ʻOi aku ka nui o ke alelo o kāu keiki ma mua o ko lākou waha? E kamaʻilio kākou e pili ana iā Macroglossia | Nirogi Lanka

Ua ʻike paha ʻoe, a ua lohe paha e pili ana i nā kānaka—ʻoi aku hoʻi nā kamaliʻi liʻiliʻi—nāna nā alelo i ʻike ʻia he nui loa no ko lākou waha? I kekahi mau hihia, hiki i ke alelo ke puka aku ma mua o nā niho a i ʻole nā ​​lehelehe. I ka lāʻau lapaʻau, ua ʻike ʻia kēia ʻano ʻo Macroglossia . ʻOiai ke kani weliweli nei ka inoa, mai hopohopo. I kēia lā, e kamaʻilio kākou e pili ana i kēia ma nā ʻōlelo maʻalahi i hiki iā ʻoe ke hoʻomaopopo pono i kona manaʻo.

He aha ke ʻano o Macroglossia, a pehea e ʻike ʻia ai?

I nā huaʻōlelo maʻalahi, ʻo ka macroglossia e pili ana i kahi kūlana kahi i nui loa ai kou alelo i ka like me kou waha. ʻOiai ʻike pinepine ʻia i nā keiki ʻōpio, hiki iā ia ke hoʻopilikia i nā pākeke. I nā hihia he nui, he kūlana hānau ia, ʻo ia hoʻi, aia ia mai ka hānau ʻana mai, pili pinepine ʻia me nā maʻi genetic e like meʻO ka maʻi Beckwith-Wiedemann a i ʻole Down syndrome . Eia nō naʻe, hiki i ka macroglossia ke ulu aʻe ma hope o ke ola ma muli o nā ʻano maʻi kanesa, nā maʻi koʻikoʻi, a i ʻole nā ​​​​pilikia olakino ʻē aʻe.

E noʻonoʻo paha ʻoe, "Ke nānā aku nei ke alelo o kaʻu keiki he nui iki, hiki iā lākou ke loaʻa kēia?" Inā pēlā, e hoʻolohe pono i kēia mau hōʻailona:

• Ke puka mau ʻana o ke alelo: ʻO kēia ka hōʻailona maopopo loa a ʻike ʻia. Me he mea lā ʻaʻole lawa kahi i loko o ka waha no ke alelo e hoʻomaha ʻoluʻolu.
• Nā pilikia hanu:
• Hiki paha iā ʻoe ke lohe i kahi leo kiʻekiʻe a hūʻū i ka wā e hanu ana, i ʻike ʻia ma ke ʻano lapaʻau he stridor .
• A i ʻole, e ʻike paha ʻoe i kahi kani ʻūlū a i ʻole ke kani ʻana i ka wā e hanu ana, ʻoiai i ka wā hiamoe. Ua kapa ʻia kēia he stertor .
• Paʻakikī i ka moni ʻana (dysphagia): Ma muli o ke alelo nui loa, paʻakikī paha i kāu keiki ke mālama i ka meaʻai i loko o ko lākou waha, nau, a moni paha me ka maikaʻi. Paʻakikī paha i nā pēpē ke hopu no ka hānai waiū a i ʻole ka inu ʻana mai ka ʻōmole. I kekahi manawa, aia paha kahi manaʻo ʻū i ka wā e ʻai ana.
• Ka Holo ʻAna: Ma muli o ke alelo e pale ai i ka waha mai ka pani pono ʻana, he mea maʻamau ka holo ʻana o ka wai mau, kahi āu e ʻike ai ma nā uluna a i ʻole nā ​​​​lole pulu pinepine.
• Ka hemahema o ka ʻōlelo: No ka mea he mea nui ke alelo no ka hoʻopuka ʻana i ka ʻōlelo, hiki i ke alelo i hoʻonui ʻia ke paʻakikī i ka haʻi maopopo ʻana i nā huaʻōlelo a i ʻole ke kamaʻilio pololei ʻana, a pinepine ia e alakaʻi ai i ka ʻōlelo ʻana me ka hūpō.

ʻO ka mea nui e lawe ʻia, ʻoiai e hōʻike ana kēia mau hōʻailona i ka macroglossia , hiki iā lākou ke lilo i mau hōʻailona o nā kūlana olakino ʻē aʻe. E kūkākūkā mau me kahi loea ma Nirogi Lanka no ka loiloi kūpono.

E noʻonoʻo paha ʻoe inā he mea maʻamau kēia. ʻO ka ʻoiaʻiʻo, he maʻi laha ʻole ka macroglossia. He mea paʻakikī ke hoʻoholo ʻana i kona laha pololei no ka mea ʻike pinepine ʻia ia ma ke ʻano he hōʻailona o kahi maʻi ma mua o kahi hōʻailona mua ma kāna iho.

He aha ke kumu o ka macroglossia?

He nui nā kumu o Macroglossia. I nā hihia kakaikahi, hānau ʻia nā kānaka me kahi alelo nui me ka ʻole o nā pilikia olakino ʻē aʻe. ʻO ka mea maʻamau, he hōʻailona ia o kahi maʻi olakino. Hiki i kēia ke hānau ʻia (genetic) a i ʻole i loaʻa ma hope o ke ola ma muli o nā maʻi, nā ʻeha, a i ʻole nā ​​​​lāʻau lapaʻau.

E nānā kākou i kēia mau kumu:

Nā Kūlana Congenital (Genetic)

Ua pili ʻo Macroglossia me kekahi mau maʻi genetic, e like me:

• ʻO ka maʻi Beckwith-Wiedemann: Hoʻopilikia kēia i ka ulu kino. Hiki i nā keiki me kēia maʻi ke loaʻa i nā nui kino a me nā ʻōpū nui aʻe. Loaʻa iā lākou kahi pilikia kiʻekiʻe no kekahi mau maʻi kanesa kamaliʻi. ʻO ka mea nui, ma kahi o 90% o nā keiki me ka maʻi Beckwith-Wiedemann e hōʻike ana i ka macroglossia.
• ʻO ka maʻi Hurler/Hunter (Mucopolysaccharidosis): He mau maʻi metabolic kēia e hoʻopilikia ai i ke ʻano o ka wāwahi ʻana o ke kino i nā molekala kō, hiki ke hopena i kahi alelo i hoʻonui ʻia.
• ʻO ka maʻi Down: Hānau ʻia nā kānaka me Down syndrome me kahi chromosome keu, ka mea e hoʻopilikia ai i ka ulu ʻana o ka lolo a me ke kino. ʻO Macroglossia kahi ʻano kino i ʻike pinepine ʻia i ka poʻe me Down syndrome.

Nā Kūlana i Loaʻa

I kekahi manawa, ulu aʻe ka macroglossia ma hope o ke ola ma muli o ka metabolic, endocrine, a i ʻole nā ​​​​maʻi pipili.

• ʻAmyloidosis:He maʻi pili i ka protein kēia kahi e waiho ai nā protein kūpono ʻole i loko o nā ʻiʻo a me nā ʻōpū, e hōʻino ana i kā lākou hana. ʻO Macroglossia kahi hōʻailona nui o ka amyloidosis e pili ana i ka ʻāpana waha.
• Hypothyroidism: He kūlana maʻamau kahi i hana ʻole ai kou kelepa thyroid i ka nui o ka hormone thyroid, e hoʻolohi ana i kāu metabolism. ʻO ka Hypothyroidism kahi kumu maʻamau o ka macroglossia, ʻoi aku hoʻi i nā keiki.
• ʻAcromegaly: He ʻano laha ʻole ia i hōʻike ʻia e ka hana nui ʻana o ka hormone ulu, e hoʻonui ai i ke alelo, ka ʻāwae, nā lima, a me nā wāwae.
• Diphtheria: He maʻi bacteria lele e hiki ai ke hoʻoulu i ka pehu nui o ke alelo.

Nā Tumors a me Macroglossia

Hiki i kekahi mau ulu ʻino a maikaʻi ʻole paha ke hōʻike ʻia e like me macroglossia:

• Lymphangioma: He ʻōpū ʻino o ka ʻōnaehana lymphatic e hiki ai ke hoʻoulu i nā cysts piha i ka wai i loko o nā membrane mucous, e alakaʻi ana i ka hoʻonui ʻana o ke alelo.
• Hemangioma: Nā ulu maikaʻi i hana ʻia e nā kīʻaha koko.
• Lymphoma: He ʻano maʻi kanesa e hoʻopilikia ai i ka ʻōnaehana lymphatic.

Pehea e ʻike ʻia ai ka macroglossia?

Ke kipa aku ʻoe a i ʻole kāu keiki i ke kauka, ʻo ka hana mua ka hoʻokolokolo kino . E nānā pono ke kauka i ke alelo, ke poʻo, a me ka ʻāʻī. Ma hope o kēia, hiki ke hana ʻia kekahi mau hoʻokolohua diagnostic e ʻike ai i ka macroglossia a me nā kūlana olakino ma lalo e hiki ke kumu.

ʻO kekahi o kēia mau hoʻokolohua diagnostics:

• ʻO ka Tomography Computed (CT scan): Hoʻohana kēia kaʻina hana i nā kukuna X a me ke kaʻina hana kamepiula e hana i nā kiʻi 3D kikoʻī o kāu a i ʻole ka waha, ke poʻo, a me ka ʻāʻī o kāu keiki, e hāʻawi ana i kahi ʻike maopopo o nā ʻano kūloko.
• ʻO ke kiʻi ʻana o ka Magnetic Resonance Imaging (MRI): He hana ʻeha ʻole kēia e hoʻohana ana i kahi magnet ikaika, nā nalu lekiō , a me ke kamepiula e hana i nā kiʻi pololei loa o nā ʻōpū o kou kino a me nā ʻano kūloko.

E hoʻoholo nā kauka i ke kumu o ka macroglossia a me ka hoʻolālā lapaʻau kūpono loa e pili ana i nā hopena o kēia mau hoʻokolohua.

He aha nā lāʻau lapaʻau e hiki ke hoʻohana ʻia no ka Macroglossia?

ʻO ka mea hoihoi, hiki i kekahi mau keiki me ka macroglossia liʻiliʻi ke ʻike i ka holomua i ko lākou ulu ʻana; i ka ulu ʻana o ko lākou mau iwi maka, he nui ka lumi no ke alelo, e like me ke kino e ulu ana e komo ana i loko o kahi lole nui.

Eia naʻe, ʻaʻole kēia ka hihia i nā manawa a pau. I ka mālama ʻana i ka macroglossia, kau mua nā kauka i ka ʻike ʻana a me ka mālama ʻana i ke kūlana kumu. Ma hope iho, e hahai ʻia ka hoʻokele ʻana i nā hōʻailona no ka macroglossia.

Hiki i nā koho lapaʻau no ka macroglossia ke komo pū me:

• Lāʻau lapaʻau: Hiki ke kau ʻia nā lāʻau lapaʻau e like me corticosteroids e hōʻemi i ka pehu ʻana o ke alelo.
• Ka mālama ʻana i nā niho ʻole:Inā hoʻopilikia ke alelo i hoʻonui ʻia i ke kaulike ʻana o nā niho, hiki i ke komo ʻana o ka orthodontic ke kōkua i ka hoʻoponopono ʻana i kēia mau pilikia.
• ʻOki kino: I kekahi mau hihia—ʻoi aku hoʻi i ka wā e loaʻa ai nā pilikia koʻikoʻi e like me ka paʻakikī o ka hanu ʻana a i ʻole ka moni ʻana—pono paha ke ʻoki kino e hōʻemi i ka nui o ke alelo. Eia nō naʻe, ma kahi o 10% wale nō o ka poʻe me ka macroglossia e pono ai ke komo ʻana i ke ʻoki kino.

Hiki iaʻu ke hōʻemi i ka pilikia o ka loaʻa ʻana o ka macroglossia i kaʻu keiki?

ʻOiai ua pili pinepine ka macroglossia me nā kūlana hānau a i ʻole nā ​​​​​​kūlana hoʻoilina, ʻaʻole hiki ke pale ʻia. Eia nō naʻe, no ka mea hiki ke hana ʻia e nā maʻi lele i kekahi manawa, hiki iā ʻoe ke hōʻemi i ka pilikia ma ka noho ʻana me nā lāʻau pale (e like me nā lāʻau pale kūʻē i ka diphtheria) e pale aku i nā maʻi e alakaʻi ai i ia mau kūlana.

He aha kaʻu e manaʻo ai inā loaʻa ka macroglossia i kaʻu keiki?

E like me kā mākou i kūkākūkā ai, ʻo ka macroglossia he hōʻailona maʻamau ia o kahi maʻi kumu, e like me kahi maʻi genetic a congenital paha. No laila, ʻo ka hana nui loa, ʻo ia ka ʻike a me ka mālama ʻana i kēlā kumu.

Ke loaʻa nei paha i kāu keiki ka mālama no ko lākou kūlana maʻi; ʻo ka pili ʻana i kēlā hoʻolālā lapaʻau kāu mea nui loa. E kūkākūkā me kāu kauka pediatric e kūkākūkā i nā mea e manaʻo ai e pili ana i ke ala o ko lākou kūlana a me ka papa hana no nā manawa hoʻopaʻa.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

He mea maʻamau ka loaʻa ʻana o nā nīnau he nui ke ʻike ʻia kāu keiki me ka macroglossia. Eia kekahi mau nīnau koʻikoʻi āu e makemake ai e nīnau i kāu kauka:

• He aha maoli ka macroglossia?
• Pehea lā e hoʻopilikia ai kēia i ke ola o kaʻu keiki i kēlā me kēia lā?
• He aha ke kumu nui o ka macroglossia o kaʻu keiki?
• He aha nā lāʻau lapaʻau āu e ʻōlelo nei, a he aha ka helu holomua?
• Pehea ka lōʻihi o ka mālama ʻana, a he aha nā hopena ʻaoʻao e pono iaʻu e makaʻala?
• Aia kekahi mau ala kikoʻī e pono ai iaʻu ke mālama i kaʻu keiki ma ka home (e like me nā ʻano hānai a i ʻole ke kau ʻana i ka hiamoe)?

Mai kānalua e nīnau i kēia mau nīnau. He mea nui ka hoʻomaopopo ʻana i kou mau hopohopo no ka hāʻawi ʻana i ka mālama maikaʻi loa. E hauʻoli kāu kauka e wehewehe i kēia mau kikoʻī iā ʻoe.

Nā Manaʻo Koʻikoʻi (Nirogi Lanka)

Hiki ke hoʻoluhi ka loaʻa ʻana o kahi hōʻailona macroglossia, akā he hōʻailona wale nō ia o kahi maʻi kumu. ʻO ka mea nui loa, ʻo ia ke noho mālie a ʻimi koke i ke alakaʻi lapaʻau loea.

• Inā ʻike ʻoe he nui loa ke alelo o kāu keiki a i ʻole inā ʻike ʻoe i nā hōʻailona a mākou i kūkākūkā ai, e ʻoluʻolu e nīnau aku i kahi Kauka Pediatrician a i ʻole ke kauka pepeiao, ihu, a me ka puʻu (ENT).
• Ma ka ʻike ʻana i ke kumu kumu a me ka hahai ʻana i kahi hoʻolālā lapaʻau i kuhikuhi ʻia, hiki ke mālama pono ʻia ʻo Macroglossia.
• I kekahi mau keiki, hiki ke hoʻomaikaʻi maoli kēia ʻano i ko lākou ulu ʻana.
• He mea nui ka hahai pono ʻana i nā ʻōlelo aʻo a kāu kauka me ka hāʻawi ʻana i ke aloha a me ke kākoʻo mau i kāu keiki.

E hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi. Nui nā mākua ʻē aʻe e kū nei i nā pilikia like. Me ke alakaʻi lapaʻau kūpono a me kou hoʻolaʻa ʻana, hiki iā ʻoe ke hōʻoia i nā hopena maikaʻi loa no kāu keiki.

Nā huaʻōlelo: Macroglossia, Alelo i hoʻonui ʻia, Ola kino o ke alelo o nā keiki, Nā pilikia hanu, Nā pilikia hānai, Beckwith-Wiedemann syndrome, Down syndrome, Nirogi Lanka, Nā maʻi alelo