Loaʻa i kekahi mea kokoke iā ʻoe kēia mau loli? E aʻo kākou e pili ana i ka maʻi ʻo Pick

Hoʻopūʻiwa pinepine mākou i ka ʻike ʻana i nā loli i manaʻo ʻole ʻia i ke ʻano a me ka ʻōlelo a kekahi o kā mākou poʻe aloha, ʻeā? I kēia lā, e kamaʻilio mākou e pili ana i kahi maʻi olakino paha ke kumu o ia mau loli. ʻOiai he kumuhana paʻakikī kēia, e hoʻāʻo kākou e hoʻomaopopo maʻalahi.

He aha ka maʻi ʻo Pick? Pehea ka ʻokoʻa o ia mai ka maʻi Niemann-Pick?

I ka ʻōlelo maʻalahi, ʻo ka Maʻi ʻo Pick kahi maʻi e hoʻopilikia ai i ka lolo, e pepehi mālie ana i nā cell. He ʻano dementia ia i kapa ʻia ʻo frontotemporal dementia (FTD) . ʻIke pinepine ʻia ia i nā poʻe ma lalo o 65 mau makahiki. I ka wā ma mua, ua kapa ʻia ʻo frontotemporal dementia ʻo Pick's disease. Akā i kēia manawa, hoʻohana wale nā ​​​​kauka i kēia inoa i nā hihia kahi i hoʻokō ʻia ai kekahi mau kūlana.

I kēia manawa, ke noʻonoʻo nei paha ʻoe, "ʻĀ... ua like anei ka maʻi o Pick me ka maʻi Niemann-Pick?" ʻAʻole, he ʻelua mau maʻi ʻokoʻa loa lāua. ʻOiai ua like ka ʻāpana "Pick" o ka inoa, ʻaʻole pili nā maʻi ʻelua.

• ʻO ka maʻi o Pick: Ua kapa ʻia ʻo ia ma hope o Arnold Pick, he loea neurologist Czech a he psychiatrist nāna i ʻike mua i ka maʻi i ka makahiki 1892. He ʻano dementia frontotemporal (FTD) ia, ʻo ia hoʻi, hoʻopilikia wale ia i kou lolo.
• ʻO ka maʻi Niemann-Pick: I kapa ʻia ma hope o ʻelua mau kauka Kelemania, ʻo Albert Niemann lāua ʻo Ludwig Pick, ua ʻike ʻia kēia maʻi e ka hōʻiliʻili ʻana o nā lipids i loko o ke kino a me kahi maʻi i ke ʻano o ko lākou kāohi ʻia ʻana. Ke hōʻiliʻili ʻia nā lipids, hiki iā lākou ke hoʻopilikia i nā ʻōpū he nui, me ka lolo, ke akepaʻa, ka spleen, ka iwi iwi, a me nā māmā.

Maopopo iā ʻoe ka ʻokoʻa? ʻO kekahi mea i kaupalena ʻia i ka lolo, a ʻo kekahi mea e hoʻopilikia i nā ʻāpana like ʻole o ke kino.

ʻO wai ka mea i loaʻa i kēia maʻi? Pehea ka maʻamau?

ʻIke pinepine ʻia ka maʻi ʻo Pick i ka wā ʻōpiopio ma mua o nā kūlana ʻē aʻe e like me ka dementia. ʻIke pinepine ʻia ia i nā poʻe i ko lākou mau makahiki 50 a me 60. Eia nō naʻe, hiki ke loaʻa i kekahi manawa i nā poʻe ʻōpio he 20 a i ʻole 80 mau makahiki.

Aia kekahi mau hōʻike e hiki ke holo ka maʻi i loko o nā ʻohana. Ua ʻike nā kānaka noiʻi ma ka liʻiliʻi he ʻekolu mau hoʻololi gene e pili ana me ia. Eia nō naʻe, i ka hapanui o nā hihia, he sporadic ka maʻi. ʻO ia hoʻi, hiki i kekahi ke loaʻa iā ia me ka ʻole o ka mōʻaukala ʻohana.

He mea paʻakikī ke ʻōlelo pololei i ka nui o kēia maʻi. Manaʻo nā loea aia ma waena o 15 a me 22 mau hihia no 100,000 poʻe. Eia nō naʻe, aia nā kānalua e pili ana i ka pololei o kēia mau helu helu, no ka mea, he mea paʻakikī loa ka ʻike ʻana i ka maʻi i ke ola, a i kekahi manawa ma hope o ka make ʻana, he mea paʻakikī ke ʻike. No laila, ʻoi aku paha ka nui o nā maʻi.

Pehea ka hopena o ka maʻi ʻo Pick i ke kino?

He maʻi neurodegenerative ka maʻi Pick, he ʻano dementia i kapa ʻia ʻo frontotemporal dementia (FTD). I ka ʻōlelo maʻalahi, e pau mālie ana ka hana ʻana o nā nerve cell (neurons) i loko o ka lolo. Hoʻomaka ka emi ʻana o nā ʻāpana i hoʻopilikia ʻia o ka lolo (atrophy). A laila, nalowale nā ​​​​​​mana i hoʻohana ʻia e kēlā mau ʻāpana e kaohi. ʻOiai he mau ʻano like me ka maʻi Alzheimer, hoʻomaka pinepine ka maʻi Pick i ka wā ʻōpio, a he nui nā ʻokoʻa koʻikoʻi.

Ma muli o ka hoʻopilikia ʻana o ka Maʻi ʻo Pick i kekahi mau ʻāpana o ka lolo wale nō, ʻo nā hōʻailona nui he mau loli i ke ʻano a i ʻole nā ​​mākau ʻōlelo . I ka manawa pinepine, ʻaʻole hiki i ka poʻe me ka Maʻi ʻo Pick ke ʻike he pilikia a maʻi paha ko lākou. ʻO kēia no ka mea ʻaʻole hiki i ko lākou lolo ke hana i ka ʻike e pili ana i ko lākou maʻi. Ua kapa ʻia kēia ʻo "nele i ka ʻike."

He aha nā hōʻailona o ka maʻi ʻo Pick?

ʻIke ʻia ka maʻi ʻo Pick i ʻelua ʻano nui: ʻo kekahi ka behavioral variant frontotemporal dementia (bvFTD) , a ʻo kekahi ka primary progressive aphasia (PPA), ka mea e hoʻopilikia ai i nā ʻāpana o ka lolo e pili ana i ka ʻōlelo.

ʻO ke ʻano o ka dementia frontotemporal ʻano like ʻole (bvFTD)

Hiki ke puʻunaue ʻia nā hōʻailona o kēia kūlana bvFTD i ʻeono mau ʻāpana nui:

• Ka nalowale ʻana o nā kāohi: ʻO "Inhibition" ka ʻāpana o ka lolo e haʻi mai iā mākou "mai hana i kēia." Ke hōʻino ʻia kēia mau ʻāpana, ʻaʻole hiki iā mākou ke pale iā mākou iho mai ka ʻōlelo ʻana a i ʻole ka hana ʻana i nā mea kūpono ʻole.
• ʻAʻohe "kānana" no ka mea i ʻōlelo ʻia: ʻO ka ʻōlelo ʻana i ka mea ma kou manaʻo, i kekahi manawa ma ke ʻano e hōʻeha ai i nā poʻe ʻē aʻe, he mea hōʻino, a kūpono ʻole paha. Eia kekahi laʻana, hōʻino koke i kekahi ma kahi ʻaha ʻohana.
• Ka nele i ka mahalo i nā poʻe ʻē aʻe: ʻAʻole paha lākou e mahalo i ka pilikino o haʻi, e hoʻopā aku paha iā lākou me ka makemake ʻole, e hoʻāʻo paha e hana ma ke ʻano kūpono ʻole i ka moekolohe, a hiki koke ke huhū a hoʻonāukiuki paha.
• Nā hana a me nā ʻano hana hoʻowahāwahā: Hiki i kēia ke komo pū me ka hoʻolilo kālā me ke kuleana ʻole, a malia paha i ka ʻaihue hale kūʻai.

• ʻAʻohe manaʻo: Me he mea lā he kaumaha kēia, akā he ʻokoʻa iki.
• Ka nalowale o ka hoihoi i kekahi mea: Ka nalowale o ka hoihoi i nā mea āu i hauʻoli ai (nā hana leʻaleʻa, ka hoʻolilo manawa me nā hoaaloha).
• Ka haʻalele ʻana i ka nohona: Ke pale ʻana i ka noho pū ʻana me nā hoaaloha a me ka ʻohana.
• Ka emi ʻana o ka mālama ponoʻī: Ka nalowale o ka hoihoi i ka ʻauʻau ʻana, ka hoʻololi ʻana i nā lole, a me ka noho maʻemaʻe.

• Ka nalowale o ke aloha:Ua kapa ʻia kēia ʻo "emotional blunting." Lilo i mea paʻakikī ke hoʻomaopopo i nā manaʻo o haʻi. ʻAʻole lākou e hōʻike i ke kākoʻo i nā kaumaha a me nā hauʻoli o haʻi e like me ka wā ma mua.

• Nā hana hoʻokaumaha: Hōʻike nā poʻe me kēia maʻi i nā ʻano hana ʻokoʻa loa mai nā poʻe ʻē aʻe.
• Nā neʻe hou: Hana pinepine i nā neʻe liʻiliʻi, e like me ke paʻi lima ʻana, ke hehi ʻana i nā wāwae, a me ka hele wāwae ʻana i mua a i mua.
• Nā ʻano hana paʻakikī a hoʻomana paha: ke nānā ʻana i nā kiʻiʻoniʻoni like i nā manawa he nui, ka heluhelu ʻana i nā puke like, ka hōʻiliʻili ʻana i nā ʻano mea like. Hoʻokomo pū kēia i ka hōʻiliʻili ʻana.
• Hana hou ʻana: Ke hana hou ʻana i nā leo like, nā huaʻōlelo, a me nā ʻōlelo like i nā manawa he nui.

• Nā loli i ka ʻai a i ʻole nā ​​​​ʻano hana e kau ana ma ka waha: Hiki i ka poʻe me kēia maʻi ke loaʻa i kahi kūlana i kapa ʻia ʻo "hyperorality," he hoihoi maʻamau ia i nā mea e pili ana i ka waha.
• Nā loli i nā ʻano ʻai: Makemake nui ka poʻe e ʻai nui i kā lākou meaʻai punahele, ʻoiai nā meaʻai māmā, nā mea ʻono, a me ka waiʻona. Hiki i kēia ke alakaʻi i ka piʻi ʻana o ke kaumaha.
• Nā ʻano waha hoʻokaumaha: Puhi paka hoʻokaumaha, ʻai nui ʻana, a pēlā aku. Eia kekahi, ka ʻimi waha. ʻOiai he mea maʻamau kēia no nā keiki ʻōpio e hana ai i ko lākou ʻimi ʻana i ke ao nei, he mea maʻamau ʻole ia no nā pākeke ke hana ia mea.
• Pica: ʻO kēia ka ʻai ʻana i nā mea ʻai ʻole a maikaʻi ʻole (nā ʻāpana kālā, ka lepo, nā ʻiliʻili).

• Ka nalowale ʻana o ka hana hoʻokō akā ʻaʻohe ona hiki ʻē aʻe: ʻO ka "hana hoʻokō" e pili ana i ka hiki ke hoʻolālā i ka lā, hoʻoponopono i nā pilikia, a hoʻopau i nā mea. ʻOiai ua pilikia kēia mau hiki i ka poʻe me kēia maʻi, ʻaʻole i hoʻopilikia nui ʻia nā hiki ʻē aʻe, e like me ka hoʻomanaʻo a me ka hana ʻana i ka ʻike, i nā pae mua. He hiʻohiʻona koʻikoʻi kēia e hoʻokaʻawale ai i ka dementia frontotemporal mai ka maʻi Alzheimer.

ʻO ka Aphasia Holomua Mua (PPA)

Hiki ke hana ʻia ka PPA e ka maʻi o Pick. ʻO kēia ke kumu o ka nalowale mālie o nā mākau ʻōlelo, e like me ka hiki ke ʻōlelo a hoʻomaopopo i ka mea a haʻi e ʻōlelo nei. ʻOiai he ʻekolu mau ʻano nui o ka PPA, ʻelua mau ʻano nui e hiki ke pili me ka maʻi o Pick:

• ʻO ka Nonfluent variant PPA (nfvPPA): Ma kēia ʻano, he paʻakikī ke hoʻohālikelike i nā huaʻōlelo a hoʻohana i ka grammar pololei. ʻOiai hiki ke hoʻomaopopo ʻia nā huaʻōlelo hoʻokahi a me nā ʻōlelo maʻalahi, he paʻakikī ke hoʻomaopopo ʻana i nā ʻōlelo paʻakikī.
• PPA ʻano semantic (svPPA):He paʻakikī i kēia ʻano ke koho i ka huaʻōlelo kūpono a i ʻole ka hoʻomaopopo ʻana i ke ʻano o nā huaʻōlelo. ʻAʻole paha e kūpono kekahi mau mea i ʻōlelo ʻia, a he paʻakikī ke hoʻomaopopo i ka mea a haʻi e ʻōlelo nei. Aia paha he mau pilikia i ka heluhelu ʻana a me ke kākau ʻana, akā hiki iā lākou ke hana hou i ka mea a haʻi e ʻōlelo nei ma ke ʻano like.

E noʻonoʻo, ua lilo koke kou makuakāne i mea ʻokoʻa mai ke kanaka ma mua, hoʻohewa i nā mea a pau, hoʻolilo kālā me ka hoʻowahāwahā, a humuhumu paha i ke mele hoʻokahi i ka lā a pau. A i ʻole, ke kamaʻilio ʻoe me ia, ua huikau kāna mau ʻōlelo, a manaʻo ʻo ia ʻaʻole maopopo iā ia kāu e ʻōlelo nei. He mau laʻana kēia o nā mea a mākou i kamaʻilio ai.

He aha ke kumu o kēia maʻi? He mea laha paha ia?

ʻO ka maʻi ʻo Pick kahi ʻano o ka dementia frontotemporal (FTD) nona ke kumu kikoʻī loa. Loaʻa i ko mākou lolo a me nā hunaola nerve kahi protein kūikawā i kapa ʻia ʻo tau . Pono kēia mau protein i kahi ʻano kikoʻī, a i ʻole ʻaʻole lākou e hana pono.

Ke hana hewa nā protein tau, hui pū, a hōʻiliʻili i loko o nā neurons, ua hōʻino ʻia a luku ʻia kēlā mau cell. Ua kapa ʻia nā neurons i hōʻino ʻia ʻo "Pick cells." Lilo lākou i pehu a ʻano baluna. ʻO nā puʻupuʻu o nā protein tau i hui pū ʻia i loko o nā cell ua kapa ʻia ʻo "Pick bodies." Hiki ke ʻike ʻia kēia mau mea ma lalo o kahi microscope. ʻO ka mea nui, ʻaʻole ʻike ʻia kēia mau cell Pick a me nā kino Pick i kekahi maʻi ʻē aʻe.

He mea pohihihi nō ke kumu o ka hana hewa ʻana o kēia mau protein tau. ʻOiai ua hoʻopili nā kānaka noiʻi i kekahi mau hoʻololi genetic i kēia, i ka hapanui o nā hihia, ʻaʻole hoʻoilina ka maʻi.

ʻAʻole laha kēia maʻi. ʻAʻole ia e laha mai kekahi kanaka a i kekahi kanaka. ʻOiai aia kahi hiki ke hoʻoili ʻia ma o nā hanauna, ʻaʻole ia e hana ma ka hapa nui o nā hihia.

Pehea e ʻike ʻia ai ka maʻi ʻo Pick? He aha nā hoʻokolohua e hana ʻia?

Hiki i nā kauka ke ʻike i ka dementia frontotemporal (FTD) ma o nā hoʻokolohua kino a me ka neurological, nā hoʻokolohua diagnostic a me nā kiʻi, a hiki i nā hopena ke hoʻoholo inā he FTD behavioral a i ʻole kahi ʻano o PPA.

Eia nō naʻe, ʻo ke ala wale nō e ʻike pono ai inā paha i hoʻokumu ʻia ka dementia frontotemporal (FTD) o kekahi e ka maʻi ʻo Pick, ʻo ia ke nānā ʻana i nā kino Pick a me nā pūnaewele Pick i loko o ko lākou ʻiʻo lolo. Hiki ke ʻike ʻia kēia ma ka nānā ʻana i kahi hāpana o ka ʻiʻo lolo ma lalo o kahi microscope. ʻO ke ʻano kēia , hiki ke ʻike maopopo ʻia ka maʻi ʻo Pick ma hope o ka make ʻana o kekahi, ma kahi autopsy.

Hiki ke hana i nā hoʻokolohua e like me kēia e ʻike ai i ka FTD:

• Nā hoʻāʻo koko: Ke nānā nei kēia i nā māka kemika i kapa ʻia ʻo "biomarkers" hiki ke kōkua i ka ʻike ʻana i kekahi mau maʻi.
• Nā hoʻāʻo wai Cerebrospinal:Hana ʻia kēia ma ka lawe ʻana i ke wai mai ka iwi kuamoʻo (spinal tap / lumbar puncture).
• CT scan (tomography kamepiula - CT scan)
• EEG (Electroencephalogram)
• Hoʻāʻo ʻana i ka genetics
• MRI scan (kiʻi resonance magnetic - MRI)
• Nānā PET (Positron emission tomography - nānā PET)

Aia kekahi lāʻau lapaʻau no ka maʻi ʻo Pick? Hiki ke ho'ōla ʻia?

ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau, lāʻau lapaʻau, a pale paha no ka maʻi ʻo Pick. Hiki i nā kauka ke kuhikuhi i nā lāʻau lapaʻau e kōkua i ka hoʻokele ʻana i nā hōʻailona e like me ke kaumaha, ka manaʻo ʻole, a me ke ʻano huhū. Eia nō naʻe, no ka mea he ʻokoʻa kēia mau lāʻau lapaʻau mai kēlā kanaka a kēia kanaka, ʻo kāu kauka ke kanaka maikaʻi loa e kamaʻilio pū ai.

Hiki ke hoʻemi ʻia ka pilikia o ka loaʻa ʻana o kēia maʻi?

Hiki mai ka maʻi ʻo Pick ma nā ʻano i manaʻo ʻole ʻia a ʻike ʻole ʻia. No laila, ʻaʻohe ala e pale aku ai a hōʻemi paha i ka pilikia o ka loaʻa ʻana.

He aha ke ʻano o ka wā e hiki mai ana e hiki i kekahi me kēia maʻi ke manaʻo?

Ma nā ʻano FTD āpau, me ka maʻi ʻo Pick, e hōʻino mālie ana ka lolo. I kona hana ʻana, nalowale nā ​​​​ʻāpana o ka lolo i hoʻopilikia ʻia i ko lākou hiki ke hana. I ka maʻi ʻo Pick, hoʻopilikia pinepine kēia i nā ʻāpana o ka lolo e kaohi ana i ke ʻano a i ʻole nā ​​​​ʻāpana o ka lolo e hoʻonohonoho i ka ʻōlelo a me ka hiki ke hoʻomaopopo i ka mea a haʻi e ʻōlelo nei.

Hiki paha iā ʻoe ke nalowale i ka ʻike i kou kūlana. ʻO ia hoʻi, hiki paha iā ʻoe ke nalowale i ka hiki ke hoʻomaopopo i nā hōʻailona a me nā mea e hana nei iā ʻoe ma muli o kēia maʻi.

ʻO ka poʻe me ka dementia frontotemporal (FTD) e nalowale mālie ana ko lākou hiki ke noho kūʻokoʻa. I ka holomua ʻana o ka maʻi, pono paha lākou i ka mālama 24-hola mai nā mea aloha a i ʻole nā ​​​​​​mea akamai i aʻo ʻia. Pono paha kēia i ka mālama lōʻihi.

Hiki i ka poʻe me FTD ke paʻakikī i ka ale ʻana (dysphagia) , kahi e paʻakikī ai ka ʻai ʻana, ka inu ʻana, a me ka ʻōlelo ʻana. Hoʻonui kēia i ka pilikia o ka loaʻa ʻana o nā maʻi e like me ka pneumonia a i ʻole ka hāʻule ʻana o ka hanu.

ʻO nā ʻano FTD āpau, me ka maʻi ʻo Pick, he mau maʻi no ke ola holoʻokoʻa. He koʻikoʻi ka maʻi, e luku mālie ana i nā ʻāpana nui o ka lolo. Hiki i nā pilikia ke koʻikoʻi a hiki i ka make. No ka mea, ʻokoʻa ke ola o ke kanaka mai kēlā kanaka a kēia kanaka, he paʻakikī ke ʻōlelo pololei pehea e pili ai ka maʻi iā ʻoe a pehea ka lōʻihi o kona mau ʻana. Hiki i kāu kauka (a i ʻole ke kauka e mālama nei i kāu mea aloha) ke haʻi hou aku iā ʻoe e pili ana i kēia.

Pehea lā e hiki ai iā ʻoe ke hoʻohana i kou makemake inā ʻaʻole hiki iā ʻoe ke hoʻoholo nou iho?

Inā ua ʻike ʻia ʻoe me ka frontotemporal dementia (FTD) i kona wā mua, he mea nui e kamaʻilio me kāu kauka, kou ʻohana a i ʻole nā ​​mea aloha, a me ka poʻe āu e hilinaʻi nei e hiki ke hana i nā hoʻoholo koʻikoʻi nou i ka wā hikiwawe loa. He mea paʻakikī paha kēia kamaʻilio ʻana, akā ʻo ke kamaʻilio ʻana e pili ana i kēia mau mea i ka wā mua ma mua o ka wā ma hope e kōkua i kāu poʻe aloha e ʻike i kāu mau makemake inā ʻaʻole hiki iā ʻoe ke kamaʻilio e pili ana i kāu mau hana a i ʻole e hoʻoholo.

Ma waho aʻe o kēlā kamaʻilio ʻana, he mea nui hoʻi e kākau i kāu mau makemake a me nā hoʻoholo. Inā ʻaʻole hiki iā ʻoe ke mālama iā ʻoe iho, a inā ʻaʻole hiki iā ʻoe ke hoʻoholo e pili ana i kāu mālama a i ʻole ka pono, e noʻonoʻo e hoʻomākaukau i nā palapala kānāwai. Hiki iā ʻoe ke loaʻa ke kōkua mai kahi loio e hoʻomākaukau i kēia mau palapala, akā hiki iā ʻoe ke hoʻomākaukau i kekahi o lākou iā ʻoe iho (ma muli o ke kānāwai ma kou wahi, pono paha lākou i ka ʻae ʻia e kahi notary a i ʻole kekahi luna ʻē aʻe).

He aha kāu e hana ai inā hōʻike kekahi kokoke iā ʻoe i kēia mau hōʻailona?

ʻAʻole pinepine ka poʻe me FTD i ka ʻike i ko lākou mau hōʻailona a i ʻole ke kūlana. No ka mea, ʻaʻole lākou i ʻike he pilikia ko lākou, ʻaʻole lākou i manaʻoʻiʻo he pono lākou i ke kōkua lapaʻau. Hiki i kēia nele o ka hoʻomaopopo ʻana ke hoʻonāukiuki a hoʻoweliweli i ka mea me nā hōʻailona a me ka poʻe kokoke loa iā lākou.

Inā hōʻike kekahi mea kokoke iā ʻoe i nā hōʻailona o FTD a i ʻole ke ʻano like, hiki iā ʻoe ke hoʻāʻo e kōkua ma kēia mau ʻano:

• E nīnau pehea ʻoe e hiki ai ke kōkua: ʻOiai ke hōʻike nei ka poʻe me FTD i nā hōʻailona, ​​ʻaʻole paha lākou e ʻike he mau hōʻailona kēia o kahi pilikia lolo koʻikoʻi. Ma ka hoʻolohe ʻana iā lākou, e hāʻawi ana i kāu kākoʻo, hiki iā lākou ke pili i ka poʻe a lākou e hilinaʻi ai, a loaʻa paha iā lākou ka hoʻoikaika e pono ai lākou e ʻike i ke kauka.
• E paipai iā lākou e ʻimi i ke kōkua: ʻOiai ʻo ka dementia frontotemporal (FTD) kahi maʻi i loaʻa ʻole ka lāʻau lapaʻau a i ʻole ka lāʻau lapaʻau, aia nā ala e mālama ai a hoʻokele i kekahi o nā hōʻailona. Hiki i kēia mau hana ke hele i kahi lōʻihi i ka hoʻomaikaʻi ʻana i ke ʻano o ke ola no kekahi me ke ʻano. Hiki i ka ʻike ʻana i ke kauka ke kōkua i kahi mea me FTD e loaʻa kahi hōʻailona. Hiki i ka mālama kūikawā ke hāʻawi i ka hōʻoluʻolu mai kekahi o nā hōʻailona ʻoluʻolu ʻole no ka poʻe me ke ʻano a me ko lākou mau ʻohana.
• E noho mālie a mai lawe pilikino i nā mea: ʻO ka poʻe me FTD ʻaʻohe o lākou mana ma luna o kā lākou mea e ʻōlelo ai a hana paha. Me he mea lā e hoʻāʻo nei lākou e hoʻonāukiuki, hoʻohilahila, a hōʻeha paha i nā poʻe ʻē aʻe, akā he pilikia olakino maoli nō ia.
• Mai makaʻu e noi i ke kōkua: Hiki ke paʻakikī loa ka mālama ʻana i kahi mea me FTD, ʻoiai ke ʻoi aku ka ʻino o ke kūlana i ka hala ʻana o ka manawa. Mai makaʻu e noi i ke kōkua a i ʻole nā ​​​​kumuwaiwai. Nui nā keʻena aupuni a pilikino e hāʻawi i nā ʻōnaehana kākoʻo a me nā lawelawe, e like me ka mālama keiki makua, ka mālama hoʻomaha, a me ka mālama kahu ma ka home.
• ʻO ka mālama lōʻihi paha ke koho maikaʻi loa: No nā mea he nui, ʻo ka mālama ʻana i kahi mea aloha me FTD hiki ke manaʻo ʻia he hana manawa piha. ʻAʻole hiki i nā kānaka a pau ke hoʻolaʻa i kēlā manawa a i ʻole ka hoʻoikaika ʻana i ka mālama ʻana i kahi mea aloha. No laila, he mea nui e noʻonoʻo inā pono kāu mea aloha i ka mālama ʻana ma kahi hale mālama lōʻihi me nā hale hānai akamai. ʻOiai he hoʻoholo paʻakikī paha kēia e hana ai, ʻo ia ʻano mālama paha ke ala maikaʻi loa e hōʻoia ai ua palekana lākou, ʻoluʻolu, a me nā mea mālama i aʻo ʻia a mākaukau.

ʻO ka mea hope loa, leka lawe i ka home

ʻO ka maʻi ʻo Pick kahi maʻi i kapa ʻia ʻo frontotemporal dementia (FTD), ʻo ia hoʻi ke ʻano o ka dementia e hōʻino mālie i ka lolo i ka wā ʻōpiopio ma mua o nā maʻi lolo ʻē aʻe e pili ana i ka makahiki. Hoʻopilikia pū ka FTD i nā ʻāpana o ka lolo e kōkua i ke kanaka e hoʻomaopopo i ke kūpono a me ka kūpono ʻole o kā lākou ʻano. Hiki i kēia ke hoʻoulu i ka huhū, nā kuhi hewa, a me nā mea hoʻopilikia koʻikoʻi ʻē aʻe i ke ola o nā mea āpau e pili ana. ʻOiai hiki ke mālama ʻia kekahi mau hōʻailona, ​​ʻaʻohe lāʻau e hiki ke hoʻohuli i ka maʻi ponoʻī, a ʻo ka poʻe me ke ʻano e pono pinepine i ka mālama mau, 24 hola.

Inā ʻoe a i ʻole kekahi mea kokoke iā ʻoe e ʻike nei i kēia mau hōʻailona, ​​ʻo ka mea maikaʻi loa e hana ai, ʻo ia ke ʻimi i ke kōkua lapaʻau. E hoʻomanaʻo, ʻaʻole ʻoe hoʻokahi, a aia nā wahi e loaʻa ai ke kōkua.

ʻO ka maʻi o Pick, Frontotemporal Dementia, Dementia, Maʻi lolo, Neurodegenerative, Tau Protein, Nā loli o ke ʻano