Manaʻo pinepine ʻoe he pōkole kāu keiki ma mua o nā keiki ʻē aʻe o kona mau makahiki? I kekahi manawa ʻo ke kumu o kēia paha ʻaʻole lawa ka hana ʻana o ko mākou kino i ka hormone ulu, he hormone koʻikoʻi ia no ka ulu ʻana. Ma kēia ʻatikala, e kamaʻilio mākou e pili ana i kahi lāʻau lapaʻau kūikawā a nā kauka e ʻōlelo ai ma ke ʻano he lāʻau lapaʻau no kēia ʻano, hiki ke hoʻohana ʻia i hoʻokahi manawa wale nō i ka pule.
He aha kēia lāʻau lapaʻau i kapa ʻia ʻo Lonapegsomatropin?
I ka ʻōlelo maʻalahi, ʻo Lonapegsomatropin (i ʻike pinepine ʻia e ka inoa inoa ʻo SKYTROFA ) he hormone ulu lōʻihi. Ua hoʻolālā ʻia ia e kōkua i nā keiki i palupalu ma muli o ka nele o ka hormone ulu i loko o ko lākou kino e ulu kiʻekiʻe.
Hāʻawi ʻia kēia i ke keiki ma ke ʻano he inikini ma lalo o ka ʻili. Ma kahi o nā inikini maʻamau o ka hormone ulu i kēlā me kēia lā, hāʻawi ʻia kēia i hoʻokahi manawa i ka pule . He mea pono nui kēia no nā keiki a me nā mākua.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau
Ma mua o ka hāʻawi ʻana i kēia lāʻau lapaʻau i kāu keiki, he mea nui loa ia e hāʻawi i ke kauka i kahi wehewehe piha no ke kūlana olakino o kāu keiki. ʻOi loa aku inā loaʻa kekahi o kēia mau kūlana, he mea nui e haʻi iā lākou e pili ana i ia mea.
| Kūlana olakino a pilikia paha | Wehewehena |
|---|---|
| Ka maʻi ʻaʻai | Inā loaʻa ke keiki i ka maʻi kanesa i kēia manawa a i ʻole ua mālama mua ʻia no ka maʻi kanesa. |
| Maʻi diabetes | He kūlana o ke kiʻekiʻe o ke kō koko. |
| ʻO ka maʻi Prader-Willi | He kūlana hoʻoilina laha ʻole kēia. |
| Ka hanu ʻana a i ʻole ka ʻū ʻana i ka wā hiamoe (sleep apnea) | ʻOi loa aku inā e kani nui ana ke keiki a i ʻole e pau ka hanu ʻana no kekahi manawa i ka wā hiamoe. |
| Ka hana emi ʻana o nā kelepa adrenal | Hana haʻahaʻa o ke kelepa adrenal. |
| Nā pae thyroid haʻahaʻa | Nā pae thyroid haʻahaʻa. |
| Scoliosis | He piʻo ʻaoʻao ko ka iwi kuamoʻo. |
| He hana ʻoki kino hou | Inā ua loaʻa iā ʻoe kahi ʻoki kino nui a i ʻole kahi ulia. |
| Nā pilikia ʻike | Inā he pilikia kou ʻike. |
| Nā maʻi ʻaleka | Inā loaʻa iā ʻoe kahi maʻi allergy i kēia lāʻau lapaʻau, nā hormones ulu ʻē aʻe, a i ʻole kekahi lāʻau lapaʻau a meaʻai paha. |
| Ka hāpai ʻana a i ʻole ka hānai ʻana i ka waiū | Inā hāpai ʻoe, e hoʻāʻo ana e hāpai, a i ʻole e hānai waiū ana (pili paha kēia i nā kaikamahine ʻōpio, e like me ka hāʻawi pinepine ʻia i nā keiki). |
Pehea e hoʻohana ʻia ai kēia lāʻau pale?
Hāʻawi ʻia kēia lāʻau lapaʻau ma ke ʻano he inikini ma lalo o ka ʻili (ma ke ʻano subcutaneous). E hōʻike aku kāu kauka a kahu maʻi paha iā ʻoe pehea e hāʻawi ai. E hoʻomanaʻo e hoʻohana wale i ka nui i kuhikuhi ʻia e like me ke kuhikuhi . E hoʻomau i ka hoʻohana ʻana a hiki i ka wā e ʻōlelo ai kāu kauka iā ʻoe e hoʻōki.
He mea nui loa:Mai hoʻolei i nā nila a me nā syringe i hoʻohana ʻia i loko o ka ʻōpala. Pono e waiho ʻia i loko o kahi pahu plastik mānoanoa kūikawā e hiki ke wehe ʻia. Inā ʻaʻohe āu, e nīnau i kāu kauka pehea e loaʻa ai.
No ka makahiki e hāʻawi ʻia ai ka lāʻau lapaʻau i kahi keiki, hiki ke kuhikuhi ʻia i nā keiki e like me hoʻokahi makahiki ma lalo o kekahi mau kūlana. Eia naʻe, ʻo kāu kauka wale nō ke hoʻoholo i kēlā hoʻoholo.
He aha kāu e hana ai inā lawe nui ʻoe i ka lāʻau lapaʻau?
Inā kānalua ʻoe ua hāʻawi ʻia kāu keiki ma mua o ka nui i kuhikuhi ʻia, e kelepona koke i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo . A i ʻole, e lawe koke i kāu keiki i ka Emergency Treatment Unit (ETU) kokoke loa i ka haukapila.
He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?
Inā ʻaʻole hiki iā ʻoe ke loaʻa ka lāʻau pale i ka lā i hoʻonohonoho ʻia o ka pule, mai hopohopo. E hāʻawi koke iā ia ke hoʻomanaʻo ʻoe. Akā inā kokoke ka manawa no kāu lāʻau aʻe, e hāʻawi wale i ka lāʻau i hoʻonohonoho ʻia no ia manawa. I ka ʻōlelo maʻalahi, hiki iā ʻoe ke hāʻawi i kēia lāʻau pale i 2 mau lā ma mua a i ʻole 2 mau lā ma hope o ka lā i hoʻonohonoho ʻia. Eia nō naʻe, pono e loaʻa kahi kaʻawale o 5 mau lā ma waena o ʻelua mau lāʻau. Mai hāʻawi pālua a i ʻole nā lāʻau keu no ka mea ua poina iā ʻoe.
Nā mea e makaʻala ai i ka wā e hoʻohana ai i ka lāʻau lapaʻau
- Nā nānā lapaʻau maʻamau: E hōʻoia e lawe i kāu keiki i ke keʻena lapaʻau i nā lā i kuhikuhi ʻia e ke kauka e nānā i ko lākou holomua. He manawa iki paha e ʻike ʻia ai nā hopena o kēia lāʻau.
- Nā hoʻāʻo koko: I ka wā o ka mālama ʻana, pono paha ke kauka e nānā i nā mea e like me ke kō koko o kāu keiki a me nā pae hormone.
- Nānā ʻana i ka ʻike: Pono paha e nānā ʻia ka ʻike o kāu keiki ma mua a i ka wā o ka mālama ʻana.
- Nā lāʻau lapaʻau ʻē aʻe: E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe, nā huaora, a me nā lāʻau lapaʻau lāʻau a kāu keiki e lawe nei. ʻOi loa nā lāʻau lapaʻau no ka maʻi diabetes, nā hormones (e like me nā pila hoʻomalu hānau), a me nā steroids (prednisone, cortisone) hiki ke launa pū me kēia lāʻau lapaʻau.
Nā hopena ʻaoʻao hiki ke loaʻa
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa kekahi mau hopena ʻaoʻao. Hiki i kekahi o lākou ke koʻikoʻi, no laila he mea nui e makaʻala iā lākou.
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i kāu kauka a i ʻole ETU | |
|---|---|
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, lehelehe a i ʻole ke alelo, paʻakikī ke hanu. |
| Pehu kino (Edema) | Piʻi koke ke kaumaha, pehu o nā kuʻekuʻe wāwae, nā wāwae, nā lima, paʻakikī ka hanu ʻana. |
| ʻO ka maʻi pancreatitis | ʻEha nui ma ka ʻōpū (ʻoi aku hoʻi ma ke kua), ʻeha e ʻoi aʻe ana ma hope o ka ʻai ʻana a i ʻole ke hoʻopā ʻia ka ʻōpū, kuni, nausea, luaʻi. |
| Hoʻonui ʻia ke kō koko | Ke manaʻo nei i ka pōloli nui, ka make wai, a i ʻole ka mimi ʻana ma mua o ka maʻamau, ke manaʻo nei i ka luhi loa, a i ʻole ka ʻike pohihihi. |
| Nā hōʻailona koʻikoʻi ʻē aʻe | ʻEha poʻo nui, loli ka ʻike, ʻeha ka ʻūhā a i ʻole ke kuli, mānoanoa a lahilahi paha ka ʻili ma kahi i inikini ʻia. |
| Nā hopena ʻaoʻao ʻaʻole pono ka ʻōlelo aʻoaʻo lapaʻau (akā e haʻi i kāu kauka inā hoʻomau lākou) | |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻū, ʻeha ka puʻu. |
| ʻEha ʻiʻo a me nā hono | ʻEha nā hono, ka ʻūlū ʻana o nā ʻiʻo, a i ʻole ka ʻeha. |
Pehea ʻoe e mālama pono ai i ka lāʻau lapaʻau?
E mālama i kēia lāʻau lapaʻau mai nā keiki a me nā holoholona.
- Ka hoʻomaʻalili ʻana (ʻano hana makemake ʻia): E mālama i loko o ka pahu hau (ʻaʻole ka pahu hau). E wehe mai ka pahu ma kahi o 15 mau minuke ma mua o ka hoʻokomo ʻana. E hoʻohana i loko o 4 mau hola o ke kāwili ʻana i ka lāʻau.Pono ʻoe e hoʻohana. Inā ua hala ma mua o 4 mau hola, e hoʻolei aku.
- Ka mālama ʻana ma ka mahana o ka lumi: Inā pono, hiki ke mālama ʻia kēia lāʻau lapaʻau ma ka mahana o ka lumi (ma waena o 15-30 Celsius) a hiki i 6 mau mahina. Eia nō naʻe, inā pēlā, pono e hoʻolei ʻia kekahi lāʻau lapaʻau i koe ma hope o 6 mau mahina mai ka lā i lawe ʻia ai mai loko mai o ka pahu hau a i ʻole ke hala ka lā palena pau (ʻo ka mea mua).
- Mai hoʻokuʻu i ka lāʻau lapaʻau e hau.
Leka Lawe-Home
- He inikini kūikawā ʻo Lonapegsomatropin i hāʻawi ʻia i hoʻokahi manawa i ka pule i nā keiki me ka nele o ka hormone ulu. Pono e hoʻohana wale ʻia ma ke ʻōlelo a ke kauka.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i ke kauka e pili ana i nā kūlana olakino a pau o kāu keiki a me nā lāʻau lapaʻau.
- E aʻo pehea e hoʻokomo pololei ai i ka lāʻau pale. E hoʻolei pono i nā nila a me nā syringe i hoʻohana ʻia i loko o kahi pahu ʻoi.
- Inā loaʻa iā ʻoe kekahi mau hopena koʻikoʻi e like me ke poʻo ʻeha nui, nā loli o ka ʻike, ka ʻeha nui o ka ʻōpū, a i ʻole ka pehu ʻana o ke kino, e ʻimi koke i ke kōkua lapaʻau.
- No kāu keiki wale nō kēia lāʻau lapaʻau. Mai kaʻana like me kekahi.
- E mālama pono i ka lāʻau lapaʻau, ma ka mahana kūpono. E hoʻolei aku i ka lāʻau lapaʻau i pau ka lāʻau me ka palekana.
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