Inā loaʻa iā ʻoe ka hemophilia A, makemake ʻoe e ʻike e pili ana i kēia lāʻau pale kūikawā? (Antihemophilic Factor, Fc Fusion Protein, Recombinant)

Inā he kanaka ʻoe me ke ʻano i kapa ʻia ʻo Hemophilia A, ua ʻike paha ʻoe mai ka ʻike pehea ka paʻakikī o ka hoʻōki ʻana i ke kahe ʻana o ke koko mai kahi ʻoki liʻiliʻi. Akā, mai hopohopo, no ka mea, me ka holomua o ka ʻepekema lapaʻau, aia i kēia manawa he nui nā lāʻau lapaʻau maikaʻi e hiki ke kōkua i kēlā mau kūlana. I kēia lā e kamaʻilio mākou e pili ana i kekahi lāʻau lapaʻau kūikawā, a i ʻole ka lāʻau pale, hiki ke lilo i mea kōkua nui i kou ola. ʻO ia hoʻi, kēia lāʻau pale i kapa ʻia ʻo Antihemophilic Factor, Fc Fusion Protein, Recombinant . Ua lohe paha ʻoe iā ia ma ka inoa inoa ʻo ELOCTATE.

He aha ke ʻano o kēia lāʻau lapaʻau? No ke aha he mea nui kēia iā ʻoe?

I ka ʻōlelo maʻalahi, ʻo Hemophilia A kahi maʻi i hoʻokumu ʻia e ka hemahema a i ʻole ka hana hewa ʻana o kahi protein kūikawā i kapa ʻia ʻo Factor VIII, ka mea e kōkua ai i ko mākou kāpili koko. ʻO ia ke kumu e lōʻihi ai ka manawa e pau ai ke kahe ʻana o ke koko mai kahi ʻeha liʻiliʻi.

I kēia manawa, ʻo ka mea a mākou e kamaʻilio nei me kēia lāʻau pale (Antihemophilic Factor, Fc Fusion Protein, Recombinant) ʻo ia ka hāʻawi ʻana iā ʻoe i ka factor VIII āu e nele nei i loko o kou kino. Ua like ia me ka hoʻopiha ʻana i kahi hemahema. Hoʻoulu kēia i kou koko e ʻūlū wikiwiki, he kōkua nui ia i ka kaohi ʻana i ke kahe ʻana o ke koko a i kekahi manawa e pale aku ai iā ia mai ka hana ʻana.

ʻO ka huaʻōlelo "recombinant" ma ka inoa o kēia lāʻau lapaʻau, ʻo ia hoʻi, ʻaʻole ia i hana ʻia mai ke koko kanaka, akā me ka hoʻohana ʻana i kahi ʻano hana ʻenekinia genetic kūikawā i loko o ka hale hana. ʻO kekahi o nā pono nui o kēia, ʻo ia ka emi ʻana o nā pilikia o kekahi mau maʻi i loaʻa mua i nā lāʻau lapaʻau i hana ʻia mai ke koko. ʻO ia hoʻi , ʻoi aku ka palekana .

ʻO ka mea aʻe, ʻo ka ʻāpana i kapa ʻia ʻo "Fc Fusion Protein" ʻo ia hoʻi he ʻāpana liʻiliʻi kēia molekole lāʻau i hoʻopili ʻia iā ia. E noʻonoʻo e like me ka hoʻohui ʻana i kahi 'heleuma' liʻiliʻi i ka lāʻau. ʻAe kēia 'heleuma' i ka lāʻau e noho hana i loko o kou kino no ka manawa lōʻihi, ʻoiai no kekahi mau lā. ʻO ka mea maikaʻi e pili ana i kēia, hiki ke hōʻemi i ka nui o nā manawa e pono ai ʻoe e loaʻa nā inikini. ʻAʻole anei he mea maʻalahi loa ia?

He aha nā mea e pono ai ʻoe e haʻi aku i kāu hui lapaʻau ma mua o ka lawe ʻana i kēia lāʻau lapaʻau?

Ma mua o kou hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui e haʻi aku i kāu kauka, kahu maʻi a i ʻole kekahi loea olakino e mālama nei iā ʻoe i kekahi mau ʻike koʻikoʻi. Mai hūnā i kēia ʻike, no ka mea, no kou palekana ponoʻī ia.

• Nā Allergies: He maʻi āpau ʻoe i kēia lāʻau lapaʻau (Antihemophilic Factor, Fc Fusion Protein, Recombinant) a i ʻole kekahi o kāna mau mea hoʻohui? A i ʻole i nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, nā kala, a i ʻole nā ​​mea hoʻomalu? He mea nui loa kēia no ka mea hiki ke lilo i kekahi mea mai kahi ʻulaʻula liʻiliʻi a i kahi hopena maʻi koʻikoʻi.
• Ke hāpai nei ʻoe a ke hoʻāʻo nei paha e hāpai?: Inā hāpai ʻoe a ke hoʻolālā nei paha e loaʻa koke kahi pēpē, pono ʻoe e haʻi i kāu kauka.
• He makuahine hānai waiū anei ʻoe?: Inā ʻoe e hānai waiū ana, e hoʻomaopopo pū i ke kauka e pili ana i kēlā.

Ma muli o kēia ʻike, e hoʻoholo ke kime lapaʻau inā kūpono kēia lāʻau lapaʻau iā ʻoe a pehea e hāʻawi ai.

Pehea e pono ai iaʻu ke hoʻohana i kēia lāʻau lapaʻau?

Hāʻawi ʻia kēia lāʻau lapaʻau ma ke ʻano o ka inikini ʻana i loko o kahi aa koko . Hana pinepine ʻia kēia ma kahi haukapila a i ʻole ke keʻena lapaʻau e ke kauka a kahu maʻi paha i aʻo ʻia.

Eia nō naʻe, i kekahi manawa e aʻo kāu hui mālama ola iā ʻoe e hoʻohana i kēia lāʻau lapaʻau ma ka home. Inā pēlā, pono ʻoe e hahai i kā lākou mau kuhikuhi e like me kā lākou e ʻōlelo ai iā ʻoe. E lawe i ka nui kūpono, i ka manawa kūpono. Mai lawe ʻoi aku a ʻoi aku paha ma mua o ka mea a kāu kauka e ʻōlelo ai iā ʻoe.

ʻO ka mea nui loa: Mai hoʻolei i kāu mau nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. Pono e waiho ʻia i loko o kahi "pahu ʻoi" kūikawā i hāʻawi ʻia. Inā ʻaʻohe āu, hiki iā ʻoe ke noi i kāu hale kūʻai lāʻau lapaʻau a kauka paha no hoʻokahi. He mea nui loa kēia no kou palekana a me ka palekana o haʻi.

Pono anei e hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki liʻiliʻi?

Hiki ke hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki liʻiliʻi i kekahi mau hihia i koho ʻia. Eia nō naʻe, aia kekahi mau manaʻo kūikawā e pono e noʻonoʻo ʻia. No laila, inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i kāu keiki, e kamaʻilio pono me kāu kauka lapaʻau e pili ana i ia mea a e ʻike i nā kikoʻī.

He aha ka mea e hana ai inā hoʻonui ʻia ka nui o ka lāʻau lapaʻau?

Inā manaʻo ʻoe ua lawe nui ʻoe i kēia lāʻau lapaʻau, mai hopohopo a kāhea koke i ke kikowaena hoʻomalu lāʻau make kokoke loa a i ʻole ke keʻena pilikia .

E hoʻomanaʻo: Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like i kāu lāʻau lapaʻau me nā poʻe ʻē aʻe.

He aha kāu e hana ai inā e hala ʻoe i kahi manawa hoʻopaʻa lāʻau lapaʻau?

He mea nui loa ka lawe ʻana i kēia lāʻau lapaʻau i ka manawa kūpono. Inā ʻaʻole hiki iā ʻoe ke mālama i kahi manawa i hoʻonohonoho ʻia, e kāhea koke i kāu kauka a mea mālama ola paha.

Inā ʻoe e lawe ana i kāu lāʻau lapaʻau ma ka home, inā e poina iā ʻoe kahi lāʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i poina a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi a i ʻole e lawe i nā lāʻau keu.

Hiki i nā mea ʻē aʻe ke launa pū me kēia lāʻau lapaʻau?

ʻAe, hiki i kekahi mau lāʻau lapaʻau ke launa pū me kēia (Antihemophilic Factor, Fc Fusion Protein, Recombinant). ʻO ke ʻano kēia, i ka wā e lawe ʻia ai me kēlā lāʻau lapaʻau, hiki ke hoʻopilikia i kona pono a hoʻonui paha i nā hopena ʻaoʻao.

ʻOi aku hoʻi, ʻo Factor VIIaAia kahi hiki ke launa pū kēia me ka lāʻau lapaʻau.

ʻAʻole i hoʻokomo ʻia kēia papa inoa i nā pilina āpau. No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (i kauoha ʻia, kūʻai ʻia ma luna o ke kauka, lāʻau lapaʻau, huaora, mea hoʻohui meaʻai) . Eia kekahi, e haʻi i kāu kauka inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau lapaʻau ʻē aʻe. Hiki i kekahi o kēia mau mea ke launa pū me kāu lāʻau lapaʻau.

He aha nā mea kūikawā e makaʻala ai i ka wā e lawe ai i kēia lāʻau lapaʻau?

• ʻOiai ʻoe e lawe ana i kēia lāʻau lapaʻau, pono paha kāu kauka e hana i nā mea e like me ka hana koko e nānā i kou kūlana.
• E nānā pono ke kime lapaʻau i kou kūlana ke hāʻawi ʻia kēia lāʻau iā ʻoe.
• Inā loaʻa iā ʻoe ka hemophilia, e komo i kahi kūpeʻe lima lapaʻau a kaulahao paha e papa inoa ana i kou kūlana, nā lāʻau lapaʻau, nā dosages, a me nā manawa, a i ʻole e mālama i kahi kāleka me ʻoe i nā manawa a pau. He mea nui loa kēia no ka poʻe e kōkua iā ʻoe i kahi pilikia.

He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?

E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa kekahi mau hopena ʻaoʻao. ʻAʻole loaʻa i nā kānaka a pau, akā he mea maikaʻi ke makaʻala iā lākou.

Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka a i ʻole ke kauka lapaʻau:

• Nā hopena allergies: ʻO kēia nā hōʻailona i ʻike ʻia:
• ʻŌhū ʻili
• ʻO ka maneʻo a i ʻole ka hives
• Ka pehu ʻana o ka maka, nā lehelehe, a i ʻole ke alelo
• Paʻakikī ka hanu ʻana

Inā ʻike ʻoe i kekahi o kēia mau hōʻailona, ​​mai hoʻokaʻulua , e ʻimi koke i ke kōkua lapaʻau. Hiki i kēia ke lilo i mea koʻikoʻi.

Nā hopena ʻaoʻao ʻaʻole pono ka ʻōlelo aʻoaʻo lapaʻau (akā inā hoʻomau lākou a hoʻopilikia paha, pono ʻoe e haʻi i kāu kauka):

• ʻO ka maʻi laulā a i ʻole nā ​​​​hōʻailona e like me ka maʻi palū
• ʻEha hui
• ʻEha ma kahi i hoʻokomo ʻia ai

ʻAʻole paha e komo pū kēia papa inoa me nā hopena ʻaoʻao āpau. Inā ʻike ʻoe i kekahi mea ʻē, e kamaʻilio me kāu kauka e pili ana i ia mea. Hiki iā ʻoe ke hōʻike i nā hopena ʻaoʻao i nā luna olakino kūpono (e laʻa, ka FDA ma 1-800-FDA-1088), akā ʻoi aku ka maikaʻi o ka haʻi mua ʻana i kāu kauka.

Pehea e mālama ai i kēia lāʻau lapaʻau?

• E mālama mau iā ia mai ka hiki ʻana aku o nā keiki liʻiliʻi.
• ʻO ka maʻamau, hāʻawi ʻia kēia lāʻau lapaʻau ma ka haukapila a i ʻole ke keʻena lapaʻau, no laila ʻaʻole pono ʻoe e mālama ia ma ka home.
• Eia nō naʻe, inā hāʻawi ʻia kēia lāʻau lapaʻau iā ʻoe e hoʻohana ma ka home i kahi pilikia, e hāʻawi ʻia ʻoe i nā kuhikuhi no ka mālama pono ʻana. E hahai pono i kēlā mau kuhikuhi.
• Mai hoʻohana i ka lāʻau lapaʻau i hala i kona lā palena pau. E nānā i ka lā palena pau ma ka lepili a e hoʻolei i nā lāʻau lapaʻau i hoʻohana ʻole ʻia.

Nā mea nui e pono ai ʻoe e hoʻomanaʻo (Leka Lawe-Home)

ʻAe, ʻo ka lāʻau pale (Antihemophilic Factor, Fc Fusion Protein, Recombinant) a mākou i kamaʻilio ai, ʻo ia hoʻi, kahi lāʻau lapaʻau e like me ELOCTATE, he lāʻau lapaʻau koʻikoʻi loa ia e kōkua ai i ka kaohi a pale ʻana i ke kahe ʻana o ke koko no ʻoukou me ka hemophilia A.

• Hana kēia ma ka hāʻawi ʻana i kou kino me kahi protein i kapa ʻia ʻo Factor VIII, kahi e kōkua ai i ke kāpili ʻana o ke koko.
• Ma muli o kona "recombinant" , ʻoi aku ka palekana, a no ka mea he "Fc Fusion" ia, noho lōʻihi ia i loko o ke kino, no laila e hoʻemi ʻia paha ka pono no nā inikini pinepine.
• E hōʻoia e haʻi i kāu kauka e pili ana i kāu mau maʻi allergies, hāpai, a me ka hānai waiū .
• E lawe i ka lāʻau lapaʻau e like me ke kuhikuhi a kāu kauka . E hoʻolei pono i nā nila.
• Inā ʻike ʻoe i nā hōʻailona o kahi hopena alerika, e ʻimi koke i ke kōkua lapaʻau.
• E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
• He mea nui loa ke komo ʻana i kahi kāleka hōʻoia lapaʻau .

He hōʻuluʻulu manaʻo wale nō kēia. Inā he mau nīnau hou aku kāu e pili ana i kēia lāʻau lapaʻau, mai kānalua e nīnau i kāu kauka, kauka lāʻau, a i ʻole ke kauka lapaʻau e mālama nei iā ʻoe. E hiki iā lākou ke hāʻawi iā ʻoe i ka ʻike hou aku. I ka wā e hoʻoholo ai e pili ana i kou olakino, ʻoi aku ka maikaʻi o ka ʻike ʻia!

ʻO Hemophilia A, Antihemophilic Factor, Factor VIII, ELOCTATE, Ke kahe koko ʻana, Lāʻau pale, Lapaʻau