I ka wā i haʻi aku ai ke kauka iā ʻoe ma hope o ke kiʻi ʻana ua loaʻa i kāu pēpē kahi Omphalocele, pono ʻoe e manaʻo i kahi manaʻo nui o ka makaʻu a me ka haʻalulu. A i ʻole ua kahaha paha ʻoe i ka ʻike ʻana i kahi mea e like me kēia ma hope o ka hānau ʻana o ke pēpē a ʻaʻole hiki iā ʻoe ke noʻonoʻo i ka mea i hana ʻia. He mea maʻamau loa ia. Akā, mai hopohopo. He kūlana kēia e hiki ke mālama pono ʻia i ka ʻepekema lapaʻau. No laila, e kamaʻilio kākou e pili ana i nā mea āpau me ka maʻalahi a me ka maopopo i kēia lā.
He aha ka ʻOmphalocele?
I ka ʻōlelo maʻalahi, ʻo ka Omphalocele kahi maʻi i loaʻa mai ka wā hānau. ʻO ka mea e hana ʻia, ʻo ia ka puka ʻana o nā ʻōpū o ka pēpē (e like me nā ʻōpū a me ke akepaʻa) ma o ka piko. Akā, ʻaʻole wale kēia mau ʻōpū e puka ana ma laila. Ua uhi ʻia a pale ʻia lākou e kahi membrane lahilahi a moakaka . Ua like ia me kahi ʻeke liʻiliʻi a moakaka me kekahi o nā ʻōpū e puka ana. Hana ʻia kēia membrane i ka peritoneum, kahi membrane e uhi ana i loko o ka ʻōpū.
Pehea lā e hiki ai ke hana i kekahi mea e like me kēia?
I mea e maopopo ai i kēia, pono ʻoe e ʻike iki e pili ana i nā mea e hana ʻia ana i nā wā mua o ka ulu ʻana o kahi pēpē i loko o ka ʻōpū.
E noʻonoʻo, ma waena o nā pule 6 a me 10 o ka hāpai ʻana, i ka wā e ulu wikiwiki ana ke kino o ka pēpē, ua lōʻihi iki nā ʻōpū o ka pēpē, no laila ʻaʻohe wahi lawa i loko o ka ʻōpū a puka koke lākou i ke kaula umbilical. He mea maʻamau loa kēia.
ʻO ka mea maʻamau e hana ʻia, ma kahi o 11 mau pule , e hāmama ka ʻōpū o ke pēpē a e hoʻi hou nā ʻōpū i puka mai i loko o ka ʻōpū.
Eia nō naʻe, inā no kekahi kumu ʻaʻole e hoʻi kēia ʻōpū i ka ʻōpū, a laila e kū mai kahi kūlana i kapa ʻia ʻo Omphalocele.
He mea nui e hoʻomaopopo ʻaʻole na ʻoe kēia hewa. He pilikia kēia e kū mai ana i ka wā o ka ulu ʻana o ka pēpē.
Aia kekahi mau ʻano omphalocele?
ʻAe, hiki ke hoʻokaʻawale ʻia ʻo Omphalocele i ʻelua ʻano nui e pili ana i ka nui o ke kino i puka mai.
| ʻAno omphalocele | Wehewehena |
|---|---|
| ʻOmphalocele liʻiliʻi | ʻO kahi hapa wale nō o nā ʻōpū i puka mai i waho. ʻOi aku ka liʻiliʻi o ka puka ma ka ʻōpū ma mua o 5 kenimika. |
| ʻO ka Omphalocele nui | I kēia hihia, ua puka mai paha nā ʻōpū he nui (e like me nā ʻōpū, ke akepaʻa, a me ka spleen). ʻOi aku ka nui o ka puka ma mua o 5 kenimika. |
Hiki paha i nā pilikia ʻē aʻe ke kū mai me kēia kūlana?
ʻAe, ma kahi o ʻelua hapakolu o nā pēpē me ka omphalocele e loaʻa paha nā pilikia olakino ʻē aʻe. ʻO ia ke kumu e nānā pono ai nā kauka i kēia.
- Nā ʻano ʻino o ka Chromosomal: Hiki ke pili kēia me kekahi mau kūlana genetic.
- Nā kīnā o ka puʻuwai: Loaʻa paha i ka pēpē kekahi mau kīnā o ka puʻuwai.
- Ka ulu maikaʻi ʻole o ka māmā: Ma muli o nā ʻōkana ʻōpū e puka mai ana, ʻaʻole lawa ka hakahaka i loko o ka umauma a ʻaʻole paha e ulu pono nā māmā.
- Nā pilikia o ka ʻōnaehana hoʻoheheʻe: Hiki ke hana i nā mea e like me ka hana ʻole o ka ʻōpū.
- ʻO ka maʻi Beckwith-Wiedemann: He ʻano kēia i hōʻike ʻia e nā hōʻailona e like me ke alelo nui a me nā pae kō koko haʻahaʻa.
Nānā pono nā kauka i ka pēpē ma mua a ma hope o ka hānau ʻana e ʻike inā he mau pilikia ʻē aʻe e like me kēia.
He aha nā kumu pilikia no ka hoʻomohala ʻana o ka omphalocele?
ʻOiai ʻaʻole hiki ke ʻōlelo pololei i ke kumu o kēia, ua ʻike ʻia e ka noiʻi e hiki i kekahi mau mea ke hoʻonui iki i ka pilikia o kēia ʻano.
| Kumu pilikia | He wehewehe maʻalahi |
|---|---|
| Makahiki o ka makuahine | ʻO nā keiki i hānau ʻia e nā makuahine ma luna o 35 mau makahiki he nui aʻe paha ka pilikia. |
| ʻO ka waiʻona a me ka puhipaka | ʻO ka inu ʻona a me ka puhipaka i ka wā hāpai hiki ke loaʻa nā hopena maikaʻi ʻole loa. |
| Nā ʻano hoʻoilina | Hiki ke loaʻa ka Omphalocele me kekahi mau maʻi chromosomal, e like me Trisomy 13, 18, a i ʻole 21. |
| Nā kūlana olakino o ka makuahine | ʻO nā kūlana e like me ka momona o ka makuahine, ka maʻi diabetes, a i ʻole ke koko kiʻekiʻe e hoʻonui i ka pilikia. |
| Kekahi mau lāʻau lapaʻau | Aia nā hōʻike e hiki i kekahi mau lāʻau lapaʻau i lawe ʻia me ka ʻole o ka ʻōlelo aʻoaʻo lapaʻau, ʻoiai kekahi mau antidepressants (SSRIs), ke hoʻonui i ka pilikia. |
Pehea e ʻike ai nā kauka i kēia?
ʻIke pinepine ʻia kēia ʻano ma mua o ka hānau ʻana o ka pēpē, i ka wā o kahi scan ultrasound prenatal i kou wā hāpai. ʻO ka maʻamau, hiki i kahi scan i hana ʻia i ka trimester ʻelua a ʻekolu paha ke hōʻike maopopo i nā ʻōpū o ka pēpē e ulu ana ma waho o ka ʻōpū.
Ke ʻike ʻia kahi omphalocele, e kauoha pinepine ke kauka i kahi scan kūikawā i kapa ʻia he echocardiogram fetal e nānā i nā pilikia me ka puʻuwai o ke pēpē.
I nā hihia kakaikahi loa, inā ʻaʻole i ʻike ʻia kēia i ka wā o ka scan, e ʻike koke ʻia ke ʻano ma hope o ka hānau ʻana o ka pēpē. Inā hana ʻia kēia, e hana koke ke kime lapaʻau i nā hana āpau e pono ai.
Pehea e mālama ʻia ai?
ʻO ke ʻoki kino ke ʻano o ka lāʻau no ka omphalocele. Eia nō naʻe, pili ke ʻano o ka hana ʻana i kēia ʻoki kino i kekahi mau kumu.
- Ka nui o ka omphalocele (inā he liʻiliʻi a nui paha).
- Ke olakino holoʻokoʻa o ka pēpē.
- Ua hānau ʻia anei ke pēpē i ka manawa kūpono a i ʻole ma mua o ka manawa?
- E nānā inā ua paʻa ka membrane e uhi ana i ke kino e puka mai ana a ʻaʻole i haki.
Ke mālama ʻana i kahi Omphalocele liʻiliʻi
Inā he omphalocele liʻiliʻi ko ka pēpē, e hana nā kauka ʻoki ma hope koke iho o ka hānau ʻana o ka pēpē. Pili kēia i ke kau pono ʻana i nā ʻōpū e puka mai ana i loko o ka ʻōpū a me ka pani ʻana i ka puka ma ka paia o ka ʻōpū. Hiki i kēia ke kōkua i ka pale ʻana i ka maʻi a me ka hōʻino ʻana i nā ʻōpū.
Ka Lapaʻau ʻana o kahi Omphalocele Nui
Inā he Omphalocele nui ko ka pēpē, ʻo ia hoʻi ua puka mai nā ʻōkana he nui, ʻaʻole hana ʻia ke ʻoki ʻana i ka manawa hoʻokahi. Hana ʻia ia ma nā pae he nui .
E noʻonoʻo inā ʻoe e hoʻāʻo e kau i nā mea nui he nui i loko o kahi ʻeke liʻiliʻi i ka manawa hoʻokahi, ʻaʻole lawa ka hakahaka, a ʻaʻole hiki iā ʻoe ke kau i kēia mau ʻōkana a pau i loko o ka ʻōpū liʻiliʻi o ka pēpē i ka manawa hoʻokahi. ʻO ka hana ʻana pēlā e hiki ke ʻoki i ke kahe koko i nā ʻōkana, hoʻonui i ke kaomi i loko o ka ʻōpū, a hoʻolilo i mea paʻakikī no ka pēpē ke hanu.
No laila, hoʻokuke mālie nā kauka i nā ʻōpū i loko o ka ʻōpū i loko o kekahi mau lā a i ʻole nā pule. I loko o kēia manawa, ua uhi ʻia nā ʻōpū i waho me kahi pepa sterile e pale aku ai i ka maʻi. Ma hope o ka ulu ʻana o ka ʻōpū o ke pēpē i lawa ka nui e hoʻokipa i nā ʻōpū āpau, hana ʻia ke ʻoki hope loa e pani i ka puka.
ʻO nā pēpē me ia ʻano Omphalocele nui, i kekahi manawa, pilikia paha ka hanu ʻana ma muli o ka ulu ʻole ʻana o nā māmā. I kēlā mau hihia, hāʻawi ʻia ke kākoʻo o kahi ventilator i ka pēpē a hiki i ka wā e hiki ai iā lākou ke hanu iā lākou iho.
Pehea lā ke ʻano o ka pēpē i ka wā e hiki mai ana?
ʻO kēia ka nīnau nui loa ma ka noʻonoʻo o kēlā me kēia mākua.
Inā he maʻi omphalocele wale nō ka pēpē, ʻo ia hoʻi, ʻaʻohe pilikia olakino nui ʻē aʻe, ma hope o kahi ʻoki kino holomua, hiki i ka pēpē ke ho'ōla piha a ola i ke ola maʻamau.
Eia nō naʻe, e like me kā mākou i kūkākūkā ai ma mua, inā he mau pilikia ʻē aʻe e like me nā kīnā puʻuwai a i ʻole nā pilikia chromosomal, e hilinaʻi pū ʻia ke olakino o ka pēpē i ka wā e hiki mai ana i kēlā mau mea.
Ma keʻano holoʻokoʻa, ʻo ka nui o ke ola no nā pēpē i hānau ʻia me ka omphalocele he 95%. Eia nō naʻe, hiki ke hoʻopilikia ʻia kēia mau helu e nā pilikia olakino ʻē aʻe. Hiki i kāu kauka ke wehewehe maikaʻi loa i ke kūlana o kāu pēpē. E kamaʻilio ākea me ia e pili ana i kēia.
Āhea wau e kamaʻilio ai me ke kauka ma hope o ke ʻoki kino?
Ke lawe mai ʻoe i kāu pēpē i ka home ma hope o ke ʻoki ʻana, aia kekahi mau mea āu e makaʻala ai. Inā ʻike ʻoe i kekahi o nā hōʻailona ma lalo nei, e kāhea koke i kāu kauka.
| Nā hōʻailona e makaʻala ai | Wehewehena |
|---|---|
| kuni | Inā manaʻo ʻia ua kiʻekiʻe aʻe ka mahana o ke kino o kāu pēpē ma mua o ka maʻamau. |
| ʻUlaʻula a pehu paha o ka ʻeha | Inā ʻulaʻula ka ʻili a puni ke kahua ʻoki, pehu, a wela ke pā. |
| Ke kahe nei kekahi mea mai loko mai o ka ʻeha | Inā e puka mai ana kekahi mea e like me ka pus, ka wai, a i ʻole ke koko mai loko mai o ka ʻeha. |
| Ka luaʻi ʻana | Inā hoʻomau kāu pēpē i ka luaʻi, ʻoiai inā he ʻōmaʻomaʻo ka luaʻi, he hōʻailona paha ia o kahi poloka ʻōpū. |
ʻO ka makaʻu, ka hopohopo, a me ke kānalua āu e manaʻo ai ke ʻike ʻoe he kīnā hānau kāu pēpē e like me kēia he mea nui loa ia. Akā, ʻaʻole ʻoe hoʻokahi. Aia mau kāu kauka a me ka hui lapaʻau ma ka haukapila e kōkua iā ʻoe a me kāu pēpē. E kamaʻilio me lākou e pili ana i nā nīnau a hopohopo paha āu e loaʻa ai. E wehewehe lākou i nā mea āpau iā ʻoe e pili ana i ke kaʻina hānau a me ka hoʻolālā lapaʻau no kāu pēpē ma hope.
Leka Lawe-Home
- He pilikia ka omphalocele i ka wā e ulu ana ka pēpē, ʻaʻole ka hewa o nā mākua.
- I ka manawa pinepine, hiki ke ʻike ʻia kēia ʻano ma o kahi scan ma mua o ka hānau ʻana o ka pēpē, e ʻae ai i ka hoʻomākaukau mua ʻana no ka lāʻau e pono ai.
- He ʻoki kino ke ʻano o ka mālama ʻana, a ua hoʻoholo ʻia ke ʻano hana e ka nui o ka omphalocele a me ke olakino o ke pēpē.
- Inā ʻaʻohe pilikia olakino nui ʻē aʻe, hoʻōla piha ka hapa nui o nā pēpē a alakaʻi i nā ola maʻamau ma hope o ke ʻoki ʻana.
- E kamaʻilio ākea me kāu kauka a me ka hui lapaʻau e pili ana i nā nīnau a hopohopo paha āu e loaʻa ai. Ua mākaukau mau lākou e kākoʻo iā ʻoe.
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