He palale māwae ko kāu pēpē? (Cleft Palate) - E kamaʻilio kākou e pili ana i nā mea āpau!

I kekahi manawa ke nānā ʻoe i kahi pēpē hānau hou, hiki iā ʻoe ke ʻike i kahi ʻokoʻa liʻiliʻi ma luna o ko lākou waha. ʻO ia hoʻi he māwae liʻiliʻi ma luna o ko lākou waha. ʻO kēia ka mea a mākou e kapa nei ma ke ʻano lapaʻau he `(Cleft Palate)`. I ka lohe ʻana i kēia mau ʻōlelo, makaʻu iki paha kekahi mau mākua a hopohopo. "Auē, he aha ka mea i hana ʻia i kā mākou keiki?" Manaʻo paha ʻoe. Akā, ʻaʻohe kumu maoli e makaʻu ai a hopohopo paha. Inā ʻike pono mākou i kēia, hiki iā mākou ke hoʻoponopono pono i kēia kūlana.

He aha ka Cleft Palate?

I ka ʻōlelo maʻalahi, ʻo ka huaʻōlelo Pelekania 'cleft' ʻo ia hoʻi he māwae a he hakahaka paha. ʻO 'Palate' ke ʻano o ka ʻāpana o ka ʻili o ko kākou waha, ʻo ia hoʻi ka ʻili o ko kākou waha. Inā ʻoe e holo i kou alelo ma luna o ka ʻili o ko kākou waha, e ʻike ʻoe i kahi humuhumu liʻiliʻi a i ʻole kahi puʻupuʻu ma waena, ʻeā? ʻO ia kahi, i kou wā he pēpē i loko o ka ʻōpū o kou makuahine, ua hui pū ʻia nā ʻaoʻao ʻākau a me ka hema o ka ʻili o kou waha. Ua like ia me ka humuhumu ʻana i ʻelua ʻāpana lole.

Eia nō naʻe, i ka wā e hānau ʻia ai kekahi mau pēpē, ʻaʻole e hui pono kēia mau ʻāpana ʻelua o ka lehelehe luna. ʻO ia hoʻi, ʻaʻole i piha ka humuhumu. ʻO ia ka manawa e kū mai ai kēia kūlana i kapa ʻia ʻo `(Cleft Palate)`, ʻo ia hoʻi, he māwae ma ka lehelehe luna. He kūlana hānau kēia. ʻO ia hoʻi, he mea ia i hānau ʻia ai ka pēpē.

No ke aha e loaʻa ai kahi palale nahā?

Hoʻomaopopo pinepine nā mākua, "No ke aha i hana ʻia ai kēia i kā mākou pēpē?" "Ua hana hewa anei mākou?" ʻOiaʻiʻo, he paʻakikī ke kuhikuhi i hoʻokahi wale nō kumu. Aia kekahi mau kumu kūpono. E nānā kākou i ko lākou ʻano:

• Nā kumu hoʻoilina: I kekahi manawa, inā ua loaʻa i kekahi o ka ʻohana, ʻo ia hoʻi ka makuahine, ka makuakāne, a i ʻole kekahi o ko lākou ʻohana, kēia maʻi ma mua, aia kahi manawa liʻiliʻi e loaʻa pū ai i ka pēpē kēia maʻi. ʻO ia hoʻi, aia kahi mana mai nā hoʻoilina.
• ʻO kekahi mau kumu kaiapuni a me nā mea ʻē aʻe e hoʻopilikia i ka makuahine i ka wā hāpai:
• ʻO kekahi mau lāʻau lapaʻau i lawe ʻia e ka makuahine i ka wā hāpai (ʻoi aku ka poʻe i lawe ʻia me ka ʻole o ke aʻo ʻana a ke kauka, ma ka makemake). No ka laʻana, hiki i kekahi mau lāʻau lapaʻau i hāʻawi ʻia no ka maʻi epilepsy ke loaʻa ka hopena.
• Inā puhi paka a hoʻohana paha ka makuahine i ka waiʻona i ka wā hāpai, hoʻopilikia pololei kēia mau mea i ka ulu ʻana o ka ʻōpū i loko o ka ʻōpū.
• I ka wā hāpai, ʻaʻole paha e loaʻa i ka makuahine ka lawa o nā meaola e pono ai, e like me ka folic acid . Paipai pinepine nā kauka i nā pila folic acid i nā wahine hāpai e kōkua i ka pale ʻana i kēia mau maʻi.
• ʻO kekahi mau maʻi viral e hiki i ka makuahine ke loaʻa i ka wā hāpai.
• Inā he mau maʻi olakino ko ka makuahine i hiki ʻole ke kāohi ʻia e like me ka Diabetes Mellitus .
• Inā momona ka makuahine.

Akā i ka hapa nui o ka manawa, hiki ke loaʻa kahi palale māwae me ke kumu ʻole. ʻO ia hoʻi, ʻaʻohe kumu maopopo. No laila, mai manaʻo ʻino e pili ana i ia mea me ka manaʻo he hewa kou. Hiki ke hana i kekahi.

Aia kekahi mau ʻano o ka palale cleft?

ʻAe, hiki i kēia mau māwae ma ka lihilihi luna ke ʻano a me ka nui like ʻole. I mea e pololei ai, aia kekahi mau ʻokoʻa iki ma muli o ka nui o ka māwae a me kona wahi.

• Loaʻa paha i kekahi mau pēpē kahi māwae ma luna o ko lākou poʻo .
• Loaʻa paha i kekahi mau pēpē kahi lehelehe māwae a me kahi lehelehe māwae . ʻO ke ʻano kēia he māwae ma ka lehelehe a me ka lehelehe luna. He lehelehe māwae wale nō paha a i ʻole he lehelehe luna wale nō.
• Hiki ke piha ka māwae, ʻo ia hoʻi, hiki ke hoʻolōʻihi ʻia ka māwae mai lalo o ka ihu a hiki i ke kua o ka lehelehe luna.
• A i ʻole he māwae piha ʻole paha , ʻo ia hoʻi, aia wale nō ka māwae ma kahi ʻāpana liʻiliʻi o ka lehelehe luna.
• ʻO kekahi ʻano kūikawā ʻo ia ka submucous cleft palate . I kēia hihia, ʻaʻole ʻike ʻia ka cleft mai waho. ʻOiai ua pani maikaʻi ʻia ka ʻili (mucous membrane) ma luna o ka palate luna, ʻaʻole i hui pono nā ʻiʻo ma lalo. I kekahi manawa ʻike ʻia kēia ma hope iki, ke hoʻomaka ka pēpē e ʻōlelo, ma ke ʻano he loli i ka leo.

He aha nā pilikia e hiki ke loaʻa i kahi pēpē ma muli o kahi palale māwae?

Hiki i ka palale māwae ke hana i kekahi mau pilikia liʻiliʻi no kāu pēpē. E nānā kākou i ke ʻano o lākou. He mea nui loa ka ʻike ʻana i kēia mau mea e kōkua ai i kāu pēpē.

• Nā pilikia hānai:

ʻO kēia ka pilikia nui i ʻike mua ʻia. E noʻonoʻo, i ka wā e omo ai ka pēpē i ka waiū, hiki i ka waiū ke komo i loko o ka ihu ma muli o kēia hakahaka ma waena o ka waha a me ka ihu. A laila paʻakikī i ka pēpē ke omo pono i ka waiū, paʻakikī paha ka hanu ʻana i ka wā e omo ana i ka waiū, hiki i ka waiū ke puka mai ka ihu, a hiki i ka waiū ke hoʻi pinepine i ka ʻāʻī. Ma muli o kēia, ʻaʻole paha e lawa ka meaʻai a ʻaʻole paha e piʻi ke kaumaha. No kēia, ʻōlelo aʻo nā kauka e hoʻohana i nā ʻano hānai kūikawā, i kekahi manawa nā nipples/ʻōmole kūikawā.

• Nā pilikia ʻōlelo:

I ka wā e ulu aʻe ai kāu pēpē a hoʻomaka e kamaʻilio, aia paha he ʻokoʻa i ko lākou leo. Ma muli o ka palale māwae, he paʻakikī ke kāohi i ka nui o ka ea e puka mai ana mai ka ihu i ka wā e ʻōlelo ana. ʻO ka hopena, kani paha ka leo me he mea lā e ʻōlelo ʻia ana ma o ka ihu (hypernasal speech / nasal voice) . ʻO kekahi mau leka, ʻoiai nā leka e like me 'প', 'ব', 'ত', 'দ', 'ক', 'গ', he mea paʻakikī paha ke haʻi pololei.

• Nā maʻi pepeiao a me nā pilikia lohe:

Aia kahi ʻōmole liʻiliʻi ma waena o ka piko o ko mākou ihu a me ka pepeiao waena, i kapa ʻia ʻo ka ʻōmole Eustachian.Hoʻoponopono kēia paipu i ke kaomi i loko o ka pepeiao a hoʻokahe i ke wai mai ka pepeiao waena. Ke loaʻa kahi māwae ma ka pepeiao o luna, hiki ke hoʻopilikia ʻia ka hana o kēia paipu Eustachian. A laila hiki ke hōʻiliʻili i ka wai i loko o ka pepeiao waena, e hoʻoulu ai i nā maʻi pepeiao pinepine (nā maʻi pepeiao waena / otitis media) , a me ka nalowale iki o ka lohe. Inā hoʻomau kēia, hiki nō hoʻi ke hoʻopilikia i ka ulu ʻana o ka ʻōlelo a ka pēpē.

• Nā pilikia niho:

Ma muli o kahi o ka palale māwae, hiki ke loaʻa nā pilikia liʻiliʻi ke komo mai nā niho. Hiki ke huki ʻia nā niho, hiki ke nalowale kekahi mau niho, hiki ke komo lohi nā niho, a i ʻole pono e hoʻokomo ʻia nā niho keu . No laila, pono mau ka ʻōlelo aʻo a ke kauka niho (`(Dentist)` a i ʻole `(Orthodontist)`).

Pehea e ʻike ʻia ai kēia palale māwae?

I ka hapa nui o ka manawa, ʻike ʻia kēia māwae ke nānā nā kauka i loko o ka waha o ka pēpē ma ka haukapila ma hope koke iho o ka hānau ʻana o ke pēpē. ʻO ia ke ala maʻamau.

I kekahi manawa, hiki i nā scan ultrasound prenatal i hana ʻia i ka wā hāpai ke hāʻawi i nā hōʻailona i ke alo o kēia ʻano, ʻoiai inā he lehelehe māwae a me ka palale. Eia nō naʻe, inā he palale māwae wale nō, ʻo ia hoʻi, me ka ʻole o ka lehelehe māwae, he mea paʻakikī paha ke ʻike iā ia ma ke scan.

ʻIke ʻia ke kīpoʻo submucous aʻu i ʻōlelo ai ma mua i kekahi manawa ke ʻike ʻia ke nui iki aʻe ke pēpē, no ka laʻana ke hoʻomaka lākou e ʻōlelo a loaʻa nā pilikia leo, a i ʻole ke loaʻa pinepine iā lākou nā maʻi pepeiao.

He aha nā lāʻau lapaʻau no kēia? He mea anei ia e makaʻu ai?

ʻO ka mea mua, he maʻi hiki ke ho'ōla piha ʻia kēia. No laila, mai hopohopo. Me ka holomua o ka lāʻau lapaʻau hou, aia nā lāʻau lapaʻau kūpono loa no kēia pēpē.

ʻO ke ʻano nui o ka lāʻau lapaʻau, ʻo ia ke pani ʻana i ka māwae me ke ʻoki kino . Ua kapa ʻia kēia he palatoplasty . Pili kēia hana i ka hoʻohui ʻana i nā ʻiʻo ma nā ʻaoʻao ʻelua o ka lehelehe a me ka humuhumu ʻana i ka māwae. Hoʻihoʻi kēia i ke ʻano o ka lehelehe.

Āhea e hana ʻia ai ke ʻoki kino?

Hana pinepine ʻia kēia ʻoki ma waena o nā makahiki 6 a me 18 mau mahina . Eia nō naʻe, e hoʻoholo ke kauka i ka manawa kūpono loa ma muli o ke olakino o ka pēpē, ke kahua ulu, a me ke kaumaha. I kekahi manawa hiki ke hana ʻia ma mua a ma hope paha.

He aha nā pahuhopu o ke ʻoki kino?

• E maʻalahi ai ka ʻai a me ka inu ʻana ma ka hoʻopau ʻana i ka pilina ma waena o ka waha a me ka ihu.
• Kōkua ia i ka mālama ʻana i nā ʻiʻo o ka ʻāwae luna e hana pono a ʻōlelo maopopo hoʻi i ka wā e ʻōlelo ana .
• Hoʻihoʻi i ka hana o ka ʻōmole Eustachian a hōʻemi i ka hanana o nā maʻi pepeiao .

ʻO ka hui lapaʻau e mālama nei

I ka mālama ʻana i kahi pēpē e like me kēia, ʻaʻole ia he kauka hoʻokahi wale nō, akā he hui o nā loea (`(Multidisciplinary Team)`)Hana pū lākou. ʻO ka maʻamau, aia kēia hui i loko o:

• Nā Kauka Lapaʻau Palakiko a me nā Hana Hou : Hana lākou i ke ʻoki kino nui.
• Nā Kauka Lapaʻau Pepeiao, Ihu a me ka Puʻu (Nā Kauka Lapaʻau ENT) : Hoʻōla lākou i nā pilikia e pili ana i ka pepeiao a hana i nā hoʻokolohua lohe.
• Nā Luna Hoʻōla ʻŌlelo a me ka ʻŌlelo : Mālama lākou a hāʻawi i nā ʻōlelo aʻoaʻo no nā pilikia ʻōlelo.
• Nā Kauka Niho Orthodontists a me nā Kauka Niho Pediatric : Mālama lākou i nā pilikia niho a me ka ulu ʻana o ka ʻauwae.
• Nā Kauka Lapaʻau : E kālele ana i ke olakino holoʻokoʻa o ka pēpē.
• Malia paha e hiki i nā kauka noʻonoʻo a me nā limahana kōkua kaiaulu ke hui pū me kēia hui e hāʻawi i nā mākua i ke kākoʻo noʻonoʻo a lākou e pono ai.

Hana pū kēia poʻe a pau e hana a hoʻokō i ka hoʻolālā lapaʻau maikaʻi loa no ka pēpē.

He aha ka mea e hana ʻia ma hope o ke ʻoki ʻana? Pehea ke ʻano o ka mālama lōʻihi?

ʻOiai ma hope o ka holomua ʻana o ke ʻoki ʻana, pono ka pēpē i ka nānā kūikawā a me ka mālama ʻana no kekahi manawa.

• Hoʻōla ʻŌlelo (`(Hoʻōla ʻŌlelo)`):

Hiki i kekahi mau pēpē ke loaʻa i kahi pilikia o ka ʻōlelo ʻana ma hope o ke ʻoki ʻana. I ia mau hihia, he mea nui ke kōkua o kahi mea lapaʻau ʻōlelo. ʻO lākou ka poʻe e aʻo i ka pēpē e haʻi pololei i nā huaʻōlelo, e ʻōlelo maopopo, a hoʻohana pono i nā ʻiʻo o ka ʻāwae luna. Hiki ke lōʻihi kēia.

• Mālama Niho a me Orthodontic:

Ke komo mai nā niho, pono e uku ʻia ka nānā kūikawā i ke kūlana o nā niho. No laila, he manaʻo maikaʻi mau ke kipa aku i ke kauka niho a loaʻa ka ʻōlelo aʻoaʻo. Inā he mau hakahaka i nā niho, hiki ke hana ʻia nā mea e like me ka mālama orthodontic / braces i ka wā e ʻoi iki aʻe ai ka pēpē.

• Mālama Hoʻolohe (`(Nānā Hoʻolohe)`):

No ka mea, ʻoi aku ka nui o ka loaʻa ʻana o nā maʻi pepeiao, he mea nui e nānā pinepine ʻia kou lohe. Inā loaʻa iā ʻoe kekahi pilikia, hiki iā ʻoe ke ʻimi koke i ka lāʻau lapaʻau. Hiki i kāu kauka ENT ke hoʻoholo e hoʻokomo i nā ʻōmole liʻiliʻi (grommets / ventilation tubes) i loko o kou pepeiao.

• E pono anei nā ʻoki kino hou aku?

I kekahi manawa, ʻaʻole paha e hoʻoponopono kekahi ʻoki kino i nā mea āpau. I ka ulu ʻana o ke pēpē, ma muli o ke ʻano o kāna ʻōlelo a me ka ulu ʻana o kona ʻāwae, pono paha iā ia i hoʻokahi a ʻelua paha mau ʻoki kino liʻiliʻi. No ka laʻana, nā ʻoki kino e hoʻomālamalama ai i kāna ʻōlelo, a i ʻole nā ​​ʻoki kino e hoʻoponopono ai i ke kūlana o kona ʻāwae. Na ka hui lapaʻau e mālama nei e hoʻoholo i kēia.

E hoʻomanaʻo, ʻaʻole kēia kūlana e keakea i ka wā e hiki mai ana o ka pēpē. Loaʻa iā lākou ka hiki piha e hele i ke kula, pāʻani, aʻo, hana i nā hoaaloha, a ulu aʻe e loaʻa kahi hana a lākou e aloha ai, mare, a ola i kahi ola holomua e like me nā keiki ʻē aʻe!

Pehea e pili ai kēia i nā mākua ma ke ʻano psychologically a me ke kākoʻo

He mea maʻamau i nā mākua ke kaumaha, hopohopo, makaʻu, a malia paha he hewa ke ʻike lākou ua loaʻa i kā lākou pēpē kēia maʻi. ʻO nā nīnau e like me "No ke aha i hiki mai ai kēia iā mākou?" "Ua hana hewa anei mākou?" e hiki mai paha i ka noʻonoʻo.

E ʻike ʻoe ʻaʻole ʻoe hoʻokahi i kēia manawa. E kamaʻilio ākea me kāu mau kauka a me nā kahu maʻi e pili ana i kēia. E hāʻawi lākou iā ʻoe i ka ʻike lapaʻau āu e pono ai a me ke kākoʻo naʻau. E haʻi aku iā lākou i kāu mau nīnau a me nā makaʻu a pau.

Eia kekahi, inā he mau mākua ʻē aʻe i kū i nā kūlana like, hiki ke lilo i mea hoʻoikaika nui e kaʻana like i kā lākou mau ʻike. Loaʻa i kekahi mau haukapila nā hui kākoʻo no nā mākua e like me kēia. Inā hiki iā ʻoe ke hui pū me kekahi, he mea waiwai nui ia.

ʻO ka mea nui loa, ʻo ia ka noʻonoʻo maikaʻi a hāʻawi i kāu pēpē i ke aloha, ka mālama, a me ka hoʻoikaika e pono ai iā ia . ʻO kou ikaika kona ikaika nui loa.

No laila, he aha nā mea nui loa e pono ai kākou e hoʻomanaʻo mai kēia mau mea a pau?

ʻAe, eia kekahi mau mea e hoʻomanaʻo ai mai nā mea a mākou i kamaʻilio ai:

• ʻO ka Cleft Palate ka māhele ʻana ma ke kaupaku o ka waha o kahi pēpē. He maʻi hānau ʻia kēia, ʻo ia hoʻi, aia ia i ka wā hānau.
• Hiki ke kumu kēia ma muli o hoʻokahi a ʻoi aku paha mau kumu, akā i ka hapa nui o ka manawa he paʻakikī ke loaʻa kahi kumu maopopo. ʻAʻole kēia he mea i hana ʻia e ka hewa o nā mākua.
• Hiki paha i kēia ke kumu e paʻakikī ai i ka pēpē ke ʻai, ʻōlelo, a lohe.
• Hiki i ke ʻoki kino ke ho'ōla nui i kēia maʻi. Hana pinepine ʻia ke ʻoki kino nui i ka wā he 6 a me 18 mahina ka pēpē.
• Hiki ke hoʻomau ʻia ka pono o ka hoʻōla ʻōlelo, ka mālama niho, a me ka mālama lohe ma hope o ke ʻoki ʻana.
• Me ka mālama kūpono a me ka hahai ʻana ma lalo o ka mākaʻikaʻi ʻana a kahi hui multidisciplinary, hiki i kēia pēpē ke ola i kahi ola olakino, hauʻoli, a holomua e like me nā keiki ʻē aʻe.
• ʻAʻole ʻoe hoʻokahi i kēia huakaʻi. E kiʻi i ke kākoʻo a me ka ʻike āu e pono ai. Mai hopohopo, e noho maikaʻi, a e hoʻomanawanui. He wā e hiki mai ana nani kāu keiki!

ʻAla Māwae, Ola Kino o ka Pēpē, Nā Kīnā Hānau, ʻOki Hana, Hoʻōla ʻŌlelo, ʻŌlelo Aʻo no ka Mākua