ʻO nā mea e pono ai ʻoe e ʻike e pili ana i ka inikini Ravulizumab

Malia paha ua ʻōlelo ʻia ʻoe a i ʻole kekahi āu i ʻike ai e kāu kauka e hāʻawi iā ʻoe i kahi lāʻau pale i kapa ʻia ʻo Ravulizumab. Ua manaʻo paha ʻoe he mea ʻē iki ka inoa, a ua noʻonoʻo ʻoe, "He aha ke ʻano o kēia lāʻau lapaʻau?" Mai hopohopo. He mea nui loa ka ʻike piha ʻana i kekahi lāʻau lapaʻau ma mua o ka hoʻomaka ʻana. No laila i kēia lā, e kamaʻilio wale kākou e pili ana i kēia lāʻau lapaʻau i kapa ʻia ʻo Ravulizumab, kāna hana, a me nā mea e pono ai kākou e makaʻala.

He aha maoli ʻo Ravulizumab?

I ka ʻōlelo maʻalahi, he lāʻau pale kūikawā ʻo Ravulizumab e kāohi ana i ka hana o ka ʻōnaehana pale o ko mākou kino. No loko ia o kahi papa o nā lāʻau i kapa ʻia ʻo "monoclonal antibodies." E noʻonoʻo i ko mākou ʻōnaehana pale, e like me ka ʻōnaehana pale o ko mākou kino, i kekahi manawa lilo i mea hana nui loa a hoʻomaka e hoʻouka i kā mākou mau cell maikaʻi ponoʻī. I kēlā mau manawa, kōkua kēia lāʻau lapaʻau i ka kāohi ʻana i kēlā hana nui.

Hoʻohana nui ʻia kēia lāʻau lapaʻau e mālama i kekahi mau kūlana pili i ke koko.

• ʻO ka maʻi Atypical Hemolytic Uremic Syndrome (aHUS): He ʻano kēia e haki ai a paʻa nā hunaola koko ʻulaʻula, e hana ana i ka anemia a me nā pilikia ʻē aʻe.
• Paroxysmal Nocturnal Hemoglobinuria (PNH): Ma kēia ʻano, haki pū nā hunaola koko ʻulaʻula.
• Myasthenia Gravis: Ma kēia ʻano, hoʻopilikia ka ʻōnaehana pale i ke kamaʻilio ʻana ma waena o nā aʻalolo a me nā ʻiʻo, e hoʻonāwaliwali ai i nā ʻiʻo a luhi koke.

Hana kēia lāʻau lapaʻau ma ka kaohi ʻana i ka ʻōnaehana pale kino ikaika loa, e hōʻemi ana i ka haki ʻana o nā hunaola koko ʻulaʻula, a me ka pale ʻana i nā platelets mai ka hui pū ʻana me ke kumu ʻole a me ka pale ʻana i nā kīʻaha koko.

Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i ka lāʻau lapaʻau

Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, he mea nui loa ia e hoʻomaopopo i kāu kauka e pili ana i kou kūlana olakino holoʻokoʻa. E hōʻoia e haʻi pono i kēia mau mea.

• Inā loaʻa iā ʻoe kekahi mau maʻi: E haʻi mai iā mākou e pili ana i kekahi mau maʻi āu i loaʻa ai, e like me ke kuni, ke kuni, a i ʻole ke anu. Hoʻopau kēia lāʻau lapaʻau i kāu ʻōnaehana pale, hiki ke hoʻonui i kahi maʻi e kū nei.
• Inā loaʻa iā ʻoe nā maʻi allergies: E haʻi mai iā mākou inā loaʻa iā ʻoe kekahi mau maʻi allergies, ʻaʻole wale iā Ravulizumab, akā i kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha.
• Inā hāpai ʻoe a i ʻole e hoʻāʻo ana e hāpai: E kamaʻilio me kāu kauka e pili ana i kēia.
• Inā he makuahine hānai ʻoe: Pono ʻoe e hoʻomaopopo i kāu kauka e pili ana i kēia.

Pehea e hāʻawi ʻia ai kēia lāʻau lapaʻau?

ʻAʻole kēia he lāʻau lapaʻau hiki iā ʻoe ke lawe i ka home. Hoʻokomo ʻia ʻo Ravulizumab i loko o kahi aa.Hāʻawi ʻia i ke kino. Hana ʻia ia ma kahi haukapila a i ʻole ke keʻena lapaʻau paha, e ke kauka a i ʻole kekahi limahana kahu maʻi i aʻo ʻia. ʻO ia hoʻi, pono ʻoe e hele i ka haukapila no ia mea.

Ma mua o kēlā me kēia kau lapaʻau, e hāʻawi ʻia ʻoe i kahi pepa ʻike kūikawā (MedGuide) e pili ana i kēia lāʻau lapaʻau. He mea nui loa ia e heluhelu a hoʻomaopopo pono iā ia i kēlā me kēia manawa.

Hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki, ma lalo o kekahi mau kūlana kūikawā. Hiki ke hāʻawi ʻia mai ka makahiki hoʻokahi mahina. Eia nō naʻe, aia nā hana palekana kūikawā e pili ana i ia mea. Na kāu kauka e wehewehe i kēia iā ʻoe.

He aha ka mea e hana ai inā hoʻonui ʻia ka nui o ka lāʻau lapaʻau?

Hāʻawi ʻia kēia ma kahi haukapila, no laila ua haʻahaʻa loa ka manawa e hiki ai kēia. Eia nō naʻe, inā manaʻo ʻoe ua hana ʻia kekahi mea iā ʻoe, pono ʻoe e kelepona koke i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo , a i ʻole e hele i ka Emergency Treatment Unit (ETU) kokoke loa.

He aha inā e hala iaʻu kahi mahele o ka lāʻau lapaʻau?

He lāʻau lapaʻau i hoʻonohonoho ʻia kēia. No laila, he mea nui loa ia ʻaʻole e poina i nā lā i hāʻawi ʻia e kāu kauka. Inā no kekahi kumu ʻaʻole hiki iā ʻoe ke hele i kāu manawa i hoʻonohonoho ʻia, e kāhea koke aku i kāu kauka a i ʻole ke keʻena lapaʻau a e hoʻomaopopo iā lākou.

E makaʻala i kēia mau mea i ka wā e hoʻohana ai i ka lāʻau lapaʻau.

E nānā mau ana kāu kauka i kou olakino i kou wā e lawe ana i kēia lāʻau. Inā ʻaʻole e hoʻomaikaʻi a i ʻole e ʻoi aku ka ʻino o kāu mau hōʻailona, ​​e haʻi koke aku i kāu kauka.

Inā loaʻa iā ʻoe ke kuni, ke anu, ka ʻāʻī ʻeha, ke kuni, a i ʻole nā ​​hōʻailona anu ʻē aʻe, mai hoʻōla ponoʻī. E kelepona koke i kāu kauka no ka ʻōlelo aʻo. Eia kekahi, e pale i ka hele ʻana i nā wahi i nui ai ka poʻe maʻi i kēia manawa. Pono nō hoʻi ʻoe e hana i ka hana koko maʻamau.

Hiki iā ia ke launa pū me nā lāʻau lapaʻau ʻē aʻe?

ʻAe, hiki i kekahi mau lāʻau lapaʻau ke launa pū me kēia. Eia kekahi laʻana, nā lāʻau lapaʻau e like me `(Efgartigimod)` a me `(Immune globulin)`.

No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei (nā lāʻau lapaʻau no nā maʻi ʻē aʻe, nā huaora, nā lāʻau lapaʻau kuʻuna, nā mea hoʻohui) . ʻAʻole wale ia, akā inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā mea ʻē aʻe i kū ʻole i ke kānāwai, he mea nui loa hoʻi no kou palekana ponoʻī e haʻi iā lākou me ka hūnā ʻole.

He aha nā hopena ʻaoʻao e hiki mai ana?

E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa kekahi mau hopena ʻaoʻao. ʻAʻole loaʻa i nā kānaka a pau. Akā he mea nui e makaʻala iā lākou. E hoʻokaʻawale kākou iā lākou i ʻelua mau ʻano.

ʻAʻole i hoʻokomo ʻia nā hopena ʻaoʻao āpau i kēia papa inoa. Inā ʻike ʻoe i kekahi mea ʻē a ʻokoʻa paha, mai makaʻu e kamaʻilio me kāu kauka e pili ana i ia mea.