E kamaʻilio kākou e pili ana i ka lymphoma e hoʻopilikia ana i kou ʻōnaehana nerve waena (CNS Lymphoma)?

I kekahi manawa hiki iā kākou ke loaʻa koke i nā pilikia kino, ʻeā? He ʻeha poʻo, he paʻakikī ke ʻōlelo, a i ʻole he manaʻo o ka mana ʻole. I kekahi manawa ʻaʻole mākou e nānā nui i kēia mau mea, akā hiki nō hoʻi iā lākou ke lilo i mau hōʻailona o kekahi maʻi koʻikoʻi. I kēia lā, e kamaʻilio mākou e pili ana i kahi ʻano maʻi kanesa kakaʻikahi akā weliweli e hoʻopilikia ana i ko mākou ʻōnaehana nerve waena.

He aha ka lymphoma CNS?

ʻAe, e nānā mua kākou i ke ʻano o kēia lymphoma o ka ʻōnaehana nerve waena, a i ʻole (CNS Lymphoma) . ʻO CNS ke kū nei no Central Nervous System. I ka ʻōlelo maʻalahi, he ʻano maʻi kanesa koʻikoʻi kēia e ulu ana i loko o kā mākou ʻōnaehana nerve waena , ʻo ia hoʻi, ka lolo, ke kaula spinal (ke kaula nerve i loko o ke kolamu spinal), ka wai cerebrospinal (ka wai e hoʻopuni ana i kēia ʻōnaehana nerve), a me nā maka (no ka mea, kokoke loa nā maka i ka lolo). No ke ʻano lymphoma i kapa ʻia ʻo (Non-Hodgkin lymphoma) kēia.

Hoʻomaka kēia lymphoma CNS i loko o nā hunaola koko keʻokeʻo o ko mākou kino i kapa ʻia he lymphocytes . ʻO kēia mau lymphocytes kekahi ʻāpana o kā mākou ʻōnaehana lymphatic. Ua ʻike anei ʻoe, he ʻāpana koʻikoʻi loa kēia ʻōnaehana lymphatic o kā mākou ʻōnaehana pale . Kōkua ia i ko mākou kino e hakakā i nā maʻi a me nā maʻi. No laila, inā ulu wale kēia lymphoma i loko o kā mākou ʻōnaehana nerve waena a ʻaʻole i loaʻa ma kahi ʻē aʻe o ke kino, kapa mākou ia he primary CNS lymphoma . Eia naʻe, inā loaʻa pū ka lymphoma ma nā ʻāpana ʻē aʻe o ke kino, me ka ʻōnaehana nerve waena, kapa ʻia ia he secondary CNS lymphoma .

ʻOiai hiki ke ulu kēia maʻi kanesa i loko o kekahi kanaka, ʻoi aku ka nui o ka ulu ʻana i loko o ka poʻe me nā ʻōnaehana pale nāwaliwali , e like me ka poʻe me ka maʻi HIV a me ka maʻi AIDS , ʻoiai nā kāne. Loaʻa pū kekahi i ka pilikia no ka poʻe ma luna o 65 mau makahiki . Eia nō naʻe, he maʻi kanesa kakaikahi loa ia. ʻOiai ma kahi ʻāina e like me ʻAmelika Hui Pū ʻIa, aia wale nō ma kahi o 1,500 mau hihia hou i hōʻike ʻia i kēlā me kēia makahiki. No laila, ʻaʻohe mea i kou kūlana, e kōkua kāu hui lapaʻau iā ʻoe e ʻike i ka lāʻau lapaʻau maikaʻi loa e hakakā ai i ka lymphoma CNS.

He aha nā hōʻailona o ka lymphoma CNS?

I kēia manawa, e nānā kākou i nā hōʻailona o kēia lymphoma 'CNS'. ʻOiaʻiʻo, ʻokoʻa nā hōʻailona ma muli o kahi o ka puʻupuʻu . No ka laʻana, inā aia kēia puʻupuʻu i loko o nā membrane e uhi ana i ka lolo a me ke kaula spinal ( ka 'meninges' ), ʻaʻole paha e hōʻike i kekahi mau hōʻailona. Eia nō naʻe, inā he puʻupuʻu kokoke i nā maka, aia paha he mau loli i ka ʻike. A i ʻole, inā he puʻupuʻu ma ka ʻāpana o ka lolo e kaohi ana i ka neʻe ʻana, aia paha he manaʻo o ka numbness, nā loli i ke kaulike e like me ka hele wāwae.

ʻO kēia nā hōʻailona maʻamau o ka lymphoma CNS:

• Ka luaʻi a me ka luaʻi
• Ka nāwaliwali ma nā lima, nā wāwae, a i ʻole ka maka
• Ka nāwaliwali ma kekahi ʻaoʻao o ke kino (hemiparesis)
• Ka hemahema o ka lohe ʻana, ke kuli
• Ka paʻakikī i ka moni ʻana (dysphagia)
• Nā hōʻailona o ka hoʻonui ʻia o ke kaomi i loko o ka lolo (ʻeha poʻo nui, huikau, disorientation)
• Nā pilikia ʻike pōwehiwehi, ʻike pālua, nā mea lana )
• Nā loli i ke kūlana noʻonoʻo (paʻakikī i ka ʻōlelo ʻana, nalowale ka hoʻomanaʻo, manaʻo palaualelo)
• Nā hopu ʻana (hiki ke piʻi mālie kēia i kekahi mau lā a i ʻole mau pule)
• ʻAʻole hiki ke kāohi i ka mimi a me ka ʻōpala (urinary a me fecal incontinence)

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He aha ke kumu o ka lymphoma CNS?

ʻO ka mea aʻe, e nānā kākou i ke kumu o ka lymphoma CNS. E like me nā ʻano lymphoma ʻē aʻe, ulu ka lymphoma CNS i ka wā e hoʻomaka ai nā cell i loko o nā lymph nodes e hana maʻamau ʻole. Hoʻonui kēia mau cell me ke kāohi ʻole ʻia , e hoʻokuke ana i nā cell olakino. I loko o ka lymphoma CNS, ʻo nā cell e hoʻomaka ana e ulu maʻamau ʻole he lymphocytes, kahi ʻano o nā cell koko keʻokeʻo i kapa ʻia ʻo nā cell B.

ʻAʻole maopopo i nā kānaka noiʻi ke kumu e lilo ai kahi lymphocyte i cell cancer, akā ua ʻike lākou i kekahi mau kumu e hoʻonui ai i ka pilikia o ka hoʻomohala ʻana i ka CNS lymphoma.

Nā mea pilikia no ka lymphoma CNS

ʻO kekahi mau kūlana e hoʻonāwaliwali ai i ka ʻōnaehana pale e hoʻonui paha i ka pilikia o ka loaʻa ʻana o ka lymphoma CNS. ʻO kēia mau mea pilikia:

• HIV/AIDS (ʻoi aku hoʻi inā loaʻa iā ʻoe kahi maʻi Epstein-Barr )
• ʻO ka maʻi Wiskott-Aldrich (WIS)
• Ke kūlana immunodeficiency loli maʻamau (CVID)
• ʻAtaxia -telangiectasia
• Ka hoʻohana ʻana i nā lāʻau immunosuppressant ma hope o ka hoʻoili ʻana o kahi kino

Pehea e ʻike ʻia ai ka lymphoma CNS?

Hiki i kāu kauka ke paipai i nā hoʻokolohua a me nā kaʻina hana like ʻole e hoʻoholo ai inā loaʻa iā ʻoe ka lymphoma CNS. Ua kapa ʻia kēia ʻike ʻo ke kahua o ke kanesa . Kōkua kēia pae o ke kanesa i nā kauka e hoʻomaopopo i ka mamao o ka laha ʻana o ke kanesa a me nā lāʻau lapaʻau e kūleʻa ai.

Pono ʻoe e hana i kēia mau hoʻokolohua:

• Hoʻokolokolo kino : E nānā kāu kauka i ke olakino o kou lolo, iwi kuamoʻo, a me nā maka. E hana ʻo ia i kahi hoʻokolokolo neurological e nānā i kāu ʻōnaehana nerve waena (CNS). Hiki iā lākou ke hana i kahi hoʻokolokolo kukui slit e nānā i kahi puʻupuʻu ma hope o ka maka.
• Nā hoʻāʻo kiʻi : No ka ʻike ʻana i kahi o ke kanesa i loko o ke kino, e like me (MRI), (CT scan) a i ʻoleHiki i kāu kauka ke kauoha i kahi scan PET. ʻAʻole laha pinepine ka lymphoma CNS ma waho o ka ʻōnaehana nerve waena. Eia nō naʻe, hiki iā ia ke laha koke i loko o kēlā ʻōnaehana.
• Nā hoʻāʻo koko : Hiki i nā hoʻāʻo koko ke nānā i kāu mau cell no nā hōʻailona o ka maʻi kanesa. ʻO kēia mau mea ka helu koko piha , kahi noiʻi kemika koko, a me kahi hoʻāʻo HIV .
• Nā hoʻāʻo ʻiʻo a me ka wai : Hiki ke lawe ʻia kahi laʻana o kou wai kuamoʻo, ka iwi iwi , a i ʻole ka puʻupuʻu ponoʻī e nānā i nā hunaola kanesa.

He aha nā lāʻau lapaʻau no ka lymphoma CNS?

ʻO ka ʻoiaʻiʻo, ʻaʻohe ala hoʻokahi e kūpono i nā mea āpau no ka mālama ʻana i ka lymphoma CNS. Akā, e paipai kāu hui mālama ola i kahi hoʻolālā lapaʻau e kūpono loa iā ʻoe ma muli o nā mea e like me kou makahiki, inā he HIV/AIDS kou, a inā ua ʻike hou ʻia ke kanesa a ua hoʻi hou mai paha ma hope o ka mālama ʻana (recurrent) . ʻO ka hapa pinepine, e hoʻohana ʻia ka hui pū ʻana o nā lāʻau lapaʻau.

ʻO nā lāʻau lapaʻau no ka lymphoma CNS:

• ʻO Chemotherapy : Pili kēia i ka hoʻohana ʻana i nā lāʻau lapaʻau e pepehi i nā hunaola kanesa. Hoʻohana pinepine ʻia nā dosis kiʻekiʻe o ka lāʻau chemotherapy methotrexate (HD-MTX) e mālama i ka lymphoma CNS i ʻike hou ʻia.
• Lapaʻau radiation : Hoʻohana kēia i nā kukuna ikehu e pepehi i nā hunaola kanesa. ʻO kekahi ʻano lapaʻau radiation e hiki ke kōkua i ka hōʻoluʻolu ʻana i nā hōʻailona, ​​ʻo ia ka radiation holoʻokoʻa o ka lolo . Pepehi ia i nā hunaola kanesa ma loko o ka lolo.
• Lapaʻau i kuhikuhi ʻia : Hoʻohana kēia i nā mea e like me nā protein a me nā antibodies e hoʻouka i nā hunaola kanesa. ʻO Rituximab lāua ʻo ibrutinib nā lāʻau lapaʻau i kuhikuhi ʻia e kāu kauka.
• Hoʻoili pūnaewele kumu : I loko o kahi hoʻoili pūnaewele kumu, hāʻawi ʻia ʻoe i nā hunaola koko olakino e pani i nā hunaola koko i hōʻino ʻia e nā lāʻau lapaʻau maʻi kanesa e like me ka chemotherapy a me ka radiation therapy.
• Nā hoʻokolohua lapaʻau : Hiki i kāu kauka ke kuhikuhi iā ʻoe e komo i kahi hoʻokolohua lapaʻau e hoʻāʻo ai i nā lāʻau lapaʻau hou. Ke aʻo nei nā hoʻokolohua o kēia manawa i ka maikaʻi o nā lāʻau lapaʻau i kuhikuhi ʻia a me nā hui hou o nā lāʻau chemotherapy i ka mālama ʻana i ka lymphoma CNS.

Inā he maʻi HIV ʻoe a he maʻi AIDS paha, pono ʻoe e hoʻomau i kāu antiretroviral therapy (ART) ʻoiai ʻoe e mālama ʻia nei no ka CNS lymphoma.

He aha nā pilikia a me nā hopena ʻaoʻao o ka lāʻau lapaʻau?

Hiki i ka lāʻau lapaʻau no ka lymphoma CNS ke hana i nā hopena ʻaoʻao . E wehewehe mua kāu kauka i kēia mau mea iā ʻoe. No ka laʻana, pepehi ka radiation holoʻokoʻa o ka lolo i nā hunaola kanesa i loko o ka lolo. Eia nō naʻe, hiki iā ia ke hana i nā hopena ʻaoʻao koʻikoʻi e hiki ke hoʻopilikia i ka hana ʻana o kou lolo. Loaʻa nā pilikia i nā koho lapaʻau āpau.

E kamaʻilio me kāu kauka e pili ana i nā pono a me nā pilikia o kāu hoʻolālā lapaʻau. E nīnau inā ʻōlelo lākou i ka mālama palliative, hiki ke kōkua iā ʻoe e hoʻokele i nā hopena ʻaoʻao a me ka hopena holoʻokoʻa o ka maʻi kanesa i kou ola.

He aha kaʻu e manaʻo ai me kēia kūlana?

He maʻi kanesa ulu wikiwiki ka lymphoma CNS, a he kiʻekiʻe kona manawa e hoʻi hou mai ai ma hope o ka mālama ʻana. Eia nō naʻe, ʻo kou manawa e hoʻōla ai, a i ʻole ka prognosis , e pili ana i kekahi mau kumu kikoʻī. ʻO kēia mau mea:

• kou mau makahiki
• Kou kūlana olakino holoʻokoʻa
• Kou kūlana HIV
• Ma hea kahi i loaʻa ai ka puʻupuʻu
• ʻO nā hopena o kāu mau hoʻokolohua kemika koko (hiki i kēia ke hōʻike i ke ʻano o ka hopena o ke kanesa i kou mau kino o loko)

E hana pū kāu hui lapaʻau me ʻoe e ʻimi i ka hoʻolālā lapaʻau e hāʻawi iā ʻoe i ka manawa kūpono loa e ola ai me ka ʻole e hōʻemi i kou ʻano ola.

He aha ka wikiwiki o ka ho'ōla ʻana no ka CNS lymphoma?

Hōʻike nā kānaka noiʻi i nā helu ola o ke kanesa ma ka nānā ʻana i ka nui o ka poʻe me kahi kanesa kikoʻī e ola nei ma hope o kahi manawa i kuhikuhi ʻia, ʻo ia hoʻi ʻelima mau makahiki. ʻO ka helu ola ʻelima makahiki no ka poʻe me CNS lymphoma ma kahi o 30% . ʻO ia hoʻi, ʻekolu o kēlā me kēia ʻumi kānaka me CNS lymphoma e ola ana ma hope o ʻelima mau makahiki.

Eia nō naʻe, he laulā loa kēia mau helu helu. ʻAʻole lākou e noʻonoʻo i nā mea kikoʻī ʻē aʻe e hoʻopilikia i ka manawa e ola ai ka mea maʻi. No ka laʻana, inā ʻaʻole i nāwaliwali kou ʻōnaehana pale, a inā ʻaʻole i pālahalaha ka lymphoma ma waho o ka lolo, ʻoi aku ka maikaʻi o ka hopena. Eia kekahi, ʻaʻole hōʻike kēia mau helu ola pehea e hoʻopilikia ai nā lāʻau hou i kou manaʻolana ola.

ʻO kāu kauka ke kanaka kūpono loa e wehewehe i ka mea e hiki mai ana ma muli o kou kūlana olakino a me kāu hōʻailona maʻi kanesa.

Pehea wau e mālama ai iaʻu iho?

Hiki ke paʻakikī loa ka noho ʻana me ka lymphoma. Hiki iā ʻoe ke hopohopo e pili ana i nā hoʻokolohua a me nā lāʻau lapaʻau āu e hana ai. ʻAʻole paha ʻoe i ʻike pehea e kaʻana like ai i kou mau manaʻo me nā poʻe ʻē aʻe.

Aia i ka manawa e like me kēia,Pono ʻoe e hoʻāʻo e loaʻa ke kākoʻo āpau hiki iā ʻoe . ʻO ia hoʻi ke kamaʻilio ʻana me kāu poʻe aloha, ʻoiai inā he paʻakikī. A i ʻole, ʻo ia hoʻi ke nīnau ʻana i kāu kauka e pili ana i ka mālama palliative a i ʻole nā ​​​​hui kākoʻo . He ʻokoʻa ka huakaʻi maʻi kanesa o kēlā me kēia kanaka. Akā he mea nui e launa pū me nā poʻe ʻē aʻe i kēlā me kēia pae o ka huakaʻi.

Āhea wau e ʻike ai i ke kauka?

ʻOiai inā ua hoʻomaha ʻia kou lymphoma CNS (ʻo ia hoʻi, ʻaʻohe ou hōʻailona a ʻōuli paha o ke kanesa), pono nō ʻoe e nānā mau ʻia e nānā no kekahi hoʻi hou ʻana. Pono ʻoe e ʻike pinepine i kāu kauka i nā makahiki ʻelima mua ma hope o ka mālama ʻana. ʻO kēia no ka mea ʻo ka hapa nui o nā hihia o ka lymphoma CNS e hoʻi mai ana i nā makahiki ʻelima mua.

He aha nā nīnau e pono iaʻu e nīnau aku i ke kauka?

Eia kekahi mau nīnau hiki iā ʻoe ke nīnau i kāu kauka:

• He aha nā hoʻokolohua e pono ai iaʻu e hana e hoʻoholo ai i kaʻu hoʻolālā lapaʻau?
• He aha nā pilikia a me nā pono o nā koho lapaʻau like ʻole?
• ʻEhia pinepine e pono ai iaʻu e hele mai no nā hoʻokolohua e ʻike ai pehea e pane ai ke kanesa i ka lāʻau lapaʻau?
• Ua kūpono anei au e komo i kahi hoʻokolohua lapaʻau ? Ke paipai nei ʻoe e hana pēlā?
• E paipai mai ʻoe i ka mālama palliative noʻu?

ʻO ka leka koʻikoʻi loa e lawe pū me ʻoe i ka home

He maʻi koʻikoʻi ka lymphoma CNS e pono ai ka nānā pono ʻana a me kahi hoʻolālā lapaʻau i hana kūikawā ʻia nou. He mea nui e hana pū me kahi hui lapaʻau i loaʻa ka ʻike i ka mālama ʻana i ka lymphoma a i ʻole nā ​​​​maʻi ʻaʻai e hoʻopilikia ana i ka ʻōnaehana nerve waena (CNS).

Hiki i kāu hui lapaʻau ke wehewehe i kāu mau koho lapaʻau, kōkua iā ʻoe e kaupaona i kā lākou mau pono a me nā pilikia a i ʻole nā ​​​​hopena ʻaoʻao, a hoʻopili iā ʻoe me nā loea mālama palliative hiki ke hāʻawi iā ʻoe i ka hōʻoluʻolu i kou hoʻoholo ʻana i kāu mau hana aʻe.

ʻO ka lymphoma CNS, ka ʻōnaehana nerve waena, ka maʻi ʻaʻai, ka maʻi ʻaʻai lolo, lymphoma, ʻōnaehana pale, lāʻau lapaʻau