Loaʻa iā ʻoe ka Multiple Sclerosis (MS)? Inā pēlā, ua kuhikuhi paha kāu kauka iā ʻoe i kahi lāʻau i kapa ʻia ʻo Monomethyl Fumarate. Hoʻohana ʻia kēia e kāohi i nā relapses. ʻOiai he lāʻau lapaʻau kēia me kahi inoa paʻakikī, e kamaʻilio kākou e pili ana i ia mea ma ke ʻano maʻalahi a aloha i kēia lā a e hoʻomaopopo i nā mea āpau.
He aha ka mea e hana maoli me kēia lāʻau lapaʻau?
I ka ʻōlelo maʻalahi, hoʻohana ʻia kēia lāʻau lapaʻau i kapa ʻia ʻo Monomethyl Fumarate i ka sclerosis maha (MS), ʻoi aku hoʻi i ka poʻe me ka maʻi relapsing-remitting. ʻAʻole ia e ho'ōla loa i kāu maʻi. Eia naʻe, e kōkua ia i ka hōʻemi ʻana i ke alapine o ka flare-ups a mālama i ka maʻi ma lalo o ke kaohi. ʻO ia hoʻi, hiki iā ʻoe ke ola i kahi ola maʻamau. Hiki i nā kauka ke hoʻohana iā ia no nā mea ʻē aʻe, no laila inā he mau nīnau kāu, e nīnau i kāu kauka.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ka hāʻawi ʻana iā ʻoe i kēia lāʻau lapaʻau, pono kāu kauka e ʻike i kou mōʻaukala olakino piha. No laila, inā loaʻa iā ʻoe kekahi o kēia mau kūlana, e hōʻoia e haʻi i kāu kauka e pili ana iā lākou.
- Inā he nāwaliwali kou i loko o kou ʻōnaehana pale maʻi .
- Inā loaʻa iā ʻoe kahi maʻi i kēia manawa (e like me ke kuni a i ʻole ke anu).
- Inā he maʻi kou i ke akepaʻa .
- Inā ua ʻike ʻia nā hoʻokolohua ma mua he haʻahaʻa kou mau keʻokeʻo koko .
- Inā ua loaʻa iā ʻoe kahi hopena maʻi ʻaleka i kēia lāʻau lapaʻau a i ʻole nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, a i ʻole nā wai hoʻoluʻu e like me 'dimethyl fumarate', 'diroximel fumarate'.
- Inā hāpai ʻoe a i ʻole e hoʻolālā ana e loaʻa kahi pēpē .
- Inā he makuahine hānai waiū ʻoe.
Ma ka hāʻawi pololei ʻana i kēia ʻike, hiki i ke kauka ke hāʻawi iā ʻoe i ka lāʻau kūpono a palekana loa.
Pono e hoʻohana ʻia ka lāʻau lapaʻau ma ke ʻano kūpono.
I mea e hana pono ai ka lāʻau lapaʻau, he mea nui loa ia e hoʻohana pono.
- Loaʻa kēia lāʻau lapaʻau ma ke ʻano he capsule. E ale holoʻokoʻa i ka capsule me ke aniani wai.
- ʻO ka mea nui loa: Mai uhaʻi, kuʻi, a nau paha i ke capsule. ʻO ka hana ʻana pēlā e hoʻololi paha i ke ʻano o ka hana a ka lāʻau.
- Hiki iā ʻoe ke lawe i kēia me ka meaʻai a me ka ʻole. Eia nō naʻe, inā ʻeha kou ʻōpū, ʻoi aku ka maikaʻi o ka lawe ʻana i ka lāʻau lapaʻau me kekahi meaʻai.
- E lawe i kāu lāʻau lapaʻau i nā manawa i kuhikuhi ʻia e like me ke kauoha a kāu kauka. Mai lawe ʻoi aku ma mua o ka nui i kuhikuhi ʻia.
- Mai ho'ōki koke i ka lawe ʻana i ka lāʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
He aha inā lawe hewa wau i ka nui o ka lāʻau lapaʻau?
Inā hana ʻia kēia, mai hopohopo. Akā e hana koke. Inā hiki, e kelepona i ke Kikowaena ʻIke Lāʻau Lapaʻau Lahui ma ka Halemai Lahui ʻo Colombo , a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?
ʻAʻole pilikia, hiki ke hana ʻia. E lawe i ka lāʻau i poina i ka wā e hoʻomanaʻo ai ʻoe. Akā inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i poina a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua lāʻau i ka manawa hoʻokahi no kekahi kumu.
Nā mea e hoʻomanaʻo ai i ka wā e lawe ai i ka lāʻau lapaʻau
Pono ʻoe e makaʻala iki aku i kou kino i ka wā e lawe ai i kēia lāʻau.
- Nā hoʻokolohua lapaʻau maʻamau: E hele i kāu kauka i nā manawa maʻamau a e hoʻokolohua iā ʻoe iho. Hiki iā ia ke kauoha i ka hana koko e nānā i kou pae koko.
- Ka Holo ʻAna: Hiki i kēia lāʻau lapaʻau ke hoʻoulu i kekahi poʻe e ʻike i ka ʻulaʻula, hiki ke hoʻoʻulaʻula i ko lākou helehelena a me ke kino a wela. Nalo pinepine kēia ma hope o kekahi manawa. Eia nō naʻe, inā hoʻopilikia ia iā ʻoe a ʻaʻole paha e nalo, e haʻi i kāu kauka. Makemake paha ʻoe e nīnau i kāu kauka inā hiki iā ʻoe ke lawe i ka aspirin ma mua o ka lawe ʻana i ka lāʻau lapaʻau ma ke ʻano he hopena. Mai hoʻoholo wale.
- Ka pilikia o ka maʻi: Hiki i kēia lāʻau lapaʻau ke hoʻonāwaliwali iki i kou ʻōnaehana pale, no laila ʻoi aku kou pilikia o ka loaʻa ʻana o nā maʻi. Inā ʻike ʻoe i nā hōʻailona e like me ke kuni, ke anu, ka ʻeha o ke kino, a i ʻole ka ʻeha o ka puʻu, mai hoʻōla ponoʻī a haʻi i kāu kauka. E ho'āʻo e noho mamao aku mai ka poʻe maʻi.
- ʻO ka maʻi lolo koʻikoʻi loa: He mea kakaikahi kēia akā he mea nui e ʻike. Hiki i kēia lāʻau lapaʻau ke hana i kahi maʻi lolo koʻikoʻi loa (Progressive Multifocal Leukoencephalopathy - PML) i kekahi poʻe. No laila, inā ʻike ʻoe i kekahi o kēia mau hōʻailona, e haʻi koke i kāu kauka. Inā ʻaʻole hiki iā ʻoe ke hoʻokaʻaʻike aku iā ia, e ʻimi koke i ke aʻo lapaʻau a i ʻole e hele i ka lumi pilikia.
- Nā loli o ka ʻike
- Ka paʻakikī o ka noʻonoʻo ʻana, ka dementia
- Ka paʻakikī e hele a kū paha
- Ka nāwaliwali ma kekahi ʻaoʻao o ke kino
- Ka nalowale o ke kaulike
- Ka nalowale o ka hoʻomanaʻo a i ʻole nā loli o ke ʻano
Nā hopena ʻaoʻao hiki
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa kekahi mau hopena ʻaoʻao. E hoʻokaʻawale kākou iā lākou i ʻelua mau ʻano.
| ʻAno o ka hopena ʻaoʻao | Nā hōʻailona a me nā mea e hana ai |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono e hōʻike koke ʻia i kāu kauka | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe a i ʻole ke alelo. |
| Nā Hōʻailona o ka ʻeha o ke akepaʻa | Mimi melemele ʻeleʻele a ʻeleʻele paha; melemele o nā maka a i ʻole ka ʻili (jaundice); ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū; nalowale o ka makemake e ʻai; nausea; luhi ʻē. |
| Nā hōʻailona o ka maʻi lolo koʻikoʻi (Brain Infection) | Nā hōʻailona e like me ka loli o ka hihiʻo i ʻōlelo ʻia ma luna, ka nalowale o ka hoʻomanaʻo, ka paʻakikī o ka hele wāwae, a me ka nalowale o ka ʻike ma kekahi ʻaoʻao o ke kino. |
| Nā Hōʻailona o nā Maʻi | Kuni, anu, a me ka ʻāʻī ʻeha. |
| Nā hopena ʻaoʻao ʻaʻole ia he mea weliweli, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | ʻEha ʻōpū, nausea, diarrhea, indigestion. |
| ʻO ka ʻulaʻula o ka maka | Ke ʻulaʻula nei ka maka a me ka ʻili a me ka wela. |
Pehea ʻoe e mālama ai i kāu lāʻau lapaʻau?
- E mālama iā ia ma kahi palekana i hiki ʻole i nā keiki ke loaʻa .
- E mālama i nā ʻōmole i wehe ʻole ʻia ma kahi mahana ma waena o 2 a me 8 degere Celsius, ʻo ia hoʻi i loko o ka friji . E hoʻolei aku ma hope o ka lā pau.
- Ke wehe ʻia ka ʻōmole, hiki ke mālama ʻia ma ka mahana o ka lumi (20-25 kekelē Celsius) a hiki i 3 mahina. E hoʻolei aku i nā lāʻau lapaʻau i loko o nā ʻōmole i wehe ʻia ma mua o 3 mahina.
- E mālama i ka lāʻau lapaʻau i loko o ka ʻōmole kumu i hoʻokomo ʻia ai. E pale mai ka wela nui a me ka mālamalama.
Leka Lawe-Home
- ʻO ka Monomethyl Fumarate kahi lāʻau lapaʻau i hoʻohana ʻia e mālama i ka Multiple Sclerosis (MS), akā ʻaʻole ia he lāʻau lapaʻau.
- E ale i ke capsule me ka wai me ka ʻole o ka haki ʻana, ka wāwahi ʻana, a me ka nau ʻana.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i kāu kauka e pili ana i kou mau kūlana olakino a me nā lāʻau lapaʻau ʻē aʻe āu e lawe nei.
- Inā loaʻa iā ʻoe kekahi mau hōʻailona weliweli e like me ka loli ʻana o ka ʻike, ka paʻakikī i ka hele wāwae, a i ʻole ka nalowale o ka hoʻomanaʻo, e ʻimi koke i ke kōkua lapaʻau.
- Inā he mau nīnau a hopohopo paha kāu e pili ana i ka lāʻau lapaʻau, e kamaʻilio mau me ke kauka e mālama nei iā ʻoe.
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