Loaʻa iā ʻoe kekahi maʻi i kapa ʻia ʻo Multiple Sclerosis ( MS )? Inā pēlā, ua kuhikuhi paha kāu kauka iā ʻoe i kahi lāʻau i kapa ʻia ʻo Monomethyl Fumarate. He mea maʻamau ka loaʻa ʻana o kekahi mau nīnau i ka wā e hoʻomaka ai i kahi lāʻau hou. No laila i kēia lā, e kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau ma ke ʻano maʻalahi a maʻalahi hoʻi e hoʻomaopopo. E nānā kākou i ke kumu o ia mea, pehea e hoʻohana ai, a me nā hana palekana āu e pono ai e lawe.
I ka ʻōlelo maʻalahi, he aha ke ʻano o kēia lāʻau lapaʻau?
He lāʻau lapaʻau kēia i hoʻohana ʻia e mālama i kahi maʻi i kapa ʻia ʻo Multiple Sclerosis (MS). I kēia manawa ke noʻonoʻo nei paha ʻoe i ka mea e hana nei ma MS a pehea e hiki ai i kēia lāʻau lapaʻau ke kōkua.
E noʻonoʻo iā ia e like me kahi pūʻali koa e pale ana i ko mākou ʻāina, aia pū kekahi ʻōnaehana o ko mākou kino e pale iā mākou mai nā maʻi . Kāhea mākou iā ia he ʻōnaehana pale . Akā i nā maʻi e like me MS, ʻo ka mea e hana ʻia, ʻo kā mākou ʻōnaehana pale ponoʻī, ʻo ia hoʻi, ka ʻōnaehana pale, e huikau iki a hoʻomaka e hoʻouka i ka ʻōnaehana nerve o ko mākou kino ponoʻī. Ua like ia me ko mākou pūʻali koa ponoʻī e hoʻouka ana i ko mākou ʻāina ponoʻī.
No laila, ʻo ka hana a kēia lāʻau Monomethyl Fumarate, ʻo ia ke hoʻomālielie i ka ʻōnaehana pale, ka mea hana nui a hōʻino i ko mākou kino ponoʻī. Kōkua kēia i ka kaohi ʻana i ka ʻino o nā hōʻailona a hoʻemi i ka nui o nā flare-up.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Pono kāu kauka e ʻike i kou mōʻaukala olakino piha ma mua o ke kau ʻana i kēia lāʻau lapaʻau. No laila, inā loaʻa iā ʻoe kekahi o nā kūlana i helu ʻia ma lalo nei, e hōʻoia e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau.
- ʻO nā maʻi lele āu i loaʻa i kēia manawa (e like me ke kuni, ke kuni, ke anu )
- Inā loaʻa iā ʻoe kekahi maʻi akepaʻa
- Inā ua ʻike mua ʻia ʻoe me ka helu haʻahaʻa o nā cell koko keʻokeʻo
- Inā ua loaʻa iā ʻoe kahi hopena maʻi i kēia lāʻau lapaʻau, Monomethyl Fumarate, a i ʻole nā lāʻau lapaʻau like e like me Dimethyl Fumarate, Diroximel Fumarate
- Inā he maʻi ʻoe i kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, kala, a mea hoʻomalu paha
- Inā hāpai ʻoe a i ʻole e hoʻolālā ana e hāpai i ka wā e hiki mai ana
- Inā he makuahine hānai ʻoe
He mea nui loa ka kaʻana like ʻana i kēia ʻike me kāu kauka no kou palekana, no laila mai hūnā i kekahi mea.
Pehea pololei ʻoe e hoʻohana ai i kēia lāʻau lapaʻau?
I mea e loaʻa ai ka pono nui mai kahi lāʻau lapaʻau, pono ʻoe e hoʻohana pono. E hoʻomanaʻo i kēia mau manaʻo.
- He capsule waha kēia. E lawe me ke aniani wai.
- E ho'āʻo e lawe iā ia i ka manawa like i kēlā me kēia lā , e like me ka ʻōlelo a kāu kauka iā ʻoe. E kōkua kēia i ka mālama ʻana i ka lāʻau lapaʻau ma ka pae like i loko o kou kino.
- ʻO kēia ka mea nui loa: mai uhaʻi, kuʻi, a nau paha i ke capsule. E ale holoʻokoʻa.
- Hiki iā ʻoe ke lawe ma mua a ma hope paha o ka ʻai ʻana. Eia nō naʻe, hiki i kekahi poʻe ke ʻeha iki ka ʻōpū a i ʻole ka luaʻi ma hope o ka lawe ʻana i kēia. Inā hana ia iā ʻoe, ʻoi aku ka maikaʻi o ka lawe ʻana me ka ʻai .
- E hoʻomau i ka lawe ʻana a hiki i ka wā e ʻōlelo ai kāu kauka e hoʻōki. Mai hoʻōki i ka lawe ʻana i ka lāʻau lapaʻau iā ʻoe iho, ʻoiai inā ua maikaʻi kou manaʻo.
He aha kāu e hana ai inā lawe nui ʻoe i ka lāʻau lapaʻau?
Inā manaʻo ʻoe ua lawe hewa ʻoe ma mua o ka nui i kuhikuhi ʻia o kēia lāʻau lapaʻau, mai hoʻokaʻulua. E kelepona koke i ke Kikowaena ʻIke Poisons Lahui ma ka Halemai Lahui ʻo Colombo a i ʻole e hele i ka ʻOihana Pilikia (ETU) o ka haukapila kokoke loa.
He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?
Poina i nā mea a pau. Inā poina iā ʻoe ke lawe i kahi lāʻau, e lawe koke i ka wā e hoʻomanaʻo ai ʻoe. Akā inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i hala ʻole a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe pālua i ka lāʻau.
Aia kekahi mau mea ʻē aʻe i kūlike ʻole me kēia lāʻau lapaʻau?
ʻAe, aia. Hiki i kekahi mau lāʻau lapaʻau ke launa pū me Monomethyl Fumarate. ʻOi aku hoʻi, inā ʻoe e lawe ana iā Dimethyl fumarate a i ʻole Diroximel fumarate , mai lawe i kēia lāʻau lapaʻau.
Eia kekahi, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei (me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui ). He mea nui hoʻi e haʻi i kāu kauka inā ʻoe e puhipaka a inu waiʻona paha.
Nā mea e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
He mea maikaʻi ke nānā pono i kou olakino i ka wā e lawe ana i kēia lāʻau.
- Nā hoʻokolohua lapaʻau maʻamau: E hōʻoia e hele i nā manawa o kāu kauka. E haʻi iā ia inā he mau loli i kāu mau hōʻailona.
- Nā hoʻāʻo koko:ʻOiai e lawe ana i kēia lāʻau lapaʻau, e kauoha ana kāu kauka i kekahi mau hoʻāʻo koko e nānā i kāu helu koko keʻokeʻo a me ka hana o ke akepaʻa. He mea nui no kou palekana e hana i kēia i ka manawa kūpono.
- Ka pilikia o ka maʻi: E like me kā mākou i ʻōlelo ai ma mua, hiki i kēia lāʻau lapaʻau ke hōʻemi iki i ka hana o ka ʻōnaehana pale, no laila ʻoi aku ka nui o kou loaʻa ʻana i nā maʻi. No laila, inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni, ke anu, ka ʻāʻī ʻeha, ke kuni, a i ʻole kahi ʻeha i hoʻōla koke ʻole ʻia, e haʻi koke i kāu kauka. Mai hele wale no ka lāʻau lapaʻau. Eia kekahi, he manaʻo maikaʻi e pale i nā wahi piha kanaka a me nā wahi e noho ai ka poʻe maʻi.
- ʻO ka Leukoencephalopathy Multifocal Progressive (PML): He kūlana kakaikahi loa kēia akā he koʻikoʻi. Hiki i kēia lāʻau lapaʻau ke hoʻoulu i kahi maʻi lolo (Progressive Multifocal Leukoencephalopathy - PML) i kekahi poʻe. Inā ʻike ʻoe i kekahi mau loli i kou ʻike, noʻonoʻo, ʻōlelo, hele wāwae a kaulike paha, paʻakikī, a huikau paha, e haʻi koke i kāu kauka. Inā ʻaʻole hiki iā ʻoe ke hoʻokaʻaʻike aku iā ia, e ʻimi koke i ke kōkua lapaʻau.
He aha nā hopena ʻaoʻao e hiki mai ana?
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke hana i nā hopena ʻaoʻao i kekahi poʻe. Akā, ʻaʻole kēia e hana i nā mea āpau. E hoʻokaʻawale kākou iā lākou i ʻelua mau ʻano.
| Nā hopena ʻaoʻao koʻikoʻi e pono e hōʻike koke ʻia i ke kauka | |
|---|---|
| Ka hopena ʻaoʻao | Nā ʻano |
| Nā maʻi ʻaleka a i ʻole Angioedema | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā maka, nā lehelehe, ke alelo, nā lima a i ʻole nā wāwae, paʻakikī ke ale a i ʻole ka hanu ʻana. |
| Ka pōʻino o ke akepaʻa | ʻEha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nalowale ka makemake e ʻai, nausea, nā ʻōpala māmā, mimi melemele ʻeleʻele a ʻeleʻele paha, melemele o ka ʻili a i ʻole nā maka, luhi ʻē. |
| Ke kahe ʻana o ke koko o ka ʻōpū | ʻEleʻele a ʻeleʻele paha nā ʻōpala, ka luaʻi ʻana i ke koko, a i ʻole kahi mea ʻeleʻele e like me ke kofe. |
| ʻEha nui o ka ʻōpū | ʻEha nui o ka ʻōpū e mau ana a i ʻole e ʻoi aku ka ʻino. |
| Nā hōʻailona o ka maʻi | Kuni, anu, ʻū, ʻeha ka puʻu, nā ʻeha ʻaʻole e ho'ōla ʻia, ʻeha a paʻakikī paha ka mimi ʻana, a me ka maʻi laulā. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
|---|---|
| ʻEha ʻōpū | ʻŌpū pehu, ʻeha ʻōpū |
| Ka maʻi ʻōpū (ʻeha ʻōpū) | Noho wai |
| Ka luaʻi a me ka luaʻi | Ka luaʻi a me ka luaʻi |
| Ka holoi ʻana | ʻUlaʻula a me ka manaʻo wela ma ka maka, ka ʻāʻī, a i ʻole ka umauma. ʻO ka maʻamau, hiki mai kēia ma hope koke iho o ka lawe ʻana i ka lāʻau lapaʻau a nalowale i loko o kekahi mau hola. |
Pehea e mālama pono ai i ka lāʻau lapaʻau?
No ka mālama ʻana i ka maikaʻi o nā lāʻau lapaʻau, he mea nui hoʻi e mālama pono iā lākou.
- E mālama i kahi hiki ʻole i nā keiki a me nā holoholona ke kiʻi aku.
- ʻO nā ʻōmole i wehe ʻole ʻia, i sila ʻia: E mālama i kēia mau mea i loko o ka friji . Akā, mai mālama iā lākou i loko o ka pahu hau .
- Nā ʻōmole i hoʻomaka e hoʻohana ʻia:E mālama i kēia mau mea ma ka mahana o ka lumi maʻamau (ma waena o 20°C - 25°C). E mālama ʻia mai ka lā pololei a me ka makū, a e mālama i ka lāʻau lapaʻau i loko o ka ʻōmole kumu i hoʻokomo ʻia ai.
- E hoʻolei aku i kekahi lāʻau lapaʻau i koe ma hope o 3 mahina o ka hoʻohana ʻana. Eia kekahi, mai hoʻohana i ka lāʻau lapaʻau i hala kona lā palena pau.
Leka Lawe-Home
- He lāʻau koʻikoʻi ka Monomethyl Fumarate i hoʻohana ʻia no ka mālama ʻana i ka Multiple Sclerosis (MS).
- E lawe mau i kēia lāʻau lapaʻau e like me ke kauoha a kāu kauka, i ka manawa kūpono.
- E ale holoʻokoʻa i ke capsule me ka ʻole o ka haki ʻana, ka wili ʻana, a me ka nau ʻana.
- E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- E ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe nā hopena ʻino e like me ke kuni, nā hōʻailona o ka maʻi, a i ʻole nā loli i ka ʻike a i ʻole ka ʻōlelo.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me kekahi.
- Inā he mau hopohopo hou aʻe kāu e pili ana i kēia lāʻau lapaʻau, e kamaʻilio ākea me kāu kauka e pili ana.
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