Ua maloʻo kou kino? He maʻi ʻo Sjögren paha ia!

Ke manaʻo nei ʻoe i kekahi manawa ua maloʻo kou mau maka a ua maloʻo kou waha? Malia paha inā luhi wale ʻoe a loaʻa mau kēia mau mea, ʻaʻole ia he mea maʻamau. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi i kapa ʻia ʻo 'Sjögren's Syndrome', nona kahi inoa ʻē, akā hoʻopilikia ia i kekahi poʻe. ʻAʻole paha ʻoe i kamaʻāina i kēia inoa, akā ua kamaʻāina paha ʻoe i kona mau hōʻailona.

He aha ke ʻano o ka maʻi ʻo 'Sjögren's Syndrome'?

I ka ʻōlelo maʻalahi, ʻo 'Sjogren's Syndrome' kahi maʻi autoimmune e hoʻopilikia ana i nā glands e hana ana i ka makū i loko o ko mākou kino. I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o kēia 'autoimmune'. E noʻonoʻo, he ʻōnaehana ko ko mākou kino e pale aku iā mākou mai nā maʻi, ua kapa ʻia ʻo ia ka ʻōnaehana pale. Ua like ia me kahi pūʻali koa e pale aku ana i ko mākou ʻāina. Akā i loko o kēia maʻi 'autoimmune', ʻo ka mea e hana ʻia, ʻo kā mākou poʻe pale ponoʻī, ʻo ia hoʻi, ka ʻōnaehana pale, e hoʻouka hewa i kā mākou mau cell maikaʻi ponoʻī, i kēia hihia nā glands e hana ana i ka makū. Ua like kēia me ke kiaʻi palekana i loko o ko mākou hale e manaʻo ana he ʻaihue mākou a hoʻouka mai iā mākou.

ʻO ka hopena, ua pau ka hana pono ʻana o nā ʻōpū hana wai o kou kino. Hoʻopilikia nui kēia i:

• ʻŌnaehana waimaka: Hoʻomaloʻo kēia i nā maka.
• Nā ʻōpū salivary i loko o ka waha: ʻO kēia ke kumu e maloʻo ai ka waha.
• Ihu: Hiki ke maloʻo ka ihu.
• ʻĀʻī: Hiki i ka ʻāʻī ke maloʻo a hoʻoulu i ke kuni.
• Hiki ke hoʻopilikia ʻia ka ʻōnaehana hoʻoheheʻe i kekahi ʻano.
• No nā ʻōpū o nā wahine: Hiki ke maloʻo ka ʻōpū.

Ua kapa ʻia kēia inoa ʻo "Shaw-Granz syndrome." Inā loaʻa iā ʻoe nā hōʻailona hou o nā maka maloʻo a i ʻole ka waha, ʻoiai inā hele pū lākou me nā hōʻailona ʻē aʻe (e like me ka ʻeha), he mea nui loa ia e ʻike i ke kauka.

Aia kekahi mau ʻano o ka maʻi Sjögren?

ʻAe, ua hoʻokaʻawale nā ​​​​kauka i kēia i ʻelua mau ʻano nui:

1. ʻO ka maʻi Sjögren mua: ʻAʻole kēia i hana ʻia e kekahi maʻi olakino ʻē aʻe. ʻO ia hoʻi, kū ia ma kāna iho.

2. ʻO ka maʻi Sjögren lua: Hoʻokumu ʻia kēia e kekahi kūlana a pilikia paha. ʻO ia hoʻi, ʻo kekahi maʻi ke kumu.

Pehea ka maʻamau o kēia ʻano?

Ua hōʻike ʻia he nui ka poʻe a puni ka honua i loaʻa i kēia maʻi i kapa ʻia ʻo 'Sjögren's Syndrome'. Ua ʻōlelo ʻia ma kahi o 2 miliona mau kānaka ma kahi ʻāina e like me ʻAmelika e ʻeha nei i kēia maʻi. Aia paha he poʻe me kēia maʻi ma ko mākou ʻāina.

He aha nā hōʻailona o ka maʻi Sjögren?

ʻO ka hōʻailona nui a maʻamau o kēia, ʻo ia ka maloʻo kūpono ʻole ma nā ʻāpana o ke kino.

• Nā maka maloʻo a ʻāʻī paha: Hiki ke manaʻo ʻia he one i loko o kou mau maka. I kekahi manawa e lilo paha kou mau maka i ʻulaʻula.
• Waha maloʻo (xerostomia): Hiki i ka waha ke maloʻo loa a lilo i mea paʻakikī ke ʻōlelo a ale paha i ka meaʻai. Hiki ke ulu mai nā ʻeha waha. Hiki nō hoʻi ke mānoanoa ka lawai.
• Ka maloʻo o ka ʻōpū i nā wahine: Hiki i kēia ke hōʻeha i ka wā moe.
• ʻIli maloʻo: Hiki i ka ʻili ke maloʻo a maneʻo.
• Ihu maloʻo a me ke kahe pinepine ʻana o ke koko ihu.
• ʻĀʻī maloʻo: Hiki iā ʻoe ke loaʻa i ka ʻū maloʻo pinepine.

Ma waho aʻe o kēia maloʻo, hiki i ka maʻi Sjögren ke hana i nā hōʻailona ʻē aʻe:

• ʻEha hui: E like me ka rumatika.
• ʻEha a nāwaliwali paha nā ʻiʻo.
• Nā ʻōpū lymph pehu.
• Luhi: He manaʻo o ka luhi mau ʻaʻole e nalo aku me ka nānā ʻole i ka nui o kāu hiamoe ʻana.
• Paʻakikī ke ale ʻana (dysphagia) a paʻakikī paha ka ʻōlelo ʻana.
• ʻO ka noe lolo: Paʻakikī i ka noʻonoʻo pono a me ka manaʻo e like me ka hiki ʻole iā ʻoe ke noʻonoʻo.
• Ka nalowale ʻana o ka ʻono.
• Pala niho a nalowale paha ka niho: I ka emi ʻana o ka hana ʻana o ka lawai i loko o ka waha, emi pū ka pale ʻana o nā niho.
• Nā ʻūhū ʻili.
• Neuropathy: Nā mea e like me ka numbness a me ke kani ʻana i nā lālā.
• ʻO ka mumū o ka ʻōpū a i ʻole nā ​​​​pilikia ʻē aʻe o ka ʻōnaehana hoʻoheheʻe.
• ʻIke i ke kukui: Me he mea lā e polū ana nā maka ke hele ʻoe i waho.

He aha nā kumu o ka maʻi Sjögren?

Ua ʻōlelo mua mākou he maʻi 'autoimmune' kēia. ʻO ia hoʻi, hoʻouka kā mākou ʻōnaehana pale ponoʻī i kā mākou mau glands ponoʻī. Eia naʻe, ʻaʻole i ʻike pono nā kauka i ke kumu o kēia.

• ʻAʻohe kumu kūpono i ʻike ʻia no ka maʻi Sjögren mua .
• ʻO ka maʻi lua o Sjögren ka mea i hoʻoulu ʻia e nā pilikia olakino ʻē aʻe, ʻoiai nā maʻi autoimmune ʻē aʻe a me kekahi mau maʻi viral.

ʻO kekahi mau maʻi viral e hiki ai ke hoʻoulu i ka maʻi Sjögren lua:

• Hepatitis C
• ʻO ka maʻi Cytomegalovirus (CMV)
• ʻO ka maʻi Epstein-Barr
• ʻO ka maʻi T-lymphotropic kanaka 1 (HTLV)
• COVID-19

ʻO kekahi mau maʻi autoimmune e pili ana me ka maʻi Sjögren:

• ʻO ka ʻāʻī rheumatoid
• ʻO ka maʻi ʻaʻai psoriatic
• ʻO ka Lupus

Mea nui:ʻAʻole nā ​​kānaka a pau me kēia mau maʻi e loaʻa i ka maʻi Sjögren. A ʻaʻohe hōʻoia e loaʻa pū i kekahi me ka maʻi Sjögren kēia mau maʻi ʻē aʻe. Eia nō naʻe, hōʻike ka noiʻi aia kahi pilina.

ʻO wai ka mea i ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i ka Sjögren's Syndrome?

ʻOiai hiki i kekahi ke hoʻomohala i kēia kūlana, ʻoi aku ka nui o ka pilikia o kekahi mau hui:

• Nā wāhine: ʻOi aku ma mua o 90% o ka poʻe me ka maʻi Sjögren he mau wāhine. Hiki i nā kāne ke loaʻa iā ia, akā he mea kākaʻikahi loa ia.
• ʻO nā kānaka me nā maʻi autoimmune ʻē aʻe: Ma kahi o ka hapalua o nā kānaka me ka maʻi Sjögren i loaʻa i hoʻokahi maʻi autoimmune ʻē aʻe.
• Nā kānaka ma waena o 45 a me 55 mau makahiki: ʻOiai hiki ke ulu i nā keiki, nā ʻōpio, a me nā kānaka ma luna o 55 mau makahiki, ʻo ia ka mea maʻamau i kēia hui makahiki e ulu nui ai.
• ʻO ka poʻe me ka mōʻaukala ʻohana o ka maʻi Sjögren: Ma kahi o 10% o ka poʻe me ka maʻi Sjögren he ʻohana pili ko lākou (makua a kaikaina paha) me ke ʻano.

Pehea e ʻike ai inā loaʻa iā ʻoe ka maʻi Sjögren? (Diagnosis)

E hana ke kauka i kahi hoʻokolohua kino a hana i kekahi mau hoʻokolohua e hoʻoholo ai inā loaʻa iā ʻoe ka maʻi Sjögren. E nānā ke kauka iā ʻoe a nīnau e pili ana i kāu mau hōʻailona. E haʻi i ke kauka i ka wā i ʻike mua ai ʻoe i kēia mau loli, a inā ʻoi aku ka ʻino o kāu mau hōʻailona i kekahi mau manawa o ka lā a i ʻole i ka wā o kekahi mau hana.

ʻO ka ʻike ʻana i ka maʻi Sjögren he ʻāpana ia o kahi hana i kapa ʻia ʻo ka differential diagnosis . ʻO ke ʻano kēia ma mua o ka hiki ʻana i kāu kauka ke hōʻoia he maʻi Sjögren kou, e hana lākou i kekahi mau hoʻokolohua e kāpae i nā kūlana ʻē aʻe e hiki ke hoʻoulu i kāu mau hōʻailona. ʻO kekahi o nā hoʻokolohua āu e loaʻa ai:

• Nā hoʻāʻo koko: ʻO ke kikoʻī, e nānā i kekahi mau ʻano antibodies.
• Hoʻokolokolo maka: Aia nā hoʻokolohua kūikawā e nānā i ka pae makū o nā maka.
• Nānā niho: Hiki ke ʻike ʻia ka hana o nā kelepa salivary i loko o ka waha.
• Ka nānā ʻana i ka mimi.
• Biopsies: I kekahi manawa lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo, e like me loko o ka lehelehe, a nānā ʻia e nānā i nā loli i loko o nā kelepa salivary.
• Nā kukuna X: E noi ʻia paha ʻoe e lawe i kahi kukuna X-ray o ka umauma e ʻike inā he hopena i kou mau māmā.

Pono paha ʻoe e ʻike i kekahi mau loea:

• Rheumatologist: He kauka i loea i nā maʻi hui a me nā maʻi autoimmune.
• Nā loea mālama maka.
• Kauka niho.
• ʻO ke kauka Otolaryngologist (ENT) he kauka lapaʻau i loea i nā pepeiao, ihu, a me ka puʻu.

He aha nā pilikia e hiki ke loaʻa mai ka Sjögren's Syndrome?

Hiki i ka maʻi Sjögren ke hana i kekahi mau pilikia. Akā , mai hopohopo , ʻaʻole ka hapa nui o ka poʻe e loaʻa i nā pilikia koʻikoʻi.

• ʻO ka hoʻonui ʻia o ka pilikia o nā maʻi waha a me nā maka: Ma muli o ka haʻahaʻa o ka makū, hiki i nā germs ke hoʻoulu maʻalahi i nā maʻi.
• Nā ʻano ʻē i ka hana ate a i ʻole nā ​​puʻupaʻa.
• ʻO Lymphomas: He ʻano maʻi ʻaʻai e ulu ana i loko o nā lymph nodes. He haʻahaʻa loa ka pilikia o kēia, akā ʻaʻole ia he mea e hoʻowahāwahā ʻia.
• Nā pilikia o ka māmā: I kekahi manawa hiki ke kuhihewa ʻia no ka niumonia.
• Nā pilikia neurological: Nā mea e like me ka nāwaliwali, ka maneo.

ʻO ka hapa nui o ka poʻe me ka maʻi Sjögren e ola me ka ʻole o nā pilikia koʻikoʻi. Inā loaʻa iā ʻoe ka maʻi Sjögren lua, hiki i ke kūlana kumu ke hoʻonui i kou pilikia o nā pilikia. E kamaʻilio me kāu kauka e pili ana i kēia.

Pehea e mālama ʻia ai ka maʻi Sjögren?

E ʻōlelo aku kāu kauka i nā lāʻau lapaʻau e kōkua i ka kaohi ʻana i kāu mau hōʻailona. ʻAʻohe lāʻau lapaʻau no ka maʻi Sjögren i kēia manawa. Eia nō naʻe, hiki i kāu kauka ke kōkua iā ʻoe e loaʻa i kahi hoʻolālā lapaʻau e hōʻemi i ka hopena i kou ola o kēlā me kēia lā a me ke ʻano o ke ola.

ʻO ka lāʻau lapaʻau āu e pono ai e pili ana i nā ʻāpana o kou kino i hoʻopilikia ʻia e ka maʻi Sjögren.

ʻO kekahi mau lāʻau lapaʻau maʻamau no nā maka maloʻo, waha, a i ʻole ka vagina:

• Nā waimaka hana: Hiki i kāu loea maka ke ʻōlelo aku i nā kulu maka over-the-counter (OTC), nā kulu kauka, a i ʻole nā ​​lubricants e lubricate i nā maka.
• ʻO ke ʻoki kino no nā maka maloʻo (punctal plugs): Hiki i ke kauka lapaʻau maka (ophthalmologist) ke pani i kekahi a i ʻole nā ​​​​​​auwai waimaka āpau. Kōkua kēia i ka mālama ʻana i kou mau waimaka maoli i kou mau maka no ka manawa lōʻihi.
• Nā mea hana lawaiʻa: Hiki i kāu kauka niho ke ʻōlelo aku i nā mea hoʻohui lawaiʻa ma luna o ke kūʻai aku a i ʻole nā ​​​​lāʻau lapaʻau e kōkua i kou kino e hana i ka lawaiʻa hou aku. ʻO ka nau ʻana i ka gum, ka inu ʻana i ka wai, a me ka omo ʻana i nā pahu hau i ka lā a pau e kōkua i ka mālama ʻana i kou waha i ka pulu.
• Nā huahana holoi waha kūikawā a i ʻole nā ​​​​​​huahana mālama niho: ʻO ka poʻe me ka maʻi Sjögren e piʻi aʻe ka pilikia o nā pilikia niho. No laila, pono paha ka hoʻomaʻemaʻe niho mau, nā lāʻau lapaʻau fluoride kūikawā, a i ʻole ka toothpaste a me ka holoi waha i kuhikuhi ʻia.
• Nā mea hoʻomaʻū a lubricants paha no ka ʻōpū:Hiki i ke kauka ke ʻōlelo aku i nā lubricants over-the-counter a i ʻole nā ​​​​​​mea hoʻomaʻamaʻa i hiki ke hoʻohana ʻia i kēlā me kēia lā a i ʻole i ka wā o ka moekolohe.
• Lapaʻau hormone: Pono paha kekahi poʻe i ka lāʻau hormone, e like me ka estrogen, e mālama i ka maloʻo o ka ʻōpū i hoʻokumu ʻia e ka hormonal imbalance.

Ka mālama ʻana no ka ʻeha a me nā hōʻailona ʻē aʻe:

• Nā lāʻau hoʻopau ʻeha ma luna o ke kauka: Hiki i nā lāʻau lapaʻau e like me `NSAIDs (nonsteroidal anti-inflammatory drugs)` (e.g. ibuprofen) a i ʻole `acetaminophen` (e.g. Panadol) ke kōkua i ka hōʻemi ʻana i ka ʻeha a me ka pehu. Mai lawe i kēia mau lāʻau lapaʻau no nā lā he 10 a ʻoi aku i ka manawa me ka ʻole o ke aʻo ʻana a ke kauka.
• Corticosteroids: ʻO kēia nā lāʻau lapaʻau e hōʻemi i ka mumū a hāʻawi ʻia ma ke ʻano he mau pila a i ʻole nā ​​​​inikini i kuhikuhi ʻia e ke kauka.
• Nā Immunosuppressants: Hoʻomālielie kēia mau lāʻau i kāu ʻōnaehana pale a hoʻemi i kāna hana. Hiki i kāu kauka ke kuhikuhi i nā lāʻau lapaʻau e like me DMARDs (nā lāʻau antirheumatic hoʻololi maʻi).

He aha ke ʻano o ka ʻike e hiki i kekahi me Sjögren's Syndrome ke manaʻo?

Pono ʻoe e mālama i kāu mau hōʻailona no ka manawa lōʻihi, malia paha no ke koena o kou ola. Eia nō naʻe, ke loaʻa iā ʻoe ka lāʻau kūpono nou, pono e emi iho ka koʻikoʻi o kāu mau hōʻailona. ʻO ka poʻe me ka maʻi Sjögren e aʻo pinepine e mālama i kā lākou mau hōʻailona, ​​​​no laila e emi iho ka koʻikoʻi o kā lākou mau hōʻailona i ka hala ʻana o ka manawa.

Hiki ke pale ʻia ka maʻi Sjögren?

No ka mea, ʻaʻole ʻike ʻia ke kumu kikoʻī, ʻaʻohe ala e pale aku ai i ka maʻi Sjögren. He mea hiki ʻole hoʻi ke wānana i ka mea nāna e loaʻa a i ka wā hea.

Āhea ʻoe e ʻike ai i ke kauka?

E ʻike i ke kauka inā loaʻa iā ʻoe nā hōʻailona hou, a inā e ʻoi aku ka ʻino o kāu mau hōʻailona. E mālama i kāu mau hōʻailona a e hoʻomaopopo i nā loli.

E haʻi aku kāu kauka iā ʻoe i ka pinepine o kou pono e hele mai no nā manawa hoʻopaʻa, nā hoʻokolohua, a i ʻole nā ​​​​​​nānā ʻē aʻe. Inā manaʻo ʻoe ʻaʻole e holo pono ana kahi lāʻau lapaʻau a i ʻole ʻaʻole e holo pono e like me ka wā ma mua, mai hoʻokaʻulua i ka ʻike ʻana i kāu kauka. Hiki i nā hōʻailona o ka maʻi Sjögren ke maʻalahi i kekahi manawa. ʻO ʻoe wale nō ka mea ʻike i ka wā hewa kekahi mea.

Pilikia: Inā manaʻo ʻoe e pilikia ana ʻoe i ka hanu ʻana a i ʻole ke ale ʻana, e hele koke i ka haukapila a kāhea aku paha i ka 1990 (lawelawe ambulance ulia pōpilikia).

He aha nā nīnau āu e nīnau ai i kāu kauka?

Mai poina e nīnau i kēia mau nīnau ke ʻike ʻoe i ke kauka:

• He aha ke ʻano o ka maʻi Sjögren iaʻu? (Mua a lua paha?)
• He aha nā hoʻokolohua e pono ai iaʻu e hana?
• Pono anei au e ʻike i nā loea ʻē aʻe?
• He aha ka lāʻau lapaʻau e pono ai iaʻu?
• He aha nā loli a i ʻole nā ​​hōʻailona e pono iaʻu e makaʻala?

Hiki ke hoʻonāukiuki i kekahi manawa ka mālama ʻana i ka maʻi Sjögren. Hiki ke hoʻonāukiuki i ka loaʻa ʻana o nā maka maloʻo, ka waha maloʻo, a i ʻole ka maloʻo o ka ʻōpū e hoʻoluhi ai i ka moekolohe. Akā ʻo ka nūhou maikaʻi, hiki i ka hapa nui o ka poʻe me ka maʻi Sjögren ke hoʻokele maikaʻi i kā lākou mau hōʻailona ke loaʻa iā lākou kahi hui pū ʻana o nā lāʻau lapaʻau e pono ai no lākou.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

ʻO ka maʻi Sjögren kahi ʻano i hiki ke ʻoluʻolu ʻole iki, akā hiki ke hoʻomalu ʻia me ka mālama kūpono .

• ʻAʻole ʻoe hoʻokahi: aia kekahi poʻe ʻē aʻe e noho nei me kēia mau kūlana.
• He mea nui ka lāʻau kūpono: E kamaʻilio me kāu kauka e ʻike i ka hoʻolālā lāʻau kūpono nāu. Pono paha ʻoe e hoʻāʻo i nā lāʻau like ʻole.
• E haʻi i kāu kauka inā loli kāu mau hōʻailona: Inā loli kāu mau hōʻailona, ​​​​e ʻoi aku ka ʻino, a i ʻole e hoʻopilikia nui ana i kāu mau hana o kēlā me kēia lā, e haʻi i kāu kauka.
• Nā hoʻokolohua maʻamau: E nīnau i kāu kauka i ka pinepine o kāu e hana ai i nā hoʻokolohua maka a me nā hoʻokolohua niho. Hiki i nā hoʻokolohua maʻamau e like me kēia ke kōkua i ka pale ʻana i nā pilikia.

Manaʻolana wau he kōkua kēia ʻike iā ʻoe. Inā he mau nīnau kāu, mai kānalua e nīnau i ke kauka.

ʻO ka maʻi Sjögren, nā maka maloʻo, waha maloʻo, autoimmune, ʻōnaehana pale, ʻeha hui