Ke manaʻo pinepine nei ʻoe i nā ʻehaʻeha a me nā ʻehaʻeha i loko o kou kino, ʻeha hui, a i ʻole kekahi loli ʻē aʻe i kou ʻili? I kekahi manawa poina iā mākou kēia mau mea, me ka manaʻo he luhi maʻamau a ʻelemakule paha. Akā i kekahi manawa hiki i kēia mau hōʻailona pili ʻole ke lilo i hōʻailona o kahi mea e hana nei i loko o ko mākou kino. ʻO ia kekahi o nā maʻi a mākou e kamaʻilio ai i kēia lā. ʻO ia ka maʻi pili o nā ʻiʻo, a i ʻole e like me kā mākou e ʻōlelo nei ma ka ʻōlelo Pelekania, 'Connective Tissue Disease'.
I ka ʻōlelo maʻalahi, he aha ka ʻiʻo hoʻopili?
E noʻonoʻo i ko kākou kino me he hale lā. Hoʻohana kākou i nā mea e like me ka sima a me ka sima e hoʻopili a hoʻopaʻa i nā ʻāpana o kēia hale, e hoʻopaʻa iā lākou i ka ikaika, ʻeā? Pēlā nō, ʻo ke ʻano o nā ʻiʻo e hoʻopili ai, kākoʻo, a pale i nā mea āpau i loko o ko kākou kino, e like me nā ʻōpū, nā iwi, a me nā ʻiʻo, ua kapa ʻia he ʻiʻo pili . He mau ʻiʻo waiwai i ka protein kēia. ʻO ka momona, ka iwi, a me ke cartilage kekahi mau laʻana o kēia ʻiʻo pili.
No laila, ʻo kēia mau kūlana e hoʻopilikia ai i nā ʻiʻo pili ʻo ia ka mea a mākou e kapa nei ʻo 'Connective Tissue Disease'. Aia ma mua o 200 mau ʻano maʻi e hāʻule ana ma lalo o kēia māhele. Hiki i kēia mau mea ke hoʻopilikia nui i kou mau hono, nā ʻiʻo a me ka ʻili. Hiki iā lākou ke hoʻopilikia i nā ʻōpū o loko e like me nā maka, ka puʻuwai, nā māmā, nā puʻupaʻa a me nā kīʻaha koko.
ʻElua ʻano nui o kēia mau maʻi.
Hiki ke hoʻokaʻawale ʻia kēia hui o nā maʻi i ʻelua mau māhele nui. ʻO ka hoʻomaopopo ʻana i kēlā e kōkua iā ʻoe e loaʻa kahi ʻike nui aʻe o kēia mau maʻi.
| ʻAno maʻi | Kumu a me ka wehewehe |
|---|---|
| Nā maʻi hoʻoilina | He mau maʻi kēia i hoʻokumu ʻia e nā kīnā hoʻoilina. ʻO ia hoʻi, nā kūlana i hoʻoilina ʻia mai nā mākua a i nā keiki. He mea laha ʻole kēia mau mea. |
| Nā maʻi Autoimmune | ʻO ka mea e hana ʻia ma ʻaneʻi, ʻo ka ʻōnaehana pale kino, ka mea i manaʻo ʻia e pale i ko mākou kino, ke hoʻouka hewa nei i ko mākou ʻiʻo pili ponoʻī. ʻOiai ʻaʻole ʻike ʻia ke kumu pololei, ua manaʻoʻiʻo ʻia he kuleana ko nā mea pili i ke kaiapuni (uahi, lepo), nā hemahema meaʻai (nā huaora D, C), nā maʻi, a me ka nui o ka lā. |
ʻO kekahi mau maʻi hoʻoilina nui
- ʻO ka Ehlers-Danlos Syndrome (EDS): ʻO kēia ke kumu o ka palupalu nui ʻana o nā hono, ka ʻili e palupalu, a me nā ʻeha maʻamau ʻole i ka wā e ho'ōla ai i ka ʻeha. Hiki nō hoʻi ke loaʻa nā maʻi ʻeha o ka iwi kuamoʻo a me nā pilikia o ka valve puʻuwai.
- ʻO Marfan Syndrome: He kiʻekiʻe loa kēia poʻe. He lōʻihi loa nā manamana lima a hiki ke like me nā wāwae nananana. Hiki ke loaʻa nā pilikia me nā maka, ka puʻuwai, a me ke kīʻaha koko nui (aorta).
- ʻO ka Osteogenesis Imperfecta: Ua kapa ʻia hoʻi kēia ʻo "ka maʻi iwi brittle." He maʻalahi ka haki ʻana o nā iwi. ʻO nā hōʻailona e komo pū ana me kahi ʻulaʻula/hina i nā keʻokeʻo o nā maka, ka haki maʻalahi o nā niho, a me ka nalowale o ka lohe. Hoʻokumu ʻia kēia e kahi kīnā genetic i ka hana ʻana o ka collagen, kahi protein koʻikoʻi no nā iwi a me ka ʻili.
- ʻEpidermolysis Bullosa (EB): Lilo ka ʻili i mea ʻeha loa. ʻOiai kahi palapū liʻiliʻi a i ʻole ka hamo ʻana i nā lole hiki ke hana i nā pehu a me nā ʻeha.
Hiki ke ʻike ʻia kēia mau maʻi hoʻoilina i ka wā ʻōpiopio.
Nui nā maʻi autoimmune
ʻO kēia nā ʻano maʻi pili pili maʻamau.
- ʻO ka Rheumatoid Arthritis (RA): ʻAʻole kēia he maʻi hui wale nō. I kēia kūlana, hoʻouka ka ʻōnaehana pale i ka membrane lahilahi e uhi ana i nā hui. Hoʻoulu kēia i ka ʻeha, ka pehu, ka mehana, a me ka ʻoʻoleʻa kakahiaka i nā hui . Eia kekahi, aia paha ka luhi nui, ka anemia, a me ka manaʻo o ka nāwaliwali.
- ʻO Systemic Lupus Erythematosus (SLE) - Lupus: He maʻi ʻo Lupus e hiki ke hoʻopilikia i nā ʻāpana he nui o ke kino i ka manawa like. He hōʻailona maʻamau ka ʻulaʻula pepeke . Eia kekahi, hiki ke loaʻa nā ʻeha waha, ka nalowale o ka lauoho, ka ʻike ʻana i ka lā, nā pilikia puʻupaʻa, a me ka ʻeha o nā hono.
- Scleroderma: ʻO ka hōʻailona nui o kēia ka mānoanoa a me ka paʻakikī o ka ʻili. ʻAʻole ia e kīkoʻo pono. Hiki ke kaupalena ʻia kēia i ka ʻili, a i ʻole hiki ke hoʻopilikia i nā ʻōpū o loko.
- ʻO ka maʻi Sjögren: Ma kēia ʻano, hoʻouka ka ʻōnaehana pale i nā kelepa e hana ana i ka lawai a me nā waimaka. ʻO nā maka maloʻo a me ka waha maloʻo nā hōʻailona nui. He mea maʻamau nō hoʻi ka luhi a me ka ʻeha o nā hono.
- ʻO Polymyositis a me Dermatomyositis: Hoʻoulu kēia mau maʻi ʻelua i ka mumū o nā ʻiʻo, e hopena ana i ka nāwaliwali o nā ʻiʻo ., ʻoi aku hoʻi ma nā poʻohiwi a me nā ʻūhā. Lilo ia i mea paʻakikī ke ala aʻe mai kahi noho a piʻi paha i nā alapiʻi. Hoʻopilikia pū ka Dermatomyositis i ka ʻili, ʻoi aku hoʻi a puni nā maka a ma nā lima.
Pehea ʻoe e ʻike ai inā loaʻa iā ʻoe kēia maʻi?
Inā loaʻa iā ʻoe kēia mau hōʻailona, ʻo ka mea nui loa hiki iā ʻoe ke hana, ʻo ia ke ʻike i kahi kauka kūpono. ʻO ka nānā ponoʻī ʻana e hoʻoulu wale i ka makaʻu pono ʻole. E nānā kāu kauka iā ʻoe a nīnau e pili ana i kāu mau hōʻailona a me ka mōʻaukala olakino ʻohana.
Ma hope o kēlā, hiki ke ʻōlelo ʻia kekahi mau hoʻokolohua e hōʻoia i ka hōʻailona:
- Nā hoʻāʻo koko a me ka mimi: E nānā no ka mumū a me nā antibodies kikoʻī i loko o ke kino.
- Nā kiʻi X-ray a me MRI: E nānā i ke kūlana o nā iwi, nā hono, a me nā ʻōpū o loko.
- Biopsy ʻiʻo: Ke lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻili a i ʻole ke ʻiʻo a nānā iā ia ma lalo o kahi microscope.
- E nānā i nā maka maloʻo a me ka waha: E ʻike i nā kūlana e like me ka Sjögren's Syndrome.
Hiki ke paʻakikī ka ʻike ʻana i kēia mau maʻi i kekahi manawa no ka mea hiki ke like nā hōʻailona like i nā maʻi he nui. No laila, he mea nui e hāʻawi i ke kauka i ka manawa e hana ai i kahi hōʻike pololei.
Pehea e mālama ʻia ai?
ʻO nā koho lapaʻau e hilinaʻi wale ʻia ma ke ʻano kikoʻī o ka maʻi āu e loaʻa ai a me kona koʻikoʻi. ʻAʻohe lāʻau lapaʻau hoʻokahi e kūpono i nā mea āpau.
- No kekahi poʻe, ua lawa paha ka hāʻawi ʻana iā lākou i nā huaora a i ʻole nā mea hoʻopihapiha meaʻai.
- No nā maʻi autoimmune he nui, hāʻawi ʻia nā lāʻau lapaʻau e kaohi ai i ka hana o ka ʻōnaehana pale.
- Hāʻawi ʻia nā lāʻau lapaʻau e kāohi i ka ʻeha a me ka pehu.
- He mea nui ka lāʻau physiotherapy no ka mālama ʻana i ka hana maikaʻi o nā hono a me nā ʻiʻo.
- Pono paha ʻoe e ʻimi i ke kōkua o nā loea like ʻole, e like me ke kauka dermatologist a i ʻole ke kauka ʻoki maka.
ʻO ka mea nui loa, ʻo ia ka mālama mau ʻana i ka launa pū ʻana me kāu kauka . Inā he loli i nā hōʻailona a i ʻole kekahi mau hōʻailona hou, e hoʻomaopopo koke i kāu kauka.
Hiki i kēia mau maʻi ke lilo i mea koʻikoʻi?
ʻAe, hiki i kekahi mau maʻi pili ke hana i nā pilikia koʻikoʻi inā ʻaʻole mālama pono ʻia. Eia kekahi laʻana:
- Ke koko kiʻekiʻe o ka puʻuwai
- Maʻi puʻuwai interstitial
- Maʻi puʻuwai a me ka hōʻino ʻana o nā puʻupaʻa
- Anemia
Akā, ʻaʻole pono ʻoe e makaʻu ma ʻaneʻi.Hiki ke pale ʻia a kāohi ʻia ka nui o kēia mau pilikia ma ka ʻike ʻana i ka maʻi i ka manawa kūpono a me ka hahai ʻana i ka lāʻau lapaʻau kūpono a me nā ʻōlelo aʻoaʻo. ʻO ia ke kumu a mākou e ʻōlelo nei e mālama iā ia i ka wā e ʻike ai ʻoe i ka ʻeha i loko o kou kino.
Leka Lawe-Home
- ʻAʻole ka maʻi pili he maʻi hoʻokahi, akā he hui o nā maʻi.
- Hiki ke ʻike ʻia nā ʻano hōʻailona like ʻole, e like me ka ʻeha o nā hono, nā loli o ka ʻili, ka nāwaliwali o nā ʻiʻo, a me ka luhi nui.
- Hiki i kēia ke lilo i mau maʻi hoʻoilina i hoʻoilina ʻia a i ʻole nā maʻi autoimmune i hoʻokumu ʻia e nā pilikia me ka ʻōnaehana pale.
- Inā loaʻa iā ʻoe nā hōʻailona i wehewehe ʻole ʻia no ka manawa lōʻihi, e ʻike pono i ke kauka. Mai hoʻāʻo iā ʻoe iho ma ka nānā ʻana i ka ʻike ma ka pūnaewele.
- Me ka ʻike pololei a me ka mālama pilikino, hiki ke mālama maikaʻi ʻia kēia mau kūlana a hiki ke hoʻokō ʻia kahi ola maikaʻi.
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