He ʻokoʻa iki anei ka pepeiao o kāu pēpē? E kamaʻilio kākou e pili ana i kēia (Microtia)!

Ke nānā ʻoe i kāu pēpē hānau hou, ua ʻike anei ʻoe he ʻano liʻiliʻi a ʻokoʻa paha ke ʻano o kekahi a i ʻole nā ​​pepeiao ʻelua? He mea maʻamau no ka makuahine a makua paha ke makaʻu iki a hopohopo ke ʻike lākou i kahi mea e like me ia. Akā, mai hopohopo. I kēia lā, e kamaʻilio ana mākou e pili ana i kēia ʻano maʻi, i ʻike ʻia ma ke ʻano lapaʻau ʻo (Microtia).

He aha ka (Microtia)? E hoʻomaopopo maʻalahi kākou, ʻeā?

I ka ʻōlelo maʻalahi, ʻo (Microtia) kahi kūlana e kū mai ana i ka wā e ulu pono ʻole ai ka ʻaoʻao waho o ko kākou pepeiao, ʻo ia hoʻi, ka ʻāpana a kākou e kapa nei he earlobe, i ka wā hānau. ʻO "Micro" ke ʻano he "liʻiliʻi" a ʻo "otia" ke ʻano he "pepeiao". No laila, he ʻano ʻē kēia (Congenital). ʻO ka mea e hana ʻia ana ma kēia, ʻoi aku ka liʻiliʻi o ka pepeiao ma mua o ka maʻamau, a i kekahi manawa hiki ke nalowale loa ka earlobe.

E noʻonoʻo, he mau pepeiao liʻiliʻi iki paha ko kekahi mau pēpē, akā ua maopopo nā ʻāpana āpau o ka pepeiao. Hiki i kekahi mau pēpē ke loaʻa kahi hapa wale nō o ka lobe pepeiao i hana ʻia. I kekahi mau hihia koʻikoʻi, ʻaʻohe loa paha ka pepeiao waho. Me kēia kūlana, inā nalowale ka lua e alakaʻi ana i ka pepeiao, a i ʻole ke kahawai pepeiao, hiki nō hoʻi ke hoʻopilikia i ka lohe. Hiki nō hoʻi ke paʻakikī ke kuhikuhi i kahi e puka mai ai ke kani.

Hoʻopilikia pinepine ʻo Microtia i hoʻokahi pepeiao wale nō, akā hiki nō hoʻi ke hoʻopilikia i nā pepeiao ʻelua. Hana pinepine ia i ka wā ʻaʻole i ulu pono ka pepeiao i ka trimester mua o ka hāpai ʻana.

Aia kekahi mau pae like ʻole o Microtia?

ʻAe, hoʻohana nā kauka i kahi ʻōnaehana kūikawā e hoʻokaʻawale i ke kūlana (Microtia). Hoʻokaʻawale ia i ke kūlana i kekahi mau ʻano ma muli o ke koʻikoʻi. E nānā kākou i ke ʻano o lākou:

• ʻAno 1: I kēia hihia, ʻoi aku ka liʻiliʻi o ka pepeiao waho ma mua o ka maʻamau. Eia nō naʻe, aia nā ʻāpana āpau o ka pepeiao, akā me nā kīnā liʻiliʻi.
• ʻAno 2: Maanei, ua hana ʻia kahi hapa wale nō o ka pepeiao waho, a he liʻiliʻi ka pepeiao.
• ʻAno 3: ʻO kēia ke ʻano maʻamau, ʻoiai he mau ʻano e pili ana i ka pepeiao, akā ʻaʻohe ʻāpana e hiki ke ʻike maopopo ʻia he pepeiao.
• ʻAno 4: ʻO kēia ka hihia koʻikoʻi loa. Maanei ʻaʻole i hoʻokumu piha ʻia ka pepeiao waho. Ua kapa ʻia hoʻi kēia he (Anotia).

Mai kēia hoʻokaʻawale ʻana, maopopo iā mākou ʻaʻole he kūlana hoʻokahi ʻo (Microtia), akā he mau pae like ʻole.

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Pehea ka maʻamau o kēia ʻano (Microtia)?

Wahi a nā helu helu mai nā ʻāina e like me ʻAmelika, ma waena o 1 a me 5 o 10,000 mau pēpē hānau hou i hoʻopilikia ʻia e ke ʻano "Microtia". Ua ʻike ʻia he ʻoi aku ka maʻamau o kēia ʻano ma waena o nā keikikāne a ʻoi aku ka hopena o ka pepeiao ʻākau ma mua o ka hema. Aia kekahi mau keiki me kēia ʻano ma Sri Lanka, no laila he mea nui loa ia e makaʻala i kēia.

He aha nā hōʻailona o ka (Microtia)?

ʻO ka hōʻailona nui ka ʻike ʻia ʻana o ka pepeiao waho. ʻO ia hoʻi:

• Loaʻa kahi pepeiao waho i ʻokoʻa ke ʻano maʻamau.
• ʻO ka nalowale loa paha o ka pepeiao waho ((Anotia)).
• ʻUmi nā pepeiao ma mua o ka maʻamau .

ʻO kēia nā hiʻohiʻona nui e ʻike ʻia.

Hiki i kekahi me (Microtia) ke lohe?

He pilikia kēia i loaʻa i nā mākua he nui. Hiki i ke keiki me ka microtia ke loaʻa i kekahi kekelē o ka nalowale o ka lohe ma ka pepeiao i hoʻopilikia ʻia. He ʻoiaʻiʻo loa kēia inā he mau pilikia ulu ma ka pepeiao waena a i ʻole ke kahawai pepeiao.

Akā e hoʻomanaʻo i kēia: ʻOiai inā ua pani loa ʻia ke kahawai pepeiao, hiki nō i kekahi o nā ʻano pepeiao palupalu o loko ke hopu i ke kani.

No laila, hiki i ke ʻoki ʻana e wehe i ke kahawai pepeiao ke hoʻomaikaʻi i ka lohe i kekahi manawa. Aia kekahi mau mea hana kūikawā ("(Hearing Devices)") e hiki ke kōkua iā ʻoe e lohe ʻoiai inā ua ālai ʻia ke kahawai pepeiao.

ʻO ka mea nui loa, ʻo ia ka hoʻāʻo ʻana i ka lohe o kāu pēpē i ka wā e ʻike ai ʻoe he "Microtia" kona. ʻOiai kahi pohō lohe liʻiliʻi hiki ke hoʻopilikia i ka hiki o ke keiki ke aʻo e ʻōlelo. No laila he mea nui e nānā koke i kēia.

No ke aha i hana ʻia ai kēia (Microtia)? He aha ke kumu?

I ka hapa nui o ka manawa, he paʻakikī i nā kauka ke kuhikuhi pololei i ke kumu o ka "Microtia." E like me ka mea i ʻōlelo ʻia ma mua, ʻo kēia ma muli o kekahi loli i ka ulu ʻana o ka pepeiao i ka wā o ka trimester mua o ka hāpai ʻana.

I kekahi mau hihia, hiki i ka (Microtia) ke lilo i ʻāpana o kahi maʻi nui aʻe. Eia kekahi laʻana, aia kekahi kūlana i kapa ʻia ʻo (Hemifacial Microsomia). I kēia hihia, ua paʻa ka ulu ʻana o kekahi ʻaoʻao o ka maka o ka pēpē ma mua o ka hānau ʻana. Hiki ke ʻike ʻia ʻo (Microtia) i ia ʻano kūlana.

Hiki ke loaʻa kekahi mau hihia ʻē aʻe o (Microtia) ma muli o nā kumu hoʻoilina , ʻo ia hoʻi, aia kekahi o ka ʻohana i loaʻa iā ia a hiki ke hoʻoili ʻia i nā hanauna.

He mea hoʻoilina anei ʻo (Microtia)?

I kekahi manawa, ʻae. Hiki i ka Microtia ke hoʻoilina. ʻO ia hoʻi, hiki ke hoʻoili ʻia ke ʻano mai nā mākua a i nā keiki. Eia nō naʻe, i ka hapanui o nā hihia, he ʻano sporadic ka Microtia . ʻO ia hoʻi, hiki i kahi pēpē ke loaʻa iā ia ʻoiai inā ʻaʻohe mea ʻē aʻe o ka ʻohana i loaʻa iā ia. No laila, mai hopohopo no ka mea ʻaʻohe mea o kou ʻohana i loaʻa iā ia.

Pehea e ʻike ai nā kauka iā Microtia?

Hoʻomaopopo pinepine nā kauka iā Microtia i ka wā hānau no ka mea ua ʻike maopopo ʻia ka pepeiao waho. I kekahi manawa, hiki i ke kauka ke kauoha i kahi hoʻokolohua kūikawā, e like me ka CT scan, e ʻike pono inā he mau loli i nā ʻāpana waena a me loko o ka pepeiao o ka pēpē. Hiki i kēia ke kōkua i ka hoʻolālā ʻana i ka lāʻau.

Pehea e mālama ʻia ai ʻo Microtia?

ʻO ka mea nui ma ʻaneʻi, ʻaʻole pono e mālama ʻia ka loli o ke ʻano o waho o ka pepeiao ma muli o (Microtia). Eia naʻe, inā he hemahema o ka lohe, pono e mālama ʻia . He mea nui loa ka nānā ʻana i ka lohe i ka wā ʻōpiopio a, inā pono, e hoʻomau i ka nānā ʻana iā ia. No ka mea, inā ʻaʻole mālama ʻia ka hemahema o ka lohe, hiki iā ia ke hoʻopilikia i ka ʻōlelo a me ka ulu ʻana o ke keiki.

Inā hoʻoholo ʻoe e mālama i kou maʻi (Microtia), aia ʻelua mau koho nui:

1. Nā pale pepeiao

2. ʻO ke ʻoki kino Microtia (a i ʻole ke kūkulu hou ʻana o ke ʻoki kino)

E aʻo iki kākou e pili ana i nā pepeiao hana ((Ear Prosthetics))

Hana ʻia kēia mau mea me ka silicone. Hiki ke hoʻopili ʻia kēia mau pepeiao hana me ka hoʻohana ʻana i kahi mea hoʻopili kūikawā e pipili ana i ka ʻili a i ʻole nā ​​​​magnets. Eia nō naʻe, pono e mālama ʻia kēia mau pepeiao hana i ka hala ʻana o ka manawa. ʻAʻole paha kēia ke koho maikaʻi loa no kekahi mau keiki.

He aha ke ʻano o ke ʻoki kino (Microtia) ((Surgical Reconstruction))?

ʻO kēia ke ʻoki hou ʻana i ka pepeiao i hoʻopilikia ʻia ma ke ʻoki kino . ʻŌlelo pinepine nā kauka e hoʻomaka ke keiki i kēia ʻoki kino ma waena o nā makahiki 6 a me 9, no ka mea, i kēlā makahiki, ua hiki ke kino o ke keiki i kahi pae o ka ulu ʻana. Ma muli o ke ʻano hana ʻoki kino i hoʻohana ʻia, hiki ke hana ʻia kēia hana hou pepeiao i kekahi mau pae.

Ma kēia kaʻina hana, hana ke kauka lapaʻau i pepeiao hou me ka hoʻohana ʻana i ke cartilage (kahi ʻāpana palupalu e like me ka iwi o ko mākou kino) i lawe ʻia mai ka iwi ʻaoʻao ponoʻī o ke keiki , a i ʻole me ka hoʻohana ʻana i nā mea synthetic . I kekahi manawa hiki ke hoʻohana ʻia kahi implant pepeiao e hana hou i ka pepeiao. ʻO kēlā me kēia ʻano, hana ke kauka lapaʻau i kahi ʻōnaehana no ka pepeiao, a laila uhi ʻia me ka ʻiʻo ponoʻī o ke keiki. He ʻoki paʻakikī kēia, akā hiki ke maikaʻi loa nā hopena.

Āhea e hiki ai i kaʻu keiki ke hoʻi i nā hana maʻamau?

Ua kaupalena ʻia ke keiki me (Microtia) i kā lākou mau hana o kēlā me kēia lā i ka wā o ke ʻoki kino. ʻO ka manawa hoʻōla ma hope o ke ʻoki kino (Microtia) e pili ana i ke ʻano o ka lāʻau i hana ʻia. E haʻi pololei kāu kauka iā ʻoe i ka manawa e hiki ai i kāu keiki ke pāʻani maʻamau hou a hele i ke kula.

Hiki i nā kānaka me (Microtia) ke hoʻomohala i nā pilikia olakino ʻē aʻe?

ʻO ka nalowale o ka lohe ka pilikia maʻamau e pili ana me ka microtia. Eia kekahi, hiki i kekahi mau keiki me ka microtia ke loaʻa i nā pilikia hilinaʻi iā lākou iho a me ka hilahila ma muli o ke ʻano o ko lākou mau pepeiao. Hiki i nā hui kākoʻo ke kōkua iā lākou e manaʻo ʻaʻole lākou hoʻokahi.Hiki i ka launa pū ʻana me nā poʻe ʻē aʻe ke lilo i kumu ikaika nui. Ma ke ʻano he mau mākua, pono ʻoe e makaʻala i kēia.

Aia kekahi ala e pale aku ai i ka (Microtia)?

ʻAʻohe ala kikoʻī e pale aku ai i ka (Microtia). Eia nō naʻe, ua ʻōlelo ʻia kekahi mau mea, e like me ka pale ʻana i kekahi mau lāʻau lapaʻau i ka wā hāpai, hiki ke hōʻemi i ka pilikia i kekahi ʻano. Ke hana ʻia nei ka noiʻi ʻana ma kēia. No laila, inā hāpai ʻoe a ke hoʻolālā nei paha e hāpai, e nīnau i kāu kauka e pili ana i nā ala e hōʻemi ai i ka pilikia o ka loaʻa ʻana o kahi pēpē me (Microtia).

He aha ka wā e hiki mai ana o kahi keiki me (Microtia)?

He pilikia nui nō hoʻi kēia no nā mākua he nui. ʻO ka hapa nui o nā keiki me (Microtia) e ulu maʻamau i nā ʻano ʻē aʻe a alakaʻi i nā ola olakino a ikaika . No nā mea he nui, inā he nalowale ka lohe e pili ana me (Microtia), hiki i ka mālama kūpono ke pale i nā pilikia lōʻihi me ka ʻōlelo a i ʻole ka ulu ʻana o ka ʻōlelo. No laila, ʻaʻohe mea e hopohopo ai.

Hiki ke "ho'ōla loa ʻia" ʻo Microtia?

Hiki i ke komo ʻana o ke ʻoki kino ke hoʻoponopono a hoʻomaikaʻi paha i nā loli kūkulu i loko o ka pepeiao, ʻo ia hoʻi ke ʻano. Inā he nalowale ka lohe ma muli o kahi kahawai pepeiao i hana pono ʻole ʻia, hiki i ke ʻoki kino ke kōkua i ka hoʻomaikaʻi ʻana i kēlā i kekahi ʻano.

Āhea wau e ʻike ai i kaʻu kauka?

Inā hāpai ʻoe a i ʻole e hoʻolālā ana e hāpai, e kamaʻilio me kāu kauka e pili ana i ke ʻano o ka mālama ʻana i kou olakino. ʻO ka makuahine i loaʻa kahi pēpē me ka microtia ma mua, he liʻiliʻi loa ka pilikia o ka loaʻa ʻana o kahi pēpē ʻē aʻe me ke ʻano. No laila he manaʻo maikaʻi e kamaʻilio pū me kāu kauka e pili ana i kēia.

He aha nā nīnau e pono iaʻu e nīnau aku i ke kauka o kaʻu keiki?

Inā loaʻa i kāu keiki ka microtia, hiki iā ʻoe ke nīnau i ke kauka i nā nīnau penei:

• Pehea ke koʻikoʻi o kēia maʻi? (No wai ke ʻano o kēia maʻi?)
• He aha nā hōʻailona o nā pilikia e pono iaʻu e makaʻala?
• He aha ka lāʻau lapaʻau maikaʻi loa no kaʻu keiki?
• ʻO wai kaʻu e ʻike ai e nānā i ka lohe o kaʻu keiki ?

E nīnau i kēia mau nīnau a e hoʻopau i kou mau kānalua a pau.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

He maʻi hānau ʻia ʻo Microtia e hoʻololi ai i ke ʻano o ka pepeiao waho. Hoʻomaopopo pinepine ʻia i ka wā hānau. Aia nā koho lapaʻau i ke ʻano a me ke koʻikoʻi o ke ʻano. He mea nui e mālama i nā pilikia lohe i ka wā mua. Inā loaʻa i kāu keiki ka nalowale o ka lohe ma muli o ka microtia, aia nā ala a me nā kumuwaiwai e kōkua ai.

E hoʻomanaʻo, he nui nā keiki me (Microtia) e ola hauʻoli ana, olakino, a piha hoʻi. No laila, e kiʻi i nā ʻōlelo aʻoaʻo lapaʻau a me ke kākoʻo e pono ai, a e kū pono i kēia kūlana. ʻAʻole ʻoe hoʻokahi!

ʻO Microtia, nā kīnā pepeiao, nā maʻi pepeiao hānau, nā pilikia pepeiao i nā keiki, nā hemahema lohe, ke ʻoki pepeiao, nā kīnā hānau