He ʻōnaehana pale kupaianaha ka ʻōnaehana pale o kou kino. Akā i kekahi manawa hiki i kēia ʻōnaehana ke hana iki i kahi ʻano ʻokoʻa. I kekahi manawa hiki iā ia ke lilo i mea hana nui a hōʻino i ko mākou kino ponoʻī, a i kekahi manawa pono ia i ke kōkua i ka hakakā ʻana i nā ʻenemi e like me nā hunaola kanesa. I ia mau hihia, ke kamaʻilio nei mākou e pili ana i kahi lāʻau lapaʻau kūikawā e kōkua i kā mākou ʻōnaehana pale a kāohi i kāna hana. ʻO ia ka photopheresis.
I ka ʻōlelo maʻalahi, he aha ka photopheresis?
ʻO ka Photopheresis kahi lāʻau lapaʻau e hoʻohana ana i ka mālamalama e hoʻololi i ka hana o kāu mau keʻokeʻo koko, i kapa ʻia ʻo lymphocytes. ʻO kēia mau keʻena, i kapa ʻia ʻo lymphocytes, nā koa nui o kā mākou ʻōnaehana pale. ʻO lākou ka poʻe e luku i nā mea e like me nā keʻena kanesa, nā bacteria, a me nā virus. No laila, inā he pilikia me kēia mau lymphocytes, he mea pono loa ka lāʻau photopheresis.
E noʻonoʻo i kēia ʻano. Lawe lākou i kekahi o kou koko, hoʻokomo i loko o kahi mīkini, a hoʻokaʻawale wale i nā hunaola koko keʻokeʻo i kapa ʻia ʻo lymphocytes. A laila, hoʻohui lākou me kahi lāʻau lapaʻau kūikawā a hōʻike iā ia i ka mālamalama UV, ka mea e hoʻololi ai i ke ʻano o ka hana ʻana o kēlā mau hunaola. ʻO ka hope loa, hoʻihoʻi ʻia kēia mau hunaola i mālama ʻia i loko o kou kino me ke koena o kou koko.
Ma o kēia ʻano hana, hiki iā mākou ke hoʻoikaika i ko mākou ʻōnaehana pale kino, a i ʻole e kāohi iā ia inā hana ia ma ke ʻano makemake ʻole ʻia. I nā huaʻōlelo ʻē aʻe, loaʻa i kēia lāʻau lapaʻau ka hiki ke 'hoʻohuli a hoʻopau' i ka ʻōnaehana pale kino e like me ka mea e pono ai.
He aha nā kūlana e hoʻohana ʻia ai kēia lāʻau lapaʻau?
He ʻano immunotherapy ka Photopheresis. ʻO ia hoʻi, he ʻano ia o ka mālama ʻana i nā maʻi ma ka hoʻohana ʻana i kā mākou ʻōnaehana pale ponoʻī. Nui nā hoʻohana nui no ia.
| Kūlana olakino | He wehewehe maʻalahi |
|---|---|
| ʻO ka lymphoma T-cell ʻili (CTCL) | He ʻano maʻi koko laha ʻole kēia e hoʻopilikia ana i ka ʻili. Ua hoʻolauna mua ʻia ka lāʻau lapaʻau photopheresis ma ke ʻano he lāʻau lapaʻau no kēia maʻi. Ke hoʻokomo hou ʻia nā lymphocytes i mālama ʻia i loko o ke kino, kōkua lākou i ka luku ʻana i nā hunaola maʻi kanesa. |
| ʻO ka maʻi Graft versus Host (GVHD) | Ma hope o kahi mea e like me ke kāpili ʻana o ka iwi iwi, hiki i nā hunaola kumu i loaʻa hou ke hoʻomaka e hoʻouka i kou kino ponoʻī me he mea lā he 'ʻenemi.' Hiki i kēia lāʻau ke hoʻōki a kāohi paha i kēlā hoʻouka kaua makemake ʻole ʻia. |
| Ka hōʻole ʻana i ka hoʻoili kino | Ma hope o kahi hoʻoili kino nui, e like me ka māmā, ke akepaʻa, a i ʻole ka puʻuwai, hiki i ka ʻōnaehana pale o ke kino ke hōʻole i ke kino hou. Kōkua kēia lāʻau i ka pale ʻana i kēlā. |
Nā kūlana olakino ʻē aʻe
Ma waho aʻe o kēia mau kūlana nui, hiki i nā kauka ke ʻōlelo aku i ka photopheresis no kekahi mau kūlana olakino ʻē aʻe.
- ka maʻi o Crohn
- ʻEkikema (ʻEpekema Atopic)
- ʻO ka ʻeha koko
- ʻO Psoriasis, kahi maʻi ʻili
- ʻAno 1 diabetes
Pehea mākou e hoʻomākaukau ai ma mua o ka mālama ʻana?
E wehewehe kāu kauka i kēia iā ʻoe. ʻO ka maʻamau, e noi lākou iā ʻoe e mālama i kēia mau mea ma mua o ka mālama ʻana.
- E inu i ka wai nui: E inu ma ka liʻiliʻi he 8 mau aniani wai i ka lā no ʻelua lā ma mua o ka mālama ʻana. E kōkua kēia i kou kahe koko maikaʻi ʻana, e maʻalahi ai ke huki koko i ka wā o ka mālama ʻana.
- E hōʻalo i ka caffeine a me ka waiʻona: Hiki i nā mea e like me ke kī, ke kofe, a me ka waiʻona ke hoʻomaloʻo i ke kino, kahi e hoʻolohi ai i ke kahe o ke koko.
- E hōʻalo i nā meaʻai momona: Ke ʻai ʻoe i nā meaʻai momona kiʻekiʻe, e like me nā meaʻai palai a me nā mea ʻono, hiki ke paʻakikī iki no ka mīkini e hoʻokaʻawale i nā hunaola koko keʻokeʻo mai ke koko e hana i kāna hana.
Pehea e hana ai kēia lāʻau lapaʻau?
Hana ʻia kēia kaʻina holoʻokoʻa ʻoiai ʻoe e moe ʻoluʻolu ana ma luna o kahi moe. He hana ʻeha ʻole ia.
1. Ka huki koko: E huki ke kahu maʻi a kauka paha i ke koko mai kahi aa koko ma kou lima a i ʻole ma o kahi paipu kūikawā (catheter) i kau ʻia ma kou umauma. Inā pono, hiki ke hoʻopili ʻia kahi kirīmi hoʻomāʻū i ka wahi e pale ai i ka ʻeha.
2. Ka hoʻokaʻawale ʻana o nā pūnaewele:Hoʻokomo pololei ke koko āu e lawe ai i loko o kahi mīkini kūikawā. Hoʻokaʻawale kēia mīkini i nā hunaola koko keʻokeʻo i kapa ʻia he lymphocytes mai nā hunaola koko ʻulaʻula a me nā platelets i loko o kou koko.
3. Hoʻohui i ka lāʻau lapaʻau: Hoʻohui ʻia kahi lāʻau lapaʻau palekana i kapa ʻia ʻo `8-methoxypsoralen (8-MOP)` i nā hunaola koko keʻokeʻo i hoʻokaʻawale ʻia. Hana wale kēia lāʻau lapaʻau ke hōʻike ʻia i ka mālamalama.
4. Hoʻōla kukui: I kēia manawa, ua hōʻike ʻia nā hunaola koko keʻokeʻo me kēia lāʻau lapaʻau i ka mālamalama ultraviolet A (kukui UVA) i loko o ka mīkini. A laila, hoʻomaka ka lāʻau lapaʻau a hoʻololi i ka hana o nā hunaola koko keʻokeʻo.
5. Hoʻokomo hou ʻia: ʻO ka mea hope loa, ua hoʻokomo hou ʻia nā hunaola koko keʻokeʻo i mālama ʻia ma kēia ʻano i loko o kou kino, me nā ʻāpana koko ʻē aʻe i hoʻokaʻawale mua ʻia.
Hiki i kēia kaʻina holoʻokoʻa ke hala ma kahi o 3-4 mau hola.
He aha nā hopena ʻaoʻao a me nā mea e pono ai mākou e makaʻala?
Ua manaʻo ʻia ka photopheresis he lāʻau palekana loa , a ʻaʻole ʻike ka hapa nui o ka poʻe i nā hopena ʻaoʻao.
Eia nō naʻe, i kekahi manawa hiki ke hana ʻia nā mea liʻiliʻi.
- Hiki ke emi iki kou koko i ka wā o ka mālama ʻana. Inā hana ʻia kēia, hiki ke hāʻawi ʻia iā ʻoe nā wai intravenous e hoʻihoʻi iā ia i ka maʻamau.
- Hiki paha iā ʻoe ke manaʻo i ka luaʻi, ka puni, a i ʻole ke anu, e like me ka wā e hāʻawi koko ai. Inā manaʻo ʻoe i kēia, e haʻi koke aku i ke kahu maʻi.
- Hiki paha iā ʻoe ke ʻulaʻula, poniuniu, a i ʻole ke kuni 6-8 mau hola ma hope o ka mālama ʻana. Inā ʻoi aku ke kiʻekiʻe o kou kuni ma mua o 37.8 degere Celsius (100 degere Fahrenheit), e haʻi i kāu kauka. Hiki iā ia ke ʻōlelo aku e lawe i kahi lāʻau lapaʻau e like me ka paracetamol.
Nā mea e pono ai mākou e makaʻala nui ma hope o ka mālama ʻana
He mea nui loa kēia. ʻO ka mālama ʻana i ka photopheresis e hoʻolilo i kou ʻili a me kou mau maka i mea maʻalahi loa i ka lā.
E pale i ka hoʻopili ʻana i ka lā pololei a me ka lā ʻaʻole pololei no 24 mau hola ma hope o ka mālama ʻana. ʻO ka lā ʻaʻole pololei ka mālamalama e puka mai ana mai ka puka makani a i ʻole ka pale.
- Inā ʻoe e hele i waho, e ʻaʻahu i nā lole e uhi ana i kou kino holoʻokoʻa. E hoʻohana i kahi pale lā me ka SPF o 30 a ʻoi aku paha.
- E ʻaʻahu i nā aniani lā e pale ai i nā kukuna UVA, ma loko a ma waho hoʻi, no 24 mau hola. ʻOi aku ka maikaʻi o nā aniani lā "wraparound" e uhi ana i nā maka ʻelua.
ʻEhia ka lōʻihi e ʻike ai i nā hopena?
E loli kēia ma muli o kou kūlana a me ka nui o nā lāʻau lapaʻau. ʻIke kekahi poʻe i kahi hoʻomaikaʻi koʻikoʻi i ko lākou mau hōʻailona i loko o 3-4 mau mahina. No kekahi mau kūlana (e like me ka scleroderma), hiki ke hala i 6-12 mau mahina no ka hoʻomaikaʻi ʻana o nā hōʻailona. No laila, he mea nui ke ahonui me kēia lāʻau lapaʻau. E nīnau i kāu kauka e pili ana i ka manawa hiki iā ʻoe ke manaʻo e ʻike i nā hopena ma muli o kou kūlana.
Leka Lawe-Home
- He lāʻau palekana ka Photopheresis e hoʻohana ana i ka mālamalama e mālama i kāu mau hunaola koko keʻokeʻo ponoʻī a kaohi i ka hana o ka ʻōnaehana pale.
- Hoʻohana nui ʻia kēia no nā mea e like me ke kanesa CTCL, nā kūlana GVHD, a me ka pale ʻana i ka hōʻole ʻia ma hope o nā hoʻoili kino.
- ʻAʻohe ʻeha o ka lāʻau lapaʻau, akā he mea pono ka pale ʻana i ka lā no 24 mau hola ma hope o ka lāʻau lapaʻau.
- Hiki ke lōʻihi ka manawa e ʻike ai i nā hopena, no laila he mea nui e hoʻomanawanui a e ʻimi i ka lāʻau lapaʻau.
- E kamaʻilio ākea me kāu kauka e pili ana i nā pilikia, nā makaʻu, a i ʻole nā kānalua āu e pili ana i kēia mea.
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