Pehea ka hoʻonāukiuki no kekahi poʻe ke loaʻa pinepine nā pōhaku puʻupaʻa? He mea maʻamau kēia no kekahi kanaka me kahi maʻi genetic e like me cystinuria. No laila, inā ua kuhikuhi kāu kauka i kahi lāʻau i kapa ʻia ʻo Tiopronin e kāohi i kēia maʻi, he mea nui loa ia e ʻike piha ʻia e pili ana i ia mea. Ma kēia ʻatikala, e kamaʻilio mākou e pili ana i kēia lāʻau lapaʻau ma nā ʻōlelo maʻalahi.
He aha ka Tiopronin?
I ka ʻōlelo maʻalahi, he lāʻau lapaʻau kūikawā ʻo Tiopronin e hana ana ma ka hoʻopaʻa ʻana i kahi waikawa amino i kapa ʻia ʻo cystine i loko o ko mākou kino. I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o ia mea.
E noʻonoʻo, he nui ka nui o kahi kemika i kapa ʻia ʻo cystine i hoʻokuʻu ʻia mai ko lākou kino, ʻoi aku hoʻi i loko o ko lākou mimi. Ke piʻi ka nui o ka cystine i loko o ka mimi, hui pū lākou, hui pū, a lilo i paʻakikī, e hana ana i nā pōhaku puʻupaʻa . He ʻano ʻeha loa kēia.
No laila, ʻo ka hana a Tiopronin, ʻo ia ke hoʻopaʻa i kēia mau cystines keu i loko o ka mimi a hoʻolilo iā lākou i hui hiki ke hoʻoheheʻe ʻia. A laila hui pū nā cystines a hoʻōki i ka hana ʻana i nā pōhaku. ʻO ia hoʻi, ʻo ka hana nui o kēia lāʻau lapaʻau ka pale ʻana i ka hoʻi hou ʻana o nā pōhaku puʻupaʻa . Ma Sri Lanka, hiki iā ʻoe ke loaʻa i kēia lāʻau lapaʻau ma lalo o nā inoa inoa e like me Thiola EC.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
Ma mua o ke kuhikuhi ʻana iā Tiopronin, e nīnau kāu kauka iā ʻoe i kekahi mau nīnau, akā e hōʻoia e nīnau ʻoe i kēia mau nīnau iā ʻoe iho.
- Nā maʻi puʻupaʻa ʻē aʻe: E pili ana i kekahi maʻi puʻupaʻa ʻē aʻe āu i loaʻa mua.
- Nā maʻi ʻaleka: E hōʻoia e haʻi i kāu kauka inā he maʻi ʻaleka kou iā Tiopronin, kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, nā kala, a i ʻole nā mea mālama.
- Hāpai keiki: E haʻi mai iā mākou inā ua hāpai ʻoe, a i ʻole e hoʻolālā ana e loaʻa koke kahi pēpē.
- Inā he makuahine hānai waiū ʻoe: He mea nui loa e hoʻomaopopo i ke kauka inā he makuahine hānai waiū ʻoe.
Ma muli o kēia ʻike, e hoʻoholo ke kauka inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha a me ka nui e hāʻawi ʻia.
ʻO ke ala kūpono e hoʻohana ai i ka lāʻau lapaʻau
I mea e loaʻa ai ka hopena maikaʻi loa mai ka lāʻau lapaʻau, pono ʻoe e hoʻohana e like me ke kuhikuhi ʻana.
- Pehea e lawe ai: E ale i kēia papa me ke aniani wai.ʻAe. Loaʻa pinepine kēia mau mea ma ke ʻano o nā papa hoʻokuʻu lohi i hoʻolālā ʻia e omo mālie ʻia e ke kino. No laila, ʻaʻole pono e nau ʻia, kuʻi ʻia, a wāwahi ʻia paha.
- Inā pilikia ʻoe i ka moni ʻana: Inā pilikia ʻoe i ka moni ʻana i ka pila holoʻokoʻa, e kamaʻilio me kāu kauka e pili ana i ia mea. I kekahi manawa, e aʻo aku paha lākou iā ʻoe e wāwahi i ka pila a hoʻohuihui me kahi mea e like me ka applesauce. Akā , mai uhaʻi a wāwahi paha i ka pila me ka ʻole o ke noi ʻana i kāu kauka.
- Manawa: E ho'āʻo e lawe i kāu lāʻau lapaʻau i ka manawa like i kēlā me kēia lā , e like me ke kauoha a kāu kauka.
- ʻAi: Hiki ke lawe ʻia kēia lāʻau lapaʻau ma mua a ma hope paha o ka ʻai ʻana. Eia nō naʻe, inā ʻeha kou ʻōpū a nausea paha ma hope o ka lawe ʻana i ka lāʻau lapaʻau, ʻo ka lawe ʻana me ka ʻai e kōkua paha i ka hōʻemi ʻana i ka ʻeha.
- No nā keiki: Pono nā hana akahele kūikawā i ka hāʻawi ʻana i kēia lāʻau lapaʻau i nā keiki ʻōpio. No laila, e hāʻawi wale ia ma ke ʻōlelo aʻo a ke kauka.
He aha kāu e hana ai inā e poina ʻoe i kahi mahele o ka lāʻau lapaʻau?
Inā ʻoe e poina i kahi lāʻau lapaʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau lapaʻau aʻe i kou hoʻomanaʻo ʻana, e kāpae i ka lāʻau lapaʻau i poina a lawe i kāu lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe pālua i ka lāʻau lapaʻau no kekahi kumu.
Overdose
Inā manaʻo koke ʻoe ua lawe ʻoe ma mua o ka nui i kuhikuhi ʻia o kēia lāʻau lapaʻau, e hele koke i ka ʻOihana Pilikia (ETU) o ka haukapila kokoke loa. A i ʻole e kelepona i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo no ka ʻōlelo aʻoaʻo.
Nā hopena ʻaoʻao hiki ke loaʻa i ka wā e lawe ana i ka lāʻau lapaʻau
E like me nā lāʻau lapaʻau āpau, hiki iā Tiopronin ke hana i nā hopena ʻaoʻao i kekahi poʻe. Hiki ke hoʻokaʻawale ʻia kēia mau mea i ʻelua mau ʻāpana nui.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Inā loaʻa kēia mau hōʻailona, e ʻike koke i kāu kauka. | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe a i ʻole ke alelo. |
| Nā pilikia ʻili koʻikoʻi | ʻUlaʻula ka ʻili, ka pehu, ka ʻili ʻana (a hiki i loko o ka waha). |
| Nā hōʻailona o ka helu haʻahaʻa o nā cell koko (Anemia) | Luhi kūikawā, keʻokeʻo, nāwaliwali, paʻakikī ke hanu. |
| Nā hōʻailona koʻikoʻi ʻē aʻe | Kuni, ʻeha hui, ʻeha waha, pehu o nā kuʻekuʻe wāwae, nā wāwae, a i ʻole nā lima, paʻakikī i ka mimi a i ʻole ka loli o ka nui o ka mimi, ʻeha a i ʻole ke kahe ʻana o ke koko. |
| Inā hoʻomau kēia mau hōʻailona a lilo paha i mea hoʻopilikia, e hoʻomaopopo i kāu kauka. | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | Ka luaʻi, ka ʻeha o ka ʻōpū, ka maʻi pākī. |
| Nā hiʻohiʻona liʻiliʻi ʻē aʻe | Ka loli ʻana o ka ʻono ma ka waha, ka luhi, ka ʻūmiʻi a i ʻole ka lahilahi ʻana o ka ʻili. |
Nā mea ʻē aʻe e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
- Nā hoʻokolohua lapaʻau: He mea nui loa ka hele ʻana i nā keʻena lapaʻau i nā manawa i hoʻonohonoho ʻia e like me ke kauoha a kāu kauka. Pono lākou e hana i nā hoʻokolohua koko a me ka mimi e nānā i kou ʻano.
- ʻAi a me nā wai: E noi ʻia ʻoe e hahai i kahi papaʻai kūikawā i ka wā e lawe ana i kēia lāʻau. E noi ʻia hoʻi ʻoe e inu i ka wai he nui i kēlā me kēia lā. E nīnau pololei i kāu kauka i ka nui o ka wai āu e inu ai i kēlā me kēia lā a me nā meaʻai maikaʻi/maikaʻi ʻole e ʻai.
- ʻAila: E pale loa i ka ʻaila i ka wā e lawe ana i kēia lāʻau. Hiki i ka ʻaila a me kēia lāʻau ke hana i nā hopena maikaʻi ʻole.
- Nā lāʻau lapaʻau ʻē aʻe: Mai poina e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei (me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui).
Ka mālama ʻana a me ka hoʻolei ʻana i nā lāʻau lapaʻau
- Ka mālama ʻana: ʻO kēia lāʻau lapaʻauE mālama iā ia ma kahi palekana mai ka hiki ʻana aku o nā keiki a me nā holoholona. ʻOi aku ka maikaʻi o ka mālama ʻana iā ia ma ka mahana lumi maʻamau (ma waena o 15-30 kekelē Celsius).
- Ka Hoʻolei ʻana: He mea nui loa ka hoʻolei pono ʻana i nā lāʻau lapaʻau i pau ka manawa a i ʻole i hoʻohana ʻole ʻia. Mai hoʻolei i nā lāʻau lapaʻau i loko o ka lua. ʻO ke ala maikaʻi loa, ʻo ia ka wehe ʻana i nā pila mai loko mai o ka ʻōmole, e kāwili iā lākou me kahi mea e like me nā lau kī i hoʻohana ʻia a i ʻole nā palapala kope i hoʻopau ʻia, e waiho iā lākou i loko o kahi ʻeke polythene i hoʻopaʻa pono ʻia, a hoʻolei iā lākou i loko o ka ʻōpala.
Leka Lawe-Home
- He lāʻau lapaʻau kūikawā ʻo Tiopronin i hāʻawi ʻia e pale i nā pōhaku puʻupaʻa e hana ʻia ma muli o ke ʻano cystinuria.
- E lawe mau i ka nui i kuhikuhi ʻia e kāu kauka, i ka manawa kūpono. E pale i ka haki ʻana a i ʻole ka wāwahi ʻana i nā papa me ka ʻole o ke aʻo ʻana a ke kauka.
- E hoʻomaopopo i kāu kauka e pili ana i nā kūlana olakino a me nā maʻi allergies āu ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau.
- Inā loaʻa iā ʻoe kekahi mau hopena koʻikoʻi e like me nā ʻeha ʻili nui, ka pehu ʻana, ka luhi ʻē, a i ʻole ke kahe ʻana o ke koko, e ʻimi koke i ke kōkua lapaʻau.
- He mea nui loa e hele i nā keʻena lapaʻau i nā lā i hoʻonohonoho ʻia a hana i nā hoʻokolohua e pono ai.
- E inu i ka wai e lawa ai i kēlā me kēia lā e like me ka ʻōlelo a kāu kauka.
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