He mea maʻalahi ka hanu ʻana a me ka hoʻokuʻu ʻana i waho, he mau mea kūlohelohe ia e hiki mai ana iā kākou. Akā i kekahi manawa, hoʻopilikia ʻia kākou e nā mea e like me ke kuni mau, ka wheezing, a me ka ʻū ʻana o ka umauma. Hiki i kēia ke lilo i mau hōʻailona o kahi maʻi māmā laha ʻole i ʻoi aku ka koʻikoʻi ma mua o ke anu maʻamau, akā ʻaʻole i lohe ka poʻe he nui. Kākaʻikahi kēia mau mea i kamaʻilio ʻia. No laila, i kēia lā ke kamaʻilio nei mākou e pili ana i nā maʻi māmā laha ʻole e pono ai kākou e makaʻala.
He aha kēia mau maʻi māmā laha ʻole?
I ka ʻōlelo maʻalahi, he mau maʻi koʻikoʻi a mau loa nā maʻi māmā kakaʻikahi e hoʻopilikia ana i kahi poʻe liʻiliʻi loa. ʻO nā māmā ke kino nui o kā mākou ʻōnaehana hanu. Ke hanu mākou, hoʻohui ʻia ka oxygen i ka lewa i ke koko a hoʻokuʻu ʻia ke kalapona ʻokikene i loko o ke koko i loko o nā māmā. No laila, hoʻopilikia kēia mau maʻi kakaʻikahi i kēia kaʻina hana koʻikoʻi i loko o nā māmā.
Ua ʻike nā kauka i nā haneli o nā maʻi māmā kakaʻikahi. ʻO ka maʻamau, e ʻoi aku ka ʻino o kēia mau maʻi i ka hala ʻana o ka manawa. Hiki i kekahi ke hoʻoweliweli i ke ola. ʻO ka mea kaumaha, ʻaʻohe lāʻau lapaʻau no ka hapa nui o kēia mau maʻi. Eia nō naʻe, aia nā lāʻau lapaʻau e hiki ke kāohi i nā hōʻailona a hoʻolohi i ka holomua o ka maʻi. Pono paha kekahi poʻe i kahi hoʻoili māmā ma ke ʻano he koho hope loa.
He aha nā maʻi māmā laha ʻole i maʻamau?
Nui nā ʻano maʻi laha ʻole e hoʻopilikia ana i nā māmā. E nānā kākou i kekahi o lākou me ka kikoʻī ma kahi papa. E kōkua kēia iā ʻoe e loaʻa kahi ʻike maopopo o kēia mau maʻi.
| Inoa Maʻi | I ka ʻōlelo maʻalahi, ʻo kēia ka mea e hana ʻia. | Nā ʻano lapaʻau |
|---|---|---|
| Ka hemahema o ka Alpha-1 Antitrypsin (AATD) | Ua emi nā pae o AAT, kahi protein i hana ʻia e ke akepaʻa, i loko o ke koko. Hoʻonui kēia i ka pilikia o ka loaʻa ʻana o nā maʻi māmā a me ke akepaʻa (e.g. COPD, cirrhosis). | Lapaʻau hoʻonui, nā lāʻau lapaʻau, ka lāʻau oxygen, ka hoʻoponopono hou ʻana o ka pulmonary, ka hoʻoili ʻana o ka māmā. |
| ʻO ka Fibrosis Cystic (CF) | He maʻi hoʻoilina kēia. Hōʻiliʻili kahi mucus mānoanoa a pipili i loko o nā ʻōkana e like me nā māmā a me ka pancreas. | Lāʻau lapaʻau no ka wehe ʻana i ke ʻala paʻa, nā lāʻau antibiotic, nā lāʻau anti-inflammatory, ka hoʻoili ʻana i ka māmā. |
| Ke koko kiʻekiʻe o ke aʻa o ka puʻuwai (PAH) | Hoʻomānoanoa a hoʻohaiki ʻia nā kīʻaha koko (nā aʻa) i loko o nā māmā, kahi e keakea ai i ke kahe koko a hoʻonui i ke koko i loko o nā māmā. | ʻOkoʻa ka lāʻau lapaʻau ma muli o ke kumu o kēia ʻano. ʻO ka lāʻau lapaʻau ke kumu nui. |
| Nā Maʻi Puʻuwai Interstitial - He hui o nā maʻi e hōʻino ai i ka ʻiʻo o ka puʻuwai | ||
| ʻO ka Fibrosis Pulmonary Idiopathic (IPF) | ʻAʻole ʻike ʻia ke kumu kikoʻī. Lilo ka ʻiʻo o ka māmā i mānoanoa, paʻakikī, a loaʻa ka ʻeha. | Nā lāʻau lapaʻau e kaohi ai i ka laha ʻana o ka maʻi, ka lāʻau oxygen, nā hoʻoili ʻana i nā māmā. |
| ʻO ka Pneumonitis Hypersensitivity (HP) | ʻO nā maʻi ʻaleka i hoʻokumu ʻia e ka hanu ʻana i nā mea i ke kaiapuni (ʻōpala, bacteria, nā kemika) hiki ke hoʻoulu i ka mumū a me ka ʻeha o nā māmā. | Nā Corticosteroids, nā immunosuppressants, ka lāʻau oxygen. |
| ʻO ka Sarcoidosis | Hoʻokumu ʻia nā puʻupuʻu liʻiliʻi (granulomas) i loko o nā māmā. ʻAʻole maopopo ke kumu pololei. | Nā Corticosteroids, nā lāʻau anti-cancer, nā lāʻau malaria. |
No ke aha i kapa ʻia ai kēia maʻi māmā "orphan"?
ʻOiai he inoa ʻē kēia, aia kekahi moʻolelo nui ma hope ona. Ua kapa ʻia kēia mau maʻi he "Orphan Lung Diseases". ʻO ke kumu o kēia, ʻo ia ka manaʻo o ka poʻe me kēia mau maʻi e like me lākou "mehameha" i ke ao lapaʻau. E noʻonoʻo wale, no ka mea, he kakaikahi loa kēia mau maʻi, he paʻakikī ke loaʻa nā kauka e hiki ke ʻike pololei a mālama iā lākou. Eia kekahi, ʻaʻohe noiʻi nui e hana ʻia ana ma luna o kēia mau mea. No laila, ua waiho ʻia kēia mau maʻi a me ko lākou mau ʻohana i ke kōkua nui.
He aha ke kumu o kēia mau maʻi māmā laha ʻole?
ʻAʻohe kumu hoʻokahi no kēia mau maʻi. Nui nā kumu like ʻole e kōkua iā lākou.
- Nā kumu hoʻoilina: ʻO kekahi mau maʻi, e like me ka cystic fibrosis, ua hoʻoili ʻia mai nā mākua a i nā keiki ma o nā genes. Hiki ke loaʻa ke ʻano i ka wā hānau.
- Nā kumu kaiapuni: Hiki ke hana ʻia kēia mau mea e nā mea i ka lewa a mākou e hanu ai. No ka laʻana, ka hanu lōʻihi ʻana i ka asbestos, ka lepo lanahu, nā ʻōpala manu, ka ʻōpala, ka uahi cigarette, a i ʻole nā kemika ʻē aʻe.
- Nā maʻi: Hiki i kekahi mau maʻi bacteria, viral, a fungal paha ke hana i kēia.
- Nā kūlana olakino ʻē aʻe: ʻO nā maʻi autoimmune, kahi e hoʻouka ai ka ʻōnaehana pale o ke kino i kona kino ponoʻī, hiki ke hōʻino i ka māmā. No ka laʻana, ka rheumatoid arthritis a me ka lupus.
- Nā kumu i ʻike ʻole ʻia (Idiopathic): ʻO kekahi mau maʻi, no ka laʻana ʻo idiopathic pulmonary fibrosis (IPF), ua koʻikoʻi loa ia ʻaʻole maopopo i nā kauka ke kumu o ko lākou hiki ʻana mai.
ʻO ka mea nui loa, ʻaʻole laha kēia mau maʻi. ʻO ia hoʻi, ʻaʻole hiki ke laha mai kekahi maʻi a i kekahi.
He aha nā hōʻailona maʻamau o kēia mau maʻi?
ʻOiai ke ʻokoʻa nā hōʻailona ma muli o ka maʻi, he nui o kēia mau maʻi māmā kakaʻikahi kekahi mau hiʻohiʻona maʻamau. Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, he mea nui e hopohopo.
- ʻŪhū mau: He ʻūhū maloʻo a phlegm paha e mau ana no nā pule a i ʻole nā mahina.
- Pōkole o ka hanu (dyspnea): Pōkole o ka hanu, ʻoiai i ka wā e hoʻoikaika kino ai, e hele wāwae ana, a e piʻi ana paha i ke alapiʻi. I ka hala ʻana o ka manawa, hiki nō hoʻi ke loaʻa ka pōkole o ka hanu ke kū mālie ʻoe.
- ʻEha umauma: ʻEha mau a ʻeha paha ka umauma.
- Nā leo ʻē i ka wā e hanu ana: He leo "chirchir" a i ʻole ka hū ʻana mai ka umauma mai (wheezing).
- Nā maʻi umauma pinepine: Inā loaʻa iā ʻoe nā maʻi pinepine e like me ka bronchitis a i ʻole ka pneumonia.
- Luhi: Manaʻo nui i ka luhi me ke kumu ʻole.
- Ka emi ʻana o ke kaumaha:Ka hoʻemi kaumaha me ka hoʻāʻo ʻole e hoʻemi kaumaha.
ʻAʻole nā kānaka a pau me kēia mau hōʻailona i loaʻa i kahi maʻi māmā laha ʻole. Eia nō naʻe, inā hoʻomau kēia mau hōʻailona, he mea nui e ʻike i ke kauka no ka ʻōlelo aʻo.
Pehea e ʻike ʻia ai kēia mau maʻi?
Ke hele ʻoe i ke kauka, e nīnau nui ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona, inā paha he maʻi kēia i loko o kou ʻohana, a me kou wahi hana. A laila e kauoha paha ʻo ia i kekahi mau hoʻokolohua e ʻike ai i ka maʻi.
| Inoa o ka hoʻāʻo | He aha kāu e hana ai me kēia? |
|---|---|
| Nā hoʻāʻo koko | E nānā i nā pilikia olakino ʻē aʻe a nānā i nā kumu genetic. |
| Nā Hoʻāʻo Kiʻi | Hana ʻia kahi X-ray umauma a i ʻole CT scan e nānā i ka ʻeha a i ʻole nā mea ʻē aʻe i loko o nā māmā. |
| Nā Hoʻāʻo Hana Pulmonary | Ana ia i ka maikaʻi o ka hanu ʻana i loko a i waho o kou mau māmā. |
| Bronchoscope | Hoʻokomo ʻia kahi ʻōmole lahilahi me kahi kāmela i hoʻopili ʻia i lalo o ke ala ea e nānā i loko o nā māmā. I kekahi manawa hiki ke lawe ʻia kahi ʻāpana ʻiʻo (biopsy) no ka hoʻokolokolo ʻana. |
| Biopsy o ka Māmā | Ua ʻike pololei ʻia ka maʻi ma ke ʻoki ʻana i kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka māmā a me ka nānā ʻana ma lalo o ka microscope. |
Inā hoʻomau kāu mau hōʻailona, ʻoi aku ka maikaʻi o ka ʻike ʻana i kahi pulmonologist ma waho aʻe o kāu kauka lapaʻau.
Pehea e mālama ai a hoʻokele?
E like me kā mākou i ʻōlelo ai ma mua, ʻaʻohe lāʻau lapaʻau piha no kēia mau maʻi he nui. Eia nō naʻe, he nui nā lāʻau lapaʻau e hiki ke kōkua i ka kaohi ʻana i nā hōʻailona, hoʻolohi i ka holomua o ka maʻi, a hoʻomaʻalahi i ke ola.
ʻOkoʻa nā ʻano lapaʻau mai kēlā mea kēia mea maʻi a i kēlā mea maʻi a mai kēlā maʻi a i kēia maʻi.
- Nā lāʻau lapaʻau: Hoʻohana ʻia nā lāʻau lapaʻau like ʻole, e like me nā corticosteroids e hōʻemi i ka mumū, nā lāʻau lapaʻau e kaohi i ka ʻōnaehana pale, a me nā antibiotics.
- Lapaʻau Oxygen: No ka poʻe me nā pae oxygen koko haʻahaʻa, hāʻawi ʻia ka oxygen pākuʻi ma o kahi ʻōmole ihu a i ʻole ka waha. Hoʻēmi kēia i nā pilikia hanu a hoʻomaikaʻi i ke ʻano o ke ola.
- Hoʻōla hou ʻana i ka puʻuwai: He papahana kūikawā kēia e komo pū ana me ka hoʻoikaika kino, ka meaʻai kūpono, ka hoʻonaʻauao e pili ana i ka maʻi, a me ke aʻo ʻana. Hoʻomaikaʻi kēia i ka ikaika kino a me ka noʻonoʻo o ka mea maʻi.
- Hoʻoili Mama: ʻO kēia wale nō paha ke koho no nā maʻi i ke kūlana koʻikoʻi i hiki ʻole ke kāohi ʻia e kekahi lāʻau ʻē aʻe.
Hiki iaʻu ke pale aku i kēia mau maʻi?
ʻAʻole hiki iā mākou ke pale aku i nā maʻi hoʻoilina. Eia nō naʻe, aia kekahi mau mea hiki iā mākou ke hana e hōʻemi i ka pilikia o kekahi mau maʻi ʻē aʻe:
- E pale loa i ka puhipaka.
- Inā ʻoe e hana ana i kahi ʻano kahi i loaʻa ai nā mea ʻino e like me nā kemika a i ʻole ka lepo, e komo i kahi respirator kūpono .
Inā loaʻa i kekahi o kou ʻohana kahi maʻi māmā genetic, e kamaʻilio me kāu kauka e pili ana i ka loaʻa ʻana o ka ʻōlelo aʻoaʻo genetic ma mua o ka loaʻa ʻana o nā keiki.
Leka Lawe-Home
- He mau maʻi koʻikoʻi nā maʻi māmā laha ʻole no ka wā lōʻihi e hiki ke ʻoi aku ka ʻino i ka hala ʻana o ka manawa.
- Inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni mau, ka hanu ʻana, a i ʻole ka ʻeha o ka umauma, mai hoʻowahāwahā iā lākou a e ʻike i ke kauka. ʻO ka wikiwiki o ka ʻike ʻia ʻana o ka maʻi, ʻo ka nui o ka kūleʻa o ka lāʻau.
- ʻOiai ʻaʻohe lāʻau lapaʻau piha no kēia mau maʻi he nui, aia nā lāʻau lapaʻau e hiki ke kaohi i nā hōʻailona, e maʻalahi ke ola, a hoʻolōʻihi i ka manaʻolana o ke ola.
- Inā loaʻa iā ʻoe a i ʻole kekahi mea kokoke iā ʻoe kēia maʻi, mai hopohopo. Me ka mālama lapaʻau kūpono a me ke kākoʻo, hiki iā ʻoe ke ola i kahi ola maikaʻi aʻe.
💬 Comments (0)
ʻAʻohe manaʻo i kau ʻia. Hoʻohui i kāu manaʻo ma ʻaneʻi no ka manawa mua.
Hoʻohui i kāu manaʻo