Hiki i nā ʻōpū e like me kēia ke ulu i loko o kou mau aʻalolo? E aʻo kākou e pili ana iā 'Schwannoma'!

Ua lohe paha ʻoe i ka huaʻōlelo 'Schwannoma'? He huaʻōlelo hou paha kēia nou. He ʻano puʻupuʻu maoli ia e hana ʻia ana i loko o kā mākou ʻōnaehana nerve. Mai hopohopo, ʻaʻole ia he mea weliweli mau. E kamaʻilio maʻalahi kākou e pili ana i ia mea, ma ke ʻano hiki iā ʻoe ke hoʻomaopopo.

He aha ka ʻano o ka 'Schwannoma'?

I ka ʻōlelo maʻalahi, ʻo kēia 'Schwannoma' he puʻupuʻu e ulu ana mai nā 'Schwann cells' i loko o ko kākou kino. I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o kēia mau 'Schwann cells', ʻeā? ʻO kēia nā cell o kā kākou 'peripheral nervous system' , ʻo ia hoʻi, ke ʻano o nā cell e hana ana i kahi ʻūpā a puni nā olonā nerve e hoʻonui ana mai ka lolo a me ke kaula spinal. Ua like ia me ka uhi plastik a puni kahi uea uila. Mālama kēia mau cell i ko kākou mau aʻalolo a kōkua i nā leka nerve e holo wikiwiki. No laila, ʻo kēia mau 'Schwann cells' nā mea e hoʻomohala i kēia mau tumors i kapa ʻia ʻo 'Schwannomas'.

ʻO ka hapa nui o ka manawa, ma kahi o 90% o ka manawa, he ʻano maikaʻi ʻole kēia mau 'Schwannomas' . ʻO ia hoʻi, ʻaʻole lākou e laha ma ke kino holoʻokoʻa, noho lākou ma kahi hoʻokahi. Eia naʻe, he mea kakaikahi loa, hiki iā lākou ke lilo i mea ʻino . Inā hana ʻia kēlā, pono ʻoe e akahele iki. ʻO ka maʻamau, ulu mālie kēia mau puʻupuʻu.

Hiki i kēia mau puʻupuʻu ke ulu ma nā wahi āpau o ke kino, ma nā wahi āpau i loaʻa ai nā aʻalolo. No ka laʻana, ʻoi aku ka maʻamau o lākou i nā aʻalolo e holo ana mai ko mākou lolo a i ko mākou mau pepeiao. Ua kapa ʻia hoʻi kēia he 'vestibular schwannoma' a i ʻole 'acoustic neuroma' . ʻO ka hapa nui o nā schwannomas malignant e hoʻopilikia i ka 'sciatic nerve' i ka wāwae, ka 'brachial plexus' ma ka lima, a me ka 'sacral plexus' ma ke kua haʻahaʻa.

I kekahi manawa ua kapa ʻia ʻo Schwannomas he neurilemmomas a i ʻole neuromas. Inā he maʻi kanesa lākou, hiki ke kapa ʻia lākou he sarcomas ʻiʻo palupalu .

ʻO ka mea maikaʻi loa, 90% o ka manawa, ʻo kēia 'Schwannoma' aia wale nō ma ke ʻano he puʻupuʻu hoʻokahi .

He aha ka 'Vestibular Schwannoma'?

Ua kamaʻilio iki mākou e pili ana i ka vestibular schwannoma ma mua. He ʻano schwannoma kēia e hoʻomaka ana ma nā aʻalolo i loko o ka pepeiao nāna e mālama i ko mākou lohe a me ke kaulike. ʻAʻole hoʻi kēia he maʻi kanesa, a ulu mālie ia.

Eia naʻe, i ka ulu ʻana o kēia puʻupuʻu, hoʻomaka ia e kaomi i nā aʻalolo e pili ana i ka lohe a me ke kaulike. ʻO ia ka manawa:

• Hoʻomaka mālie ka lohe ʻana o ka pepeiao i hoʻopilikia ʻia e emi iho .
• He kani (kani...e like me ke kani) ʻo Tinnitus i loko o nā pepeiao.
• I kekahi manawaMe he mea lā he poniuniu.

He ma'i lolo ka 'schwannoma'?

I kēia manawa, ke noʻonoʻo nei paha ʻoe inā he puʻupuʻu lolo kēia 'schwannoma'. ʻOiaʻiʻo, ʻaʻole ia. Hiki iā ia ke ulu i loko o ka lolo a i ʻole ke poʻo, akā hiki nō hoʻi iā ia ke ulu i loko o kahi aʻalolo ma nā wahi ʻē aʻe o ke kino. No ka mea, e like me kā mākou i ʻōlelo ai, ua hoʻokumu ʻia kēia mau mea mai nā 'Schwann cells', a aia kēlā mau cell i loko o kā mākou 'peripheral nervous system', ʻo ia hoʻi, i loko o nā aʻalolo e holo ana mai ka lolo a i ke koena o ke kino.

Eia nō naʻe, ʻo ke ʻano maʻamau a mākou i kamaʻilio ai, i kapa ʻia ʻo 'Vestibular Schwannoma', ua manaʻo ʻia he puʻupuʻu lolo .

ʻO wai ka mea e loaʻa ana iā Schwannoma?

ʻO ka hapa nui o ka ulu ʻana o kēia mau 'Schwannomas' i nā poʻe ma waena o 50 a me 60 mau makahiki. He mea kākaʻikahi loa lākou i nā kamaliʻi.

Hoʻomohala pinepine ʻia nā Schwannomas i nā poʻe olakino. Eia nō naʻe, i kekahi mau hihia, hiki ke ulu pū nā schwannomas ma muli o nā kūlana genetic e like me ka neurofibromatosis type 2 (NF2) , schwannomatosis , a i ʻole Carney complex . ʻOi aku ka nui o ka poʻe me kēia mau kūlana genetic e loaʻa i nā schwannoma he ʻoi aku ma mua o hoʻokahi.

Pehea ka maʻamau o Schwannoma?

He puʻupuʻu laha ʻole ʻo Schwannoma. E noʻonoʻo wale, ʻoiai ma kahi ʻāina e like me ʻAmelika, ʻaʻole i ʻoi aku ma mua o ʻelua haneli tausani mau kānaka i hoʻopilikia ʻia e kēia maʻi i kēlā me kēia makahiki. He 60% wale nō o nā Schwannoma ʻaʻole maʻi kanesa (benign) ʻo ia ka 'vestibular Schwannoma' a mākou i ʻōlelo ai ma mua.

He aha nā hōʻailona o ka Schwannoma?

Ma muli o ka ulu lohi ʻana o kēia mau Schwannomas , ʻaʻole paha lākou e hōʻike i kekahi mau hōʻailona no nā makahiki. Eia kekahi, no ka mea hiki i kēia mau puʻupuʻu ke ulu ma nā ʻāpana like ʻole o ke kino, hiki ke ʻokoʻa loa nā hōʻailona mai kēlā kanaka a kēia kanaka . Loaʻa paha i kekahi poʻe kekahi mau hōʻailona, ​​a he akahai loa paha lākou, a ʻo kekahi he koʻikoʻi paha.

Eia kekahi mau hōʻailona maʻamau:

• He puʻupuʻu a puʻupuʻu paha i ʻike ʻia . Hiki ke ʻeha iki kēia i ka wā e hoʻopā ʻia ai a kaomi ʻia paha.
• Manaʻo mae .
• Ka nāwaliwali o nā ʻiʻo .
• Me he mea lā e kolo ana nā ʻanuʻu a i ʻole nā ​​​​pine a me nā nila (kapa pū nā kauka i kēia 'paresthesia').
• ʻO ka ʻeha ʻoi e like me ke kuni, ke ʻā, a i ʻole ka ʻeha hou .

Mea nui: Hiki ke hana ʻia kēia mau hōʻailona e nā kūlana ʻē aʻe, no laila inā loaʻa iā ʻoe kekahi mea e like me kēia, ʻoi aku ka maikaʻi o ke ʻike ʻana i ke kauka no ka ʻōlelo aʻo.

Pehea e ʻokoʻa ai nā hōʻailona ma muli o ka wahi o ka puʻupuʻu

• ʻO ka Schwannoma VestibularE like me kā mākou i ʻōlelo ai ma mua, hiki i ka poʻe me ia ke loaʻa i nā pilikia lohe a me ke kaulike , a hiki paha ke loaʻa i ke kani ʻana o nā pepeiao (tinnitus).
• Inā hana ʻia kēia mau puʻupuʻu ma kou aʻalolo maka , hiki iā ia ke hoʻopilikia i kou hiki ke ale, hoʻoneʻe i kou mau maka, a me ka ʻono . Hiki paha iā ʻoe ke nalowale i ka hiki ke hoʻohana i kekahi ʻaoʻao o kou maka (facial paralysis) .
• Inā ulu kahi schwannoma ma ke aʻalolo sciatic i ka wāwae, hiki iā ia ke hōʻeha i ke kua a me ka ʻeha e hoʻolaha ana i lalo i ka wāwae, e like me ka disc herniated .

He aha ke kumu o ka Schwannoma?

ʻO kaʻoiaʻiʻo, ʻo ka hapa nui o ka manawa, ʻaʻole ʻike ʻia ke kumu kikoʻī o Schwannoma . He 90% wale nō o nā hihia e kū pinepine ʻole ʻia.

Eia nō naʻe, e like me ka mea i ʻōlelo ʻia ma mua, hiki i nā Schwannomas ke ulu aʻe ma muli o nā kūlana genetic e like me ka Carney complex, Neurofibromatosis type 2 (NF2), a me Schwannomatosis. Ua hōʻike ʻia nā haʻawina genetic ʻo ka gene NF2 ma kā mākou chromosome 22 ke kumu nui no ka ulu ʻana o Schwannomas.

Pehea e ʻike ʻia ai ʻo Schwannoma?

Ma muli o ka ulu mālie ʻana o kēia mau puʻupuʻu, hiki iā lākou ke noho no nā makahiki ma mua o kou loaʻa ʻana o kekahi mau hōʻailona. No laila hiki ke lōʻihi ka manawa e loaʻa ai kahi hōʻailona . Inā loaʻa iā ʻoe nā hōʻailona, ​​​​e kauoha paha kāu kauka i kekahi mau hoʻokolohua. I kekahi manawa, loaʻa kahi puʻupuʻu i ka wā o kahi scan i hana ʻia no kekahi kumu ʻē aʻe.

ʻO nā hoʻokolohua kiʻi e hiki ke kōkua i ka ʻike ʻana i kahi schwannoma:

• ʻO ke kiʻi MRI (Magnetic Resonance Imaging) : He hoʻāʻo ʻeha ʻole kēia. Hoʻohana ia i kahi magnet nui, nā nalu lekiō, a me kahi kamepiula e hana i nā kiʻi maopopo loa o nā ʻōpū a me nā ʻano i loko o ke kino. ʻO kēia ka hoʻāʻo maikaʻi loa e ʻike a hōʻoia i ka Schwannoma.
• ʻO ke scan CT (Computed Tomography) : Hoʻohana kēia i nā kukuna X a me kahi kamepiula e kiʻi i nā kiʻi o nā ʻano i loko o ke kino.
• ʻO ke scan ultrasound : Hoʻohana kēia i nā nalu kani alapine kiʻekiʻe e lawe i nā kiʻi ola a i ʻole nā ​​​​wikiō o nā ʻōpū a i ʻole nā ​​​​ʻiʻo palupalu i loko o ke kino. Hoʻohana nā kauka i kēia e ʻike i nā schwannomas ma lalo o ka ʻili.

Hiki i kāu kauka ke hana i kahi biopsy e hōʻoia ai he schwannoma maoli a he kanesa paha. Pili kēia i ka lawe ʻana i kahi hāpana liʻiliʻi o ka puʻupuʻu me ka hoʻohana ʻana i kahi nila. He pathologist, ʻo ia hoʻi, he kauka loea e nānā ana i nā hāpana ʻiʻo e like me kēia, nānā i nā ʻāpana i loko o kēia hāpana ma lalo o kahi microscope, a laila hana i nā hoʻokolohua hou aʻe e ʻike pono ai i ke ʻano o ka puʻupuʻu kēia.

Pehea e mālama ʻia ai nā Schwannoma?

ʻO ka mālama ʻana no ka schwannoma e pili ana i nā kumu e like me kahi o ka puʻupuʻu, pehea ka wikiwiki o kona ulu ʻana, a me nā hōʻailona āu e ʻike nei .

Aia kekahi mau koho lapaʻau:

• Nānā/nānā a kali : Inā ʻaʻole maʻi kanesa ka puʻupuʻu (benign), e ulu mālie loa ana, a ʻaʻohe ou hōʻailona a liʻiliʻi paha, hiki i kāu kauka ke paipai i ka nānā pono ʻana ma kahi o ka lāʻau lapaʻau. ʻO ke ʻano kēia e nānā pinepine lākou iā ʻoe e ʻike inā e nui ana ka puʻupuʻu a i ʻole inā ʻike ʻia nā hōʻailona hou. Eia nō naʻe, inā e nui aʻe a inā loaʻa iā ʻoe nā hōʻailona ma hope, hiki iā lākou ke paipai i ka lāʻau lapaʻau.
• ʻO ke ʻoki kino : Inā ulu wikiwiki loa ka puʻupuʻu, inā e hoʻopilikia ana iā ʻoe me nā hōʻailona, ​​a inā paha e hoʻoulu ana i nā pilikia ʻē aʻe, hiki i kāu kauka ke ʻōlelo aku i ke ʻoki kino e wehe iā ia. ʻO ka maʻamau, wehe ʻia ka puʻupuʻu holoʻokoʻa, akā i kekahi manawa, ma muli o ka wahi o ka puʻupuʻu, hiki i ke kauka ke wehe i kahi hapa wale nō o ka puʻupuʻu. Hoʻokumu ʻia nā Schwannomas i loko o ka ʻūpā a puni ke aʻalolo, no laila hiki ke hana pinepine ʻia ke ʻoki kino me ka ʻole o ka hōʻino ʻana i ke aʻalolo . Eia nō naʻe, aia kahi pilikia kiʻekiʻe o ka nalowale o ka lohe ma hope o ke ʻoki kino no nā schwannomas vestibular.
• Lapaʻau radiation : Hoʻohana kēia i nā ʻano hana kūikawā, e like me ka stereotactic radiosurgery (SRS) , e luku i ka puʻupuʻu ma ka hoʻouna ʻana i nā kukuna radiation i kālele pono ʻia. Inā kokoke ka puʻupuʻu i nā kīʻaha koko koʻikoʻi a i ʻole nā ​​​​aʻalolo , hiki i kāu kauka ke paipai i kēia ʻano radiation therapy e pale aku i nā pilikia e hiki mai ana me ke ʻoki ʻana.

Ma waho aʻe o kēia , hoʻohana ʻia nā lāʻau immunotherapy a me chemotherapy no ka schwannoma malignant.

Hiki ke pale ʻia ʻo Schwannoma?

ʻO ka mea pōʻino, ʻaʻohe ala e pale aku ai i kēia mau 'schwannomas' i kēia manawa . ʻO ka hapa nui o ka manawa, ulu lākou ma ke ʻano kū ʻole, me ka ʻike ʻole ʻia o ke kumu. Ma kahi o 10% o nā hihia e pili ana i kekahi mau kūlana genetic, e ʻoi aku ka nui o ka poʻe e ulu i kēia mau puʻupuʻu.

Inā ua ʻike ʻia kekahi o kou ʻohana me ka neurofibromatosis type 2 (NF2), schwannomatosis, a i ʻole Carney complex, e kamaʻilio me kāu kauka . Hiki iā ia ke paipai i ka ʻōlelo aʻoaʻo genetic e ʻike inā loaʻa iā ʻoe ke ʻano.

He aha ka manaʻolana no ka maʻi Schwannoma?

ʻO kēia ka maʻi Schwannoma.ʻO ka wānana, ʻo ia hoʻi, pehea e hoʻopilikia ai ka maʻi iā ʻoe i ka wā lōʻihi, e hilinaʻi ʻia i kekahi mau kumu:

• Ma hea kahi e loaʻa ai ka puʻupuʻu ma ke kino.
• Pehea ka nui o ka puʻupuʻu.
• Inā ua hana ʻia ke ʻoki ʻana, pehea ka nui o ka puʻupuʻu i wehe ʻia ?
• Inā he maʻi kanesa (malignant) a i ʻole benign (benign) ka puʻupuʻu.

Ma keʻano laulā, maikaʻi ka nānā ʻana no kahi schwannoma. I ka hapanui o nā hihia, inā e wehe loa ʻia ka puʻupuʻu, ʻaʻole ia e ulu hou .

ʻO ka hapa nui o nā pilikia e hiki mai ana ma muli o kēia 'Schwannoma' e hana ʻia ma hope o ke ʻoki ʻana e wehe i ka puʻupuʻu . ʻO kēia mau mea e hiki ke hoʻoulu i nā pilikia ma hope o ke ʻoki ʻana:

• Inā nui loa ka puʻupuʻu .
• Inā hohonu ka puʻupuʻu i loko o ke kino.
• Inā ua hoʻomaka ka puʻupuʻu ma ke aʻalolo ulnar, kekahi o nā aʻalolo nui ʻekolu ma kou lima.

I ka manawa hea e pono ai ʻoe e ʻike i ke kauka e pili ana iā Schwannoma?

Inā ua ʻike ʻia ʻoe me ka schwannoma, he mea nui e ʻike koke i kāu kauka no ka ʻōlelo aʻo no ka mālama ʻana i kāu schwannoma , inā paha e loaʻa iā ʻoe nā hōʻailona hou a i ʻole inā e ʻoi aʻe ka ʻino o kāu mau hōʻailona .

Inā ua ʻōlelo kāu kauka e nānā ʻoe i ka puʻupuʻu me ka ʻole o ka lāʻau lapaʻau, pono ʻoe e ʻike iā ia ma ka liʻiliʻi hoʻokahi manawa i ka makahiki no nā nānā ʻana . A laila hiki iā ia ke hana i nā hoʻokolohua kiʻi (e like me MRI) e nānā i ka ulu ʻana a me ke kūlana o ka puʻupuʻu.

He mea maʻamau ka makaʻu ke ʻike ʻoe he puʻupuʻu kou. Akā ʻo ka nūhou maikaʻi, ʻo ka schwannoma kahi ʻano puʻupuʻu i maʻamau ʻaʻole ia he maʻi kanesa a ulu mālie . E kōkua kāu hui lapaʻau iā ʻoe e hoʻoholo i ka hoʻolālā lapaʻau maikaʻi loa nāu. Hiki paha ke nānā wale i ka puʻupuʻu, ka wehe ʻana i ke ʻoki kino, a i ʻole kekahi mea ʻē aʻe. Mai makaʻu e nīnau i nā nīnau, ʻaʻohe mea . Aia mau kāu kauka ma aneʻi e kōkua iā ʻoe.

Leka Lawe-Home

ʻAe, i kēia manawa ua loaʻa iā ʻoe kahi manaʻo maikaʻi e pili ana i kā mākou mea i kamaʻilio ai, e Schwannoma. Eia kekahi mau mea nui e hoʻomanaʻo ai:

• He puʻupuʻu ka schwannoma e ulu ana mai nā pūnaewele Schwann e hoʻopuni ana i nā aʻalolo. ʻO ka hapa nui o ka manawa, ʻaʻole kēia he maʻi kanesa .
• Lohi loa ka ulu ʻana o kēia mau mea, no laila hiki i kekahi manawa ke hala nā makahiki e hōʻike ai i nā hōʻailona.
• ʻOkoʻa loa nā hōʻailona ma muli o kahi o ka puʻupuʻu i loko o ke kino . Eia kekahi laʻana, hiki ke nalowale ka lohe, ke kani ʻana o nā pepeiao, ka mae ʻana o ka hanu, ka ʻeha, a me ka nāwaliwali o nā ʻiʻo.
• E ulu kēia mau mea.ʻAʻole ʻike pinepine ʻia ke kumu kikoʻī, akā hiki ke pili i kekahi mau kūlana genetic .
• ʻO MRI ke ala nui a maikaʻi loa e ʻike ai i kēia mau maʻi.
• Hiki i ka lāʻau lapaʻau ke komo pū me ka nānā ʻana i ka puʻupuʻu, ka wehe ʻana i ke ʻoki kino, a i ʻole ka radiation therapy . Aia ka lāʻau lapaʻau i ke ʻano a me ka wahi o ka puʻupuʻu.
• Mai hopohopo , he maʻi mālama maikaʻi ʻia ʻo Schwannoma a hiki ke ho'ōla ʻia. Inā he mau hopohopo a nīnau paha kāu, e kamaʻilio me kāu kauka.

ʻO Schwannoma, neuromas, nā pūnaewele Schwann, vestibular schwannoma, ʻōnaehana nerve, nā puʻupuʻu ʻaʻole maʻi kanesa, MRI scan