Ua kuhikuhi anei kāu kauka iā ʻoe a i ʻole kekahi mea kokoke iā ʻoe i kahi lāʻau pale i kapa ʻia ʻo Eculizumab? He mea maʻamau ka manaʻo hoihoi a makaʻu iki paha e pili ana i kēia lāʻau lapaʻau ikaika loa. Akā, mai makaʻu. I kēia lā, e kamaʻilio mākou e pili ana i kēia lāʻau lapaʻau, i kāna hana i ke kino, a me nā mea āu e makaʻala ai i ka wā e lawe ai.
He aha ke ʻano o ka lāʻau lapaʻau ʻo Eculizumab?
I ka ʻōlelo maʻalahi, ʻo Eculizumab kahi lāʻau lapaʻau e kāohi ana i kahi ʻāpana o ka ʻōnaehana pale o ko mākou kino, i hāʻawi pinepine ʻia ma ke ʻano intravenous. Hoʻohana nui ʻia ia e mālama i kekahi mau maʻi kakaikahi loa.
- Nā maʻi koko kakaikahi: Loaʻa i kekahi poʻe nā kūlana e hoʻokahe koke ai nā hunaola koko ʻulaʻula a i ʻole e hana maʻalahi i nā ʻōpū koko. ʻO nā hiʻohiʻona e komo pū me ka atypical hemolytic uremic syndrome (aHUS) a me ka paroxysmal nocturnal hemoglobinuria (PNH). Hoʻōki ʻo Eculizumab i kēia mau hunaola koko ʻulaʻula mai ka haki ʻana a pale i ka hana ʻana o nā ʻōpū koko.
- Nā maʻi autoimmune ʻē aʻe: Eia kekahi, hoʻohana ʻia kēia lāʻau lapaʻau no ka maʻi "Myasthenia Gravis", ka mea e hoʻopilikia ai i ka pilina ma waena o nā aʻalolo a me nā ʻiʻo, a me ka "Neuromyelitis Optica Spectrum Disorder (NMOSD)", ka mea e hoʻopilikia ai i ke kaula spinal a me nā aʻalolo optic.
ʻO ka hana nui o kēia lāʻau lapaʻau, ʻo ia ke kāohi i ka pōʻino o kā mākou ʻōnaehana pale ponoʻī i nā hunaola olakino. No laila, he lāʻau lapaʻau ikaika loa kēia a kikoʻī hoʻi.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, makemake kāu kauka e ʻike i kou mōʻaukala olakino piha. He mea nui no kou palekana e hāʻawi pololei i kēia ʻike.
- Loaʻa iā ʻoe kekahi mau maʻi i kēia manawa? E haʻi mai iā mākou e pili ana i nā maʻi e like me ke kuni, ke anu, a me ke kuni.
- Loaʻa iā ʻoe kekahi mau maʻi ʻaleka? E ʻoluʻolu e hoʻomaopopo mai iā mākou i kekahi mau maʻi ʻaleka āu e loaʻa ai iā Eculizumab a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
- Ua hāpai ʻoe? A i ʻole ke manaʻolana nei ʻoe e hāpai?
- Ke hānai waiū nei ʻoe i kahi keiki?
Ma muli o kēia mau kumu, e hoʻoholo ke kauka inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha.
Pehea e hāʻawi ʻia ai kēia lāʻau lapaʻau? A me nā hana palekana koʻikoʻi loa
ʻAʻole kēia he lāʻau lapaʻau home. Hāʻawi mālie ʻia ka lāʻau pale ʻo Eculizumab i loko o kahi aa koko e nā limahana lapaʻau i aʻo ʻia ma kahi haukapila a i ʻole ke keʻena lapaʻau .
He mea nui loa: Ka lāʻau pale Meningococcal
I ka wā e lawe ai i ka eculizumab, aia kahi piʻi iki o ka pilikia o kahi maʻi bacteria e hoʻoulu ai i ka meningitis, kahi ʻano maʻi lolo. He kūlana koʻikoʻi loa kēia.
No laila, he mea nui e loaʻa iā ʻoe ka lāʻau pale meningococcal ma ka liʻiliʻi he ʻelua pule ma mua o ka hoʻomaka ʻana i ka lāʻau Eculizumab . Na kāu kauka e hoʻonohonoho i nā mea āpau no kēia. ʻOiai inā ua loaʻa iā ʻoe ka lāʻau pale ma mua, e hoʻomaopopo i kāu kauka.
Ma mua o kēlā me kēia kau lapaʻau, e hāʻawi ʻia ʻoe i kahi pepa ʻike kūikawā (`MedGuide`) e pili ana i kēia lāʻau lapaʻau. E heluhelu pono mau.
E hoʻohana no nā keiki
Hiki ke kuhikuhi ʻia kēia lāʻau lapaʻau no kekahi mau maʻi olakino i koho ʻia no nā keiki ma luna o 2 mahina, akā pono e mālama ʻia nā hana palekana kūikawā.
He aha inā hoʻonui ʻia ka nui o ka lāʻau ?
ʻAʻole paha e hiki kēia no ka mea hāʻawi ʻia ma kahi haukapila. Eia nō naʻe, inā manaʻo ʻoe ua overdose ʻoe, e hōʻike koke iā ia i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo a i ʻole ka Emergency Treatment Unit (ETU) kokoke loa.
Nā mea e noʻonoʻo ai i ka wā o ka mālama ʻana
- E makaʻala i nā maʻi: Hiki i kēia lāʻau lapaʻau ke hōʻemi iki i ka hiki o kou kino ke hakakā i nā maʻi. No laila, inā ʻike ʻoe i nā hōʻailona e like me ke kuni , ke anu, ka ʻāʻī ʻeha, ke kuni, nā ʻeha ʻaʻole e ho'ōla, a i ʻole ka ʻeha i ka wā e mimi ai , mai hoʻōla ponoʻī a kāhea koke i kāu kauka. E ho'āʻo e noho mamao aku mai ka poʻe maʻi i ka hiki.
- Nā hoʻokolohua lapaʻau: E hana kāu kauka i nā hoʻokolohua koko maʻamau e nānā i kou kūlana i ka wā o ka mālama ʻana. He mea nui loa ka hele ʻana i ke keʻena lapaʻau i nā lā i hoʻonohonoho ʻia.
- Nā lāʻau lapaʻau ʻē aʻe: E hāʻawi i kāu kauka i ka wehewehe piha ʻana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei (me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui), a inā ʻoe e puhipaka a inu waiʻona paha.
Nā hopena ʻaoʻao e ʻike ai
E like me nā lāʻau lapaʻau āpau, hiki iā Eculizumab ke hana i nā hopena ʻaoʻao. Hiki i kekahi o kēia mau mea ke koʻikoʻi, aʻo kekahi he mea maʻamau.
| Ka hoʻokaʻawale ʻana o nā hopena ʻaoʻao | |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu hui lapaʻau | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| Paʻakikī ka hanu ʻana | Pōkole o ka hanu, paʻakikī ka hanu ʻana. |
| Nā hōʻailona o ka maʻi | Kuni, anu , nā ʻeha ʻaʻole e ho'ōla ʻia, ʻeha ka ʻāʻī, malaise laulā. |
| Nā hōʻailona koʻikoʻi ʻē aʻe | ʻEha ka umauma, ka nāwaliwali, a i ʻole ka poniuniu. |
| ʻAʻole maʻamau ka koʻikoʻi (akā e hoʻomaopopo i kāu kauka inā hoʻomau ia) | |
| ʻEha kino | ʻEha kua, ʻeha ʻiʻo, ʻeha hono. |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | ʻEha ka ʻōpū, nausea, diarrhea (bloating). |
| ʻĒ aʻe | ʻEha ke poʻo, poniuniu, ʻū, pehu o nā kuʻekuʻe wāwae, lima a i ʻole nā wāwae. |
ʻAʻole paha e komo pū kēia papa inoa me nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mea ʻē, e nīnau i kāu kauka.
Leka Lawe-Home
- He lāʻau lapaʻau kūikawā a ikaika hoʻi ʻo Eculizumab i hāʻawi ʻia ma o kahi aa koko ma ka haukapila. ʻAʻole ʻae ʻia e lawe i ka home a mālama paha.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, he hana palekana ia e pono ai ke loaʻa ka lāʻau pale meningococcal. Na kāu kauka e hoʻomaopopo iā ʻoe e pili ana i kēia.
- Kuni, ʻeha kino i ka wā o ka mālama ʻanaInā loaʻa iā ʻoe kekahi mau hōʻailona o ka maʻi, e like me ke anu , mai hoʻowahāwahā iā ia. E hoʻomaopopo koke i kāu kauka.
- Mai poina i kāu mau manawa lapaʻau. Inā ʻaʻole hiki iā ʻoe ke hele i kāu lā i hoʻonohonoho ʻia, e kāhea i kāu hui lapaʻau a e hoʻomaopopo iā lākou.
- E kamaʻilio mau me ka wiwo ʻole a me ka ʻoiaʻiʻo me kāu kauka e pili ana i kou kūlana olakino a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
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