Ua hoʻonui ʻia nā lua o ka lolo o kāu pēpē? E aʻo kākou e pili ana i ka ventriculomegaly

Inā he makuahine hāpai ʻoe, ua lohe paha ʻoe i ka huaʻōlelo 'Ventriculomegaly' i kāu scan. Pono ʻoe i manaʻo i ka makaʻu nui a me ka haʻalulu i ka lohe ʻana, ʻeā? Pono ʻoe i manaʻo, 'Auē, aia kekahi mea hewa nui me kaʻu pēpē?' He mea maʻamau no nā makuahine he nui ke manaʻo pēlā i nā manawa e like me kēia. No laila, me ka ʻole o ka hoʻopaneʻe hou ʻana, e kamaʻilio kākou e pili ana i kēia kūlana i kapa ʻia ʻo 'Ventriculomegaly' i kēia lā ma ke ʻano maʻalahi a maopopo.

He aha ka Ventriculomegaly?

I ka ʻōlelo maʻalahi, ʻo Ventriculomegaly ka wā e ʻoi aku ka nui o nā lua i piha i ka wai i loko o ka lolo o kāu pēpē (kapa mākou i kēia mau 'ventricles') ma mua o ka maʻamau. E noʻonoʻo penei: aia i loko o ko mākou lolo kēia mau keʻena liʻiliʻi. Aia i loko o kēia mau keʻena kahi wai kūikawā i kapa ʻia ʻo 'cerebrospinal fluid' a i ʻole '(Cerebrospinal fluid - CSF)'.

He mea nui loa kēia wai `(CSF)`. Ua like ia me kahi uluna pale no ko kākou lolo a me ke kaula kuamoʻo. ʻO ia hoʻi, pale ia i kēia mau ʻōkana mai ka pōʻino, hānai iā lākou, a hoʻoneʻe i nā ʻōpala. ʻO ka maʻamau, hana ʻia kēia wai `(CSF)`, hele i loko a puni ka lolo, a laila hoʻihoʻi hou ʻia i loko o ke kino. He mea kēia e hana mau ana, e like me ke kaʻapuni.

Eia nō naʻe, i kekahi manawa inā he mea keakea i nā ala e hele ai kēia wai `(CSF)`, a inā he kaulike ʻole ma waena o ka hana ʻana a me ka omo ʻana o ka wai, ua paʻa kēia wai i loko o nā lua i kapa ʻia ʻo ventricles a hoʻomaka e hōʻiliʻili. ʻO ia ka manawa e ulu mālie ai kēlā mau lua, e like me ka pōpō e hoʻopiha ana i ka wai. ʻO kēia ka mea a mākou e kapa nei ʻo `Ventriculomegaly` i ka wā fetal, ʻo ia hoʻi, i ka wā e noho ana ke pēpē i loko o ka ʻōpū.

Ua lohe paha ʻoe i ka huaʻōlelo 'hydrocephalus'. He ʻano kēia kahi e hoʻonui ʻia ai nā ventricles ma muli o ka hōʻiliʻili ʻana o ka wai cerebrospinal (CSF), kahi e hoʻonui ai i ke kaomi ma ka lolo. Hoʻomaopopo pinepine nā kauka i ke ʻano 'hydrocephalus' ma hope o ka hānau ʻana o ka pēpē. Inā hoʻonui ʻia nā ventricles o kahi pēpē i loko o ka ʻōpū, ua kapa ʻia ʻo ventriculomegaly.

He kūlana maʻamau anei kēia?

Wahi a ka ʻikepili mai ʻAmelika Hui Pū ʻIa, hiki i kēia maʻi ke hoʻopilikia i ʻelua o 1,000 mau hānau ola. Akā ʻo ka mea nui , ʻo ka hapa nui o ka manawa, he maʻi iki kēia, a ʻaʻole ia e hoʻopilikia i ka wā e hānau ai ke pēpē. I ka hapa nui o nā hihia, e pau ka ulu ʻana o kēia mau ventricles, a e emi hou paha i ka nui maʻamau. No laila, ʻaʻohe pono e makaʻu nui ke lohe ʻoe i kēia inoa.

He aha nā hōʻailona o ka Ventriculomegaly?

ʻO ka hapa nui o ka manawa, ʻaʻohe hōʻailona ʻike ʻia o ka ventriculomegaly i loko o kahi pēpē i loko o ka ʻōpū.ʻO ka maʻamau, e ʻike kāu kauka ua hoʻonui ʻia nā ventricles o kāu pēpē i ka wā o kahi ultrasound maʻamau i ka wā hāpai. ʻO nā pēpē me ka ventriculomegaly iki ʻaʻole lākou e hōʻike i kekahi mau hōʻailona ma hope o ka hānau ʻana.

Eia nō naʻe, inā koʻikoʻi ke kūlana, hiki i ka pēpē ke hōʻike i nā hōʻailona o ka hydrocephalus i kekahi mau lā ma hope o ka hānau ʻana. ʻO kēia mau hōʻailona:

• He nui loa ke poʻo o ka pēpē a i ʻole e piʻi koke ana ka nui o ke poʻo.
• ʻIke ʻia ka wahi palupalu ma luna o ke poʻo o ke pēpē (fontanel) he pehu a he puʻupuʻu.
• ʻAʻole hiki i nā maka ke nānā pololei i luna, a me he mea lā ua huli i lalo (nānā i lalo).
• Luhi nui a i ʻole ka hoʻomaha mau a me ka uē ʻana.
• Ka luaʻi pinepine ʻana.
• Ka paʻakikī a i ʻole ka makemake ʻole e inu i ka waiū.

He aha ke kumu o kēia?

Hiki i ka Ventriculomegaly ke loaʻa i kekahi mau kumu. I kekahi manawa , ʻaʻole hiki ke loaʻa ke kumu maopopo. ʻO ka mea nui e hoʻomanaʻo ai, ʻo kēia ʻano maʻamau he hanana maʻamau ia, ʻaʻole ia he mea i hoʻoilina ʻia mai nā genes o nā mākua a i ʻole i hoʻokumu ʻia e nā kumu kaiapuni .

ʻO nā kumu ʻelua maʻamau:

• Aia kekahi ʻano keʻakeʻa a i ʻole ke kaulike ʻole i ka neʻe manuahi ʻana o ka wai "CSF" a mākou i kamaʻilio ai a me kona komo kūlohelohe ʻana i loko o ke kino.
• Hiki i kahi ʻeha a i ʻole kekahi pilikia ʻē aʻe ke hoʻopilikia i ka ulu ʻana o ka lolo o ka pēpē.

He mea hoʻoilina anei kēia?

ʻAʻole. ʻAʻole he maʻi hoʻoilina ʻo Ventriculomegaly. ʻO ke ʻano kēia he mea ia e hiki mai ana ma ke ʻano ulia pōpilikia a ʻaʻole ia he mea i hoʻoili ʻia mai ka makuahine a i ke keiki.

He aha nā kumu pilikia?

He mea kūlike pinepine ka Ventriculomegaly. Hiki ke hana hoʻokahi a i ʻole me nā pilikia ʻē aʻe i ka wā hāpai. Ua hōʻike kekahi mau noiʻi e hiki i nā kūlana ma lalo nei ke hoʻonui iki i ka pilikia o ka loaʻa ʻana o ka ventriculomegaly i kahi pēpē:

• ʻO ka spina bifida (kahi kīnā hānau e pili ana i ke kaula spinal).
• ʻO ka Agenesis o ke corpus callosum (ACC) (ʻaʻole i ulu pono ke ʻano e hoʻopili ai i nā hapalua ʻelua o ka lolo).
• Nā maʻi i ka makuahine hāpai, no ka laʻana, syphilis a i ʻole cytomegalovirus (CMV).
• Nā maʻi ʻino o ka Chromosomal, no ka laʻana, Down syndrome.

He aha nā pilikia e hiki mai ana?

ʻO ka wā e hiki mai ana o kahi pēpē me ka ventriculomegaly e pili ana i ke koʻikoʻi a me ke kumu kumu. Ma keʻano laulā, inā ua hoʻonui iki ʻia nā ventricles a ʻaʻole hōʻike ka ultrasound i nā mea ʻē aʻe, maikaʻi ka hopena.

Eia nō naʻe, ʻoi aku ka nui o ka pilikia o kahi pēpē me nā ventricles nui loa, a i ʻole kahi pēpē me nā pilikia olakino ʻē aʻe i loaʻa i ka wā hānau me nā ventricles i hoʻonui ʻia. ʻOiai he mea kakaikahi, hiki i nā pēpē i hānau ʻia me ka ventriculomegaly koʻikoʻi ke loaʻa nā pilikia neurological a i ʻole nā ​​​​lohi o ka ulu ʻana.

Hiki i kahi pēpē me ka ventriculomegaly ke ola?

ʻAe, ʻoiaʻiʻo nō. He maʻi hiki ke mālama ʻia ʻo Ventriculomegaly.

Pehea e ʻike ʻia ai ka Ventriculomegaly?

ʻO ka maʻamau, ʻike nā kauka i kēia kūlana i ka wā o ka nānā ʻana i ke anatomy fetal, kahi i hana ʻia ma waena o 18 a me 22 mau pule o ka hāpai ʻana. I kekahi manawa hiki ke ʻike ʻia ma hope o ka hāpai ʻana. I ka wā o kēia ultrasound, ana ke kauka i kekahi mau ʻāpana o ka lolo o ka pēpē. Inā nui loa ke ana, hiki ke hōʻike ʻia he ventriculomegaly ka pēpē.

A laila, e kauoha paha kāu kauka i nā hoʻokolohua kiʻi hou aku, e like me ka fetal MRI (fetal Magnetic Resonance Imaging - MRI). Hiki i kēia ke kiʻi i nā kiʻi maopopo loa o ka lolo o ka pēpē, i hiki i ke kauka ke ʻike i nā ventricles o ka pēpē me nā kikoʻī. Palekana loa ka MRI.

E kauoha paha kāu kauka i nā ultrasounds hou aʻe ma ke koena o kou hāpai ʻana e nānā i ka nui o ka wai i loko o nā ventricles o ka pēpē.

I kekahi mau hihia, hiki ke hana ʻia kahi hoʻāʻo i kapa ʻia ʻo amniocentesis . Pili kēia i ke kauka e hoʻohana ana i kahi nila lahilahi e lawe i kahi laʻana liʻiliʻi o ka wai amniotic e hoʻopuni ana i ka pēpē. Hiki ke hoʻāʻo ʻia kēia wai e ʻike inā he mau maʻi, e like me ka cytomegalovirus.

Ma hope o ka hānau ʻana o ka pēpē, hana ʻia kekahi ultrasound a i ʻole MRI o ka lolo o ka pēpē e hoʻoholo ai inā he hydrocephalus ka pēpē a inā pono ke ʻoki ʻana.

Nā pae hoʻohālikelike no ka ʻike ʻana i ka ventriculomegaly

Ana ʻia ke koʻikoʻi o ka ventriculomegaly fetal e ka laulā o ka ventricle. I loko o kahi fetus maʻamau, ʻoi aku ka laulā o nā ventricles o ka lolo ma mua o 10 millimeters (mm) - e like me ka laulā o ka pī.

• ʻAʻole nui: Nā ventricles ma waena o 10 a me 12 mm.
• Waena: ʻO nā ventricles ma waena o 13 a me 15 mm.
• Koʻikoʻi: ʻOi aku ka laulā o nā ventricles ma mua o 15 mm.

Pehea e mālama ʻia ai?

Hoʻōla ʻia ʻo Ventriculomegaly ma hope o ka hānau ʻana o kāu pēpē, a ʻo ka mea maʻamau ia e pono ai inā hōʻike kāu pēpē i nā hōʻailona o ka hydrocephalus.

E hana ke kauka i kahi ultrasound a i ʻole MRI o ka pēpē. Inā he nui ka wai i loko o nā ventricles o ka pēpē, pono paha ke ʻoki ʻana i ka lolo e hōʻemi i ka nui o ka wai a me ke kaomi ma ka lolo.

ʻO ke ʻano hana maʻamau o ke ʻoki ʻana, ʻo ia ke kau ʻana i kahi shunt i loko o ka lolo o ka pēpē e wehe i ke kahe (ʻoki shunt ventriculoperitoneal). He ʻōmole palupalu ka shunt e hiki ai i ke kahe cerebrospinal keu (CSF) ke kahe i kahi ʻāpana ʻē aʻe o ke kino (e like me ka ʻōpū).

I kekahi mau hihia, pono paha kekahi ʻano hana ʻoki kino i kapa ʻia ʻo endoscopic third ventriculostomy (ETV) . Ma kēia kaʻina hana, hoʻokomo ke kauka ʻoki kino i kahi endoscope ma o ka piko o ke poʻo o ke pēpē (ka fontanel). Hoʻokumu kēia i kahi ala ʻē aʻe no ke kahe ʻana o ka wai cerebrospinal (CSF) i loko a puni ka lolo.

Hiki i ka ventriculomegaly ke hoʻomaikaʻi iā ia iho?

ʻAe, i kekahi manawa hiki i ka ventriculomegaly ke hoʻomaikaʻi me ka ʻole o kekahi lāʻau lapaʻau. A i ʻole hiki ke noho pēlā a nalowale ma mua o ka hānau ʻana o ka pēpē. E nānā kāu kauka i ka nui o nā ventricles o ka lolo o ka pēpē i ke koena o kou hāpai ʻana.

He aha ka mea e hana ai inā loaʻa ka ventriculomegaly i kaʻu pēpē?

Inā ʻike ʻia ʻoe me kēia maʻi i ka wā hāpai, e nānā pono kāu kauka i ka lolo o kāu pēpē. Ma hope o ka hānau ʻana o kāu pēpē, e nānā lākou e ʻike inā ua hoʻonui ʻia nā ventricles o ka pēpē. Inā ʻaʻohe hōʻailona o nā ventricles i hoʻonui ʻia a i ʻole ke kaomi ʻana ma ka lolo, ʻaʻole pono paha kāu pēpē i ke ʻoki ʻana ma hope o ka hānau ʻana. ʻO ka hapa nui o nā pēpē me nā maʻi ʻoluʻolu ʻaʻohe hopena olakino lōʻihi.

Hiki i nā keiki i hānau ʻia me ka ventriculomegaly ke loaʻa i ka hydrocephalus ma hope. I kēlā mau hihia, pono paha ke ʻoki ʻana. Pono nō hoʻi e nānā ʻia ka pēpē no kekahi mau makahiki ma hope o ke ʻoki ʻana e hōʻoia i ka noho maʻamau o ke kaomi i loko o ka lolo o ka pēpē.

Pono ʻoe e hopohopo e pili ana i ka ventriculomegaly?

Inā he ventriculomegaly iki ko ka ʻōpū i loko o ka pēpē a ʻaʻohe pilikia olakino ʻē aʻe, aia ma kahi o 90% ka manawa kūpono ʻaʻole e loaʻa i ka ventriculomegaly nā hopena lōʻihi.

He mea maʻamau ka hopohopo ke lohe ʻoe ua hānau ʻia kāu pēpē me kahi maʻi. E nīnau i kāu kauka i nā nīnau āu e loaʻa ai. E kōkua lākou iā ʻoe e hōʻoluʻolu i kou hopohopo e pili ana i ke olakino o kāu pēpē. E hana lākou i nā mea āpau e hiki ai iā lākou ke kākoʻo iā ʻoe.

Ke pili nei kēia i ka hānau keiki ʻana?

ʻAʻole maʻamau. Inā ʻaʻole nui loa ke poʻo o ka pēpē, hiki ke hānau maʻamau.Inā he mau pilikia olakino ʻē aʻe a inā he nui ke poʻo o ka pēpē, pono paha ka ʻoki ʻoki cesarean (C-section). Hiki i kāu kauka ke ʻōlelo aku e hānau ʻoe i kāu pēpē ma kahi haukapila i loea i ka mālama ʻana i nā pēpē me nā pono kūikawā. ʻO kēia no ka mea aia nā kauka loea a me nā pono e like me ka Neonatal Intensive Care Unit (NICU).

Hiki ke pale ʻia ka ventriculomegaly?

ʻAʻole. ʻAʻohe mea hiki iā ʻoe ke hana e pale aku i ka ventriculomegaly. ʻAʻole na ʻoe ia hewa.

Ke ʻōlelo nei anei ʻo ventriculomegaly he Down syndrome kahi pēpē?

ʻAʻole pono kēia he ʻoiaʻiʻo. Aia kahi pilina ma waena o ka ventriculomegaly a me Down syndrome. ʻO kahi fetus me nā ventricles i hoʻonui ʻia e hiki ke piʻi iki ka pilikia o ka hoʻomohala ʻana i nā maʻi chromosomal e like me Down syndrome. Eia nō naʻe, ʻo ka loaʻa ʻana o ka ventriculomegaly ʻaʻole ia he manaʻo e loaʻa i kāu pēpē ka Down syndrome.

He aha nā nīnau āu e nīnau ai i ke kauka?

He mea maʻamau ka loaʻa ʻana o nā nīnau e pili ana i ka hōʻailona o Ventriculomegaly. Hiki iā ʻoe ke nīnau i kāu kauka i kēia mau nīnau:

• Pono anei au e hana i nā hoʻokolohua hou aku?
• Aia kekahi mea e pono iaʻu e hana ʻokoʻa ma muli o kēia hōʻailona?
• Aia kekahi lāʻau lapaʻau no ka Ventriculomegaly?
• E lohi anei kaʻu pēpē i ka noʻonoʻo a i ʻole ka ulu ʻana?
• E pono anei iaʻu ke ʻoki kino ma hope o ka hānau ʻana o kaʻu pēpē?

I ka hōʻuluʻulu manaʻo (Leka Lawe-Home)

ʻO ka loaʻa ʻana o kahi hōʻailona o Ventriculomegaly i ka wā hāpai hiki ke lilo i mea hoʻohoka koke. Ke noʻonoʻo nei paha ʻoe, "Aia kekahi hewa i koʻu hāpai ʻana?" a i ʻole "Ua hana hewa anei au?" E ʻoluʻolu e hoʻomanaʻo, ʻaʻohe āu i hana hewa, a ʻo ka hapa nui o ka manawa e hānau olakino kāu pēpē. E kamaʻilio me kāu kauka hānau keiki e pili ana i ke ʻano o kēia hōʻailona a me ke ʻano o ka mālama āu e pono ai ma hope o ka hānau ʻana. Aia ʻo ia ma laila e pane i kāu mau nīnau a lawe i nā hana āpau e pono ai e mālama i kou hāpai ʻana a me ke olakino o kāu pēpē. Mai hopohopo, a e hahai i ka ʻōlelo aʻo a kāu kauka.

ʻO Ventriculomegaly, lolo fetal, CSF, hydrocephalus, scan hāpai, olakino pēpē, nā lua o ka lolo