Ma ke ʻano he makuahine e hiki mai ana, ke kakali nei paha ʻoe i ka hiki ʻana mai o kāu pēpē i ke ao nei me ke olakino. Eia nō naʻe, i kekahi manawa hiki ke kū mai nā pilikia olakino i manaʻo ʻole ʻia. I kēia lā, e kamaʻilio mākou e pili ana i kahi kīnā hānau koʻikoʻi loa i lohe ʻole ʻia e ka poʻe he nui. Ua kapa ʻia kēia ʻo Anencephaly. He mea nui loa ka makaʻala i kēia.
He aha maoli ka Anencephaly?
I ka ʻōlelo maʻalahi, ʻo ka anencephaly kahi kūlana i hānau ʻia ai kahi pēpē me ka ʻole o ka ulu kūpono ʻana o nā ʻāpana o ka lolo a me ke poʻo. He kūlana kakaikahi loa kēia a he koʻikoʻi loa.
E hoʻomaopopo iki kākou i kēia. Ke hāpai ʻoe, i nā pule mua, hoʻomaka ka lolo a me ke kaula iwi kuamoʻo o kāu pēpē e hana ʻia e like me kahi diski pālahalaha o nā cell. E noʻonoʻo e like me ka ʻōwili ʻana i kahi lau pālahalaha i loko o kahi paipu, a pelu mālie kēia diski o nā cell a hana i kahi ʻano like me ka paipu. Kāhea mākou i kēia ʻo ka neural tube . Pono e pani piha ʻia kēia neural tube i 28-32 mau lā ma hope o ka hāpai ʻana.
Eia nō naʻe, inā no kekahi kumu ʻaʻole e pani piha kēia ʻōmole neural, e waiho ana kahi puka liʻiliʻi. ʻO kēia ka mea a mākou e kapa nei he mau kīnā ʻōmole neural . ʻO Anencephaly kekahi o ia mau kīnā ʻōmole neural. I kēia hihia, e waiho mau ana ka ʻōmole neural ma ke kumu o ka iwi poʻo. ʻO ka hopena, ʻaʻole e ulu nā ʻaoʻao mua a me luna o ka lolo a me nā ʻāpana pili o ka iwi poʻo.
He aha ka mea e hiki ai ke hana i ka anencephaly?
He mea paʻakikī ke kuhikuhi i hoʻokahi kumu no kēia. Hiki i ka hui pū ʻana o nā kumu ke kōkua i kēia. ʻO nā kumu hoʻoilina, nā hemahema meaʻai, a me kekahi mau mea i hōʻike ʻia e ka makuahine i ka wā hāpai kekahi o nā mea nui.
E wehewehe hou aku kākou i kēia mau kumu pilikia ma ka papa ma lalo nei.
| Kumu pilikia | Wehewehena |
|---|---|
| Ka hemahema o ka waikawa Folic | ʻO ke kumu nui, ʻaʻole lawa ka waikawa folic ma mua a i ka wā hāpai. He mea nui kēia huaora no ka ulu ʻana o ka neural tube o ka pēpē. |
| Kekahi mau lāʻau lapaʻau | ʻO kekahi mau lāʻau lapaʻau i hoʻohana ʻia e mālama i nā maʻi hopu, nā maʻi noʻonoʻo e like me ka maʻi bipolar, a me nā migraines, e like me Phenytoin, Carbamazepine, a me Valproic acid , e hoʻonui paha i ka pilikia. |
| Ka maʻi diabetes i kāohi ʻole ʻia | Inā loaʻa ka maʻi diabetes i ka makuahine a ʻaʻole i kāohi pono ʻia kona pae kō koko i ka wā hāpai, hiki iā ia ke hoʻopilikia maikaʻi ʻole i ka ulu ʻana o ka pēpē. |
| Mahana kino kiʻekiʻe | I nā pule mua o ka hāpai ʻana (i ka wā e hana ʻia ai ka neural tube), hiki ke lilo i mea weliweli ke loaʻa i ke kuni nui a i ʻole ke komo ʻana i loko o ka wai wela loa, e like me ka ʻauʻau wela a i ʻole ka sauna. |
| Momona | ʻO ka piʻi nui ʻana o ke kaumaha o ka makuahine kekahi kumu e hiki ai ke hoʻopilikia i ka ulu ʻana o ka pēpē i nā wā mua o ka hāpai ʻana. |
| Nā kūlana hoʻoilina | Hiki ke hana ʻia ʻo Anencephaly e kekahi mau kūlana genetic, e like me Trisomy 18. Eia nō naʻe, ʻaʻole i hoʻoilina pinepine ʻia kēia mau mea, akā he mau loli genetic maʻamau. |
| Ka hoʻohana ʻana i ka lāʻau opioid | Ua hōʻike kekahi mau noiʻi ʻoi aku ka nui o ka loaʻa ʻana o nā kīnā neural tube i nā keiki a nā makuahine i hoʻohana i nā lāʻau ʻeha opioid e like me Codeine, Tramadol, a me Morphine i nā mahina ʻelua mua o ka hāpai ʻana. |
Hiki ke ʻike ʻia kēia maʻi i ka wā hāpai?
ʻAe, ʻoiaʻiʻo nō. Ma ke ʻano he ʻāpana o kāu mālama ʻana i ka wā hāpai, e hana kāu kauka i kekahi mau hoʻokolohua e nānā i kēia ʻano kīnā o ka neural tube.
- Ke nānā ʻana i ka Ultrasound:ʻO kēia ke ʻano hana nui. Hiki i ke kauka ke ʻike i ke ʻano o ke poʻo o ka pēpē, ka lolo, a me ke kaula iwi kuamoʻo. Hiki ke ʻike maopopo ʻia ka Anencephaly ma kahi scan.
- Hoʻāʻo Koko Quad Marker Screen: He hoʻāʻo kēia i hana ʻia ma ke koko o ka makuahine. Ana ia i ka pae o kahi kemika i kapa ʻia ʻo Alpha-fetoprotein (AFP) i loko o ke koko o ka makuahine. Hana ʻia ka AFP e ke akepaʻa o ka pēpē. Inā kiʻekiʻe loa ka pae AFP i loko o ke koko o ka makuahine, hiki ke hōʻike he kīnā neural tube paha ka pēpē (e like me ka anencephaly).
- ʻO ke kiʻi MRI Fetal: Inā ʻaʻole maopopo kekahi mea mai ke kiʻi ultrasound, hiki ke hana ʻia kahi kiʻi MRI e loaʻa ai nā kiʻi maopopo a kikoʻī hoʻi o ka lolo a me ke kaula spinal o ka pēpē.
- Amniocentesis: Ma kēia hoʻāʻo, hoʻohana ke kauka i kahi nila lahilahi loa e lawe i kahi laʻana liʻiliʻi o ka wai amniotic e hoʻopuni ana i ka pēpē. Hoʻāʻo ʻia kēia wai no nā pae kiʻekiʻe o kahi enzyme i kapa ʻia ʻo AFP a me acetylcholinesterase. ʻO nā pae kiʻekiʻe o kēia mau mea he hōʻailona nō hoʻi ia o kahi kīnā neural tube.
Aia kekahi lāʻau lapaʻau no kēia?
ʻO kēia ka ʻāpana kaumaha loa o kēia kumuhana.
ʻO ka mea pōʻino, ʻaʻohe lāʻau lapaʻau a lāʻau lapaʻau paha no ka anencephaly.
He mea paʻakikī loa kēia e hoʻomanawanui. Nui nā hāpai ʻana me nā kīnā neural tube e pau i ka hāʻule ʻana. Hānau ʻia kekahi mau pēpē me ka anencephaly me he mau keiki hānau make lā. Inā paha ua hānau ola ʻia ke pēpē, ua kaupalena ʻia kona ola i kekahi mau hola a i ʻole mau lā.
Inā ʻike ʻia kēia kūlana, e hāʻawi kāu kauka a me nā limahana o ka haukapila iā ʻoe a me kou ʻohana i ke kākoʻo naʻau e pono ai. Ke hānau ʻia ka pēpē, e hāʻawi lākou i nā pono e pono ai e hoʻolilo i ka manawa me ka pēpē i ka hiki i loko o kēlā manawa pōkole.
He aha kā mākou e hana ai e hōʻemi i ka pilikia?
ʻOiai ʻaʻole hiki ke pale ʻia ka anencephaly i ka 100% o ka manawa, aia kekahi mau mea hiki iā mākou ke hana e hōʻemi nui i ka pilikia. He mea nui loa kēia no nā wahine e hoʻolālā ana e hoʻomaka i kahi ʻohana.
- ʻAkika Folic: ʻO kēia ka mea nui loa. Inā ʻoe e hoʻolālā ana e loaʻa kahi pēpē , e hoʻomaka e lawe i 400 micrograms (400 mcg) o ka waikawa folic i kēlā me kēia lā no ka liʻiliʻi he 3 mau mahina ma mua o ka hāpai ʻana.Pono ʻoe e hoʻomau i ka lawe ʻana i kēia no nā mahina 3 mua ma hope o ka hāpai ʻana. E kuhikuhi kāu kauka i ka nui kūpono āu e pono ai.
- E makaʻala me nā lāʻau lapaʻau: Inā ʻoe e hoʻolālā ana e loaʻa kahi pēpē, e kamaʻilio me kāu kauka e pili ana i nā lāʻau lapaʻau āu e lawe nei (ʻoi aku hoʻi no nā kūlana e like me ka maʻi epilepsy a i ʻole ka maʻi noʻonoʻo). Hiki iā ia ke ʻōlelo i nā koho ʻē aʻe palekana inā pono.
- E hōʻalo i nā mea ʻeha opioid: Inā manaʻo ʻoe ua hāpai ʻoe a hāpai paha, e pale i ka lawe ʻana i nā mea ʻeha opioid me ka ʻole o ke aʻo a kāu kauka.
- E kāohi i ka mahana o kou kino: E pale i ka hele ʻana i nā ʻauʻau wela a me nā sauna i ka wā hāpai mua. Inā loaʻa iā ʻoe ke kuni, e kūkākūkā me kāu kauka e pili ana i ka pehea e hōʻemi palekana ai i ke kuni.
- E mālama i ke kaumaha olakino: E ho'āʻo e mālama i ke kaumaha o ke kino ma mua o ka loaʻa ʻana o kahi pēpē.
- E mālama i ka maʻi diabetes: Inā loaʻa iā ʻoe ka maʻi diabetes, e kamaʻilio me kāu kauka e pili ana i ka pehea e mālama pono ai ma mua o kou hāpai ʻana a ma kou hāpai ʻana.
Leka Lawe-Home
- He kīnā hānau koʻikoʻi loa ka Anencephaly kahi e ulu pono ʻole ai ka lolo a me ke poʻo o kahi pēpē.
- ʻAʻohe lāʻau lapaʻau no kēia maʻi.
- Inā ʻoe e hoʻolālā ana e loaʻa kahi keiki, he mea nui loa ia e lawe i ka waikawa folic i kekahi mau mahina ma mua o ka hāpai ʻana. Hiki i kēia ke hōʻemi nui i ka pilikia o nā kīnā neural tube.
- E kamaʻilio me kāu kauka e pili ana i nā lāʻau lapaʻau āu e lawe nei a me nā kūlana olakino e like me ka maʻi diabetes ma mua o ka hāpai ʻana i kahi keiki.
- Hiki i nā scan i ka wā hāpai ke ʻike mua i kēia mau maʻi. No laila, mai haʻalele i ke keʻena lapaʻau.
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