He ʻulaʻula a unahi paha kou ma kou ʻili? Ke ʻike pinepine nei ʻoe i kēia mau mea ma kou poʻo, kuli, a me nā kuʻekuʻe lima? Ke manaʻo nei hoʻi ʻoe i ka ʻoʻoleʻa a me ka ʻeha i loko o kou kino, ʻoiai kou mau manamana lima a me kou mau kuli, ke ala ʻoe i ke kakahiaka? Inā loaʻa iā ʻoe kēia mau pilikia ʻelua, loaʻa paha iā ʻoe kahi maʻi i kapa ʻia ʻo 'Psoriatic Arthritis'. Mai makaʻu i kou lohe ʻana i kēia inoa. He mea kēia i loaʻa i nā poʻe he nui. I kēia lā, e kamaʻilio mākou e pili ana i kēia ma ke ʻano maʻalahi hiki iā ʻoe ke hoʻomaopopo.
He aha kēia ʻano maʻi psoriatic?
I ka ʻōlelo maʻalahi, he ʻano arthritis ka psoriatic arthritis. He mumū ia o nā hono. Loaʻa pinepine ia i nā poʻe i loaʻa i kahi maʻi ʻili i kapa ʻia ʻo psoriasis. I kekahi manawa, inā loaʻa kekahi o kou ʻohana i ka psoriasis, hiki iā lākou ke loaʻa iā ia.
I kēia manawa, e wehewehe iki aku kākou i kēia.
- ʻO ka ʻāʻī: He kūlana maʻamau kēia e hoʻopilikia ai i ko kākou mau hono. Hoʻoulu ia i ka ʻeha a me ka pehu (ka mumū) i loko a puni nā hono.
- Psoriasis: He maʻi ʻili mumū kēia. Ma kēia ʻano, ʻike ʻia nā ʻāpana ʻulaʻula o ka ʻili, i uhi ʻia me nā unahi kālā. Ua kapa ʻia kēia mau ʻāpana unahi he plaques. Eia kekahi, hiki i nā kui lima a me nā kui wāwae o kekahi poʻe ke lilo i mānoanoa, unahi, a i ʻole he mau lua liʻiliʻi.
Ua hoʻokaʻawale ʻia kēia mau maʻi ʻelua, ʻo ka ʻāʻī a me ka psoriasis, he mau maʻi autoimmune . E noʻonoʻo i kēia ʻano: ʻo ka ʻōnaehana pale o ko mākou kino, ʻo ia hoʻi ka ʻōnaehana pale, ua like ia me kahi pūʻali koa. ʻO kāna hana ke pale aku iā mākou ma ke kaua ʻana i nā mea komo hewa mai nā haole. Akā i loko o kēia kūlana "autoimmune", hoʻomaka hewa kā mākou ʻōnaehana pale ponoʻī e hoʻouka i kā mākou mau hunaola olakino ponoʻī. I ka ʻāʻī psoriatic, hana like kēia hoʻouka ma ka ʻili a me nā hono.
ʻAʻole mau nā hōʻailona o kēia maʻi. I kekahi manawa e ʻoi aku ka ʻino o nā hōʻailona, a mākou e kapa nei he 'flares' . I kekahi manawa e nalowale nā hōʻailona. Inā loaʻa iā ʻoe nā kiko ʻili hou, a inā ʻike ʻoe i ka ʻeha, ka pehu, a i ʻole ka ʻoʻoleʻa i kou mau hono, e ʻike pono i kāu kauka a kamaʻilio e pili ana.
Pehea ka maʻamau o kēia ʻano?
ʻAʻole i hiki i ka 1% o ka heluna kanaka o ka honua i loaʻa i ka maʻi psoriatic arthritis. Eia nō naʻe, inā loaʻa iā ʻoe ka psoriasis, ʻoi aku ka kiʻekiʻe o kou pilikia o ka loaʻa ʻana o ke ʻano. Ma kahi o 30 o 100 mau kānaka me ka psoriasis e loaʻa i ka psoriatic arthritis i kekahi manawa o ko lākou ola.
He aha nā ʻano nui o kēia maʻi?
ʻAʻole like ka maʻi ʻaʻai psoriatic no kēlā me kēia kanaka. Hoʻokaʻawale nā kauka iā ia i ʻelima mau ʻano nui, ma muli o nā hono i hoʻopilikia ʻia a pehea e ulu ai nā hōʻailona. He mea nui iā ʻoe e makaʻala i kēia mau mea.
| ʻAno maʻi | I ka ʻōlelo maʻalahi... |
|---|---|
| ʻO ka hapa nui o ka interphalangeal distal | Hoʻopilikia nui kēia i nā hono liʻiliʻi kokoke i nā wēlau o nā manamana lima a me nā manamana wāwae. ʻO kēia ke ʻano maʻamau o ka psoriatic arthritis e hoʻopilikia ai i nā kui. Hiki i kou mau kui ke loli ke kala, ʻili, a i ʻole e ulu nā lua liʻiliʻi. |
| ʻO ka polyarthritis symmetric | Hoʻopilikia kēia i ʻelima a ʻoi aku paha mau hono i ka manawa like. ʻO ke ʻano o ka huaʻōlelo 'symmetric' he "symmetrical". ʻO ia hoʻi, ua hoʻopilikia ʻia nā hono like ma nā ʻaoʻao ʻelua o ke kino . No ka laʻana, hiki ke hoʻopilikia ʻia kou mau kuli a me kou mau kuʻekuʻe ʻelua i ka manawa like. He ʻano maʻamau nō hoʻi kēia. |
| ʻAsymmetrical oligoarticular | Hoʻopilikia kēia i ʻelua a ʻehā mau hono ma nā ʻaoʻao ʻelua o ke kino, akā ʻaʻole ia he 'symmetrical', ʻo ia hoʻi, ʻaʻole ia e hoʻopilikia i nā hono like ma nā ʻaoʻao ʻelua. No ka laʻana, hiki ke hoʻopilikia ʻia ke kuli ʻākau a me ke kuʻekuʻe hema. ʻO kēia kekahi ʻano maʻamau. |
| ʻO ka Spondylitis | Ua hana ʻia ko kākou iwi kuamoʻo me nā iwi liʻiliʻi i kapa ʻia he vertebrae. I kēia ʻano maʻi ʻāʻī, lilo nā hono ma waena o nā vertebrae i mumū . Hiki i kēia ke hōʻeha i ke kua a me ka ʻoʻoleʻa. I kekahi manawa, hiki ke ʻike ʻia ka ʻeha ma nā pūhaka a me nā poʻohiwi. |
| Nā ʻokiʻoki o ka ʻāʻī | ʻO kēia ke ʻano koʻikoʻi loa a kakaʻikahi o ka maʻi psoriatic. Hoʻopilikia ia i nā lima a me nā wāwae. ʻOi loa ka ʻino o ka mumū a hiki i nā iwi ke heheʻe. Ma nā ʻōlelo lapaʻau, ua kapa ʻia kēia he "osteolysis." Akā he ʻano kakaʻikahi loa kēia. ʻIke ʻia kēia ʻano ma lalo o 5% o ka poʻe me ka maʻi psoriatic. |
He aha nā hōʻailona āu e ʻike ai?
Hiki i ka ʻāʻī psoriatic ke hoʻopilikia i kekahi hui o ke kino. No kekahi poʻe, he ʻoluʻolu loa nā hōʻailona. He mau ʻāpana liʻiliʻi wale nō paha o ka ʻili me kekahi ʻeha a me ka ʻoʻoleʻa i nā hui. Eia nō naʻe, i ka wā o ka flare-ups, hiki ke koʻikoʻi loa ka ʻeha a hiki ʻole ke hoʻohana ʻia nā hui a hiki ke ulu nā ʻāpana ʻili nui.
Eia nā hōʻailona i ʻike pinepine ʻia:
- ʻEha hui: Hiki ke loaʻa ka ʻeha ma hoʻokahi a ʻoi aku paha nā hui.
- ʻOʻoleʻa i nā hono: Paʻakikī i ke kulou ʻana a i ʻole ke kīkoʻo ʻana i nā hono, ʻoiai ke ala ʻoe i ke kakahiaka.
- Pehu a me ka ʻulaʻula o nā hono: Hiki i nā hono i hoʻopilikia ʻia ke pehu a ʻulaʻula a puni ke hono.
- ʻEha ke aʻalolo a me ke ligament: ʻEha a palupalu paha kahi e pili ai ko mākou mau ʻiʻo i ko mākou mau iwi (e like me ke aʻalolo Achilles).
- Pehu ʻana o nā manamana lima: Pehu nā manamana lima a me nā manamana wāwae e like me nā sausage. Kāhea pū nā kauka i kēia ʻo `(dactylitis)`.
- ʻŌhūhū psoriasis: Nā ʻāpana ʻulaʻula me nā unahi kālā, ʻoi aku hoʻi ma ke poʻo, nā kuli, nā kuʻekuʻe lima, a me ke kua i lalo.
- Nā loli o nā kui: ʻO ke kala ʻana o nā kui, ka lua ʻana, ka mānoanoa, a i ʻole ka hoʻokaʻawale ʻana o ke kui mai ka ʻili.
- Luhi: ʻAʻole kēia he luhi wale nō. He luhi nui ia e hiki ʻole ai iā ʻoe ke hana i kekahi mea, a me he mea lā ʻaʻole e nalowale kēia luhi ʻoiai inā hiamoe ʻoe i ka lā a pau.
No ke aha e hana ʻia ai kēia? ʻO wai ka mea i pilikia nui?
ʻAʻole maopopo loa i nā loea ke kumu o ka psoriatic arthritis. Eia nō naʻe, ua ʻike ʻia kekahi mau noiʻi he like nā loli o ka poʻe me ka maʻi i ko lākou mau genes (genetic mutations). Eia nō naʻe, ʻaʻole maopopo inā paha ke kumu o kēia mau loli genetic i ka maʻi a i ʻole inā e hana ʻia kēia mau loli ma hope o ka ulu ʻana o ka maʻi.
ʻO ka mea nui, ma kahi o 40% o ka poʻe me ka psoriatic arthritis, a i ʻole ma kahi o 40 o 100, he lālā ʻohana ʻē aʻe ko lākou me ka maʻi, e hōʻike ana he maʻi hoʻoilina paha ia.
No laila, inā loaʻa kekahi o kou ʻohana i ka psoriasis a i ʻole ka psoriatic arthritis, e haʻi pono i kāu kauka.
ʻOiai hiki ke loaʻa kēia maʻi i kēlā me kēia makahiki, ʻoi aku ka maʻamau ma waena o 30 a me 50 mau makahiki.He mea maʻamau ia i waena o nā kānaka. ʻO ka hapa pinepine, ulu ka psoriasis (kahi maʻi ʻili) i nā poʻe ʻōpio, ma kahi o 15-25 mau makahiki, a ʻike ʻia nā hōʻailona o ke hono i kekahi mau makahiki ma hope, i ka waena o ke ola.
Hiki i kēia kūlana ke hoʻoulu i nā maʻi ʻē aʻe?
ʻAe, ʻo ka poʻe me ka psoriatic arthritis e piʻi iki paha ka pilikia o ka loaʻa ʻana o nā pilikia olakino ʻē aʻe. ʻO kēia ma muli o ka mumū mau loa i loko o ke kino.
ʻO kekahi o nā pilikia maʻamau e hiki ke hana penei:
- Ke koko kiʻekiʻe (Hypertension)
- Hoʻonui ʻia nā pae cholesterol koko (Hyperlipemia)
- Momona
- Maʻi diabetes
- Kaumaha
- Anemia
- Nāwaliwali o nā ʻiʻo
Hiki i ka ʻeha o nā hono ke hoʻolilo i mea paʻakikī ke hoʻoikaika kino. Akā, ʻo ka hoʻoikaika kino ʻole hiki ke hoʻonui i ke kaumaha o kou kino a kau i ke kaumaha ma luna o kou mau hono. No laila, e kamaʻilio me kāu kauka e pili ana i nā hoʻoikaika kino haʻahaʻa e kau ʻole i ke kaumaha nui ma luna o kou mau hono. ʻO nā mea e like me ka yoga, ka hele wāwae, a i ʻole ka aqua therapy he mau ala maikaʻi ia e mālama ai i kou kino olakino me ka ʻole o ke kaumaha nui ma luna o kou mau hono.
Pehea e ʻike ai ke kauka i kēia?
Hoʻomaopopo ke kauka i ka maʻi psoriatic arthritis ma o kahi hoʻokolohua kino a me kekahi mau hoʻokolohua ʻē aʻe. E nīnau ke kauka iā ʻoe e pili ana i kāu mau hōʻailona a nānā pono i kou ʻili a me nā hono.
Hiki ke kuhikuhi ʻia ʻoe i nā loea:
- Rheumatologist: He kauka kēia i loea i nā maʻi hui, nā maʻi autoimmune, a me nā kūlana mumū.
- Kauka ʻili: He kauka kēia i loea i nā maʻi ʻili.
ʻAʻohe hoʻokolohua hoʻokahi e hiki ke hōʻoia i ka psoriatic arthritis. E hana nā kauka i nā hoʻokolohua e kāpae i nā kūlana ʻē aʻe e hiki ke hoʻoulu i kāu mau hōʻailona.
E noi ʻia paha ʻoe e hana i kekahi mau hoʻokolohua:
- Nā hoʻāʻo koko: E nānā no nā mea e like me nā maʻi.
- Nā hoʻokolohua kiʻi: Hiki i kēia ke nānā i ka hōʻino a i ʻole ka mumū i nā hono.
- Nā kukuna X
- Nānā MRI
- Nānā CT
- ʻO ke kiʻi ʻana o ka ultrasound
He aha nā lāʻau lapaʻau no kēia?
E kuhikuhi kāu kauka i ka lāʻau lapaʻau e mālama i kāu mau hōʻailona. ʻO ke ʻano o ka lāʻau lapaʻau āu e pono ai e hilinaʻi ʻia ma kekahi mau kumu:
- He aha nā hono i hoʻopilikia ʻia e ka maʻi?
- Pehea ke koʻikoʻi o nā hōʻailona?
- Pehea ka nui o ka hoʻopilikia ʻana o kēia mau hōʻailona i kāu mau hana o kēlā me kēia lā?
ʻO nā lāʻau lapaʻau i hoʻohana pinepine ʻia:
- Nā lāʻau hoʻopau ʻeha: Hiki ke kūʻai ʻia nā lāʻau hoʻopau ʻeha e hōʻemi i ka mumū, e like me nā "NSAID", ma kahi hale kūʻai lāʻau lapaʻau.
- Lapaʻau anu a wela paha: E hōʻemi i ka ʻeha a me ka ʻoʻoleʻa.
- Corticosteroids: He papa lāʻau ikaika e hōʻemi koke i ka mumū. Hiki ke hāʻawi ʻia kēia mau mea ma ke ʻano he pila a i ʻole he inikini pololei i loko o ke hono.
- Nā DMARD (nā lāʻau lapaʻau antirheumatic hoʻololi maʻi): He ʻano lāʻau lapaʻau kūikawā kēia e hoʻololi i ke ala o ka maʻi, ʻo ia hoʻi, ke kāohi nei lākou i ka hana o ka ʻōnaehana pale a hoʻōki i ka hōʻino ʻana i nā hono.
- Hoʻōla kino a i ʻole ka hoʻōla hana: Hiki i kēia ke kōkua iā ʻoe e aʻo pehea e hoʻomaikaʻi ai i ka hana hui a me ka ikaika a maʻalahi i nā hana o kēlā me kēia lā.
He mea pono anei ke ʻoki kino?
He mea kākaʻikahi loa ke ʻoki ʻana no ka maʻi psoriatic. Eia nō naʻe, inā ua hōʻino nui ka maʻi i kou mau hono a i ʻole ua lilo ka iwi, pono paha ʻoe e hana i ke ʻoki pani hono (arthroplasty). I kēlā hihia, e wehewehe kāu kauka a kauka paha i ke ʻoki ʻana āu e pono ai a me nā mea e manaʻo ai.
He ʻino aku kēia ma mua o ka rheumatoid arthritis?
ʻElua ʻano o ka rumatika ka maʻi psoriatic a me ka maʻi rheumatoid. He mau maʻi autoimmune lāua ʻelua.
- ʻO ka maʻi psoriatic kahi ʻano mumū o nā hono e pili ana me ka psoriasis (kahi maʻi ʻili a me nā kui).
- ʻO ka Rheumatoid arthritis kahi ʻano arthritis i hoʻokumu ʻia e ka ʻōnaehana pale e hoʻouka ana i nā ʻiʻo e hoʻopili ana i nā hono ma nā ʻaoʻao ʻelua o ke kino.
ʻAʻole "ʻoi aku ka maikaʻi" a i ʻole "ʻoi aku ka ʻino" o kekahi maʻi ma mua o kekahi. He mau maʻi lōʻihi (mau) nā mea ʻelua. ʻO ke ʻano kēia e pono ʻoe e hoʻokele i kāu mau hōʻailona no ka manawa lōʻihi, malia paha i kou ola holoʻokoʻa. E kōkua kāu kauka iā ʻoe e ʻimi i ka lāʻau kūpono nou a kōkua iā ʻoe e hōʻemi i ka hopena o ka maʻi i kou ola o kēlā me kēia lā.
Leka Lawe-Home
- ʻO ka maʻi psoriatic kahi maʻi e kū mai ana i ka wā e hui pū ai kahi maʻi ʻili (psoriasis) a me kahi maʻi hono (arthritis).
- He maʻi autoimmune kēia, ʻo ia hoʻi, hoʻouka ka ʻōnaehana pale ponoʻī o ko mākou kino i kā mākou mau cell ponoʻī.
- ʻO ka ʻeha o nā hono, ka ʻoʻoleʻa, ka pehu ʻana, ka ʻili ʻana o ka ʻili, a me nā loli o nā kui nā hōʻailona nui.
- ʻAʻole hiki ke ho'ōla loa ʻia kēia maʻi, akā aia nā lāʻau lapaʻau kūpono loa e kāohi i nā hōʻailona a me nā lapalapa.
- Inā loaʻa iā ʻoe ka psoriasis a ke ʻeha nei kou mau hono, mai hoʻowahāwahā iā ia. E ʻike koke i kāu kauka. ʻO ka hoʻomaka ʻana i ka mālama ʻana i ka wā mua e hiki ke kōkua i ka pale ʻana i ka hōʻino lōʻihi i kou mau hono.
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