ʻO ka hoʻokuʻu ʻana o Edaravone: E kamaʻilio kākou e pili ana i kēia lāʻau no ALS?

Inā loaʻa iā ʻoe a i ʻole kahi mea aloha ʻo Amyotrophic Lateral Sclerosis (ALS), ʻike mākou i ke ʻano o ka paʻakikī. ʻAʻole maʻalahi ka noho ʻana me ia i ka wā e nāwaliwali mālie ai nā mākala o kou kino i kēlā me kēia lā. I loko o ia huakaʻi paʻakikī, he mea nui loa ia e makaʻala i nā lāʻau lapaʻau e hiki ke hoʻolohi i ka holomua o ka maʻi a lawe mai i ka manaʻolana. ʻO Edaravone kekahi o ia ʻano lāʻau lapaʻau. Ua haʻi aku paha kāu kauka iā ʻoe e pili ana i kēia lāʻau lapaʻau, a ua lohe paha ʻoe e pili ana iā ia ma kekahi wahi. No laila i kēia lā, e kamaʻilio mākou ma ke ʻano maʻalahi loa, ma ke ʻano e hiki ai iā ʻoe ke hoʻomaopopo, i nā mea āpau e pili ana i kēia lāʻau lapaʻau ʻo Edaravone.

I ka ʻōlelo maʻalahi, he aha ʻo Edaravone?

He lāʻau lapaʻau ʻo Edaravone i hoʻohana ʻia e mālama i kahi maʻi i kapa ʻia ʻo Amyotrophic Lateral Sclerosis (ALS) . Loaʻa pinepine ia ma ke ʻano he wai hoʻoheheʻe waha. Ma Sri Lanka, hiki iā ʻoe ke loaʻa ma lalo o ka inoa inoa ʻo Radicava ORS. I kēia manawa e nānā kākou pehea e hana ai. E noʻonoʻo he maʻi ʻo ALS e hōʻino mālie i nā hunaola nerve e kāohi ana i nā ʻiʻo i loko o ko mākou kino. ʻO kēia pōʻino e paʻakikī ai ke ʻōlelo, hele, a ale. Hana ʻo Edaravone ma ka pale ʻana i kēia mau hunaola nerve mai ka pōʻino. ʻO ia hoʻi, hana ia e like me ka pale pale a puni kēlā mau hunaola a kāohi a hoʻopaneʻe paha i ka wikiwiki o ka ʻino ʻana o nā hōʻailona.

Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau

Ma mua o ke kau ʻana o kāu kauka iā Edaravone, he mea nui loa ia e hāʻawi iā ia i kahi wehewehe piha o kou kūlana olakino. No ka mea, ʻo kēlā ʻike e hoʻoholo ai inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha. E hōʻoia e haʻi iā ia i kēia mau mea.

• Inā loaʻa iā ʻoe ka hānō : ʻO ka poʻe me nā maʻi hanu e like me ka hānō he maʻi āpau paha i kekahi o nā mea hoʻohui i loko o kēia lāʻau lapaʻau, e like me nā sulfites . No laila, he mea nui e makaʻala i kēia ma mua.
• Inā he mau maʻi ʻaleka ʻē aʻe kāu : E hōʻoia e haʻi i kāu kauka inā he mau maʻi ʻaleka kāu iā Edaravone, sulfites, a i ʻole nā ​​​​lāʻau lapaʻau ʻē aʻe, nā meaʻai, a i ʻole nā ​​​​​​mea hoʻoluʻu.
• Inā hāpai ʻoe a i ʻole e hoʻāʻo ana e hāpai:ʻAʻole i hoʻokumu piha ʻia ka palekana o kēia lāʻau lapaʻau i ka wā hāpai , no laila he mea nui e kamaʻilio me kāu kauka e pili ana i kēia.
• Inā he makuahine hānai ʻoe: ʻAʻole maopopo inā hele kēia lāʻau i loko o ka waiū umauma . No laila, inā ʻoe e lawe ana i kēia lāʻau i ka wā e hānai ana i ka waiū, e kūkākūkā i kēia me kāu kauka.

Pehea e hoʻohana pono ai i ka lāʻau lapaʻau?

I mea e loaʻa ai ka hopena maikaʻi loa mai kēia lāʻau lapaʻau, he mea nui loa ia e hoʻohana pono. ʻOiai he hewa liʻiliʻi hiki ke hoʻopilikia i kona mau hopena.

Nā kuhikuhi ʻanuʻu

1. E lawe i ka manawa kūpono: E hoʻomaʻamaʻa i ka lawe ʻana i kāu lāʻau lapaʻau i ka manawa like i kēlā me kēia lā. He wai kēia āu e lawe ai ma ka waha. 2. E lawe iā ia ma ka ʻōpū ʻole: No nā hopena maikaʻi loa, e lawe i kēia lāʻau lapaʻau ma ka ʻōpū ʻole. ʻO ka maʻamau, ua ʻōlelo ʻia e lawe ʻoe iā ia i 8 mau hola ma hope o ka ʻaina ahiahi a me 1 hola ma hope o ka lawe ʻana i kāu lāʻau lapaʻau kakahiaka. Akā e hahai i nā kuhikuhi i hāʻawi ʻia e kāu kauka. 3. E lulu maikaʻi: Ma mua o ka lawe ʻana i ka lāʻau lapaʻau, e lulu maikaʻi i ka ʻōmole no kahi o 30 kekona. 4. E ana i ke ana kūpono: E ana i ka lāʻau lapaʻau me ka hoʻohana wale ʻana i ka syringe kūikawā (syringe waha) e hele mai me ia. Mai hoʻohana i nā teaspoon a i ʻole nā ​​​​pune āu ma ka home. ʻAʻole hiki ke hoʻohana ʻia e ana pololei, no laila hiki ke hewa ka dosage. 5. E hoʻomaopopo i ka ʻōnaehana 'cycles': ʻO kēia kahi e huikau iki ai ka poʻe he nui. ʻAʻole ʻo Edaravone kahi lāʻau lapaʻau āu e lawe mau ai i kēlā me kēia lā. Hoʻohana ʻia ia ma ke ʻano he 'cycles' .

• ʻO ia hoʻi: aia nā lā āu e lawe ai i ka lāʻau lapaʻau, a me nā lā āu e lawe ʻole ai.
• Eia kekahi laʻana, ma ke kaʻina hana mua, hiki iā ʻoe ke lawe i ka pila no 14 mau lā pololei, a laila ʻaʻole e lawe i ka pila no nā lā 14 e hiki mai ana (he wā hoʻomaha). Ma nā kaʻina hana ma hope, hiki iā ʻoe ke lawe i ka pila no 10 mau lā mai loko mai o 14 mau lā, a laila ʻaʻole e lawe i ka pila no 14 mau lā.
• Na kāu kauka e hoʻoponopono i kēia papa hana i kou kūlana kikoʻī. He mea nui loa ia e hahai pololei i kēia mau kuhikuhi. E hoʻonoho i kahi mea hoʻomanaʻo ma kāu kalena a kelepona paha a e pili pono iā ia.

E makaʻala hoʻi kākou i nā hopena ʻaoʻao.

E like me nā lāʻau lapaʻau āpau, hiki iā Edaravone ke hana i kekahi mau hopena ʻaoʻao. ʻO ka ʻike ʻana i kēia mau mea ma mua e kōkua iā ʻoe e hana koke inā kū mai kahi pilikia. ʻAʻole i loko o kēia papa inoa nā hopena ʻaoʻao āpau. Inā loaʻa iā ʻoe kekahi mau hōʻailona ʻē, e ʻoluʻolu e haʻi i kāu kauka.

He aha inā e hala wau i kahi lāʻau a hoʻonui paha i ka lāʻau?

Inā ʻoe e hala i ka lā palena ...

Me ka paʻahana o ke ola, i kekahi manawa e poina paha ʻoe i kahi mahele o ka lāʻau lapaʻau. Inā hana ʻia kēlā, mai hopohopo.

• E lawe i kēlā manawa i ka wā e hoʻomanaʻo ai ʻoe.
• Eia nō naʻe, inā kokoke ka manawa no kāu mahele aʻe, e hōʻalo i ka mahele i hala ʻole a lawe wale i kāu mahele aʻe i ka manawa i hoʻonohonoho ʻia.
• Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi no kekahi kumu.

Inā hoʻonui ʻia ka nui o ka lāʻau ...

Inā manaʻo ʻoe ua lawe hewa ʻoe i ka lāʻau lapaʻau ma mua o ka mea i kauoha ʻia, mai lawe māmā.

• ʻO ka mea koke e hana ai, ʻo ia ke kelepona aku i ke Kikowaena ʻIke Lāʻau Make Lahui ma ka Halemai Lahui ʻo Colombo .
• A i ʻole, e hele koke i ka ʻOihana Pilikia (ETU) o ka haukapila kokoke loa.

Pehea ʻoe e mālama ai a hoʻolei aku i ka lāʻau lapaʻau?

ʻO ke ʻano o ka lāʻau lapaʻau e pili ana i ke ʻano o ka mālama pono ʻana.

• Ka mālama ʻana:
• E mālama ʻia mai nā keiki a me nā holoholona.
• E mālama ma ka mahana o ka lumi (ma waena o 20 a me 25 kekelē Celsius). E pale mai ka wela nui a me ke anu nui.
• E pale mai ka lā pololei.
• ʻO ka mea nui loa: Pono ʻoe e hoʻolei i kekahi lāʻau lapaʻau i koe ma hope o 15 mau lā o ka wehe ʻana i ka ʻōmole, a i ʻole ma hope o ka hala ʻana o ka lā palena pau ma ka ʻōmole . ʻO ka mea mua e hiki mai ana, ʻo ia ka mea āu e noʻonoʻo ai.

• Hoʻolei ʻana:
• ʻO ke ala maikaʻi loa e hoʻolei aku ai i nā lāʻau lapaʻau i pau ka manawa a hoʻohana ʻole ʻia, ʻo ia ke hāʻawi aku iā lākou i kahi 'papahana lawe-hoʻihoʻi lāʻau lapaʻau' i loaʻa ma nā haukapila aupuni a i ʻole kekahi mau hale kūʻai lāʻau lapaʻau.
• Inā ʻaʻole hiki kēlā, e nānā i nā kuhikuhi ma ka ʻōmole lāʻau. Inā ʻōlelo ʻia ua maikaʻi ke hoʻolei i loko o ka ʻōpala, e waiho i ka lāʻau i loko o kahi pahu ʻokoʻa, e kāwili me nā lepo kope i hoʻohana ʻia, ka lepo, a i ʻole ka ʻōpala pōpoki, a e waiho i loko o kahi ʻeke i hoʻopaʻa pono ʻia a hoʻolei i loko o ka ʻōpala. Mai ninini pololei i ka lāʻau i loko o ka poho holoi a i ʻole ka lua.

I ka hopena, he lāʻau lapaʻau koʻikoʻi ʻo Edaravone no ka poʻe e hakakā nei me ALS. Inā he mau nīnau hou aku kāu e pili ana i kēia lāʻau lapaʻau, mai hūnā i kekahi mea, e kamaʻilio wale me kāu kauka. E wehewehe ʻo ia i nā mea āpau iā ʻoe. ʻO ka lāʻau hoʻomaha ʻo Edaravone, Edaravone Sinhala, Radicava ORS, ALS ma Sri Lanka, lāʻau lapaʻau ALS, nā maʻi Neurological, nā hopena ʻaoʻao Edaravone, Amyotrophic Lateral Sclerosis