a pau!