Ke ʻū nei kāu keiki liʻiliʻi i ka wā e ʻai ana? Hiki paha kēia ma muli o kahi 'laryngeal cleft'? E kamaʻilio kākou e pili ana i kēia!

Ke ʻū pinepine nei kāu pēpē i ka wā e inu ai a ʻai paha? A i ʻole hana ʻo ia i kahi leo ʻē i ka wā e hanu ai, a i ʻole paʻakikī pinepine ʻo ia i ka hanu ʻana? I kekahi manawa, ma ke ʻano he makuahine a makua paha, he mea maʻamau loa iā ʻoe ke makaʻu nui a hopohopo ke ʻike ʻoe i kēia mau mea. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi hānau e hiki ke hōʻike i nā hōʻailona like, akā ʻaʻole maʻamau i waena o nā poʻe he nui. Ua kapa ʻia kēia maʻi he laryngeal cleft . ʻOiai paha he paʻakikī iki ka inoa, e hoʻomaopopo maʻalahi kākou.

He aha ka Laryngeal Cleft?

I ka ʻōlelo maʻalahi, ʻo ka laryngeal cleft he hakahaka liʻiliʻi a i ʻole ka ʻoki i loko o ka ʻiʻo e pono ai ma waena o ka ʻāʻī o kā mākou pēpē, ʻo ia hoʻi, ka pahu leo ​​(larynx) a me ka paipu meaʻai (esophagus). E noʻonoʻo e pili ana, aia ko mākou pahu leo ​​ma luna o ka windpipe (trachea). Aia ka paipu meaʻai ma hope o kēia pahu leo. No laila, inā he hakahaka maʻamau ma waena o kēia mau mea ʻelua, hiki i nā mea a ka pēpē e ʻai ai, ʻo ia hoʻi, ka waiū, ka wai, a me ka meaʻai ke hele ma o kēlā hakahaka i loko o ka windpipe ma kahi o ke komo ʻana i loko o ka ʻōpū. ʻO ia ka manawa e hoʻomaka ai nā pilikia. He maʻi hānau kakaikahi loa kēia. Loaʻa kēia maʻi ma kahi o hoʻokahi i loko o 10,000 a 20,000 mau hānau ola. ʻOi aku ka maʻamau i nā keikikāne.

He mea nui e ʻike a mālama i kahi pēpē me kēia maʻi i ka wā hikiwawe loa, no ka mea, inā hele ka meaʻai a mea inu paha i kahi kūpono ʻole, hiki iā ia ke hana i nā pilikia like ʻole. Eia nō naʻe, ʻo ke koʻikoʻi o kēia māwae laryngeal e pili ana i ka nui o ka māwae a me kona wahi.

He aha nā ʻano nui o nā mākala laryngeal?

Ua hoʻokaʻawale nā ​​kauka i nā māwae laryngeal i ʻehā mau ʻano nui, ma muli o ko lākou koʻikoʻi. E nānā kākou i ke ʻano o lākou:

• ʻAno I: ʻO kēia ke ʻano palupalu loa . Aia ka māwae ma nā kaula leo o ka pēpē wale nō. ʻAʻole pinepine kēia ʻano i nā hōʻailona nui. No laila, ʻaʻole paha e ʻike koke ʻia.
• ʻAno II: Maanei e hoʻolōʻihi ai ka māwae ma lalo o nā kaula leo o ke pēpē.
• ʻAno III: ʻOi aku ka nui o ka māwae. Hiki ke hoʻolōʻihi ʻia ma ʻō aku o ka pahu leo ​​o ka pēpē (larynx) a komo i loko o ka windpipe (trachea).
• ʻAno IV: ʻO kēia ke ʻano koʻikoʻi loa . Maanei, e hoʻolōʻihi ana ka māwae i lalo o ka ʻōpū hanu o ka pēpē. I kekahi manawa, hiki i ka māwae ke hoʻolōʻihi ma ka ʻōpū hanu holoʻokoʻa.

I kēia manawa ua maopopo iā ʻoe pehea ka hopena o ke kaawale i kēia hoʻokaʻawale ʻana.

He aha nā hōʻailona o ka māwae laryngeal?

Ke loaʻa i kāu pēpē kahi māwae laryngeal, hiki iā ia ke paʻakikī iā lākou ke ʻai a me ka hanu. ʻO nā hōʻailona maʻamau:

• ʻUmi a me ka ʻū ʻana i ka wā e hānai ana i ka waiū a i ʻole ka hānai ʻana: ʻO kēia ka hōʻailona mua āu e ʻike ai. Ua like ia me ka wā e hāʻawi ʻia ai kahi pēpē liʻiliʻi i ka waiū a hoʻomaka e ʻū, e ʻū ana, a i kekahi manawa e puka mai ka waiū mai ko lākou ihu.
• Pilikia i ka moni ʻana: Ke hōʻole nei ka pēpē e ʻai, a i ʻole he paʻakikī loa ke moni ʻana.
• ʻIli polū (Cyanosis): ʻIke maʻalahi ʻia kēia ʻano polū (cyanosis) ma nā ʻāʻī, nā lehelehe, nā kui lima, a puni nā maka, ʻoi aku hoʻi i nā pēpē me ka ʻili ʻeleʻele. Hana ʻia kēia ke loaʻa ʻole i ke kino ka oxygen lawa.
• He leo ʻūhū, pulu, a ʻoʻoleʻa i ka wā e hanu ana: Hiki ke kani me he mea lā ua paʻa ka mucus i ka puʻu.
• Uē mau ma muli o ka pōloli, ka hoʻomaha ʻole, a me ka hiamoe maikaʻi ʻole: Hiki i kahi pēpē ke pōloli i nā manawa a pau no ka mea ʻaʻole i komo pono ka meaʻai i loko o ka ʻōpū.
• ʻAʻole e piʻi ke kaumaha, lohi ka ulu ʻana: Inā ʻaʻole e piʻi ana ke kaumaha o kahi pēpē a i ʻole e ulu ana ma ka wikiwiki like me nā pēpē ʻē aʻe o ka makahiki like, ʻaʻohe mea nui ka nui o ka waiū a i ʻole ka meaʻai i hāʻawi ʻia, pono e manaʻo ʻia he mea kānalua kēia.
• Ka hanu ʻana o ka meaʻai a mea inu paha i loko o ka ʻōpū hanu: Hiki i kēia ke alakaʻi i nā maʻi maʻi māmā pinepine.
• Ka loaʻa pinepine ʻana o ka maʻi niumonia: Hana ʻia kēia ma muli o ke kūlana hanu ʻana i ʻōlelo ʻia ma luna.

Inā loaʻa i kāu pēpē kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​​​he mea nui loa e ʻimi koke i ke kōkua lapaʻau.

He aha ke kumu o ka māwae laryngeal?

ʻAʻole maopopo loa i nā kānaka noiʻi ke kumu o ia mea. Eia nō naʻe, ua manaʻo ʻia he mea ia e hana ʻia ana i nā mahina mua o ka ulu ʻana o kahi pēpē i loko o ka ʻōpū. Hiki ke hana ia ma kāna iho, a i ʻole hiki ke pili pū me kekahi mau maʻi genetic. Eia kekahi laʻana:

• ʻO ka maʻi ʻo Opitz-Frias
• ʻAhahui VACTERL
• ʻO ka maʻi Pallister-Hall
• ʻO ka maʻi CHARGE

ʻOi aku ma mua o ka hapalua o nā pēpē me nā māwae laryngeal e loaʻa paha nā kīnā hānau ʻē aʻe. ʻO kekahi o kēia mau mea:

• Tracheobronchomalacia - ka nāwaliwali o ka ʻōpū makani
• Lehelehe māwae a me/a i ʻole ka lehelehe
• Nā ʻano like ʻole o ka puʻuwai a me ke kīʻaha koko
• ʻO ka agenesis pulmonary - ka hiki ʻole o kekahi māmā ke ulu
• ʻO ka atresia esophageal - ka hoʻokumu piha ʻole ʻana o ka esophagus
• ʻO ka fistula tracheoesophageal - kahi pilina maʻamau ma waena o ka windpipe a me ka esophagus

Ma muli o ka ʻike ʻia ʻana o kēia māwae laryngeal me nā kūlana ʻē aʻe e like me kēia, ke nānā nei nā kauka i kēia pū kekahi.

Pehea e ʻike ʻia ai ka māwae laryngeal?

ʻO nā ʻano māmā o nā māwae laryngeal, nā ʻano I a me II, hiki ke ʻike ʻole ʻia i kekahi manawa no nā makahiki no ka mea ʻaʻole i koʻikoʻi loa nā hōʻailona. Eia nō naʻe, ʻo nā hōʻailona o nā ʻano III a me IV ua koʻikoʻi loa ia a ʻike pinepine ʻia i loko o nā lā mua ma hope o ka hānau ʻana.

Inā loaʻa i kāu pēpē nā hōʻailona i ʻōlelo ʻia ma luna, e ʻōlelo pinepine kahi otolaryngologist (loea ENT) i kahi loiloi endoscopic. Ma kēia, ʻo ka hoʻāʻo nui e ʻike ai inā he māwae laryngeal he microlaryngoscopy a me bronchoscopy . Mai hopohopo, hana ʻia kēia ma hope o ka hāʻawi ʻia ʻana o ka anesthesia i ka pēpē a hiamoe loa. A laila hoʻokomo ke loea i kahi ʻōmole me kahi kāmela liʻiliʻi i loko o ka windpipe o ka pēpē a nānā pono inā he māwae.

Eia kekahi, hiki ke kuhikuhi ʻia kāu keiki i kahi Speech-Language Pathologist (SLP). E nānā kēia loea i ke ʻano o ka hopena o ke kūlana i ka hiki o kāu keiki ke ʻōlelo a me ke ale ʻana.

Pehea e mālama ʻia ai ka māwae laryngeal?

ʻO ka hapa pinepine, pono ke ʻoki ʻana i kahi māwae laryngeal. Ua kapa ʻia kēia he hoʻoponopono māwae laryngeal. He mea pono loa ke ʻoki ʻana no nā ʻano II, III, a me IV. Eia nō naʻe, hiki i kekahi mau pēpē me kahi māwae ʻano I liʻiliʻi ke pani iā ​​lākou iho i ko lākou wā ʻelemakule. Pono paha kēlā mau pēpē i ka lāʻau lapaʻau e pale aku i ka meaʻai a me ka mea inu mai ka hoʻi ʻana mai i loko o ka puʻu (reflux) a me kekahi mau hana e pale aku ai i ka meaʻai mai ke komo ʻana i loko o ka windpipe (aspiration).

ʻOkoʻa ka manawa a me ke ʻano o ke ʻoki ʻana ma muli o ke ʻano o ka māwae laryngeal. Hoʻohana nā kauka lapaʻau i kēia mau ʻano hana e hoʻoponopono ai i ka māwae:

• Ke kau ʻana o ka inikini invasive liʻiliʻi: Maanei, hoʻokomo ke kauka lapaʻau i kahi mea hoʻopihapiha manawa pōkole i loko o kahi o ka ʻeha. Hiki i kēia ke kōkua i ka hōʻoluʻolu ʻana i nā hōʻailona (maʻamau no ʻekolu mahina). Hāʻawi kēia i ka hōʻoluʻolu a hiki i ka mākaukau o ka pēpē no ke ʻoki ʻana. I kekahi manawa, ua lawa paha kēia wale nō.
• ʻO ke ʻoki endoscopic minimally invasive: Maanei, hoʻohana pinepine ke kauka lapaʻau i ka laser e wehe i nā ʻiʻo maʻamau i ka ʻoki ʻana, a laila pani i ka ʻoki me nā sutures.
• ʻO ke ʻoki hāmama: Maanei, hana ke kauka ʻoki i kahi ʻoki liʻiliʻi ma ka ʻāʻī o ka pēpē a hoʻoponopono i ka māwae. Hoʻohana pinepine ʻia kēia ʻano hana no nā pēpē me nā māwae laryngeal ʻano IV.

ʻO ka mea nui loa, ma mua o ke ʻoki ʻana o kāu pēpē, e hāʻawi ke kime lapaʻau i ka pēpē i ka anesthesia. No laila, ʻaʻole e ʻeha ka pēpē. Mai hopohopo no ia mea.

Aia kekahi mau pilikia a i ʻole nā ​​​​hopena ʻaoʻao o ka mālama ʻana i ka laryngeal cleft?

E like me nā ʻoki kino āpau, hiki i ke ʻoki ʻana i ka laryngeal cleft ke loaʻa kekahi mau pilikia. ʻO kekahi o lākou:

• Ka paʻa ʻana o ka esophagus o ke pēpē ma ke ʻano kūpono ʻole.
• Ua haki a wehe paha nā humuhumu.
• Ka hanu walaʻau a i ʻole ka laryngomalacia.
• Ka hōʻino ʻana i nā aʻalolo e pili ana i ka pahu leo ​​o ka pēpē (larynx).
• Ka pehu ʻana o ka ʻāpana ma waena o nā māmā i loko o ka umauma (Mediastinitis).
• Ka hōʻiliʻili ʻana o ka ea ma lalo o ka ʻili ma hope o ke ʻoki ʻana (Surgical emphysema).
• Ka paʻa ʻana o ka ʻōpū makani i ka wā e hanu ana (Tracheomalacia).

ʻO ka likelika o kēia pilikia e pili ana i nā kumu he nui, me ke ʻano o ke ʻoki ʻana i hana ʻia, ke ʻano o ka ʻeha, a me ke olakino holoʻokoʻa o ka pēpē. E kūkākūkā kikoʻī ke kauka o kāu pēpē i kēia me ʻoe ma mua o ke ʻoki ʻana.

Pehea ka lōʻihi e ola ai kaʻu pēpē ma hope o ka mālama ʻia no ka māwae laryngeal?

Ma hope o ke ʻoki ʻana, pono kāu pēpē e noho ma ka haukapila no hoʻokahi a ʻelua paha lā. ʻOiai ua hoʻohana ʻia nā humuhumu e pani i ka ʻoki, hiki ke hala kekahi mau pule a i ʻole mau mahina no ka ho'ōla piha ʻana o ka pēpē . He mea nui loa e hahai pono i nā ʻōlelo a kāu kauka i kēia manawa.

He aha ka manaʻo no kēia kūlana?

Inā ʻike ʻia a mālama ʻia i ka wā mua , maikaʻi loa ka nānā ʻana no nā pēpē me nā māwae laryngeal. Wahi a kahi noiʻi hou, 9 mai loko mai o 10 mau pēpē i loaʻa i ke ʻoki hoʻoponopono māwae laryngeal e ʻike i ka hoʻomaikaʻi ʻana i kā lākou mau hōʻailona i loko o ʻeono pule. Eia nō naʻe, hilinaʻi nui ia i ke koʻikoʻi o ka māwae. ʻOi aku ka nui o nā pēpē me ka māwae type IV e loaʻa i nā ʻoki ʻoi aku ma mua o hoʻokahi a e noho lōʻihi i ka haukapila.

E kamaʻilio ke kauka o kāu pēpē me ʻoe e pili ana i ke kūlana o kāu pēpē a me ka mālama ʻana i ka wā e hiki mai ana.

Ke hoʻopōkole nei ka laryngeal cleft i ke ola?

No ka hapa nui o nā pēpē, ʻaʻole pili ka loaʻa ʻana o kahi māwae laryngeal i ko lākou ola. Eia nō naʻe, hiki i kekahi mau pēpē me kahi māwae laryngeal type IV koʻikoʻi loa , me nā kīnā hānau koʻikoʻi ʻē aʻe, ke hoʻoweliweli i ke ola. Eia nō naʻe, he mea kakaikahi loa ka make mai kahi māwae laryngeal - ʻoiai i nā hihia koʻikoʻi.

Inā mālama pono ʻia a hahai ʻia nā ʻōlelo aʻoaʻo lapaʻau, ʻaʻole pono e hoʻopōkole ka laryngeal cleft i ke ola o kahi pēpē a i ʻole e hōʻemi i ko lākou ola.

Āhea wau e ʻike ai i ke kauka o kaʻu pēpē?

Ma hope o ke ʻoki ʻana, e noi paha ke kauka o kāu pēpē iā ʻoe e hele mai no nā manawa hoʻopaʻa i kēlā me kēia ʻeono mahina, a hiki i hoʻokahi makahiki. ʻO ka helu o nā kipa i loko o ia manawa e hilinaʻi ʻia i ka holomua o kāu pēpē.

I loko o kēia mau hoʻokolohua, hiki i ke kauka ke hana i nā hoʻokolohua kiʻi a nīnau iā ʻoe e pili ana i nā hōʻailona o kāu pēpē. E mākaukau e ʻōlelo no kāu pēpē. E kamaʻilio me ke kauka e pili ana i nā loli āu e ʻike ai i nā hōʻailona o kāu pēpē a me ke olakino holoʻokoʻa.

He aha nā nīnau e pono iaʻu e nīnau aku i ke kauka o kaʻu pēpē?

Eia kekahi mau nīnau koʻikoʻi e nīnau aku ai i ke kauka o kāu pēpē:

• No ke aha ʻoe e paipai nei i kēia lāʻau lapaʻau a i ʻole ke ʻoki kino?
• He aha kaʻu e hana ai e kōkua i kaʻu pēpē e ʻoluʻolu ma mua a ma hope o ke ʻoki ʻana?
• He aha nā pilikia o ke ʻoki ʻana o kaʻu pēpē?
• ʻEhia ka lōʻihi e ola ai kaʻu pēpē?
• He aha kaʻu e manaʻo ai e pili ana i ke olakino o kaʻu pēpē i ka wā lōʻihi?

E nīnau i nā nīnau e like me kēia a wehewehe i nā mea āpau āu e loaʻa nei.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

Inā hānau ʻia kāu pēpē me kahi māwae laryngeal, pono ʻoe e ʻike i nā ʻano loea like ʻole. E hana pū lākou a pau e hāʻawi i ka mālama maikaʻi loa no kāu pēpē. E hoʻomanaʻo, i kekahi manawa e ho'ōla wale ka māwae. I kēlā hihia, ʻo ka nānā pono ʻana i kāu pēpē e lawa paha. Inā koʻikoʻi ka māwae, pono paha kāu pēpē i ke ʻoki ʻana. ʻO ka mea nui e hoʻomanaʻo he mau lāʻau lapaʻau e hiki ke kōkua. I kēia manawa, e nīnau i ke kauka o kāu pēpē e pili ana i nā mea hiki iā ʻoe ke hana e kōkua i kāu pēpē e kū i kēia maʻi. ʻAʻole ʻoe hoʻokahi, a aia mau ka hui lapaʻau e kōkua iā ʻoe a me kāu pēpē.

Māwae laryngeal, waha māwae, ʻūpā ʻana i ka meaʻai pēpē, pilikia hanu, kīnā hānau, ihu wai, olakino keiki