Ke ʻānai nei ʻoe a ke kahakaha nei i kou kino a pau? He Urticarial Vasculitis paha ia? E kamaʻilio kākou e pili ana!

Ua ʻike anei ʻoe i kekahi manawa e ʻulaʻula koke kou kino, pehu, a ʻānai nā puʻupuʻu? I kekahi manawa e nalo ana kēia mau mea i loko o kekahi mau lā, akā no kekahi poʻe, hiki i kēia mau puʻupuʻu ke hoʻomau a hiki ke ʻeha loa. ʻO ia ke ʻano me ka inoa paʻakikī ʻo Urticarial Vasculitis a mākou e kamaʻilio ai i kēia lā. Mai makaʻu i kou lohe ʻana i ka inoa, e wehewehe maʻalahi kākou.

He aha ka Urticarial Vasculitis? I ka ʻōlelo maʻalahi...

ʻElua ʻāpana o kēia inoa, ʻeā? (Urticaria) a me (Vasculitis) . E nānā kākou i ke ʻano o kēia mau mea ʻelua.

ʻO ka Vasculitis kahi mumū o nā kīʻaha koko i loko o ko mākou kino. E noʻonoʻo i kēia mau kīʻaha koko e like me nā ʻōmole liʻiliʻi e holo ana ma loko o ko mākou kino. ʻO kēia nā ʻōmole e lawe ana i ke koko ma ke kino holoʻokoʻa. No laila, i ka wā e mumū ai kēia mau kīʻaha koko, ua like ia me kahi paipu wai i paʻa, kahi e ālai ai i ke kahe ʻana o ke koko.

ʻO ka Urticaria kahi maʻi a mākou e kapa pinepine ai he "hives" a i ʻole "hives." Kapa pū kekahi poʻe iā ia he "hives." He ʻulaʻula kēia, pehu, a pinepine nā puʻupuʻu maneʻo e ʻike ʻia ma ka ʻili o ka ʻili. I kekahi manawa kapa ʻia lākou e nā kauka he mau ʻeha ʻili .

No laila he aha ka Urticarial Vasculitis ? ʻO ka mea e hana ʻia ma kēia hihia, ʻo ka mumū o nā kīʻaha koko (vasculitis) i ʻōlelo ʻia ma mua e hoʻoulu ai i nā ʻulaʻula ʻili (urticaria). Akā, ʻaʻole like kēia mau ʻulaʻula me nā ʻulaʻula maʻamau, lōʻihi iki lākou, ʻoi aku paha ma mua o hoʻokahi lā, a ʻaʻole wale lākou he ʻūlū, akā hiki ke ʻeha .

ʻOiai ʻo kēia maʻi (Urticarial Vasculitis) ka mea nui e hoʻopilikia i ka ʻili, hiki i kekahi manawa ke hoʻopilikia i nā kīʻaha koko e pili ana i nā ʻōpū ʻē aʻe o ko mākou kino. ʻO ia hoʻi:

• No kou mau hono
• I ka puʻuwai (Heart)
• nā puʻupaʻa
• Nā maka
• Nā māmā

Akā, mai hopohopo, hiki i ka hapa nui o ka poʻe ke hoʻokele i kēia kūlana me ka lāʻau lapaʻau. Eia nō naʻe, inā loaʻa iā ʻoe nā ʻulaʻula mau ʻaʻole e nalowale i loko o kekahi mau lā, pono ʻoe e ʻike i ke kauka .

He mea nui: I kekahi manawa hiki i kēia kūlana ke hoʻoweliweli i ke ola inā pili ia i nā ʻōpū o loko. Inā ʻike ʻoe i nā hōʻailona e like me ka paʻakikī o ka hanu ʻana, ka ʻeha o ka umauma (e like me ka hōʻeha puʻuwai), a i ʻole ka nalowale koke o ka ʻike, e hele koke i ka haukapila a kāhea aku paha i ka 911 .

Pehea ka maʻamau o kēia maʻi (Urticarial Vasculitis)?

He maʻi laha ʻole kēia. He mea paʻakikī ke ʻōlelo pololei i ka nui o ka poʻe e loaʻa ana i kēlā me kēia makahiki. No ka mea, he mau hōʻailona iki ko kekahi poʻe, ʻaʻole paha lākou e lawe koʻikoʻi iā ia, a ʻaʻole paha lākou e loaʻa kahi hōʻailona kūpono. No ka mea, he kakaikahi nā hihia koʻikoʻi, he mea paʻakikī ke ʻōlelo pololei i ka nui o kēia.

He aha nā hōʻailona o ka Urticarial Vasculitis?

No nā kānaka he nui, hele mai nā hōʻailona a hele i nā "wā." ʻO ke ʻano kēia, hiki ke loaʻa nā hōʻailona no kekahi manawa pōkole, a laila nalo no kekahi manawa pōkole.

ʻO ka hōʻailona nui a maʻamau ka hives. Hiki ke ʻike ʻia kēia mau hives ma nā wahi āpau o ke kino. ʻO kēia mau hives maʻamau:

• Me he puʻu lā i pehu, i hāpai ʻia, a me he mea lā e hāpai ʻia ana .
• He ʻūmiʻi loa ia .
• ʻEhaʻeha .
• He ʻulaʻula paha a i ʻole he ʻeleʻele paha .

ʻO ka maʻamau, ke ʻike ʻia kahi ʻulaʻula, e nalowale ia i hoʻokahi a ʻelua paha lā. Eia nō naʻe, i kēia hihia (Urticarial Vasculitis), hiki ke noho ka ʻulaʻula ma kahi hoʻokahi no nā hola he 24 a ʻoi, i kekahi manawa no kekahi mau lā . Eia kekahi, ma hope o ka emi ʻana o ka ʻulaʻula, hiki ke ʻike ʻia ka wahi ua palapū a ʻeleʻele paha .

ʻOiai he mea kakaikahi, hiki nō hoʻi ke loaʻa nā hōʻailona koʻikoʻi:

• Luhi
• ʻEha hui : Ua like ia me ke kuni a ʻeha kou kino.
• ʻEha ʻōpū
• Nā kīpoʻo lymph pehu (Lymphedema) : Ma nā wahi e like me ka ʻāʻī a me nā ʻūpā lima.
• Maka ʻulaʻula
• kuni
• Pōkole o ka hanu
• ʻEha puʻupaʻa: ʻEha ma ka ʻāpana ʻūhā ma nā ʻaoʻao ʻelua.

I kekahi manawa, i ka wā o nā hōʻailona, ​​hiki ke loaʻa kahi maʻi i kapa ʻia ʻo angioedema . He pehu kēia o nā ʻiʻo ma lalo o ka ʻili. E noʻonoʻo i nā wahi e like me nā lehelehe a puni nā maka e pehu koke a nui.

He aha nā kumu o ka Urticarial Vasculitis?

ʻO kaʻoiaʻiʻo, ʻaʻole hiki i nā loea ke ʻōlelo pololei i ke kumu o kēia .

He maʻi autoimmune (Vasculitis). He mea paʻakikī paha kēia e hoʻomaopopo, ʻeā? I ka ʻōlelo maʻalahi, he ʻōnaehana pale ko ko kākou kino. Ua like ia me ka pūʻali koa ma ko kākou ʻāina, e pale ana iā kākou mai nā maʻi. Eia naʻe, ma kēia (maʻi Autoimmune), ʻo ka mea e hana ʻia ana, ʻo ia ka hoʻouka hewa ʻana o kā kākou ʻōnaehana pale ponoʻī i nā ʻāpana maikaʻi a me nā ʻiʻo o ko kākou kino ponoʻī. Ua like ia me ko kākou pūʻali koa e hoʻouka ana i ko kākou poʻe ponoʻī.

Hiki i ka Urticarial Vasculitis ke hana i kekahi manawa ma hope o ka mumū ʻana i loko o ke kino i hoʻokumu ʻia e kekahi maʻi ʻē aʻe. Ua kapa ʻia kēia mau mea he "triggers." ʻO ia hoʻi, ke kūlana olakino e hana ai i ka "hiki" no ka Urticarial Vasculitis e hoʻomaka. Hiki i kekahi poʻe ke hoʻomohala iā ia me ke kumu ʻole a i ʻole ke kumu. Ua kapa ʻia kēia he (idiopathic) .

ʻO kekahi o nā mea e hoʻoulu ai i ka urticaria vasculitis penei:

• Nā maʻi like ʻole : No ka laʻana, nā kūlana e like me ka Hepatitis B a i ʻole nā ​​​​virus Hepatitis C, Mononucleosis (i ʻike ʻia hoʻi ʻo "Kissing Disease"), a i kekahi manawa ma hope o ka maʻi COVID-19, ka maʻi Lyme.
• Nā maʻi autoimmune ʻē aʻe: No ka laʻana, (Rheumatoid arthritis), (Lupus) (i kapa ʻia ʻo SLE), (Sjögren's syndrome), (Hypothyroidism) (ka hana ʻole o ka thyroid gland).
• Ma ke ʻano he hopena ʻaoʻao o kekahi mau lāʻau lapaʻau .
• ʻO kekahi mau ʻano maʻi kanesa .

ʻO wai ka mea i ʻoi aku ka pilikia o ka hoʻomohala ʻana i ka Urticarial Vasculitis?

Hiki ke ulu kēia maʻi i kēlā me kēia makahiki. Eia nō naʻe, ʻoi aku ka maʻamau i nā pākeke ma luna o 30 mau makahiki. ʻOi aku ka pālua o ka loaʻa ʻana o nā wahine ma mua o nā kāne .

Pehea e ʻike ʻia ai ka Urticarial Vasculitis?

E nānā ke kauka i kēia maʻi. E nānā ʻo ia i kou ʻili a nīnau e pili ana i kāu mau hōʻailona.

Hoʻomaopopo pinepine ʻia ka Urticarial Vasculitis ma o ka "diagnosis differential." ʻO ke ʻano kēia, ua hana ʻia kekahi mau hoʻokolohua e hoʻoholo ai inā ua hoʻokumu ʻia kāu mau hōʻailona e kēia ʻano a i ʻole kekahi ʻano ʻē aʻe. ʻO kekahi o nā hoʻokolohua āu e loaʻa ai:

• ʻO ka biopsy ʻili o nā hives: Ma kēia, lawe ʻia kahi ʻāpana ʻili liʻiliʻi mai ka wahi i hoʻopilikia ʻia a nānā ʻia ma lalo o kahi microscope e ʻike inā he mumū i loko o nā kīʻaha koko.
• Nā hoʻāʻo koko : Hiki i kēia ke nānā i ka mumū, ka hana ʻōnaehana pale, a me nā kūlana pili ʻē aʻe.
• Nā hoʻokolohua e nānā i ka hana o kāu mau ʻōpū i hoʻopilikia ʻia : No ka laʻana, kahi hoʻāʻo mimi e ʻike ai inā ua hoʻopilikia ʻia kou mau puʻupaʻa, a i ʻole kahi X-ray umauma e ʻike ai inā ua hoʻopilikia ʻia kou mau māmā.

Pono paha ʻoe e ʻike i kahi rheumatologist, he kauka loea i nā maʻi mumū o nā hono, nā ʻiʻo, a me nā ʻiʻo pili. Inā loaʻa iā ʻoe nā hōʻailona e like me ka paʻakikī o ka hanu ʻana, hiki ke kuhikuhi ʻia ʻoe i kahi pulmonologist , he kauka loea i ka ʻōnaehana hanu.

He aha nā lāʻau lapaʻau no kēia?

E paipai kāu kauka i ka lāʻau lapaʻau e pili ana i kāu mau hōʻailona. ʻO ka pahuhopu nui ka hōʻemi ʻana i ka pehu a me ka kāohi ʻana i ka ʻeha a me ka mumū . ʻO nā ʻano lāʻau lapaʻau āu e pono ai:

• Nā NSAID ma luna o ke kūʻai aku (nā lāʻau anti-inflammatory nonsteroidal) : No ka laʻana, ibuprofen, aspirin, a i ʻole naproxen. Hiki ke kūʻai ʻia kēia mau mea ma ka hale kūʻai lāʻau lapaʻau.
• (Corticosteroids) : He ʻano lāʻau lapaʻau ikaika loa kēia e hōʻemi ana i ka mumū.
• Nā Antihistamine : Kōkua kēia i ka hōʻemi ʻana i ka maneʻo a me ka pehu.
• (Nā mea hoʻopale ACE) : Hoʻohana ʻia kēia mau mea i kekahi mau hihia.
• (Nā lāʻau pale ʻōpū)ʻO kēia nā lāʻau lapaʻau e kaohi ai i ka hyperactivity o ka ʻōnaehana pale i ʻōlelo ʻia ma mua.

E kamaʻilio kāu kauka me ʻoe a kōkua iā ʻoe e loaʻa i ka lāʻau lapaʻau maikaʻi loa nāu. He nui ka poʻe me ka Urticarial Vasculitis i loaʻa nā maʻi olakino ʻē aʻe. No laila, pono ʻoe e haʻi i kāu kauka e pili ana i nā maʻi ʻē aʻe āu e loaʻa nei a me nā lāʻau lapaʻau āu e lawe nei.

E hōʻoia e nīnau e pili ana i nā hopena ʻaoʻao o nā lāʻau lapaʻau a kāu kauka i kuhikuhi ai . Ma kēlā ala, e ʻike ʻoe i ka mea e manaʻo ai a me nā pilikia e makaʻala ai.

Hiki ke ho'ōla loa ʻia ka Urticarial Vasculitis?

ʻAʻohe lāʻau lapaʻau no kēia maʻi. Eia nō naʻe, hiki i kekahi poʻe ke komo i loko o kahi kūlana i kapa ʻia ʻo "remission," ʻo ia hoʻi hiki iā lākou ke noho me ka ʻole o nā hōʻailona no ka manawa lōʻihi—malia paha he mau mahina a he mau makahiki paha.

Inā loaʻa iaʻu kēia maʻi, he aha kaʻu e manaʻo ai?

Hiki iā ʻoe ke manaʻo e loaʻa kēia maʻi no ka manawa lōʻihi, malia paha no ke koena o kou ola . No nā kānaka he nui, hoʻopilikia wale ia i ka ʻili. Eia nō naʻe, inā hoʻopilikia ia i nā ʻōpū o loko, hiki i ka pōʻino ke hoʻoweliweli i ke ola.

ʻOiai inā ʻoe i loko o ka "remission", aia mau ka hiki ke loaʻa hou kahi hanana o nā hōʻailona.

Ma muli o kou mau kūlana olakino ʻē aʻe, e haʻi aku kāu kauka iā ʻoe i ka mea e manaʻo ai. He mea nui e ʻike pinepine i kāu kauka a e hoʻomaopopo iā lākou e pili ana i nā loli i kāu mau hōʻailona . Pono paha ʻoe e hana i nā nānā maʻamau e ʻike inā ua laha a ua loli paha ke kūlana.

Hiki ke pale ʻia ka Urticarial Vasculitis?

ʻAʻole hiki ke pale ʻia kēia. No ka mea, ʻaʻole hiki i nā loea ke loaʻa ke kumu pololei, ʻaʻole hiki iā lākou ke ʻōlelo i ka manawa a i ʻole ka mea nāna e hoʻomohala.

Pehea wau e mālama ai iaʻu iho?

• E makaʻala mau i kāu mau hōʻailona . Inā ʻike ʻoe i kekahi mau loli, e kākau i lalo.
• I kou maʻa ʻana i ka noho ʻana me ka Urticarial Vasculitis, e hiki iā ʻoe ke ʻike i nā hōʻailona i ka wā e hoʻomaka ai lākou e ʻike ʻia .
• E hahai pono i ka hoʻolālā lapaʻau i ʻaelike ʻia me kāu kauka .
• Inā manaʻo ʻoe ʻaʻole e holo pono ana kahi lāʻau lapaʻau, a inā manaʻo ʻoe ʻaʻole ia e hua mai ana i nā hopena e like me ka wā ma mua, mai kānalua e ʻike i ke kauka .

Āhea wau e ʻike ai i ke kauka?

E ʻike i kāu kauka inā loaʻa iā ʻoe nā hōʻailona hou o ka Urticarial Vasculitis, a inā paha e loli ana kāu mau hōʻailona . E haʻi pū i kāu kauka inā e hoʻonui ana a i ʻole e ʻoi aku ka ʻino o kāu mau hanana.

E haʻi aku ke kauka iā ʻoe i ka pinepine o kou pono e hele mai no nā hoʻokolohua a i ʻole i ke keʻena lapaʻau.

I ka hihia o ka pilikia:

Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, ​​e hele koke i ka haukapila a kāhea aku paha i ka 1990 :

• Inā ʻaʻole hiki iā ʻoe ke hanu.
• Inā manaʻo ʻoe e loaʻa ana iā ʻoe kahi hōʻeha puʻuwai (ʻeha nui o ka umauma, ʻūlū).
• Inā e ʻino koke kou ʻike a nalowale paha ia .

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Ke ʻike ʻoe i ke kauka, hiki iā ʻoe ke nīnau i nā nīnau e like me kēia:

• "E ke kauka, ua loaʻa iaʻu kēia (Urticarial Vasculitis) no kekahi kumu kikoʻī?"
• "Ke hoʻopilikia wale nei kēia i koʻu ʻili, a i ʻole hiki ke hoʻopilikia pū i koʻu mau kino o loko?"
• "He aha ke ʻano o nā hoʻokolohua e pono ai iaʻu e hana?"
• "He aha ke ʻano o ka lāʻau lapaʻau maikaʻi loa e kāohi ai i kēia mau hōʻailona?"
• "Aia kekahi mau hopena ʻaoʻao mai kēlā lāʻau lapaʻau?"
• "Pehea ka wikiwiki e pono ai iaʻu e ʻike hou i ke kauka a i ʻole e hana i nā hoʻokolohua?"

He aha ka ʻokoʻa ma waena o (Urticaria) a me (Urticaria Vasculitis)?

Me he mea lā he mea huikau iki kēia, ʻeā?

ʻO Urticaria ka mea a nā kauka i kapa ai he "hives." ʻO ia hoʻi he ʻulaʻula, pehu, a me nā puʻupuʻu maneʻo ma ka ʻili.

Inā kū mai nā hives e like me kēia ma ke ʻano he hōʻailona o kahi maʻi ʻē aʻe, hoʻohui nā kauka i ka huaʻōlelo "urticarial" i ke ʻano.

ʻO ia ke kumu i kapa ʻia ai ʻo Urticarial Vasculitis . ʻO ia hoʻi, ua hana ʻia ka ʻili ʻulaʻula (Urticaria) e kahi maʻi i kapa ʻia ʻo Vasculitis (ka mumū ʻana o nā kīʻaha koko).

I ka ʻōlelo maʻalahi, ʻo (Urticaria) ka hōʻailona (hives). ʻO (Urticariarial Vasculitis) ka maʻi (ka mumū o nā kīʻaha koko) e hoʻoulu ai i kēlā hōʻailona.

Aia kekahi pilina ma waena o ka Urticarial Vasculitis a me ka hāpai ʻana?

ʻOiai ʻaʻole hiki i nā loea ke kuhikuhi i ke kumu kūpono o ka Urticarial Vasculitis, he paʻakikī ke ʻōlelo aku i nā kūlana a i ʻole nā ​​​​loli i ke kino e hiki ai a ʻaʻole paha ke kumu.

Hiki ke "hoʻāla ʻia" kekahi mau maʻi autoimmune i ka wā hāpai. Inā ʻike ʻoe i kekahi mau loli hou i kou ʻili i kou wā hāpai - ʻoiai he ʻulaʻula a i ʻole ka ʻulaʻula paha āu i loaʻa ʻole ai ma mua - e hōʻoia e haʻi i kāu kauka.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai

He maʻi laha ʻole ka Urticarial Vasculitis e hoʻoulu ai i ka mumū o nā kīʻaha koko. Hoʻopilikia pinepine ia i ka ʻili a hoʻoulu i nā ʻulaʻula ʻeha, ʻeha, a me ka ʻāʻī. Eia nō naʻe, hiki iā ia ke hoʻopilikia i nā ʻāpana ʻē aʻe o ke kino. Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​e ʻike i ke kauka e kūkākūkā i nā ala maikaʻi loa e hoʻokele ai i kāu mau hōʻailona.

Hiki ke paʻakikī ke noho me kahi maʻi mau loa . He mea maʻamau ka manaʻo luhi, luhi, a me ka hoʻonāukiuki. He ʻoiaʻiʻo kēlā mau manaʻo. Inā ʻoe e manaʻo nei ua kaumaha, e kamaʻilio me kāu kauka a i ʻole ke kākāʻōlelo olakino noʻonoʻo a e ʻimi e pili ana i nā hui kākoʻo a i ʻole nā ​​​​kumuwaiwai ʻē aʻe e hiki ke kōkua iā ʻoe. ʻAʻole ʻoe hoʻokahi.

ʻO ka vasculitis urticarial, vasculitis, urticaria, hives, autoimmune, ʻulaʻula ʻili, mumū