Ke manaʻo nei ʻoe i kekahi manawa he ʻeha kou a me nā ʻeha ma nā wahi like ʻole o kou kino, akā ʻaʻole hiki iā ʻoe ke ʻike pono i kekahi o lākou, a me he mea lā ʻaʻole pili lākou? Malia paha ua luhi mau ʻoe, ua puni ka poʻo, a ua pilikia paha ʻoe i ka hanu ʻana? ʻO kahi maʻi i kapa ʻia ʻo dysautonomia paha ke kumu.
I ka ʻōlelo maʻalahi, ʻo kēia `(Dysautonomia)` ʻo ia hoʻi ua hewa ka `(Autonomic Nervous System - ANS)` i loko o ko kākou kino. I kēia manawa ke noʻonoʻo nei ʻoe i ke ʻano o kēia `(ANS)`. ʻO ia ka ʻōnaehana super e kaohi ana i nā mea e hana nei i loko o ko kākou kino me ka ʻole o ko kākou noʻonoʻo ʻana . E noʻonoʻo e pili ana, ʻaʻole anei ʻoe e noʻonoʻo i nā mea e like me kou puʻuwai, ke ʻano o kou hanu ʻana, ka mahana o kou kino, ka hou ʻana, a me ka ʻai ʻana? Mālama ʻia lākou a pau e kēia ``ANS``. No laila, i ka wā e hewa ai kēia ʻōnaehana, hoʻomaka nā pilikia e kū mai.
ʻO kēia kūlana i kapa ʻia ʻo `(Dysautonomia)` ʻaʻole ia he mea laha ʻole e like me kou manaʻo. ʻOi aku ma mua o 70 miliona mau kānaka ma ka honua holoʻokoʻa i loaʻa i kekahi ʻano o ia mea. No kekahi poʻe, hiki ke hānau ʻia , a i ʻole hiki ke ulu i kēlā me kēia manawa o ke ola. Akā ʻo ka hapa nui e hoʻomaka ia e ʻike ʻia ma waena o nā makahiki 50 a me 60. Eia nō naʻe, i kekahi manawa he mea paʻakikī i kā mākou mau kauka ke ʻike iā ia. No ka mea, hiki ke ʻokoʻa loa nā hōʻailona o kēia mai kekahi kanaka a i kekahi, a hiki ke hele mai i nā ʻano like ʻole. No laila hiki ke paʻakikī iki ka ʻike ʻana, ka hoʻomaopopo pono ʻana i ka mea e hana nei, a me ka mālama ʻana.
No laila he aha nā hōʻailona o Dysautonomia?
ʻAe, e nānā kākou i ke ʻano o nā mea a ke kanaka me ka "Dysautonomia" e manaʻo ai. ʻOiai ke hoʻopilikia nei kēia i kēlā me kēia ʻōnaehana i loko o ko mākou kino, ʻokoʻa loa nā hōʻailona.
- Ke kaumaha nei a hāʻule pinepine.
- Ka mae ʻana a me ka nalowale ʻana o ka ʻike, ʻoiai hoʻi i ke kū ʻana.
- Manaʻo luaʻi a me ka luaʻi.
- Manaʻo e like me ka noe o kou lolo ('Brain fog'), poina i nā mea, a paʻakikī ke kau i ka manaʻo ma kahi mea hoʻokahi.
- ʻO ka wikiwiki o ka puʻuwai (`Tachycardia`) a i ʻole lohi loa (`Bradycardia`).
- Nā haumāna liʻiliʻi (nā haumāna kikoʻī) a i ʻole nā haumāna nui aʻe (nā haumāna ākea loa).
- Nā loli i ka hana o ka ʻōpū (constipation a i ʻole ka diarrhea).
- Ke luhi mau nei, a ʻaʻole luhi me ka nānā ʻole i ka nui o kāu hiamoe ʻana.
- Hana ʻino i ka moekolohe.
- Ke manaʻo nei i ka ʻeha o ka umauma a i ʻole ka ʻoluʻolu ʻole.
- ʻO ka incontinence mimi ka pono e mimi pinepine a i ʻole ka hiki ʻole ke kaohi i ka mimi .
- Paʻakikī ka hanu ʻana (Dyspnea).
- Lilo ka ʻili i anu, hou, a keʻokeʻo paha.
- He manaʻo ʻē ka palpitations o ka puʻuwai.
- Nā pilikia e hoʻāla ai iā ʻoe, nā pilikia e hoʻāla ai iā ʻoe.
- Ka paʻakikī i ka ale ʻana i ka meaʻai (Dysphagia).
- Puʻuwai kūpono ʻole (Arrhythmia).
- Ke ʻano maʻalahi i nā walaʻau nui a me nā kukui ʻālohilohi.
- Manaʻo poniuniu, ʻoiai ke kū nei.
- Haʻahaʻa ke kō koko (Hypoglycemia).
- ʻOi aku ka hou ʻana ma mua o ka maʻamau, a i ʻole ka hou ʻole ʻana, malia paha ma kekahi mau wahi o ke kino wale nō.
- Nā maka maloʻo, a i ʻole nā waimaka pinepine.
- ʻO ka migraines a i ʻole ke poʻo ʻeha pinepine.
- Nā loli koke i ka mahana o ke kino.
- Nui ka lawai e puka mai ana.
- Nā loli o ka naʻau a i ʻole ka hopohopo mau.
- Nā pilikia ʻike (ʻike maopopo ʻole, paʻakikī ke hoʻololi i ke ao waho).
- ʻO ke ʻano hoʻomanawanui ʻole i ka hoʻoikaika kino ʻana, ʻo ia ka wā ʻaʻole e loli ai ka helu o ka puʻuwai i ka wā o ka hoʻoikaika kino.
- Ka mimi pinepine ʻana.
- ʻO ka vertigo.
E noʻonoʻo i ka paʻakikī inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona i ka manawa hoʻokahi. I kekahi manawa, ʻaʻole like lākou me he mea lā no ka maʻi hoʻokahi. ʻO ia ke kumu e lōʻihi ai ka manawa e ʻike ai.
No ke aha e ulu ai kēia `(Dysautomia)`? He aha nā kumu?
ʻElua ʻano nui o ka dysautonomia ma muli o ke ʻano o kona ulu ʻana.
1. Kumu: ʻO ke ʻano kēia, ʻaʻole ia i hoʻokumu ʻia e kekahi maʻi ʻē aʻe, akā e ulu wale ana.
2. Lua: ʻO ke ʻano kēia, hiki mai ia ma ke ʻano he hopena ʻaoʻao o kahi maʻi ʻē aʻe.
ʻO ka dysautonomia mua
ʻO kēia nā mea e kū mai ana me ke kumu ʻole. ʻAʻole lākou i maʻamau e like me nā mea lua.
ʻO kahi laʻana o kēia he ʻano neuropathy autonomic i kapa ʻia ʻo "Familial Dysautonomia." Hiki paha iā ʻoe ke loaʻa iā ia no nā kumu aʻe:
- Inā he Iudaio ʻoe (ʻoi aku ka poʻe Iudaio Ashkenazi).
- Inā no ʻEulopa Hikina ʻoe.
- Inā loaʻa i kekahi o kou ʻohana (ʻoi aku hoʻi nā mākua a i ʻole nā hoahānau) ka `(Dysautonomia)`.
ʻO kekahi ʻano nui ʻo ia ka "idiopathic" dysautonomia, ʻo ia hoʻi ke kū mai nei no ke kumu i hiki ʻole i nā kauka ke loaʻa a wehewehe paha.
ʻO ka dysautonomia lua
ʻO kēia ka manawa e ulu ai ka "Dysautonomia" ma muli o nā maʻi ʻē aʻe. Eia kekahi mau laʻana (a he nui aku paha):
- ʻAmyloidosis
- ʻO ka maʻi ʻo Lou Gehrig (Amyotrophic Lateral Sclerosis) (ALS)
- ʻO ka Ganglionopathy Autonomic Autonomic (AAG)
- ʻO ka Dysreflexia Autonomic
- Botulism
- Nā puʻupuʻu lolo (me ke kanesa)
- ʻO ke ʻano ʻino o Chiari
- ʻO ka Syndrome ʻEha ʻĀpana Paʻakikī (CRPS)
- Ka maʻi COVID-19 (ʻoi aku hoʻi ke kūlana "COVID lōʻihi", ʻo ia hoʻi ke ola ʻana o nā hōʻailona ma mua o ka mea i manaʻo ʻia)
- ʻO ka Ehlers-Danlos Syndrome (a me nā maʻi ʻē aʻe o nā ʻiʻo pili)
- ʻO ka maʻi Guillain-Barré
- ʻO ka Dementia Kino Lewy
- Lupus
- Maʻi Lyme
- Kekahi mau lāʻau lapaʻau a i ʻole nā lāʻau lapaʻau.
- ʻO ka Sclerosis lehulehu a me ka Neuromyelitis Optica
- ʻO ka Atrophy ʻōnaehana lehulehu (MSA)
- ʻO ka maʻi ʻino Neuroleptic
- ʻO ka hypotension Orthostatic (ke koko haʻahaʻa i ke kū ʻana)
- Ka maʻi o Parkinson
- ʻO Porphyria (ʻoi aku ka porphyria intermittent koʻikoʻi)
- ʻO ka maʻi Tachycardia Orthostatic Postural (POTS)
- ʻO ka Hyperhidrosis Focal Mua
- Ka Hāʻule ʻAna o ke Kino Maʻemaʻe
- ʻO ka ʻāʻī rheumatoid
- ʻO ka Sarcoidosis
- ʻO ka maʻi Serotonin
- ʻO ka maʻi Sjögren
- ʻEha o ke kaula kuamoʻo
- Nā mea ʻawahia, nā lāʻau make a i ʻole nā metala kaumaha (e like me ka mercury, arsenic a i ʻole nā organophosphates i loaʻa i nā pesticides)
- ʻEha lolo traumatic
- ʻO ka maʻi kanaka paʻakikī
- Tetanus
- ʻAno 2 Diabetes
- ʻO ka syncope Vasovagal (i kapa ʻia hoʻi ʻo "neurocardiogenic syncope")
- Ka nele o ka wikamina B12
- ʻO ka maʻi Wernicke-Korsakoff (ka nele o ka huaora B1)
Eia, he nui nā mea e hiki ai ke hana i kēia. ʻO ia ke kumu he paʻakikī i kekahi manawa ke ʻike pololei.
He aha nā pilikia e hiki mai ana ma muli o kēia `(Dysautomia)`?
Ma muli o ka hoʻopilikia ʻana o Dysautonomia i nā kaʻina hana koʻikoʻi he nui i loko o ko mākou kino, hiki iā ia ke alakaʻi i nā ʻano pilikia like ʻole. I ka manawa pinepine, kū mai kēia mau pilikia mai nā hōʻailona o Dysautonomia, ʻoiai inā he koʻikoʻi a hoʻopilikia paha i kāu mau hana o kēlā me kēia lā.
Hiki ke manaʻo ʻia kēia mau mea he mau hōʻailona koʻikoʻi a me nā pilikia:
- Nā pilikia o ka puʻuwai (wikiwiki loa, lohi loa, a i ʻole kūpono ʻole).
- Ka nāwaliwali (hiki i kēia ke alakaʻi i ka hāʻule ʻana a me nā ʻeha).
- Paʻakikī ka hanu ʻana.
- Nā pilikia ʻōpū, hiki ke hoʻoulu i ka pehu ʻana, ka maʻi diarrhea, a i ʻole nā pilikia ʻē aʻe.
- Hiki i nā pilikia me ka hana o nā puʻupaʻa ke alakaʻi i nā maʻi ʻaʻai mimi (UTIs) a i ʻole ka incontinence.
ʻO kāu kauka ke kanaka maikaʻi loa e haʻi iā ʻoe i nā pilikia āu e ʻike ai, pehea e pale aku ai iā lākou, a pehea e hōʻemi ai i ko lākou hopena.
Pehea e ʻike ai nā kauka i ka dysautonomia?
Hoʻohana ke kauka i ka hui pū ʻana o nā ʻano hana a me nā hoʻāʻo e ʻike ai i ka dysautonomia. ʻO ka hapa pinepine , ua ʻike ʻia ma ka kāpae ʻana i nā maʻi ʻē aʻe (kaʻina hana o ka hoʻopau ʻana). Nānā pū lākou i ke ʻano o ka ʻike ʻia ʻana o nā hōʻailona, i ka wā e ʻike ʻia ai, a inā he pilina ma waena o lākou.
Eia nō naʻe, hiki i ke kauka akamai ke paʻakikī i ka ʻike ʻana i ka `(Dysautonomia)`. ʻO kēia no ka mea hiki iā ia ke hana i nā hōʻailona ma ke kino holoʻokoʻa, a hiki ke like me ka pili ʻole. I kekahi manawa, hāʻawi wale nā kauka i nā hōʻailona i ka maʻi ʻē aʻe e hoʻoulu ai i ka `(Dysautonomia)`, a ʻaʻole paha e ʻike aia kekahi mea e like me `(Dysautonomia)`.
Eia kekahi mau hoʻokolohua e hiki ke kōkua i ka diagnose dysautonomia (a i ʻole e hoʻopau i nā kūlana ʻē aʻe):
- Ka hoʻokolohua kino a me ka neurological.
- Hoʻāʻo papa hoʻokiʻekiʻe. Ma kēia hoʻāʻo, kau ʻia ʻoe ma luna o kahi papa i hoʻokiʻekiʻe ʻia a nānā ʻia kou puʻuwai a me ke koko.
- Nā hoʻāʻo puʻuwai (ʻoi aku hoʻi ʻo `ECG` - `Electrocardiogram`).
- Nā hoʻāʻo e pili ana i ka hou ʻana (e.g. `Quantitative Sudomotor Axon Reflex Test - QSART`).
- Hoʻāʻo Pupillometry.
- Nā hoʻokolohua e like me ka ultrasound no ka incontinence urinary.
- Nā hoʻāʻo koko (ʻoi aku hoʻi e nānā i nā antibodies e hōʻike ana i kahi maʻi autoimmune, a i ʻole e nānā i nā pae o kekahi mau neurotransmitters e like me catecholamines).
Ma muli o kāu mau hōʻailona, hiki ke hana ʻia nā hoʻokolohua ʻē aʻe. E haʻi aku kāu kauka iā ʻoe e pili ana i nā hoʻokolohua e hiki ke kōkua iā ʻoe.
Aia kekahi lāʻau lapaʻau no kēia? Hiki ke ho'ōla ʻia?
ʻO ka ʻoiaʻiʻo, ʻaʻohe lāʻau lapaʻau no Dysautonomia. Eia nō naʻe, hiki ke hoʻomalu nui ʻia nā hōʻailona. ʻO ka lāʻau lapaʻau no Dysautonomia e pili ana i nā kumu he nui, ʻoiai ke kumu.
Eia kekahi mau lāʻau lapaʻau e hiki ke kōkua:
- Nā loli i ka ʻai. No ka laʻana, ʻo ka hoʻohui ʻana i ka paʻakai hou aʻe i kāu ʻai hiki ke hoʻonui i ke koko a hōʻemi i ka hāʻule koke ʻana o ke koko ke kū ʻoe i luna.
- Hoʻomaʻū. ʻO ka inu ʻana i ka wai he nui e kōkua i ka mālama ʻana i ke koko.
- Nā lāʻau lapaʻau e hoʻonui ai i ke koko. He mea pono kēia no ka poʻe me ka orthostatic hypotension (ka emi ʻana o ke koko ke kū i luna).
- Nā lāʻau lapaʻau immunosuppressant a i ʻole nā lāʻau lapaʻau ʻē aʻe o ka ʻōnaehana pale. Hiki i kēia ke mālama i ka dysautonomia e hele mai me nā kūlana autoimmune (ʻo ka autoimmune ka wā e hoʻouka ai ka ʻōnaehana pale o kou kino i kou kino ponoʻī).
I kekahi manawa, inā hana ʻia ka dysautonomia e ka lāʻau lapaʻau a i ʻole ka lāʻau lapaʻau, ʻo ka mea mua e hana ai, ʻo ia ke hoʻōki i ka lāʻau lapaʻau a hoʻohuli paha i ka lāʻau.
Ma muli o nā ʻano lapaʻau like ʻole no ka `(Dysautonomia)`, hiki i kāu kauka ke aʻo maikaʻi iā ʻoe i ka lāʻau lapaʻau kūpono iā ʻoe. E wehewehe ʻo ia i nā koho i kūpono loa i kou kūlana a me nā pono. E wehewehe pū ʻo ia i nā hopena ʻaoʻao, nā pilikia, a pehea e pale aku ai iā lākou.
He aha ke ʻano o nā ʻike e pono ai i kekahi me `(Dysautomia)` ke kū i mua?
He ʻokoʻa loa ka Dysautonomia no kēlā me kēia kanaka . Hiki ke ʻokoʻa i loko o kahi ʻohana. Hiki ke ʻokoʻa loa kāu mau hōʻailona mai ko kekahi. Eia kekahi, ʻokoʻa kāu mau hōʻailona a me ke ʻano o ko lākou hopena i kou ola.
Hiki i nā poʻe he nui ke paʻakikī ke ʻike inā loaʻa iā lākou ka Dysautonomia. Inā ʻoe e huhū nei, makaʻu, a i ʻole he mau manaʻo paʻakikī ʻē aʻe e pili ana i kāu mau hōʻailona, ʻaʻole ʻoe hoʻokahi . He mea maʻamau no nā poʻe he nui me Dysautonomia ke ʻike i kēia mau manaʻo.
Pehea ka lōʻihi o kēia?
Hiki ke lilo kekahi ʻano o ka "Dysautonomia" i mea manawa pōkole, akā i ka hapanui o nā hihia he maʻi ia no ke ola holoʻokoʻa .
Pehea lā e holo ai nā mea i ka wā e hiki mai ana?
He kūlana paʻakikī ke wānana ʻia ʻo Dysautonomia a ʻaʻole hiki ke wehewehe piha ʻia. Loaʻa paha i kekahi poʻe nā hōʻailona i nā manawa a pau. ʻAʻohe hōʻailona o kekahi no nā mahina a i ʻole nā makahiki. He mea paʻakikī ke wānana pololei i ke ʻano o kou ola me Dysautonomia, akā hiki i kāu kauka ke kōkua iā ʻoe e hoʻomaopopo i ka mea e hiki mai ana a me ka mea hiki iā ʻoe ke hana e hōʻemi i ka hopena i kou ola.
Ma muli o ke kumu, he pilikia liʻiliʻi paha ka Dysautonomia. Akā, hiki i kekahi mau ʻano, ʻoiai nā mea hiki ʻole ke ho'ōla ʻia a mau loa, ke loaʻa ka hopena nui. I nā hihia koʻikoʻi, hiki i nā hōʻailona ke hoʻopilikia i kou hiki ke hana a komo i nā mea āu e hauʻoli ai. Hiki i ke kūlana ke alakaʻi i nā pilikia e hoʻoweliweli ai i ke ola.
ʻAʻole anei hiki ke pale ʻia kēia?
Hoʻomohala koke ʻia ka Dysautonomia a no nā kumu i maopopo ʻole ai i nā loea. No laila, ʻaʻohe ala e pale aku ai a hōʻemi paha i ka pilikia o ka hoʻomohala ʻana.
Pehea wau e mālama ai iaʻu iho inā loaʻa iaʻu ka `(Dysautomia)`?
He ʻano paʻakikī ka Dysautonomia. He nui ka poʻe me ia e paʻakikī ana i ka loaʻa ʻana o ke kauka hiki ke nānā a mālama iā ia. Hiki i ka nui o ka poʻe ke manaʻo i ka huhū a makaʻu paha e pili ana i ka mālama ʻana no ka mea ʻaʻole lākou i ʻike i ke kumu o kā lākou mau hōʻailona, a ʻaʻole hiki i nā kauka ke loaʻa ke kumu no lākou.
Inā loaʻa iā ʻoe nā hōʻailona o `(Dysautonomia)`, inā ʻoe e manaʻo nei i kēia mau manaʻo, ʻaʻole ʻoe hoʻokahi . A, hiki iā ʻoe ke hana i nā hana e kōkua iā ʻoe iho, e loaʻa kahi hōʻailona, a loaʻa ka lāʻau lapaʻau. Eia kekahi mau mea hiki iā ʻoe ke hana:
- E huli i ke kauka āu e hilinaʻi ai. He mea nui ka pilina ma waena ou a me kāu kauka i ka ʻike ʻana, ka mālama ʻana, a me ka hoʻokele ʻana i kāu dysautonomia. Inā pilikia ʻoe i ke kamaʻilio ʻana me ke kauka, inā ʻaʻole lākou e hoʻolohe iā ʻoe, a inā ʻaʻole lākou i loaʻa ka ʻike e hoʻomaopopo a mālama i kou kūlana, e kiʻi i kahi manaʻo ʻelua a i ʻole e ʻimi i kekahi kauka ʻē aʻe.
- E mālama i kahi puke moʻolelo o kēlā me kēia lā no kāu mau hōʻailona, nā mea āu i hana ai, a me kou manaʻo. E kikoʻī loa e pili ana i kāu mea e kākau ai. Hiki i ka ʻike āu e hōʻiliʻili ai ke kōkua i ke kauka e loaʻa kahi kiʻi maikaʻi aʻe o kāu mea e hele nei, a i ʻole e kōkua iā ʻoe e hoʻololi i kāu lāʻau lapaʻau.
- E hoʻonohonoho pono i nā mea āpau. ʻO ka loaʻa ʻana o kahi ala e noho mau ai e pili ana i kāu mau hōʻailona, kūlana, a me ka mālama ʻana hiki ke hana i kahi ʻokoʻa nui. Hiki iā ia ke hāʻawi i kāu mau kauka i ka ʻike hou aku e pili ana i kāu mea e hele nei, a hiki ke kōkua i ka hōʻemi ʻana i kou makaʻu i ke kamaʻilio ʻana e pili ana i nā mea e hana nei.
- E mākaukau. E mālama i nā mea e like me nā ʻatikala noiʻi e pili ana i ka `(Dysautonomia)` (i loko o kāu ʻeke, i loko o kāu kaʻa, a pēlā aku), a hāʻawi iā lākou i ke kauka inā pono. Eia kekahi, ke hele ʻoe i kekahi manawa a i ʻole e ʻike i ke kauka, e lawe i kahi ʻōmole wai, kahi meaʻai māmā liʻiliʻi, a me nā lāʻau lapaʻau āu e pono ai. Hiki i kēia mau mea ke kōkua iā ʻoe e pale a hōʻemi paha i nā hōʻailona e kū mai ana i nā manawa paʻakikī.
- E ʻōlelo nou iho (a i ʻole e noi i kekahi no ke kōkua). Inā he hoaaloha hilinaʻi a ʻohana paha kāu e hiki ke hele pū me ʻoe, e noi iā lākou no ke kōkua. E kamaʻilio mua me lākou a wehewehe i kāu mea e hopohopo nei a pehea e hiki ai iā lākou ke kōkua.
E hoʻomanaʻo, ʻo ʻoe ka mea ʻoi loa ka ʻike i kou olakino, no laila e haʻi pololei i kāu kauka e pili ana i kou manaʻo.
He aha nā mea āu e pono ai/ʻaʻole pono e ʻai/inu i ka wā e loaʻa ai iā ʻoe ka `(Dysautonomia)`?
Inā loaʻa iā ʻoe ka dysautonomia, e haʻi aku paha kāu kauka iā ʻoe e hana i kekahi mau hoʻololi i kāu meaʻai a inu. Hiki i kēia mau kuhikuhi ke komo pū (akā, ʻaʻole i kaupalena ʻia i):
- E pale i ka waiʻona.
- E inu i ka wai nui no ka hydration.
- E hoʻohui i ka paʻakai i ka meaʻai e like me ke kuhikuhi ʻana.
- E hoʻonohonoho i ka hiamoe a me ka hoʻomaha.
- E kāohi i kou kaumaha.
- E mālama i ke kaumaha olakino nou iho.
- E hoʻomaha e like me ka mea e pono ai.
- E pale i ka wela (e hoʻohana i ka wai mehana ma kahi o ka wai wela i ka wā e ʻauʻau ai).
- E neʻe a puni, ma kahi o ka noho ʻana a kū ʻana paha ma kahi hoʻokahi no ka lōʻihi loa.
- E makaʻala i ka hoʻohana ʻana i ka caffeine (e like me ka ʻōlelo a kāu kauka).
- E lawe i kāu mau lāʻau lapaʻau e like me ke kauoha, a kamaʻilio me kāu kauka ma mua o ka lawe ʻana i nā huaora hou a i ʻole nā mea hoʻohui.
Āhea wau e ʻike ai i ke kauka? A i ʻole e hele i ka lumi pilikia?
E hāʻawi paha kāu kauka iā ʻoe i kahi papa kuhikuhi kikoʻī no nā kipa. He mea nui e mālama i kāu mau manawa i hoʻonohonoho ʻia , ʻoiai inā ʻaʻole ʻoe e manaʻo i kahi ʻokoʻa . E kōkua kēia i kāu kauka e hoʻomaopopo i kāu mau hōʻailona (ʻoiai inā ʻaʻole lākou i loli). Hiki iā ia ke nānā i nā mea e like me kou koko koko, kahi āu e manaʻo ʻole ai akā he mau hōʻailona koʻikoʻi o ka dysautonomia.
ʻOiai i nā manawa e like me kēia, pono ʻoe e kāhea a kipa aku paha i ke kauka:
- Inā ʻike ʻoe i kahi loli i kāu mau hōʻailona (no ka maikaʻi a i ʻole ka ʻino).
- Inā ʻike ʻoe i kahi loli i ka pono o kāu lāʻau lapaʻau.
- Inā he loli i kou ola a i ʻole nā kūlana pilikino e hoʻopilikia nei i kāu mau hōʻailona a i ʻole ke ʻano āu e mālama ai iā lākou.
Āhea wau e hele ai i ka lumi pilikia?
Hiki i ka Dysautonomia ke hana i kekahi mau hōʻailona koʻikoʻi, ʻoiai nā mea e pili ana i kou koko. Hoʻomaikaʻi pinepine ka poniuniu a me ka vertigo ke noho ʻoe a moe paha (hoʻomaikaʻi kēia i ke kahe koko i ka lolo). ʻO ia ke kumu e palupalu ai ka poʻe he nui a laila hoʻi hou i ka ʻike.
Eia nō naʻe, hiki ke paʻakikī ke hoʻokaʻawale i kekahi mau hōʻailona mai kahi pilikia olakino. Inā kānalua, e kelepona mau i ka 1990 a i ʻole kāu helu pilikia kūloko. Eia kekahi mau hōʻailona e pono ai ka nānā koke ʻana (akā ʻaʻole i kaupalena ʻia i):
- ʻEha ka umauma.
- Paʻakikī ka hanu ʻana.
- ʻO nā palpitations o ka puʻuwai he wikiwiki loa ia o ka puʻuwai, ka holo wikiwiki ʻana, a me ke kuʻi ʻana, a i ʻole kahi manaʻo o ka ʻoluʻolu ʻole me ka ʻole o kou hoʻāʻo ʻana.
Aia paha kekahi mau hōʻailona ʻē aʻe āu e makaʻala ai. E aʻo aku kāu kauka iā ʻoe i nā hōʻailona e pono ai ke mālama ʻia e ke kauka.
He aha nā nīnau e pono iaʻu e nīnau aku i ke kauka?
Eia kekahi mau nīnau āu e makemake ai e nīnau i kāu kauka:
- Pehea ke koʻikoʻi o koʻu ʻano Dysautonomia?
- He aha nā hōʻailona ʻē aʻe e koi aku iā ʻoe e kāhea i kāu keʻena a ʻimi paha i ke kōkua lapaʻau?
- He aha nā hōʻailona o nā pilikia e pono iaʻu e makaʻala?
- He aha nā kaʻina hana autonomic i hoʻopilikia ʻia e kaʻu `(Dysautomia)`?
- He aha nā lāʻau lapaʻau a me nā hoʻololi nohona i kūpono loa iaʻu?
- He aha kaʻu e manaʻo ai no koʻu olakino i ka wā e hiki mai ana?
- He aha ke ʻano o nā hui kākoʻo ma laila?
- Aia kekahi poʻe loea a kākā'ōlelo paha e hiki ke kōkua me nā mea e like me ka ʻai ʻana, ke olakino noʻonoʻo, a me ka hoʻokele kaumaha?
He aha nā mea hoʻonāukiuki no nā hōʻailona o Dysautonomia?
Aia paha nā mea hoʻonāukiuki e hiki ai ke hoʻoulu i nā hōʻailona o ka dysautonomia e hiki koke mai a i ʻole e ʻoi aku ka ʻino. ʻO ka ʻike ʻana i nā mea hoʻonāukiuki āu e loaʻa ai a me ka mālama ʻana iā lākou (ʻoi aku hoʻi i loko o kahi puke moʻolelo) hiki ke kōkua iā ʻoe e pale aku iā lākou. ʻO kekahi o nā mea hoʻonāukiuki maʻamau:
- Ka inu ʻana i ka waiʻona.
- Ka maloʻo ʻana o ka wai.
- Kaumaha.
- Ke komo ʻana i nā lole paʻa.
- Ke noho ʻana i kahi ʻano mehana.
- Ka hoʻohana ʻana i nā lāʻau lapaʻau me ka ʻole o ke aʻo ʻana a ke kauka (ʻoi aku hoʻi nā lāʻau lapaʻau e hoʻonāwaliwali i ka ʻōnaehana nerve, e like me benzodiazepines a i ʻole opioids).
Loaʻa paha iā ʻoe nā "Triggers" ʻē aʻe ʻaʻole ma kēia papa inoa. Inā he kānalua kāu, akā ʻaʻole maopopo, e haʻi i kāu kauka e pili ana i ia mea. Hiki paha iā ia ke hāʻawi i kahi ʻano hana a i ʻole hoʻāʻo e nānā ai.
ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai
Hiki i ka Dysautonomia ke lilo i mea weliweli loa, ʻoiai inā ʻaʻole ʻoe i ʻike i ke ʻano o ia mea a i ʻole ke kumu o ia mea. Hiki ke hala nā mahina, a i ʻole nā makahiki, no kekahi poʻe e ʻike ai inā loaʻa iā lākou. ʻOiai he mea paʻakikī ke ʻike a mālama, hiki i nā poʻe he nui ke hoʻokele i kā lākou mau hōʻailona a ola i ko lākou ola me ka ʻole o ka hoʻopilikia nui.
Inā kānalua ʻoe he dysautonomia kou, hiki i ke kauka ke kamaʻilio me ʻoe e pili ana i kāu mau hōʻailona a kōkua iā ʻoe e ʻimi i kahi loea i loaʻa ka ʻike i ka mālama ʻana i ke kūlana. Ma kēlā ala, hiki iā ʻoe ke hoʻēmi i ka hopena o kāu mau hōʻailona a kālele i nā mea nui iā ʻoe a hoʻomau i kou lā.
👩🏽⚕️ Nā nīnau hou aku (FAQs)
💬 He maʻi anei ka dysautonomia o nā aʻalolo i hiki ʻole i ka lolo ke kaohi me ka ʻike?
ʻAe! ʻAʻole mākou e kāohi i nā mea e like me ka helu o ko mākou puʻuwai, ke koko, ka ʻai ʻana, a me ka hou ʻana, ua kāohi ʻia lākou e ka ʻōnaehana nerve autonomic. He maʻi neurological weliweli kēia kahi e haki ai ka ʻōnaehana nerve autonomic a hoʻōki i ka hana.
💬 Pehea ka manaʻo o ke kino ke pilikia kēia mau aʻalolo?
Hoʻopilikia kēia i kou kino holoʻokoʻa! Pōʻino ʻoe a nāwaliwali ke kū koke ʻoe i luna (POTS), hāʻule kou koko i ka ʻole, holo wikiwiki kou puʻuwai, hou nui ʻoe a ʻaʻole paha e hou iki, loaʻa iā ʻoe ka ʻōpū palupalu a me ka ʻeha o ka ʻōpū, a he nui kou pilikia mimi.
💬 Aia kekahi lāʻau lapaʻau kikoʻī e lawe ai no kēlā me kēia maʻi? Hiki ke ho'ōla ʻia?
ʻAʻole kēia he maʻi hiki ke ho'ōla ʻia 100% (ʻAʻohe lāʻau lapaʻau). Akā, hāʻawi ʻia ka mea maʻi i nā lāʻau lapaʻau like ʻole e noho maikaʻi a mālama i nā hōʻailona. No ka laʻana, hāʻawi lākou i ke kino i ka nui o ka wai a me ka paʻakai (Paʻakai & Wai) e hoʻōki i ke kaomi mai ka emi ʻana, hāʻawi lākou i nā beta-blockers e hoʻolohi i ka puʻuwai, a hāʻawi lākou i nā stocking compression kūikawā e ʻaʻahu ai ma nā wāwae.
ʻO Dysautonomia, ʻŌnaehana Nervous Autonomic, ANS, Nā Hōʻailona, Pīhoihoi, Nāwaliwali, Palpitations, Dysautonomia











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