Ke haʻi koke mai nei kāu keiki iā ʻoe e pili ana i ka ʻike maka pohihihi, ka nalowale o ke kaulike i ka wā e hele ana, a i ʻole ke kani ʻana o nā lālā? I kekahi manawa manaʻo mākou he mau mea maʻamau kēia, akā hiki i kēia ke lilo i mau hōʻailona o kahi maʻi i kapa ʻia ʻo MS , a i ʻole Multiple Sclerosis . Mai makaʻu ke lohe ʻoe i kēia inoa. ʻO ka mea nui loa, ʻo ia ka ʻike piha ʻana e pili ana i ia mea. I kēia lā, e kamaʻilio mākou e pili ana iā MS i nā keiki ma ke ʻano maʻalahi, ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.
He aha wale nō ka MS?
I ka ʻōlelo maʻalahi, ʻo MS i nā keiki he maʻi autoimmune kahi e hoʻouka ai kā lākou ʻōnaehana pale ponoʻī i ko lākou kino ponoʻī . Hoʻopilikia nui ia i ka ʻōnaehana nerve waena o ke keiki, ʻo ia hoʻi ka lolo a me ke kaula spinal.
E noʻonoʻo i ka ʻōnaehana pale o ko kākou kino e like me ka pūʻali koa e pale aku ana i kahi ʻāina. ʻO ka hana a kēia pūʻali koa, ʻo ia ke pale aku iā kākou ma ke kaua ʻana aku i nā ʻenemi e like me nā huakino a me nā maʻi e komo ana i loko o ke kino. Akā, i loko o ke kino o ke keiki me MS, hana kēia pūʻali koa i kahi kuhihewa liʻiliʻi. Manaʻo lākou he ʻenemi ka ʻāpana o ke kino ponoʻī, ka uhi pale a puni nā aʻalolo, a hoʻomaka e hoʻouka iā ia.
Ua kapa ʻia kēia uhi pale he myelin . E like me ka ʻūpā palakiko a puni kahi uea uila, kōkua kēia ʻūpā myelin i nā leka e hele wikiwiki a mālie ma o nā aʻalolo. No laila, ke hōʻino ka ʻōnaehana pale i kēia ʻūpā myelin, ʻaʻole e hele pono nā leka mai ka lolo a i ke koena o ke kino. Ua like ia me kahi kaapuni pōkole i ka wā e wehe ʻia ai ka ʻūpā palakiko ma kahi uea. ʻO kēia ke kumu o nā hōʻailona e like me ka nāwaliwali o nā ʻiʻo, ka luhi, nā pilikia hoʻomanaʻo, ka paʻakikī i ka hele wāwae, a me nā loli o ka ʻike.
ʻO ka mea nui, ʻoiai ʻaʻohe lāʻau lapaʻau piha no MS i kēia manawa, aia nā lāʻau lapaʻau kūpono loa e hiki ke kaohi i nā hōʻailona a kōkua i ke keiki e ola maikaʻi.
Aia kekahi mau ʻano nui o MS i nā keiki?
ʻAe, aia kekahi ʻano nui i ʻike ʻia ma waena o nā keiki.
Ma kahi o 98% o nā keiki he ʻano i kapa ʻia ʻo relapsing-remitting MS . Hōʻike ʻia kēia e nā wā o ka hoʻāla ʻana o nā hōʻailona, a ukali ʻia e nā wā o ka hoʻomaha ʻana.
E noʻonoʻo i kēia ʻano. I kekahi mau pule, paʻakikī paha ke keiki i ka hele wāwae a luhi paha. Akā me ka mālama ʻana, e hoʻomaikaʻi iki ke ʻano. I loko o kekahi mau mahina, hiki ke kū hou mai nā pilikia ʻike. Penei ke ʻano o ka holomua ʻana o ke ʻano, me ka ʻike ʻia ʻana a me ka nalo ʻana o nā hōʻailona.
ʻO ka MS holomua mua kahi ʻano MS i emi iki ka maʻamau i nā keiki. Hōʻike ʻia ia e ka holomua mālie o nā hōʻailona i ka hala ʻana o ka manawa.
He aha nā hōʻailona mua e ʻike ai?
Ke kānalua ke kauka i ka MS, aia kekahi mau hōʻailona mua a lākou e nānā pono ai. He mea nui hoʻi iā ʻoe, ma ke ʻano he makua, e makaʻala i kēia mau mea.
| Nā hōʻailona mua | Ua wehewehe maʻalahi ʻia |
|---|---|
| ʻO ka neuritis maka | ʻIke pōwehiwehi, i kekahi manawa nalowale, me ka ʻeha ma kekahi a i ʻole nā maka ʻelua. ʻAʻole paha e ʻike maopopo ke keiki i nā kala. |
| ʻO ka myelitis transverse | ʻO ka maʻi o ke kaula kuamoʻo (ke kumu aʻalolo i loko o ka iwi kuamoʻo) hiki ke hoʻoulu i ka nāwaliwali, ka mae ʻana, a i ʻole ka nalowale ʻana o ka ʻike ma nā lālā. |
Nā hōʻailona maʻamau ʻē aʻe
Ma waho aʻe o kēia mau hōʻailona mua, hiki ke ʻike ʻia kekahi mau hōʻailona ʻē aʻe.
- ʻO ka ʻeha a i ʻole ke kani ʻana o nā lālā a i ʻole ke kino (Paresthesia)
- Pōʻino
- Ka nalowale ʻana o ke kaulike i ka wā e hele ana a me ka hāʻule ʻana.
- Luhi
- Nāwaliwali o nā ʻiʻo
- Nā haʻalulu
- Ka paʻakikī i ka noʻonoʻo ʻana a me ka hoʻomanaʻo ʻana i nā mea
- ʻIke pālua a ʻike pōwehiwehi paha
E hoʻomanaʻo, ʻaʻole e loaʻa kēia mau hōʻailona a pau i kēlā me kēia keiki. Hiki ke ʻokoʻa kēia mau hōʻailona mai kēlā keiki a kēia keiki. I kekahi manawa, ʻo kahi hōʻailona i loaʻa i kekahi lā, ʻaʻole paha i loaʻa i kekahi lā.
No ke aha e loaʻa ai i nā keiki ka MS? He aha ke kumu?
E like me kā mākou i kūkākūkā ai ma mua, ʻo ke kumu nui o kēia ka demyelination . ʻO kēia ka wā e hōʻino hewa ai ka ʻōnaehana pale i ka ʻūpā myelin pale a puni nā aʻalolo. Hoʻokumu kēia hōʻino i nā 'palapala' liʻiliʻi e hana ma luna o nā aʻalolo. Kapa nā kauka i kēia mau lesions a i ʻole plaques . Hiki ke ʻike ʻia kēia mau mea ma nā scan MRI.
ʻAʻole maopopo i nā kānaka noiʻi ke kumu e hana ai ka ʻōnaehana pale i kēia hewa, akā ua ʻike lākou i kekahi mau mea pilikia e hiki ke kōkua i kēia.
- Ka nele o ka wikamina D: Ua emi ka nui o ka wikamina D i loko o ke kino o ka makuahine i ka wā hāpai.
- Nā maʻi viral: ʻOi aku ka maʻi me ka maʻi Epstein-Barr .
- Ka ʻike ʻia ʻana o ka puhipaka: Ka ʻike ʻia ʻana o ka makuahine i ka uahi lua i ka wā hāpai.
- Momona
He mau mea pilikia wale nō kēia. ʻAʻole nā mea a pau i loaʻa iā lākou e loaʻa iā MS.
Pehea e ʻike pololei ai nā kauka i kēia maʻi?
Hiki i ka ʻike ʻana i ka MS ke lilo i hana paʻakikī no ka mea hiki ke like nā hōʻailona me nā maʻi ʻē aʻe he nui. No laila, e hahai ke kauka i kekahi mau ʻanuʻu e hana i kahi hōʻailona.
ʻO ka mea mua, e nānā pono ʻia ke keiki, a e nīnau ʻia ʻoe a me kāu keiki e pili ana i kā lākou mau hōʻailona. A laila, e hana ʻia kekahi mau hoʻokolohua e kāpae i nā maʻi ʻē aʻe a e ʻike i ka MS.
| Hoʻāʻo | Ua wehewehe maʻalahi ʻia |
|---|---|
| Nā hoʻāʻo koko a me ka mimi | E nānā i nā maʻi a i ʻole nā kūlana ʻē aʻe e hoʻoulu ai i nā hōʻailona like me MS. |
| Nānā MRI | ʻO kēia ka hoʻāʻo koʻikoʻi loa. Hiki iā ia ke ʻike maopopo inā he mau 'lei' a i ʻole ka hōʻino ʻana i ka myelin i loko o ka lolo a me ke kaula spinal. |
| ʻO ke kī ʻana o ka lumbar | Ma kēia, ua hoʻomānoʻino ʻia ka ʻāpana kuamoʻo a ua lawe ʻia kahi liʻiliʻi o ka wai cerebrospinal me kahi nila lahilahi loa a nānā ʻia. I ka MS, hiki ke ʻike ʻia nā protein kūikawā i loko o kēia wai. |
| Nā hoʻokolohua hiki ke hoʻoulu ʻia (EP) | He hoʻāʻo e ana i ka wikiwiki o ka hele ʻana o nā leka uila ma o nā aʻalolo. Hoʻemi ʻia kēia wikiwiki inā ua hōʻino ʻia ka myelin. |
Hiki i kēia kaʻina hana ke lōʻihi i kekahi manawa. Hiki ke lilo i mea hoʻoluhi iki no kou noʻonoʻo. Akā, he mea nui e loaʻa ka ʻike pololei loa a hoʻomaka i ka lāʻau kūpono loa no kāu keiki.
He aha nā lāʻau lapaʻau no MS?
ʻAʻohe lāʻau lapaʻau no MS i kēia manawa. Eia nō naʻe, nui nā lāʻau lapaʻau kūpono e hiki ke kōkua i ka kaohi ʻana i ka maʻi, hoʻēmi i ke alapine o nā hōʻailona, a kōkua i ke keiki e ola i ke ola maʻamau.
- ʻO ka Lapaʻau Hoʻololi i ka Maʻi (DMT): Hana kēia mau lāʻau lapaʻau ma ka hōʻemi ʻana i ka pōʻino o ka ʻōnaehana pale i ka myelin a me ka kaohi ʻana i ka holomua o ka maʻi. ʻO Fingolimod , kahi pila i ʻāpono ʻia e ka FDA no nā keiki ma luna o 10 mau makahiki, hoʻohana ʻia no kēia kumu.
- Nā lāʻau lapaʻau ʻē aʻe: He kōkua nui kēia mau lāʻau lapaʻau i ka hoʻokele ʻana i nā hōʻailona.
- Hoʻōla hana: Kōkua iā ʻoe e hana i nā hana o kēlā me kēia lā me ka maʻalahi.
- Hoʻōla kino: Kōkua i ka hoʻoikaika ʻana i nā ʻiʻo a hōʻemi i nā pilikia hele wāwae.
- Hoʻōla ʻōlelo: Inā he mau pilikia me ka ʻōlelo ʻana a i ʻole ke ale ʻana, e mālama ʻia lākou.
- Ka hoʻāʻo ʻana a me ka lāʻau lapaʻau Neuropsychology: Kōkua i nā pilikia e like me ka hoʻomanaʻo a me ka nānā ʻana.
E hoʻopilikia anei ʻo MS i nā hana kula a kaʻu keiki?
Hiki i kekahi mau keiki me MS ke loaʻa nā pilikia me ka hoʻomanaʻo, ke aʻo ʻana, a me ka nānā ʻana. No laila, he mea nui e kamaʻilio pinepine me nā kumu a kāu keiki e pili ana i kēia. Hoʻāʻo Neuropsychological e ʻike i nā ikaika a me nā nāwaliwali o kāu keikiHe mea pono loa nō hoʻi ia e hana pēlā. Ma o kēia, hiki iā ʻoe ke hāʻawi i ke keiki i ke kākoʻo kūikawā a lākou e pono ai ma ke kula.
Akā ʻo ka mea nui loa , ʻo ka hapa nui o nā keiki me MS e pāʻani me kā lākou mau hoaaloha, aʻo, a hana maʻamau. Hiki iā lākou ke komo i nā hana a pau a nā keiki ʻē aʻe e hana ai. No laila, ʻaʻohe pono e makaʻu nui.
Āhea wau e ʻike ai i ke kauka?
Inā ʻike kāu keiki i kekahi mau hōʻailona e pili ana i ka MS, e like me ka mae ʻana o ka lālā a i ʻole nā loli o ka ʻike, mai hoʻokuʻu iā ia he pilikia liʻiliʻi. He mea nui loa e ʻike koke i ke kauka o kāu keiki a kūkākūkā i kēia me lākou.
ʻO ka wikiwiki o ka ʻike ʻia ʻana o ka maʻi, ʻo ka wikiwiki hoʻi ka hoʻomaka ʻana o ka lāʻau lapaʻau a ʻoi aku ka nui o ka manawa e pale aku ai i nā pilikia lōʻihi.
ʻOiai ma hope o ka hōʻoia ʻana, inā loaʻa i kāu keiki nā hōʻailona hou a i ʻole e ʻoi aʻe ka ʻino o kā lākou mau hōʻailona, pono ʻoe e hoʻomaopopo koke i kāu kauka.
Leka Lawe-Home
- He pilikia ka MS me ka ʻōnaehana pale, ʻaʻole he maʻi lele. No laila, ʻaʻole hiki ke hoʻoili ʻia mai kekahi keiki a i kekahi.
- ʻO ke ʻano maʻamau o ka MS i waena o nā keiki ʻo ia ka relapsing-remitting MS, kahi e hele mai ai a hele aku ai nā hōʻailona.
- Inā hōʻike kāu keiki i nā hōʻailona e like me ka loli ʻana o ka ʻike, ka paʻakikī i ka hele wāwae, a i ʻole ka mae ʻana o ka hanu, mai hoʻowahāwahā iā ia a e ʻimi koke i ke kōkua lapaʻau.
- ʻOiai ʻaʻole hiki ke ho'ōla loa ʻia ʻo MS, hiki i nā lāʻau lapaʻau kūpono ke kaohi i ka maʻi a kōkua i ke keiki e ola i kahi ola ʻeleu a hauʻoli e like me nā keiki ʻē aʻe.
- ʻO ke kākoʻo kūpono a me ka hoʻomaopopo ʻana mai nā mākua, nā kumu, a me nā kauka e hoʻoikaika nui i ka hiki o ke keiki ke hoʻokele i kēia huakaʻi.
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