Inā he kanaka ʻoe me ke ʻano i kapa ʻia ʻo Hemophilia A, ua ʻike paha ʻoe mai ka ʻike pehea ka paʻakikī o ka hoʻōki ʻana i ke kahe ʻana o ke koko mai kahi ʻoki liʻiliʻi. Akā, mai hopohopo, no ka mea, me ka holomua o ka ʻepekema lapaʻau, aia i kēia manawa he nui nā lāʻau lapaʻau maikaʻi e hiki ke kōkua i kēlā mau kūlana. I kēia lā e kamaʻilio mākou e pili ana i kekahi lāʻau lapaʻau kūikawā, a i ʻole ka lāʻau pale, hiki ke lilo i mea kōkua nui i kou ola. ʻO ia hoʻi, kēia lāʻau pale i kapa ʻia ʻo Antihemophilic Factor, Fc Fusion Protein, Recombinant . Ua lohe paha ʻoe iā ia ma ka inoa inoa ʻo ELOCTATE.
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He aha ke ʻano o kēia lāʻau lapaʻau? No ke aha he mea nui kēia iā ʻoe?
I ka ʻōlelo maʻalahi, ʻo Hemophilia A kahi maʻi i hoʻokumu ʻia e ka hemahema a i ʻole ka hana hewa ʻana o kahi protein kūikawā i kapa ʻia ʻo Factor VIII, ka mea e kōkua ai i ko mākou kāpili koko. ʻO ia ke kumu e lōʻihi ai ka manawa e pau ai ke kahe ʻana o ke koko mai kahi ʻeha liʻiliʻi.
I kēia manawa, ʻo ka mea a mākou e kamaʻilio nei me kēia lāʻau pale (Antihemophilic Factor, Fc Fusion Protein, Recombinant) ʻo ia ka hāʻawi ʻana iā ʻoe i ka factor VIII āu e nele nei i loko o kou kino. Ua like ia me ka hoʻopiha ʻana i kahi hemahema. Hoʻoulu kēia i kou koko e ʻūlū wikiwiki, he kōkua nui ia i ka kaohi ʻana i ke kahe ʻana o ke koko a i kekahi manawa e pale aku ai iā ia mai ka hana ʻana.
ʻO ka huaʻōlelo "recombinant" ma ka inoa o kēia lāʻau lapaʻau, ʻo ia hoʻi, ʻaʻole ia i hana ʻia mai ke koko kanaka, akā me ka hoʻohana ʻana i kahi ʻano hana ʻenekinia genetic kūikawā i loko o ka hale hana. ʻO kekahi o nā pono nui o kēia, ʻo ia ka emi ʻana o nā pilikia o kekahi mau maʻi i loaʻa mua i nā lāʻau lapaʻau i hana ʻia mai ke koko. ʻO ia hoʻi , ʻoi aku ka palekana .
ʻO ka mea aʻe, ʻo ka ʻāpana i kapa ʻia ʻo "Fc Fusion Protein" ʻo ia hoʻi he ʻāpana liʻiliʻi kēia molekole lāʻau i hoʻopili ʻia iā ia. E noʻonoʻo e like me ka hoʻohui ʻana i kahi 'heleuma' liʻiliʻi i ka lāʻau. ʻAe kēia 'heleuma' i ka lāʻau e noho hana i loko o kou kino no ka manawa lōʻihi, ʻoiai no kekahi mau lā. ʻO ka mea maikaʻi e pili ana i kēia, hiki ke hōʻemi i ka nui o nā manawa e pono ai ʻoe e loaʻa nā inikini. ʻAʻole anei he mea maʻalahi loa ia?
He aha nā mea e pono ai ʻoe e haʻi aku i kāu hui lapaʻau ma mua o ka lawe ʻana i kēia lāʻau lapaʻau?
Ma mua o kou hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui e haʻi aku i kāu kauka, kahu maʻi a i ʻole kekahi loea olakino e mālama nei iā ʻoe i kekahi mau ʻike koʻikoʻi. Mai hūnā i kēia ʻike, no ka mea, no kou palekana ponoʻī ia.
- Nā Allergies: He maʻi āpau ʻoe i kēia lāʻau lapaʻau (Antihemophilic Factor, Fc Fusion Protein, Recombinant) a i ʻole kekahi o kāna mau mea hoʻohui? A i ʻole i nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā kala, a i ʻole nā mea hoʻomalu? He mea nui loa kēia no ka mea hiki ke lilo i kekahi mea mai kahi ʻulaʻula liʻiliʻi a i kahi hopena maʻi koʻikoʻi.
- Ke hāpai nei ʻoe a ke hoʻāʻo nei paha e hāpai?: Inā hāpai ʻoe a ke hoʻolālā nei paha e loaʻa koke kahi pēpē, pono ʻoe e haʻi i kāu kauka.
- He makuahine hānai waiū anei ʻoe?: Inā ʻoe e hānai waiū ana, e hoʻomaopopo pū i ke kauka e pili ana i kēlā.
Ma muli o kēia ʻike, e hoʻoholo ke kime lapaʻau inā kūpono kēia lāʻau lapaʻau iā ʻoe a pehea e hāʻawi ai.
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Check Availability →Pehea e pono ai iaʻu ke hoʻohana i kēia lāʻau lapaʻau?
Hāʻawi ʻia kēia lāʻau lapaʻau ma ke ʻano o ka inikini ʻana i loko o kahi aa koko . Hana pinepine ʻia kēia ma kahi haukapila a i ʻole ke keʻena lapaʻau e ke kauka a kahu maʻi paha i aʻo ʻia.
Eia nō naʻe, i kekahi manawa e aʻo kāu hui mālama ola iā ʻoe e hoʻohana i kēia lāʻau lapaʻau ma ka home. Inā pēlā, pono ʻoe e hahai i kā lākou mau kuhikuhi e like me kā lākou e ʻōlelo ai iā ʻoe. E lawe i ka nui kūpono, i ka manawa kūpono. Mai lawe ʻoi aku a ʻoi aku paha ma mua o ka mea a kāu kauka e ʻōlelo ai iā ʻoe.
ʻO ka mea nui loa: Mai hoʻolei i kāu mau nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. Pono e waiho ʻia i loko o kahi "pahu ʻoi" kūikawā i hāʻawi ʻia. Inā ʻaʻohe āu, hiki iā ʻoe ke noi i kāu hale kūʻai lāʻau lapaʻau a kauka paha no hoʻokahi. He mea nui loa kēia no kou palekana a me ka palekana o haʻi.
Pono anei e hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki liʻiliʻi?
Hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki liʻiliʻi i kekahi mau hihia i koho ʻia. Eia nō naʻe, aia kekahi mau manaʻo kūikawā e pono e noʻonoʻo ʻia. No laila, inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i kāu keiki, e kamaʻilio pono me kāu kauka lapaʻau e pili ana i ia mea a e ʻike i nā kikoʻī.
He aha ka mea e hana ai inā hoʻonui ʻia ka nui o ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, mai hopohopo a kāhea koke i ke kikowaena hoʻomalu lāʻau make kokoke loa a i ʻole ke keʻena pilikia .
E hoʻomanaʻo: Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like i kāu lāʻau lapaʻau me nā poʻe ʻē aʻe.
He aha kāu e hana ai inā e hala ʻoe i kahi manawa hoʻopaʻa lāʻau lapaʻau?
He mea nui loa ka lawe ʻana i kēia lāʻau lapaʻau i ka manawa kūpono. Inā ʻaʻole hiki iā ʻoe ke mālama i kahi manawa i hoʻonohonoho ʻia, e kāhea koke i kāu kauka a mea mālama ola paha.
Inā ʻoe e lawe ana i kāu lāʻau lapaʻau ma ka home, inā e poina iā ʻoe kahi lāʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i poina a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi a i ʻole e lawe i nā lāʻau keu.
Hiki i nā mea ʻē aʻe ke launa pū me kēia lāʻau lapaʻau?
ʻAe, hiki i kekahi mau lāʻau lapaʻau ke launa pū me kēia (Antihemophilic Factor, Fc Fusion Protein, Recombinant). ʻO ke ʻano kēia, i ka wā e lawe ʻia ai me kēlā lāʻau lapaʻau, hiki ke hoʻopilikia i kona pono a hoʻonui paha i nā hopena ʻaoʻao.
ʻOi aku hoʻi, ʻo Factor VIIaAia kahi hiki ke launa pū kēia me ka lāʻau lapaʻau.
ʻAʻole i hoʻokomo ʻia kēia papa inoa i nā pilina āpau. No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (i kauoha ʻia, kūʻai ʻia ma luna o ke kauka, lāʻau lapaʻau, huaora, mea hoʻohui meaʻai) . Eia kekahi, e haʻi i kāu kauka inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau lapaʻau ʻē aʻe. Hiki i kekahi o kēia mau mea ke launa pū me kāu lāʻau lapaʻau.
He aha nā mea kūikawā e makaʻala ai i ka wā e lawe ai i kēia lāʻau lapaʻau?
- ʻOiai ʻoe e lawe ana i kēia lāʻau lapaʻau, pono paha kāu kauka e hana i nā mea e like me ka hana koko e nānā i kou kūlana.
- E nānā pono ke kime lapaʻau i kou kūlana ke hāʻawi ʻia kēia lāʻau iā ʻoe.
- Inā loaʻa iā ʻoe ka hemophilia, e komo i kahi kūpeʻe lima lapaʻau a kaulahao paha e papa inoa ana i kou kūlana, nā lāʻau lapaʻau, nā dosages, a me nā manawa, a i ʻole e mālama i kahi kāleka me ʻoe i nā manawa a pau. He mea nui loa kēia no ka poʻe e kōkua iā ʻoe i kahi pilikia.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa kekahi mau hopena ʻaoʻao. ʻAʻole loaʻa i nā kānaka a pau, akā he mea maikaʻi ke makaʻala iā lākou.
Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka a i ʻole ke kauka lapaʻau:
- Nā hopena allergies: ʻO kēia nā hōʻailona i ʻike ʻia:
- ʻŌhū ʻili
- ʻO ka maneʻo a i ʻole ka hives
- Ka pehu ʻana o ka maka, nā lehelehe, a i ʻole ke alelo
- Paʻakikī ka hanu ʻana
Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, mai hoʻokaʻulua , e ʻimi koke i ke kōkua lapaʻau. Hiki i kēia ke lilo i mea koʻikoʻi.
Nā hopena ʻaoʻao ʻaʻole pono ka ʻōlelo aʻoaʻo lapaʻau (akā inā hoʻomau lākou a hoʻopilikia paha, pono ʻoe e haʻi i kāu kauka):
- ʻO ka maʻi laulā a i ʻole nā hōʻailona e like me ka maʻi palū
- ʻEha hui
- ʻEha ma kahi i hoʻokomo ʻia ai
ʻAʻole paha e komo pū kēia papa inoa me nā hopena ʻaoʻao āpau. Inā ʻike ʻoe i kekahi mea ʻē, e kamaʻilio me kāu kauka e pili ana i ia mea. Hiki iā ʻoe ke hōʻike i nā hopena ʻaoʻao i nā luna olakino kūpono (e laʻa, ka FDA ma 1-800-FDA-1088), akā ʻoi aku ka maikaʻi o ka haʻi mua ʻana i kāu kauka.
Pehea e mālama ai i kēia lāʻau lapaʻau?
- E mālama mau iā ia mai ka hiki ʻana aku o nā keiki liʻiliʻi.
- ʻO ka maʻamau, hāʻawi ʻia kēia lāʻau lapaʻau ma ka haukapila a i ʻole ke keʻena lapaʻau, no laila ʻaʻole pono ʻoe e mālama ia ma ka home.
- Eia nō naʻe, inā hāʻawi ʻia kēia lāʻau lapaʻau iā ʻoe e hoʻohana ma ka home i kahi pilikia, e hāʻawi ʻia ʻoe i nā kuhikuhi no ka mālama pono ʻana. E hahai pono i kēlā mau kuhikuhi.
- Mai hoʻohana i ka lāʻau lapaʻau i hala i kona lā palena pau. E nānā i ka lā palena pau ma ka lepili a e hoʻolei i nā lāʻau lapaʻau i hoʻohana ʻole ʻia.
Nā mea nui e pono ai ʻoe e hoʻomanaʻo (Leka Lawe-Home)
ʻAe, ʻo ka lāʻau pale (Antihemophilic Factor, Fc Fusion Protein, Recombinant) a mākou i kamaʻilio ai, ʻo ia hoʻi, kahi lāʻau lapaʻau e like me ELOCTATE, he lāʻau lapaʻau koʻikoʻi loa ia e kōkua ai i ka kaohi a pale ʻana i ke kahe ʻana o ke koko no ʻoukou me ka hemophilia A.
- Hana kēia ma ka hāʻawi ʻana i kou kino me kahi protein i kapa ʻia ʻo Factor VIII, kahi e kōkua ai i ke kāpili ʻana o ke koko.
- Ma muli o kona "recombinant" , ʻoi aku ka palekana, a no ka mea he "Fc Fusion" ia, noho lōʻihi ia i loko o ke kino, no laila e hoʻemi ʻia paha ka pono no nā inikini pinepine.
- E hōʻoia e haʻi i kāu kauka e pili ana i kāu mau maʻi allergies, hāpai, a me ka hānai waiū .
- E lawe i ka lāʻau lapaʻau e like me ke kuhikuhi a kāu kauka . E hoʻolei pono i nā nila.
- Inā ʻike ʻoe i nā hōʻailona o kahi hopena alerika, e ʻimi koke i ke kōkua lapaʻau.
- E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- He mea nui loa ke komo ʻana i kahi kāleka hōʻoia lapaʻau .
He hōʻuluʻulu manaʻo wale nō kēia. Inā he mau nīnau hou aku kāu e pili ana i kēia lāʻau lapaʻau, mai kānalua e nīnau i kāu kauka, kauka lāʻau, a i ʻole ke kauka lapaʻau e mālama nei iā ʻoe. E hiki iā lākou ke hāʻawi iā ʻoe i ka ʻike hou aku. I ka wā e hoʻoholo ai e pili ana i kou olakino, ʻoi aku ka maikaʻi o ka ʻike ʻia!
ʻO Hemophilia A, Antihemophilic Factor, Factor VIII, ELOCTATE, Ke kahe koko ʻana, Lāʻau pale, Lapaʻau
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