Ke kahe pinepine nei ke koko o kāu keiki kāne ma ka home? Me he mea lā he ihu paʻa kona ma kekahi ʻaoʻao? I kekahi manawa manaʻo mākou he mau mea maʻamau kēia, akā aia paha kekahi kūlana kūikawā ma hope o kēia e pono ai mākou e makaʻala. ʻO ia ke kumu e kamaʻilio ai mākou e pili ana i kahi puʻupuʻu kakaikahi e loaʻa wale ana i nā keikikāne ʻōpio. Ua kapa ʻia kēia ʻo 'Juvenile Nasopharyngeal Angiofibroma' a i ʻole '(JNA)' no ka pōkole.
I ka ʻōlelo maʻalahi, he aha kēia JNA?
Mai makaʻu i kēia inoa lōʻihi. E wehewehe kākou a e hoʻomaopopo iā ia.
- "ʻŌpio" - ʻO ke ʻano kēia "ʻōpio." ʻO ke ʻano kēia, ʻike pinepine ʻia kēia ʻano i ka poʻe ʻōpio.
- "Nasopharyngeal" - Pili kēia i ka ʻāpana ma hope o ko kākou ihu, kahi e pili ai i ka ʻaoʻao luna o ko kākou puʻu. Ma laila e hana ʻia ai ka puʻupuʻu.
- "Angiofibroma" - Hiki ke hoʻokaʻawale ʻia kēia i ʻelua ʻāpana. ʻO "Angio" e pili ana i nā kīʻaha koko (nā kīʻaha koko). ʻO "Fibroma" e pili ana i kahi puʻupuʻu ʻaʻole kanesa i hana ʻia me nā ʻiʻo pili.
No laila, i ka ʻōlelo maʻalahi, ʻo JNA kahi puʻupuʻu ʻaʻole cancerous i hana ʻia me nā kīʻaha koko nui e hana ana ma hope o ka ihu i ka wā ʻōpiopio.
Akā ʻo ka mea nui loa ma ʻaneʻi, ʻoiai ʻaʻole kēia he maʻi kanesa, he puʻupuʻu ikaika loa ia. ʻO ia hoʻi, e like me ka mauʻu, hiki i kēia puʻupuʻu ke laha i nā wahi kokoke. Hiki iā ia ke laha i ka lua ihu, nā sinuses, ke poʻo, a me ka lolo. Inā ʻaʻole mālama ʻia, hiki ke hoʻoweliweli i ke ola. ʻO ia ke kumu he mea nui loa ka makaʻala i kēia. Akā ʻo ka nūhou maikaʻi, me ka mālama kūpono, hiki ke hoʻōla loa ʻia kēia puʻupuʻu.
ʻO wai ka mea kūpono loa e ʻike i kēia maʻi?
He kūlana kūikawā loa kēia. No ka mea , ulu wale nō ka JNA i nā keikikāne ʻōpio ma waena o 10 a me 25 mau makahiki. He mea kākaʻikahi loa, hiki ke ulu i nā kāne ma luna o 25 a i ʻole i nā keiki ʻōpiopio e like me 7. He pololei ke ʻōlelo ʻana ʻaʻole loaʻa i nā kaikamahine kēia maʻi.
A he maʻi laha ʻole kēia. Hoʻokahi wale nō paha i loko o hoʻokahi miliona mau kānaka e hoʻopilikia ai. No laila, mai makaʻu ʻoe e lilo i mea nona kēia mau hōʻailona, akā ʻo ka mea nui loa, ʻo ia ka makaʻala.
He aha nā hōʻailona o JNA?
ʻAʻole hōʻike ka puʻupuʻu i kekahi mau hōʻailona nui ke liʻiliʻi. ʻIke wale ʻia nā hōʻailona ke ulu iki a hoʻomaka e ālai i ke ala ea ihu. E nānā kākou i nā hōʻailona nui.
| Hōʻailona | He wehewehe maʻalahi |
|---|---|
| Ka kahe pinepine ʻana o ka ihu | ʻO kēia ka hōʻailona nui a maʻamau . I kekahi manawa hiki ke kahe nui ke koko, he mea paʻakikī iki ke hoʻōki. |
| Ka paʻakikī o ka hanu ʻana ma ka ihu | I ka hapanui o ka manawa, ua paʻa mau kekahi ʻaoʻao o ka ihu. Me he mea lā he mucus i paʻa i loko, akā ʻaʻohe mucus. |
| Pehu maka | I ka ulu ʻana o ka puʻupuʻu, hiki ke pehu, ʻoiai ma nā wahi e like me ka papālina. |
| ʻEha poʻo | Hiki ke loaʻa kahi ʻeha poʻo mau no ka mea ke kaomi nei ka puʻupuʻu i nā wahi a puni. |
| Nā loli i ka ʻike a i ʻole ka lohe ʻana | He ʻano koʻikoʻi kēia. Inā kaomi ka puʻupuʻu i nā aʻalolo e hoʻopili ana i nā maka a i ʻole nā pepeiao, hiki iā ia ke hana i ka ʻike maka pōwehiwehi, ka ʻike pālua, a me ka nalowale o ka lohe. |
No ke aha i hoʻokumu ʻia ai kēia JNA? He aha ke kumu?
ʻOiaʻiʻo, ʻaʻole i loaʻa ke kumu kikoʻī o kēia. Akā, no ka mea, ʻike wale ʻia ia i nā keikikāne, manaʻo nā kauka he pili nā hormones kāne i ia mea. Akā, ʻaʻole i hōʻoia ʻia kēlā.
ʻAʻole kēia he maʻi hoʻoilina. ʻO ke ʻano kēia, no ka mea ua loaʻa i kahi makuakāne, ʻaʻole e loaʻa i ke keiki kāne. Eia naʻe, ua ʻike nā kānaka noiʻi i hoʻokahi mea. Inā loaʻa i kekahi o ka ʻohana kekahi maʻi ʻē aʻe i kapa ʻia ʻo "Familial Adenomatous Polyposis (FAP)", aia kahi pilikia liʻiliʻi o ka loaʻa ʻana o JNA. Ke noiʻi ʻia nei ka pilina ma waena o kēia mau maʻi ʻelua.
Pehea ʻoe e ʻike ai i kēia, e Kauka?
Ke hele ʻoe e ʻike i ke kauka me nā hōʻailona e like me kēia, e nānā ʻo ia iā ʻoe penei.
1. Ke nīnau nei e pili ana i nā hōʻailona:ʻO ka mea mua, e nīnau ke kauka iā ʻoe a me kāu keiki e pili ana i nā hōʻailona, e like me ka lōʻihi o ke kahe ʻana o ka ihu a me ka nui.
2. Hoʻokolokolo kino: A laila e hoʻokolokolo ʻia kou ihu. E kuhikuhi pinepine ʻia ʻoe i kahi loea pepeiao, ihu a me ka ʻāʻī (kauka ENT) .
3. Nā hoʻokolohua kūikawā: Hiki ke hana ʻia kēia mau hoʻokolohua e hōʻoia i ka maʻi.
- Nā hoʻāʻo kiʻi: E hana ʻia kahi CT scan a i ʻole MRI e ʻike pono i kahi o ka puʻupuʻu, pehea kona nui, a inā ua pālahalaha. Hiki i kēia ke loaʻa kahi kiʻi maopopo o ka puʻupuʻu.
- ʻO ka endoskopi nasal: He hoʻāʻo kahi e hoʻokomo ʻia ai kahi ʻōmole lahilahi me kahi kāmela liʻiliʻi i loko o ka ihu e nānā pololei i ka puʻupuʻu. ʻAe kēia i kahi ʻike maikaʻi aʻe o ke kūlana o ka puʻupuʻu.
He aha nā lāʻau lapaʻau no JNA?
Inā ua hōʻoia ʻia ʻo JNA, aia kekahi mau koho lapaʻau. Na ke kauka e hoʻoholo i ka lāʻau kūpono loa ma muli o ka nui a me ka laha ʻana o ka puʻupuʻu.
| ʻAno lapaʻau | He aha ka mea e hana ʻia ai? |
|---|---|
| ʻoki kino | ʻO kēia ka lāʻau lapaʻau nui . E ho'āʻo ke kauka e wehe loa i ka puʻupuʻu. ʻO ka hapa nui o ka manawa, hana ʻia kēia ʻoki me ka ʻole o ka hana ʻana i kekahi ʻoki, me ka hoʻohana ʻana i kahi endoscope ma o ka puka ihu. Eia nō naʻe, inā nui ka puʻupuʻu, pono paha kahi ʻoki liʻiliʻi. |
| Hoʻopili ʻana | Hana ʻia kēia ma mua o ke ʻoki ʻana. ʻOiai ua hana ʻia ka puʻupuʻu JNA me ka nui o nā kīʻaha koko, hiki ke nui ke kahe koko i ka wā o ke ʻoki ʻana. No ka hoʻōki ʻana i kēlā, ʻo ia hoʻi ke ālai ʻana i nā kīʻaha koko e hoʻolako ana i ka puʻupuʻu. Ke hana ʻia kēia, ʻoi aku ka maʻalahi o ka hana ʻana i ke ʻoki me ka palekana. |
| Hoʻōla radiation | Hoʻohana ʻia kēia lāʻau lapaʻau inā e koe ana nā ʻāpana liʻiliʻi o ka puʻupuʻu ma hope o ke ʻoki ʻana, a inā hoʻi mai ka puʻupuʻu. Pili kēia i ka hoʻohana ʻana i nā kukuna ikehu kiʻekiʻe e luku i nā hunaola i koe. |
Hiki i ka puʻupuʻu ke ulu hou?
ʻAe, i kekahi manawa hiki ke hoʻi mai. Ua hōʻike ʻia nā haʻawina he 37% ka manawa e hoʻi mai ai. ʻO ia ke kumu e hoʻomau ai ke kauka i ka nānā ʻana iā ʻoe (follow-up) ma hope o ke ʻoki ʻana. E nānā ʻo ia iā ʻoe i nā manawa kikoʻī a, inā pono, e hana i kahi scan MRI e ʻike inā ua hoʻi mai ka puʻupuʻu. Inā hoʻi mai ia, ʻaʻohe mea e hopohopo ai no ka mea hiki ke mālama koke ʻia.
Āhea wau e ʻike ai i ke kauka?
Inā hoʻomaka koke kāu keiki e loaʻa i nā hōʻailona e like me ka ihu paʻa, ʻoiai ke kahe pinepine ʻana o ka ihu e paʻakikī ke hoʻōki, mai hoʻokuʻu iā ia he mea maʻamau.
ʻAʻohe mea i ʻike maikaʻi i kou kino ma mua o ʻoe. ʻO ʻoe ka mea i maopopo loa i nā loli i ke kino o kāu pēpē. Inā manaʻo ʻoe i kekahi kānalua a i ʻole kahi loli iki, e ʻike koke i ke kauka a e ʻimi i ka ʻōlelo aʻo. Hiki i kēia ke kōkua iā ʻoe e kāohi i ke kūlana ma mua o ka lilo ʻana i pilikia nui.
ʻAʻole ʻo JNA he maʻi ʻaʻai, akā he ʻano ia e pono ai ka mālama koke ʻana. Inā ʻike ʻia a mālama ʻia i ka wā mua, hiki ke ho'ōla loa ʻia a alakaʻi i kahi ola maʻamau.
Leka Lawe-Home
- He puʻupuʻu ʻaʻole maʻi kanesa ka JNA, akā he puʻupuʻu e pālahalaha wikiwiki ana e kū ana i nā keiki kāne ʻōpio.
- ʻO nā hōʻailona nui, ʻo ia ke kahe pinepine ʻana o ka ihu a me ka ihu paʻa ma kekahi ʻaoʻao.
- Inā ʻike ʻoe i kēia mau hōʻailona, mai hopohopo a e ʻike koke aku i kahi loea pepeiao, ihu, a me ka ʻāʻī (ENT).
- ʻO nā koho lapaʻau e komo pū me ke ʻoki kino a me ka radiation therapy. Ma hope o ka lapaʻau ʻana, hiki ke ho'ōla piha ʻia.
- Ma muli o ka hiki ke hoʻi hou mai ka puʻupuʻu, he mea nui loa e hoʻomau i nā hoʻokolohua hahai e like me ka ʻōlelo a ke kauka.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo