He aha nā hōʻailona hānau?
I ka ʻōlelo maʻalahi, he kiko hānau kahi kiko a i ʻole kīnā i hana ʻia ma ka ʻili, i ka wā e noho ana ke pēpē i loko o ka ʻōpū a i ʻole ma hope o ka hānau ʻana. Loaʻa lākou i nā ʻano, nā kala, a me nā nui like ʻole. Aia kekahi ma ka pae like me ka ʻili, aʻo kekahi e piʻi aʻe. He laumania nā lihi o kekahi, aʻo kekahi he mau lihi ʻokoʻa. Pēlā nō hoʻi no ke kala; hiki iā lākou ke ʻano mai ka ʻeleʻele, ka ʻeleʻele māmā, ka ʻeleʻele, a me ka uliuli māmā a hiki i ka poni, ka ʻulaʻula, a me ka poni. ʻO ka mea nui, ʻo ka hapa nui o nā kiko hānau he mea ʻino ʻole. E nalowale ka hapa nui a emi paha i ka hala ʻana o ka manawa. Eia naʻe, he kakaikahi loa, hiki ke pili kekahi mau kiko hānau me nā pilikia olakino ʻē aʻe. ʻO ia ke kumu he mea nui e makaʻala i kēia mau kiko hānau.No ke aha i loaʻa ai kēia mau hōʻailona hānau?
I kēia manawa, ke noʻonoʻo nei paha ʻoe, "No ke aha i hana ʻia ai kēia i kaʻu pēpē? Ua hana hewa anei au i ka wā hāpai?" Mai hoʻopunipuni ʻia ʻoe e kēlā. ʻO ka ʻoiaʻiʻo, ʻaʻole ʻike nā kauka i ke kumu pololei o ka hapa nui o nā māka hānau. ʻAʻole hiki ke pale ʻia. ʻAʻole lākou i hana ʻia e kekahi mea āu i hana ai a i ʻole i hana ʻole i ka wā hāpai. ʻAʻole lākou i hana ʻia e kahi ʻeha liʻiliʻi a i ʻole ka trauma i ka ʻili ke loaʻa iā ʻoe kahi pēpē. ʻO kekahi mau ʻano māka hānau e holo i loko o nā ʻohana, akā ʻaʻohe kumu genetic kikoʻī i loaʻa. No laila, mai hopohopo no ia mea, ʻaʻole ia kou hewa.He aha nā ʻano nui o nā hōʻailona hānau?
Hiki ke hoʻokaʻawale ʻia nā māka hānau i ʻelua ʻano nui. ʻOkoʻa lākou i ke ʻano o ko lākou hana ʻana, a no laila i ke kumu o lākou.- Nā Kaha Hānau Vascular : Hoʻokumu ʻia kēia e nā kīʻaha koko liʻiliʻi i loko o ko mākou kino i hana pono ʻole ʻia. Nui paha nā kīʻaha koko i hōʻuluʻulu ʻia ma kahi hoʻokahi, a i ʻole ua ʻoi aku ka laulā a me ka nui ma mua o ka maʻamau.
- Nā Kaha Hānau Pigmented: Hoʻokumu ʻia kēia e nā pūnaewele e hāʻawi ana i ke kala i ko mākou ʻili (nā pūnaewele pigment) e ulu nui ana ma kahi hoʻokahi, ʻo ia hoʻi, e hui pū ana.
E kamaʻilio mua kākou e pili ana i nā hōʻailona hānau vascular.
ʻO nā ʻano maʻamau o nā māka hānau he mau ʻili macular, hemangiomas, a me nā ʻili waina port. E nānā kākou i kēia mau mea a pau.Nā ʻili macular a i ʻole nā patch salmon
Ua kapa pū kekahi poʻe i kēia mau 'salmon patches', 'angel kiss' a i ʻole 'stork bites'. ʻO kēia nā ʻano maʻamau o nā hōʻailona hānau e pili ana i nā kīʻaha koko. He ʻulaʻula māmā lākou, i kekahi manawa he poni. Loaʻa pinepine lākou ma ka lae, ma luna o nā lihilihi maka, ma hope o ka ʻāʻī (i kapa ʻia hoʻi he mau wāwae manu koraka), ma luna o ka ihu, ma ka lehelehe luna a ma ke kua o ke poʻo paha. E hoʻomanaʻo e ʻeleʻele paha kēia mau kiko ke uē ka pēpē a i ʻole e hoʻoikaika iki. Mai hopohopo i kēia. ʻO ka hapa nui o ka manawa, e mae kēia mau kiko i ka wā e piha ai ka pēpē i hoʻokahi a ʻelua paha makahiki. Hiki i kekahi mau kiko ma ke kua o ka ʻāʻī ke mau iki aʻe, a hiki paha i ka wā makua. Akā, ʻaʻole lākou he pilikia.ʻO nā Hemangioma a i ʻole nā māka ʻōhelopapa
ʻO nā Hemangioma he ʻano hōʻailona hānau a kekahi poʻe e kapa nei he 'nā hōʻailona ʻōpena' no ka mea ua like lākou me nā ʻōpena ke kau lākou ma luna o ka ʻili. Ua kapa ʻia lākou he "hemangioma superficial" ke kau lākou ma luna o ka ʻili, "hemangioma hohonu" ke kau lākou ma lalo o ka ʻili, a i kekahi manawa he "hemangioma hui" ke kau lākou ma nā papa ʻelua. He ʻili liʻiliʻi ka hemangioma, i hāpai ʻia a hiki ke ʻulaʻula ʻeleʻele. E noʻonoʻo e like me ka ʻōpena liʻiliʻi. ʻAʻole lākou e ʻike ʻia a hiki i kekahi mau lā a i ʻole nā pule ma hope o ka hānau ʻana, a laila ʻike ʻia lākou. ʻO nā hemangioma hohonu, aia ma lalo o ka ʻili, hiki ke ʻike ʻia he uliuli no ka mea ua pili lākou i nā kīʻaha koko ma nā papa hohonu o ka ʻili. ʻO kahi mea nui e pili ana i nā hemangioma , ʻo ia ko lākou ulu wikiwiki ʻana i nā mahina 6 mua o ke ola o kahi pēpē. Makaʻu nā makuahine ke ʻike lākou. Akā, ma hope o kēlā, emi pinepine lākou, liʻiliʻi, a nalowale loa ma waena o nā makahiki 5 a me 10. Eia nō naʻe, hiki i kekahi mau hemangiomas nui, ke emi lākou, ke waiho i kahi ʻano ʻē ma ka ʻili, ʻo ia hoʻi, kahi ʻeha liʻiliʻi. Inā pono, hiki ke hoʻoponopono ʻia kēia ma hope me kahi ʻoki liʻiliʻi. Waiho kekahi i kahi pigment ʻulaʻula i loko o ka ʻili, hiki ke kōkua ʻia me ka mālama laser kūikawā. ʻOiai hiki ke loaʻa iā lākou ma nā wahi āpau o ke kino, ʻike pinepine ʻia lākou ma ke poʻo a i ʻole ka ʻāʻī. Eia nō naʻe, inā kokoke lākou i nā maka, ka ihu, a i ʻole ka waha, hiki iā lākou ke hoʻopilikia i nā mea e like me ka ʻike, ka hanu ʻana, a me ka ʻai ʻana. Inā hana ʻia kēlā, e mālama ke kauka iā ia.Nā ʻila waina awa
He mau kiko kēia e like me ka waina ʻulaʻula liʻiliʻi i ninini ʻia ma kekahi wahi o ke kino. Pēlā i loaʻa ai ko lākou inoa. ʻIke pinepine ʻia lākou ma ka maka, ka ʻāʻī, nā lima, a i ʻole nā wāwae. Hiki i kēia mau ʻōpala waina awa ke ʻano nui, mai kahi kiko liʻiliʻi a i kahi ʻōpala nui. Akā aia kekahi mea kūikawā e pili ana iā lākou,ʻOi aku ka nui o kēia mau mea i ka wā e ulu ana ke pēpē, ʻo ia hoʻi, me ka ulu ʻana o ke keiki. I ka hala ʻana o ka manawa, lilo lākou i ʻeleʻele, a inā ʻaʻole mālama ʻia, i ka wā waena, hiki iā lākou ke lilo i ʻoʻoleʻa a like me nā ʻiliʻili. ʻAʻole loa e nalowale kēia mau mea iā lākou iho, a he mea nui e hoʻomanaʻo i kēlā. Hopohopo nui nā kauka e pili ana i nā ʻili waina kokoke i nā maka, e ʻike inā he pilikia ko lākou me nā maka. Inā aia kēia mau kiko ma kekahi mau ʻāpana o ka maka, pono paha lākou e hana i nā hoʻokolohua ʻē aʻe, e like me ka MRI scan, e ʻike inā he hopena ma ka lolo.I kēia manawa, e nānā kākou i nā hōʻailona hānau pigmented.
ʻO nā māka hānau maʻamau o kēia ʻano, i hoʻokumu ʻia e nā pūnaewele e hāʻawi i ke kala i ka ʻili, ʻo ia nā kiko 'Café-au-lait', nā kiko 'Mongolian', a me nā mea a mākou e kapa pinepine ai he moles, i kapa ʻia ma ke ʻano lapaʻau ʻo 'congenital nevi'.Nā wahi ʻaina Café-au-lait
He mau kiko maʻamau kēia. ʻO ke ʻano o ka inoa ʻo "kofe me ka waiū," ma muli o ke kala o nā kiko. Hiki iā lākou ke ʻike ʻia ma nā wahi āpau o ke kino. I kekahi manawa, i ka wā e ulu ai kāu pēpē, hiki i kēia mau kiko ke hoʻonui i ka nui. He mea maikaʻi ke loaʻa i hoʻokahi a ʻelua paha mau kiko. Eia nō naʻe, inā he ʻeono (6) a ʻoi aku paha nā kiko café-au-lait o kāu pēpē, ʻoi aku ka nui ma mua o ka mea holoi penikala (no kahi pēpē liʻiliʻi) a ʻoi aku paha ma mua o ka hapaha (no kahi keiki ʻoi iki), he mea nui e haʻi i kāu kauka e pili ana iā lākou. No ka mea, e hoʻomanaʻo, ʻo ka loaʻa ʻana o ka nui o kēia mau kiko he hōʻailona ia o kahi maʻi genetic i kapa ʻia ʻo neurofibromatosis. Hoʻoulu kēia ʻano i ka ulu ʻana o nā hunaola nerve. ʻO ia ke kumu he mea nui e haʻi i kāu kauka inā ʻike ʻoe i ka nui o kēia mau kiko.Nā wahi Mongolian
He mau kiko pālahalaha kēia, polū-hina. ʻOiai ke ʻano like me nā palapū, ʻaʻole lākou he palapū. ʻIke pinepine ʻia lākou ma nā puʻupuʻu a i ʻole ke kua haʻahaʻa. He mea maʻamau loa ia i nā keiki me ka ʻili ʻeleʻele o nā kūpuna ʻAsia, ʻAmelika ʻInia, ʻApelika, Hispanic, a me ʻEulopa Hema. He nui nā keiki ma ko mākou ʻāina i loaʻa iā lākou. ʻAʻole pono lākou i kekahi lāʻau lapaʻau, a nalowale pinepine lākou i ka wā e hiki ai lākou i ke kula, a ʻaʻole lākou he mea ʻino.Nā ʻiole/nā nevi hānau
ʻO ka maʻamau, kapa mākou i nā 'birthmarks' he mau kiko ʻeleʻele, i ʻike ʻia ma ke ʻano lapaʻau ʻo 'nevi' (plural) a i ʻole 'nevus' (singular). Hoʻomohala ka hapa nui o ka poʻe i kēia mau kiko i kekahi manawa o ko lākou ola. ʻO kahi kiko i loaʻa i ka wā hānau ua kapa ʻia ʻo 'congenital nevus', a noho mau kēia mau mea no ke ola. ʻOiai he mau mea ʻino ʻole kēia mau mea, ʻo nā nevi congenital nui loa a nunui paha, ʻo ia hoʻi, nā kiko i like ka nui me ka pāma, ʻoi aku ka nui o ka ulu ʻana i 'melanoma', kahi maʻi ʻili, ma hope aku.Eia nō naʻe, he liʻiliʻi kēlā pilikia. He liʻiliʻi loa paha ka pilikia mai nā ʻiole liʻiliʻi hānau ʻia, akā he liʻiliʻi loa nō hoʻi ia. Hiki i kēia mau kiko ke ʻeleʻele māmā, ʻeleʻele ʻeleʻele, a ʻeleʻele paha; hiki iā lākou ke pālahalaha a piʻi aʻe paha; i kekahi manawa hiki iā lākou ke ulu mai ka lauoho mai loko mai o lākou.Pehea e mālama ai i nā maʻi hānau?
I kēia manawa, ke noʻonoʻo nei paha ʻoe inā pono e mālama ʻia kēia mau kiko āpau. ʻAʻole, ʻaʻole lākou. ʻO nā ʻili macular, a i ʻole nā ʻāpana salmon, e mae wale iā lākou iho. ʻO kēlā mau mea ma ke kua o ka ʻāʻī e mau paha no kekahi manawa, akā ʻaʻole lākou i ʻike nui ʻia a ʻaʻole ia he pilikia. ʻO ka hapa nui o nā māka hānau ʻē aʻe e pili ana i nā kīʻaha koko hiki ke mālama ʻia inā pono. Hiki i nā ʻili Port-wine a me kekahi mau hemangiomas ke hoʻopilikia i nā keiki i ka naʻau no ka mea e hoʻopilikia lākou i ko lākou helehelena, ʻoiai inā aia lākou ma ka maka. ʻO nā hemangiomas liʻiliʻi ma nā wahi i ʻike ʻole ʻia ʻaʻole pono ka mālama ʻana. No ka mea, e like me kā mākou i ʻōlelo ai ma mua, ʻo ka hapa nui o lākou e emi iho iā lākou iho i ka wā e 10 mau makahiki o ke keiki. Eia nō naʻe, mālama nā kauka i nā hemangiomas nui a ʻike ʻia. Hoʻokomo pololei ʻia kekahi mau lāʻau lapaʻau (e like me ka propranolol a me nā steroids) i loko o ka hemangioma, hāʻawi ʻia kekahi ma ke ʻano intravenously (ma o ka IV), a lawe ʻia kekahi ma ka waha. Hiki i nā keiki me nā ʻili port-wine ke pōmaikaʻi mai ka mālama ʻana i ka laser. Pili kēia i ka hoʻohana ʻana i kahi kukuna kukui kiʻekiʻe (he laser) e hoʻomālamalama i ke kala o ka ʻili. Hiki ke hoʻomālamalama ʻia nā ʻili he nui ma hope o kekahi mau lāʻau lapaʻau me kahi ʻano laser i kapa ʻia he laser pulsed-dye. Hiki ke hoʻi hou mai kekahi mau ʻili, e pono ai ka lāʻau hou aku. Hoʻomaka pinepine ʻia ka lāʻau laser i ka wā ʻōpiopio o ke pēpē, ʻo ia hoʻi he mau mahina. ʻO kēia no ka mea he liʻiliʻi mau ka ʻili a me nā kīʻaha koko, no laila maikaʻi nā hopena. Pane maikaʻi nā ʻili ma ke poʻo a me ka ʻāʻī i ka lāʻau laser. Hiki i ka mea hoʻonaninani kūikawā, a i ʻole nā mea hoʻonaninani, ke uhi i kahi ʻili waina port-wine no kekahi manawa. ʻAʻole mālama pinepine ʻia nā māka hānau pigmented a waiho ʻia e ulu. Eia nō naʻe, mālama ʻia nā moles hānau, ʻoiai nā mea nui, a i kekahi manawa nā kiko café-au-lait, a mākou i kūkākūkā ai ma mua. Hiki i nā kauka ke wehe i kēia mau māka hānau me ke ʻoki ʻana, ʻoiai nā nevi hānau nui a nunui paha. Eia nō naʻe, ʻoi aku ka paʻakikī o ka wehe ʻana i nā mea nui, a pono paha i nā kaʻina hana he nui. ʻOiai hiki ke wehe ʻia nā kiko café-au-lait me ka lāʻau laser, hiki iā lākou ke hoʻi hou mai.Āhea ʻoe e ʻike ai i ke kauka?
He mea nui loa kēia. ʻOi aku ka maikaʻi o ka hōʻike ʻana i kahi hōʻailona hānau i ke kauka i ka wā e ʻike mua ai ʻoe iā ia ma ke kino o kāu pēpē e ʻike ai i ke ʻano o ia mea, he aha ka nānā ʻana e pono ai, a inā pono ia i ka lāʻau lapaʻau. Eia kekahi,Koko mai kahi hōʻailona hānauInā he wai kahe, ʻeha, maneʻo, a ʻulaʻula paha, pehu, a i ʻole ke kahe nei ka pus , pono ʻoe e ʻike koke i ke kauka.E like me nā ʻeha kahe koko a pau, e holoi i ka ʻeha me ke kopa a me ka wai, e kau i kahi kāʻei gauze maʻemaʻe, a kaomi a hiki i ka pau ʻana o ke kahe koko. Inā ʻaʻole e pau ke kahe koko, e kāhea i ke kauka. I kekahi manawa hiki i nā hemangiomas ke loaʻa nā ʻeha hāmama ma kekahi mau wahi, hiki ke lilo i maʻi. He mea kākaʻikahi loa nā māka hānau pigmented. Eia nō naʻe, pono e nānā ʻia nā moles maʻamau, ʻoiai nā nevi hānau, no nā loli i ka nui, ke kala, ke ʻano, a me ke kiʻekiʻe i ke ola holoʻokoʻa. Inā ʻike ʻoe i kekahi mau loli koʻikoʻi, e haʻi i kāu kauka .
He aha hou kāu e makemake ai e ʻike?
Ke ʻike ʻoe i kahi hōʻailona hānau ma kahi pēpē hānau hou, ʻoiai inā he nui a ma kahi i ʻike ʻia e like me ka maka, hiki iā ʻoe ke manaʻo iki i ka pīhoihoi a me ke kaumaha i ka wā mua. He mea maʻamau kēlā. Inā aia ka hōʻailona hānau ma kahi i ʻike ʻia, hiki i kekahi poʻe ke nīnau e pili ana iā ia a nānā iā ia me ke ʻano ʻē. Hiki ke hōʻeha iki. I kēlā mau manawa, e kōkua iā ʻoe e loaʻa kahi pane maʻalahi i ka noʻonoʻo e hāʻawi iā lākou. ʻAʻole hana ka hapa nui o ka poʻe ma muli o ka huhū, makemake wale lākou e ʻike. Eia naʻe, inā lākou e hele ma ka laina a nīnau i nā nīnau, a inā he hōʻeha lākou, loaʻa iā ʻoe ke kuleana e haʻi iā lākou i kēlā ma ke ʻano lokomaikaʻi. E hoʻomanaʻo, mai ka wā ʻōpiopio, nānā nā keiki i ke ʻano o ko lākou mau mākua e hana ai i kēlā mau kūlana a pehea lākou e ʻōlelo ai. Pēlā lākou e aʻo ai e hana me nā pane a haʻi. ʻO ke kamaʻilio ʻana me nā keiki e pili ana i kahi hōʻailona hānau maʻalahi a ākea e kōkua iā lākou e ʻae iā ia ma ke ʻano he ʻāpana o lākou iho, e like me ke kala o ko lākou lauoho a i ʻole ke kala o nā maka. Inā nīnau kekahi e pili ana iā ia, e hāʻawi iā lākou i kahi pane maʻalahi. No ka laʻana, kekahi mea e like me, "He hōʻailona hānau wale nō kēia. Ua hānau ʻia au me ia." Eia kekahi, he mea nui loa ka loaʻa ʻana o kahi keiki i hoʻopuni ʻia e ka ʻohana a me nā hoaaloha e mālama iā lākou e like me ke ʻano maʻamau, aloha iā lākou, a kākoʻo iā lākou no ke olakino noʻonoʻo a me ka hilinaʻi iā ia iho.No laila, he aha nā manaʻo nui e pono ai kākou e lawe mai kēia moʻolelo?
ʻAe, e hoʻomanaʻo kākou i nā mea nui loa mai nā mea a kākou i kamaʻilio ai.- ʻAʻohe mea ʻino ka hapa nui o nā māka hānau, a he nui e mae wale ma o lākou iho. No laila, mai hopohopo pono ʻole.
- ʻAʻole ʻike pinepine ʻia ke kumu o nā māka hānau, a ʻaʻole hiki ke pale ʻia. Mai manaʻo hewa no ia mea.
- ʻElua ʻano nui o nā māka hānau: vascular a me pigmented. I loko o kēlā me kēia ʻano, aia kekahi mau ʻano ʻē aʻe.
- He mea nui loa e hōʻike mua i kēlā me kēia hōʻailona hānau, ʻoiai inā he liʻiliʻi, i ke kauka a e ʻimi i ka ʻōlelo aʻo.
- Pono paha ke mālama ʻia kekahi mau wahi, e like me nā hemangiomas a me nā ʻili waina awa, ʻoiai inā hoʻopilikia lākou i ke ʻano, ka ʻike (inā kokoke i ka maka), ka ʻai ʻana (inā kokoke i ka waha), a i ʻole ka hanu ʻana (inā kokoke i ka ihu).
- Inā he ʻoi aku ma mua o 6 mau wahi café-au-lait iā ʻoe, inā he nui lākou, a inā ʻike ʻoe i kahi loli i ka nui, ke kala, a i ʻole ke ʻano o nā ʻiole hānau ʻia, e hōʻoia e haʻi i ke kauka.
- ʻO ka mea nui loa, ʻo ia ke hāʻawi i kahi keiki me kahi maile hānau i kou aloha, kākoʻo, a me kahi nohona maʻamau a hauʻoli .
Nā Kaha Hānau, ʻIli Pēpē, Nā Kiko ʻIli, Hemangioma, Lapaʻau Laser
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