Ke loli nei kou hoʻomanaʻo a me kou noʻonoʻo? E aʻo kākou e pili ana i nā maʻi neurodegenerative.

Ua manaʻo paha ʻoe e hiki i nā ʻāpana liʻiliʻi i loko o ko kākou lolo, i kapa ʻia ʻo neurons, ke hoʻonāwaliwali mālie, e hoʻololi ana i ko kākou hoʻomanaʻo, ke ʻano o ko kākou noʻonoʻo ʻana, ke ʻano o ko kākou hele ʻana, a me ke ʻano o kā kākou kamaʻilio ʻana? I kekahi manawa ua ʻike mākou i kēia e hana ana i ko mākou poʻe ʻelemakule. ʻO ia ka mea a mākou e kapa nei he hui o nā kūlana i kapa ʻia ʻo Neurodegenerative Diseases . ʻOiai paha he huaʻōlelo kaumaha kēia, e kamaʻilio kākou e pili ana me ka maʻalahi a me ke aloha.

He aha kēia mau maʻi neurodegenerative?

I ka ʻōlelo maʻalahi, he hui kēia o nā maʻi e hōʻino mālie a luku i nā cell i loko o kā mākou ʻōnaehana nerve, ʻoi aku hoʻi i ka lolo . E noʻonoʻo i kēia ʻano: e like me ka pala ʻana o ka lāʻau i ka hala ʻana o ka manawa, e luku mālie kēia mau maʻi i nā cell i loko o ko mākou lolo. ʻAʻole hiki koke mai kēia mau maʻi, ulu mālie loa lākou . No laila, lōʻihi ka manawa e ʻike ʻia ai nā hōʻailona, ​​​​i kekahi manawa ma hope o ke ola.

ʻAʻole kēia he maʻi hoʻokahi. E like me nā mea he nui ma lalo o hoʻokahi malu, aia kekahi mau ʻano maʻi ma lalo o kēia inoa.

He aha nā ʻano nui o kēia mau maʻi?

E nānā kākou i kekahi o nā ʻano nui o kēia mau maʻi neurodegenerative. Akā, ʻaʻole kēia wale nō, he nui aku.

Nā maʻi ʻano Dementia

Hoʻopilikia mālie kēia i nā ʻāpana like ʻole o ka lolo, a make nā hunaola aʻalolo i kapa ʻia ʻo neurons ma ia mau wahi. Hiki ke ʻokoʻa loa nā hōʻailona ma muli o ka ʻāpana o ka lolo i hōʻino ʻia.

Eia kekahi laʻana: ʻO ka maʻi Alzheimer , ka frontotemporal dementia, ka chronic traumatic encephalopathy (CTE), a me Lewy body dementia e pili ana i kēia māhele.

Nā maʻi Demyelinating

Ua puni ʻia ko kākou mau hunaola aʻalolo e kahi ʻūpā pale i kapa ʻia ʻo myelin . Ua like ia me ka uhi palaki a puni kahi uea. ʻO kēia ʻūpā ka mea e hiki ai i nā leka aʻalolo ke hele mālie. Hoʻopōʻino kēia mau maʻi i kēlā ʻūpā myelin.

Nā Laʻana: Multiple Sclerosis (MS) , Neuromyelitis Optica Spectrum Disorder (NMOSD).

Nā maʻi ʻano Parkinsonism

Hoʻokumu ʻia kēia e ka hōʻino ʻia ʻana o nā neurons kūikawā i loko o ko kākou lolo, ʻoiai nā mea e hoʻonohonoho a hoʻomalu pono i nā neʻe ʻana o nā ʻiʻo .

Nā Laʻana: ʻO ka maʻi o Parkinson a me nā kūlana Parkinsonism ʻē aʻe e hōʻike ana i nā hōʻailona like me ka maʻi o Parkinson.

Nā Maʻi Neuron Motor

Hoʻomohala kēia i ka wā e make ai nā neurons e kaohi ana i kā mākou neʻe ʻana .

Nā Laʻana: Amyotrophic Lateral Sclerosis (ALS) (i kapa ʻia hoʻi ʻo "ka maʻi ʻo Lou Gehrig"), Progressive Supranuclear Palsy (PSP).

Nā Maʻi Prion

He mea kūikawā loa kēia. ʻO kēia mau maʻi, i hana ʻia e ka pelu hewa ʻana o kahi protein, e hōʻeha nui i ka lolo i loko o kahi manawa pōkole loa . ʻO ka hapa nui o ka manawa, ʻaʻole ola kēia mau maʻi ma mua o hoʻokahi makahiki.

Laʻana: ʻO ka maʻi Creutzfeldt-Jakob ke ʻano maʻamau. I kekahi manawa hiki ke hana ʻia kēia mau mea e nā kumu hoʻoilina.

ʻO ka mea nui, aia paha kekahi mau hiʻohiʻona maʻamau a me nā pilina ma waena o kēia mau maʻi neurodegenerative like ʻole. Hiki i kekahi mau maʻi ke loaʻa nā hōʻailona like a me nā kumu like.

Pehea ka maʻamau o kēia mau maʻi?

ʻOiai ʻaʻole maʻamau loa nā maʻi neurodegenerative, ua ʻike nā kānaka noiʻi he ʻoi aku ma mua o 50 miliona mau kānaka ma ka honua holoʻokoʻa i loaʻa i kēia mau maʻi. ʻO ia hoʻi, he mea maʻamau ia no kekahi o mākou ke lohe e pili ana iā lākou.

Pili pinepine kēia mau maʻi i ka ʻelemakule . ʻOi aku ka maʻamau i nā poʻe ma luna o 65 mau makahiki. Eia nō naʻe, hiki i kekahi mau maʻi, e like me ka maʻi Huntington a me ALS, ke hiki mai i ka wā ʻōpio. Wahi a ka World Health Organization (WHO), manaʻo ʻia e pālua ka heluna kanaka ma luna o 65 mau makahiki i nā makahiki 30 e hiki mai ana. ʻO ke ʻano kēia, e piʻi like ka nui o ka poʻe me kēia mau maʻi neurodegenerative.

He aha nā hōʻailona o nā maʻi neurodegenerative?

He ʻokoʻa loa nā hōʻailona o kēia mau maʻi. Hiki i kekahi mau hōʻailona ke hoʻomaopopo koke iā ʻoe he maʻi lolo kēia. Eia nō naʻe, hiki i kekahi mau hōʻailona ke ʻokoʻa loa a hiki ʻole ke ʻike ʻia me ka ʻole o kahi hoʻokolokolo lapaʻau kūikawā.

ʻO ka maʻamau, ʻike ʻia nā hōʻailona e like me kēia ma muli o ke ʻano o ka maʻi:

• Nā maʻi ʻano Dementia: huikau, nalowale ka hoʻomanaʻo, paʻakikī i ka noʻonoʻo ʻana a i ʻole ka noʻonoʻo ʻana, a me nā loli o ke ʻano.
• Nā maʻi e hōʻino ai i ka myelin: ka mae ʻana o ka ʻōpū, ka ʻeha, ka ʻūlū ʻana o nā ʻiʻo, ka nalowale o ke kaulike a i ʻole ka maʻi lolo, ka paʻakikī o ka hele wāwae, a me ka luhi nui.
• Nā maʻi ʻano Parkinsonism: neʻe lohi, haʻalulu i nā lālā, pilikia kaulike, kauō ʻana i nā wāwae ma ka honua i ka wā e hele ana, kūlou i mua.
• Nā Maʻi Neuron Motor: Hoʻopilikia kēia i nā ʻāpana o ka lolo a me ka ʻōnaehana nerve e kaohi ana i nā ʻiʻo. I ka make ʻana o nā neurons ma kēlā mau ʻāpana, nalowale ka kaohi ʻana o nā ʻiʻo. Hiki i kēia ke alakaʻi i ka nāwaliwali a me ka maʻi lolo .

No ke aha i ʻokoʻa nui ai kēia mau hōʻailona?

Aia kekahi mau kumu e ʻokoʻa ai nā hōʻailona mai kēlā kanaka a kēia kanaka, ʻoiai me ka maʻi like:

• ʻAʻole like ka lolo o kēlā me kēia kanaka:ʻAʻohe ʻelua lolo i hana ʻia a hana like paha, no laila hiki i ka maʻi like ke hoʻopilikia i ʻelua mau kānaka ma ke ʻano like ʻole.
• Nui nā kumu e ulu ai kēia mau maʻi: ʻOiai inā he ʻano maʻi like ia, ʻokoʻa loa nā kumu e hoʻopilikia ai.
• Aia nā hōʻailona ma ka wahi i hoʻopilikia ʻia: Aia nā hōʻailona ma ka ʻāpana o kou lolo a i ʻole ka ʻōnaehana nerve i hōʻino ʻia.

He aha nā kumu o kēia mau maʻi?

Hiki i nā kauka ke loaʻa i hoʻokahi kumu no kekahi mau maʻi neurodegenerative. Akā i nā hihia he nui, ʻaʻohe kumu hoʻokahi . Ua hōʻike ʻia e ka noiʻi he hui pū kekahi mau kumu e hoʻoulu ai i kēia mau maʻi. I kekahi manawa, ʻaʻole hiki i nā kauka ke loaʻa i kahi kumu. He mea kaumaha maoli kēia no ka mea maʻi a me ko lākou ʻohana.

A hiki i kēia lā, ua ʻike nā loea i nā kumu he nui a me nā mea pilikia no kēia mau maʻi. Hiki ke hoʻokaʻawale ʻia i kekahi mau ʻano nui:

• Makahiki: ʻO ke kumu nui e hoʻopilikia ai i ka ulu ʻana o kēia mau maʻi, ʻo ia ka ʻelemakule . Piʻi ka pilikia o ka loaʻa ʻana o kēia maʻi me ka makahiki. ʻOiai hiki i kekahi mau maʻi ke hoʻomaka i ka wā ʻōpiopio, he mea kakaikahi ia.
• ʻIke Hoʻoilina: He nui nā maʻi neurodegenerative e pili ana i ka mōʻaukala ʻohana. ʻO ke ʻano kēia, hiki ke hoʻoili ʻia kekahi mau hoʻololi hoʻoilina ma o nā hanauna. Hiki ke kū mai nā hoʻololi hoʻoilina hou, a i ʻole hiki ke hoʻopilikia ʻia kahi hui pū ʻana o nā hoʻoilina.
• Kaiapuni: Hiki i ke kaiapuni āu e noho nei ke loaʻa ka hopena nui i kēia mau maʻi. Nā mea e like me ka haumia o ka ea, ka ʻike ʻana i nā kemika a me nā mea ʻawahia, kekahi mau ʻano maʻi, a me ka ʻāina āu e noho nei (no ka laʻana, e emi ana ka nui o ka wikamina D i kou neʻe ʻana aku i ka equator, kahi i pili pū me nā maʻi ʻano dementia).
• Mōʻaukala lapaʻau: Hiki i kāu mau maʻi ma mua a me nā hanana olakino ke hoʻopilikia i ka ulu ʻana o kēia mau maʻi. ʻO nā hiʻohiʻona e komo pū me ke kanesa, kekahi mau maʻi, a me nā ʻeha poʻo.
• Nā ʻano maʻamau, nā hana maʻamau, a me nā koho: Nui nā mea e pili ana i kēia, me nā mea āu e ʻai ai a inu ai, pehea kou ʻano hana, inā ʻoe e hoʻohana ana i nā huahana paka, a me ka nui o ka waiʻona āu e hoʻopau ai.

He aha nā pilikia e hiki ke kū mai ma muli o kēia mau maʻi?

Ma muli o ka hōʻino ʻana o kēia mau maʻi i ka lolo a me ka ʻōnaehana nerve, kiʻekiʻe ka manawa e loaʻa ai nā pilikia. I ka piʻi ʻana o ka pōʻino, nalowale nā ​​​​mana i kāohi ʻia e kēlā mau ʻāpana i hōʻino ʻia.

• Nā maʻi neʻe: Hoʻemi ʻia ka ikaika, ka maʻalahi, ka wikiwiki, a me ka manawa pane, kahi e hoʻonui ai i ka pilikia o ka hāʻule ʻana a me nā haki.
• Nā maʻi neuron motor: ʻO ka maʻi lolo holomua. Inā hoʻopilikia kēia i nā ʻiʻo hanu, piʻi ka pilikia o ka loaʻa ʻana o nā maʻi hanu e like me ka niumonia.
• Nā maʻi ʻano Dementia:ʻEmi ka hoʻomanaʻo, ka hoʻoholo ʻana, a me nā mākau noʻonoʻo. I ka emi ʻana o kēia mau mea, lilo lākou i hiki ʻole ke noʻonoʻo e pili ana i ko lākou palekana ponoʻī a lilo i mea hiki ʻole ke noho hoʻokahi.

Pehea e ʻike ʻia ai kēia mau maʻi? (Diagnosis)

ʻOkoʻa ke ʻano o ka ʻike ʻana i kahi maʻi neurodegenerative ma muli o ka maʻi. Hoʻomaka pinepine nā kauka ma ka hana ʻana i kahi hoʻokolohua neurological a nīnau iā ʻoe a i ʻole kou ʻohana e pili ana i kāu mau hōʻailona a me ka mōʻaukala olakino.

Hiki ke ʻike ʻia kekahi mau maʻi me nā hoʻokolohua kūikawā:

• Hoʻāʻo ʻana i ka hale hana: Hiki ke ʻike ʻia kekahi mau maʻi ma o nā mea e like me nā hoʻāʻo koko a me nā hoʻāʻo genetic.
• Nā scan kiʻi: He mea nui loa nā hoʻokolohua e like me nā scan CT a me nā scan MRI i ka ʻike ʻana i kēia mau maʻi. ʻAe kēia i nā kauka e "ʻike" i kou lolo. A laila hiki iā lākou ke hoʻoholo inā he pōʻino o ka lolo, nā loli, a i ʻole kekahi kumu ʻē aʻe.
• ʻO ka Histopathology ma hope o ka make: ʻAʻole hiki ke ʻike maopopo ʻia kekahi mau maʻi, e like me ka maʻi a Pick a i ʻole ka encephalopathy traumatic chronic (CTE), ʻoiai ke ola nei ke kanaka. ʻOiai ke kānalua nei nā kauka, hiki ke hōʻoia ʻia ma ka nānā ʻana i nā ʻiʻo lolo ma lalo o kahi microscope ma hope o kahi autopsy .

Ma muli o kou kūlana a i ʻole nā ​​hōʻailona, ​​hiki ke hana ʻia nā hoʻokolohua ʻē aʻe. ʻO kāu kauka ke kanaka maikaʻi loa e haʻi iā ʻoe i nā hoʻokolohua kūpono iā ʻoe a me ke kumu e hana ʻia ai.

Aia kekahi lāʻau lapaʻau no nā maʻi neurodegenerative? Hiki ke ho'ōla ʻia?

ʻO ka mea pōʻino, ʻaʻole hiki ke ho'ōla ʻia kēia mau maʻi neurodegenerative a pau . Hoʻopau kēia mau maʻi i nā hunaola lolo a ʻaʻole hiki ke hoʻohuli ʻia.

Eia nō naʻe, hiki ke mālama ʻia kekahi mau maʻi neurodegenerative, ma muli o ke kumu o ka maʻi. Hiki ke mālama pololei ʻia kekahi mau maʻi e kāohi, kaupalena, a hoʻolohi paha i nā hopena o ka maʻi. ʻOiai ʻaʻole hiki ke mālama pololei ʻia kekahi mau maʻi ʻē aʻe, hiki i ka mālama ʻana i nā hōʻailona ke kōkua i ka hoʻomaikaʻi ʻana i ke ʻano o ke ola .

No ka mea, he nui nā ʻano lapaʻau like ʻole, ʻo kāu kauka ke kanaka maikaʻi loa e haʻi iā ʻoe i nā lāʻau lapaʻau i loaʻa a me nā mea a lākou e ʻōlelo ai. ʻO ka ʻike a lākou e hāʻawi ai ka mea pololei loa a pili i kou kūlana a me ka mōʻaukala olakino. E haʻi pū lākou iā ʻoe e pili ana i nā hopena ʻaoʻao, nā pilikia, a me nā mea e makaʻala ai.

A pehea inā loaʻa iaʻu kēia ʻano maʻi?

No ka mea, he nui nā ʻano maʻi neurodegenerative, ʻo ka mea e hiki mai ana iā ʻoe e pili ana i nā kumu he nui. ʻOi aku ka ʻino o kekahi mau maʻi ma nā wikiwiki like ʻole; hiki i kekahi ke hala i nā makahiki a i ʻole nā ​​​​ʻumi makahiki e lilo i mea koʻikoʻi. Hiki i kekahi ke ʻoi aku ka ʻino koke. No laila, ʻo kāu kauka ke kanaka maikaʻi loa e haʻi iā ʻoe i ka mea e manaʻo ai.

ʻO ka lōʻihi o kou loaʻa ʻana i kahi maʻi neurodegenerative, ʻo ka nui o ka hiki ke loaʻa iā ʻoe nā pilikia. ʻO ka mea kaumaha, hiki i kēia mau kūlana ke hōʻemi i kou ʻano ola a alakaʻi hope loa i ka make (a i ʻole e kōkua i kahi mea ʻē aʻe e hoʻoulu ai i ka make).

Pehea ka lōʻihi o kēia mau maʻi?

Ke ulu aʻe kēia mau maʻi, he mau maʻi mau loa lākou no ke ola holoʻokoʻa .

Aia kekahi ala e pale piha ai iā ʻoe iho mai kēia mau maʻi?

Hoʻomohala ʻia nā maʻi neurodegenerative ma nā ʻano a mākou i manaʻo ʻole ai he hiki. I ka manawa pinepine, ulu lākou no nā kumu i maopopo ʻole ʻia. No kēia mau kumu ʻelua, ʻaʻole hiki ke pale ʻia .

No laila he aha kā mākou e hana ai e hōʻemi i ka pilikia?

ʻOiai ʻaʻole hiki ke pale ʻia kēia mau maʻi, aia kekahi mau mea hiki iā ʻoe ke hana e hōʻemi i kou pilikia o ka loaʻa ʻana o lākou. ʻOiai ʻo kēia mau maʻi e hana pinepine ʻia e ka hui pū ʻana o nā kumu, ʻo ka hōʻemi ʻana i ka helu o nā kumu hiki ke kōkua i ka hōʻemi ʻana i kou pilikia.

Aia kekahi mau hana hiki iā ʻoe ke hana e hōʻemi i kou pilikia:

• E ʻai i ka meaʻai kaulike: ʻO ka mea āu e ʻai ai e hoʻopilikia i ke olakino o kou lolo. Hiki i ka ʻai maikaʻi ʻole ke hoʻolilo i kou lolo i mea maʻalahi i kēia ʻano maʻi. Hiki iā ia ke alakaʻi i nā maʻi ʻē aʻe e like me ka hahau ʻana .
• E noho kino ikaika a mālama i ke kaumaha olakino: Hoʻopilikia pū kou kaumaha a me kou pae hana i kou lolo. ʻO nā pilikia e pili ana i ke kaumaha, ʻoiai nā pilikia kahe koko e like me ke koko kiʻekiʻe, a me nā maʻi metabolic e like me ka Type 2 Diabetes, hiki ke kōkua i kēia.
• E komo i nā mea pale i ka wā e pono ai: ʻO nā ʻeha poʻo, ʻoiai nā haʻalulu a me nā ʻeha lolo traumatic , hoʻonui nui i ka pilikia o ka loaʻa ʻana o kēia mau maʻi. No laila, he mea hana waiwai nui nā mea pale e pale aku ai i nā ʻeha a pale i ke olakino o ka lolo i ka wā lōʻihi.
• E ʻike i kāu kauka ʻohana i kēlā me kēia makahiki: Hiki i kēia ke kōkua i ka pale ʻana a i ʻole ka hoʻopaneʻe ʻana i ka ulu ʻana o nā maʻi maʻi e hiki ke kōkua i nā maʻi neurodegenerative ma hope o ke ola. Hiki i kēia mau kipa ke kōkua i ka ʻike ʻana i kēia mau maʻi i ka wā mua. He nui o kēia mau maʻi i maʻalahi ka mālama ʻana i nā pae mua.

Inā loaʻa iaʻu kēia ʻano maʻi, pehea lā e hiki ai iaʻu ke mālama iaʻu iho?

Inā loaʻa iā ʻoe kahi maʻi neurodegenerative, hiki paha iā ʻoe ke mālama iā ʻoe iho i ka wā mua, akā pono ʻoe i ke kōkua i ka hala ʻana o ka manawa. ʻO ka lōʻihi o ka manawa hiki iā ʻoe ke mālama iā ʻoe iho e pili ana i nā mea he nui, e like me ka maʻi āu e loaʻa ai a me nā pilikia olakino ʻē aʻe.

He aha inā ʻaʻole hiki iā ʻoe ke hoʻoholo? E noʻonoʻo pū kākou i kēlā?

Inā ʻike ʻoe he maʻi neurodegenerative kou a ʻaʻole hiki iā ʻoe ke hoʻoholo nou iho, he mea nui e kamaʻilio me nā poʻe āu e hilinaʻi nei e pili ana i nā mea āu e makemake ai e hana. Hiki ke paʻakikī kēia kamaʻilio ʻana, akā e hōʻoiaʻiʻo ia ua ʻike lākou i kāu mau makemake a e hana e like me ia. He mea maikaʻi loa kēia no nā mea āpau, ʻaʻohe mea he aha ka maʻi āu.

Nā kānaka āu e pono ai e kamaʻilio e pili ana i kēia:

• ʻO kāu kauka ʻohana a/a i ʻole nā ​​​​​​loea e mālama i kou kūlana.
• Kou ʻohana pili.
• Kou loio (inā loaʻa).
• ʻO nā ʻohana a me nā hoaaloha ʻē aʻe āu e hilinaʻi nei a manaʻo hoʻi e hiki ke hana i nā hoʻoholo ola a make nou.

Nā kumuhana āu e pono ai e kamaʻilio pū me lākou e pili ana i:

• ʻO wai kāu makemake e ʻōlelo nou a hoʻoholo i nā hoʻoholo nou, inā pono?
• Nā mea kālā e pili ana i nā kumukūʻai o kāu mālama ʻana.
• ʻO kou mau makemake e pili ana i nā mea e like me ka mālama ʻana i ka hopena o ke ola, ka palapala kauoha hope loa, a me ka Mana o ka Loio .
• He aha kāu e makemake ai e pili ana i nā lāʻau lapaʻau e hoʻōla ola a i ʻole nā ​​​​lāʻau lapaʻau e hoʻolōʻihi i ke ola?

Malia paha e manaʻo ʻia kēia kamaʻilio ʻana he ʻano ʻē a paʻakikī hoʻi, akā ʻo ka kamaʻilio ʻana ma mua o ka hala ʻana o ka manawa e hōʻoiaʻiʻo ai ua ʻike kāu poʻe aloha i kāu mau makemake inā ʻaʻole hiki iā ʻoe ke ʻōlelo.

Ma waho aʻe o kēia kamaʻilio ʻana, he manaʻo maikaʻi ke kākau ʻana i kāu mau makemake a me nā hoʻoholo . E noʻonoʻo e hana i nā palapala kānāwai e wehewehe ana i ka mea e hana ʻia inā hiki ʻole iā ʻoe ke mālama iā ʻoe iho a i ʻole e hoʻoholo i kou olakino. Hiki iā ʻoe ke loaʻa ke kōkua mai kahi loio, akā hiki iā ʻoe ke hana i kekahi o lākou iā ʻoe iho (pono paha ʻoe e kau inoa ʻia e kahi notary).

Pehea ʻoe e mālama ai i kāu mea aloha inā loaʻa iā lākou kēia ʻano maʻi?

Inā loaʻa i kāu mea aloha kahi maʻi neurodegenerative, ʻo ka mea hiki iā ʻoe ke hana e pili ana i ke ʻano o ka maʻi i loaʻa iā lākou, pehea kona koʻikoʻi, a inā he mau pilikia olakino ʻē aʻe kā lākou. Hiki iā lākou a i ʻole kā lākou kauka ke haʻi aku iā ʻoe i kā lākou mea e pono ai.

He paʻakikī i ka poʻe he nui me kēia mau maʻi ke kamaʻilio e pili ana i kā lākou e ʻike nei. He nui ka poʻe e makaʻu nei i ka mea e hiki mai ana. Hiki i kēia ke paʻakikī ke noi i ke kōkua. Hilahila lākou e noi i ke kōkua, a ʻo ka manaʻo o ka hilinaʻi ʻana i nā poʻe ʻē aʻe hiki ke hoʻoluhi.

Inā loaʻa kēia ʻano maʻi i kāu mea aloha, aia kekahi mau mea hiki iā ʻoe ke hana a hoʻomanaʻo:

• Mai mālama iā lākou me he mea kaumaha a he kanaka kōkua ʻole paha. ʻO kēia mau maʻi e paʻakikī ai ka hana ʻana i nā mea i maʻalahi ma mua. I ka hopena, ʻoiai nā mea maʻalahi e like me ka ʻauʻau ʻana, ke komo ʻana, a me ka hele ʻana i ka lua hiki ke lilo i mea paʻakikī. E mālama iā lākou me ka mahalo a me ke aloha like me nā mea ʻē aʻe. E hoʻomanaʻo, ʻo lākou ke kanaka āu e aloha ai, ʻaʻole ka maʻi i loaʻa iā lākou.
• E nīnau iā lākou i kā lākou mea e pono ai. I kekahi manawa, ʻo ka mea wale nō e pono ai i kahi kanaka i loko o kahi kūlana paʻakikī, ʻo ia kekahi e kamaʻilio pū me ia. Inā wehe kāu mea aloha iā ʻoe, he manaʻo maikaʻi e nīnau iā lākou inā makemake lākou i kekahi e hoʻolohe, a inā makemake lākou i nā manaʻo, nā manaʻo kōkua, a i ʻole ke kōkua.
• Hāʻawi i ke kōkua. Hiki ke paʻakikī i kāu mea aloha ke noi i ke kōkua. ʻAʻole paha lākou makemake e noi, a i ʻole ʻaʻole paha lākou e manaʻo e pono ana lākou. I kekahi manawa, ʻo ke kōkua ʻana i nā mea liʻiliʻi e hiki ai iā lākou ke hilinaʻi iā ʻoe ke pono lākou i ke kōkua hou aku. Hiki iā ʻoe ke kōkua ma ka lawe ʻana iā lākou i nā manawa kauka, ke kōkua ʻana i ke kūʻai ʻana, a i ʻole ke kōkua ʻana i nā hana o ka home.
• E mālama pono iā ʻoe iho.Hiki i nā mea mālama ke luhi i ka noʻonoʻo a me ke kino (caregiver burnout) . He mea paʻakikī ke mālama i nā poʻe ʻē aʻe inā ʻaʻole ʻoe e mālama iā ʻoe iho. He mea nui hoʻi e hoʻomaopopo he pono paha i kāu mea aloha ke mālama hou aku ma mua o ka hiki iā ʻoe ke hāʻawi. ʻO ka hoʻāʻo ʻana e mālama iā lākou me ka ʻole o ke aʻo ʻana a me nā kumuwaiwai āu e loaʻa ai hiki ke hana i ka ʻino ma mua o ka maikaʻi.

Āhea mākou e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe kekahi mau hōʻailona pili i ka lolo e hoʻopilikia nei i kāu hana maʻamau a i ʻole kāu hana, e ʻike i ke kauka i kēlā me kēia manawa . ʻO ka ʻike mua ʻana i nā maʻi neurodegenerative hiki ke hana i kahi ʻokoʻa nui i ka kaohi ʻana i ka wikiwiki o ka hoʻonui ʻia ʻana o ka maʻi.

Inā ʻike ʻoe he maʻi neurodegenerative kou, e ʻimi i ke aʻo lapaʻau i kēia mau manawa:

• Ke hāʻawi aku kāu kauka iā ʻoe i kahi manawa . ʻO ka hele ʻana i kēia mau manawa e kōkua i kāu kauka e nānā i kou kūlana a paipai i nā lāʻau lapaʻau e pono ai a i ʻole nā ​​​​hoʻololi nohona.
• Inā ʻike ʻoe i kahi loli i kāu mau hōʻailona , ​​​​hiki i kēia mau loli ke lilo i ʻike koʻikoʻi no kāu kauka e noʻonoʻo ai i ka wā e nānā ai a mālama iā ʻoe.
• Inā ʻike ʻoe i nā hopena ʻaoʻao a i ʻole nā ​​​​loli i ka pono o kāu lāʻau lapaʻau . Hiki i nā lāʻau lapaʻau, e like me nā lāʻau lapaʻau, ke lilo i mea liʻiliʻi i ka hala ʻana o ka manawa. E haʻi i kāu kauka inā ʻike ʻoe i nā loli i ka pono o kāu lāʻau lapaʻau. E kōkua kēia iā lākou e hoʻoponopono i kāu lāʻau lapaʻau a nānā i kou kūlana.

Hiki i kāu kauka ke haʻi aku iā ʻoe e pili ana i nā mea ʻē aʻe āu e pono ai e ʻike koke iā ia, a i ʻole e pono ai ke kōkua lapaʻau koke.

ʻO ka mea hope loa, ka leka lawe home

Ke ʻike ʻoe he maʻi neurodegenerative kou, e hopohopo paha ʻoe, e makaʻu, a e huhū. Hiki ke kaumaha ke alo i ka manaʻo o ka hiki ʻole ke mālama iā ʻoe iho a i ʻole e noho ma kāu iho. Inā he mea aloha kāu me kēia maʻi, e like paha kou manaʻo.

He mau loa a hiki ʻole ke ho'ōla ʻia nā maʻi neurodegenerative. Akā ke ʻimi mau nei nā loea a me nā mea noiʻi i nā ala hou e ʻike ai a mālama i kēia mau maʻi . ʻO ia hoʻi, hiki i nā kauka ke hana hou aku e mālama i kēia mau maʻi, kōkua iā ʻoe e ola lōʻihi, a hoʻomaikaʻi i kou ʻano ola e like me ka hiki. Ma kēlā ala, hiki iā ʻoe ke kaupalena i ka hopena o kēia mau maʻi i kou ola a kālele i nā mea nui loa iā ʻoe. Mai haʻalele i ka manaʻolana, e hahai i ka ʻōlelo aʻo a kāu kauka, a kamaʻilio me kāu poʻe aloha e pili ana i kēia.

Nā Maʻi Neurodegenerative, Nā Maʻi Lolo, ʻŌnaehana Aʻalolo, Dementia, Maʻi Alzheimer, Maʻi Parkinson, Poho Hoʻomanaʻo, ʻElemakule