Aia kekahi loli i ka ʻike o kāu keiki? E kamaʻilio kākou e pili ana i ka Optic Glioma.

I kekahi manawa ʻike mākou i nā loli liʻiliʻi i nā maka o kā mākou mau keiki. Malia paha ke ʻano o kekahi maka i mua iki o kekahi, a i ʻole ke ʻōlelo pinepine nei ke keiki he ʻano pōwehiwehi iki kona ʻano. ʻOiai ke manaʻo nei mākou he mau mea maʻamau kēia, i kekahi manawa aia paha ke kumu ma hope o kēia e pono ai mākou e makaʻala. ʻO kekahi kumu like paha he ʻano i kapa ʻia ʻo Optic Glioma. He puʻupuʻu kēia e ulu ana i loko o ka lolo. No laila e kamaʻilio kākou e pili ana i nā mea āpau ma nā ʻōlelo maʻalahi i kēia lā.

He aha ka Optic Glioma?

I ka ʻōlelo maʻalahi, he puʻupuʻu lolo wikiwiki loa ka Optic Glioma. ʻIke pinepine ʻia lākou i nā keiki ma lalo o 10 mau makahiki. ʻO ka ʻoiaʻiʻo, he 5% wale nō lākou o nā puʻupuʻu lolo a pau o nā kamaliʻi.

Hoʻomohala kēia puʻupuʻu a puni ke aʻalolo optic, ke aʻalolo e hoʻopili ai i ko kākou mau maka i ko kākou lolo. Aia kekahi ʻano cell i loko o ko kākou lolo e kōkua a hānai i nā cell nerve, i kapa ʻia ʻo nā cell glial. ʻO kēia mau cell kahi e hoʻomaka ai kēia puʻupuʻu.

I ka ulu ʻana o kēia puʻupuʻu, hoʻomaka ia e kaomi ma ka maka a me ke aʻalolo optic. Hiki i kēia ke hana i ka ʻike maka pohihihi a, inā ʻaʻole mālama pono ʻia, hiki i ka makapō . Eia naʻe, no ka mea hiki ke ulu nui loa, ʻaʻole paha e ʻike koke ʻia nā loli i ka ʻike. Hiki ke hoʻopilikia i hoʻokahi a i ʻole nā ​​​​maka ʻelua.

ʻO ke kumu nui o ka weliweli o kēia mau puʻupuʻu ma muli o ko lākou wahi i loko o ka lolo. Hoʻopili ko kākou aʻalolo optic i ka lolo ma o ke kikowaena hormone o ko kākou kino. No laila, i ka ulu ʻana o ka puʻupuʻu, hiki iā ia ke hoʻopilikia i kēlā. ʻO ia hoʻi, hiki iā ia ke hana i nā hormonal imbalances, nā pilikia e hoʻoponopono ai i ka nui o ka paʻakai a me ka wai i loko o ke kino, a hoʻopilikia i nā mea e like me ka makemake a me ka hiamoe .

ʻO ka maʻamau, loaʻa i ko kākou lolo kahi 'pale koko-lolo' e pale aku ai. ʻO kēia ka mea e pale ai i nā maʻi mai ka hiki ʻana i ka lolo. Ma muli o kēia pale, ʻaʻole pinepine nā puʻupuʻu e like me kēia e laha ma waho o ka lolo i nā ʻāpana ʻē aʻe o ke kino. Eia naʻe, he mea kākaʻikahi loa, ʻo ia hoʻi, ʻaʻole i hiki i ka 5%, hiki i kēia puʻupuʻu ke laha ma ʻō aku o ka lolo a me ke kaula kuamoʻo.

He aha nā hōʻailona o kēia?

ʻOkoʻa nā hōʻailona o kahi puʻupuʻu lolo ma muli o kahi o ka lolo e pili ai. I ke ʻano o kahi optic glioma, ʻo nā pilikia ʻike nā mea nui. Akā hiki iā mākou ke noʻonoʻo i kēia mau mea he mau hōʻailona o kahi maʻi ʻē aʻe. E nānā kākou i nā hōʻailona nui.

Aia kekahi mea kūikawā. Inā ua ʻike ʻia kāu keiki me kahi maʻi genetic i kapa ʻia ʻo Neurofibromatosis 1 (NF1) , ʻoi aku ka nui o kona pilikia o ka loaʻa ʻana o ka Optic Glioma. Ma kahi o 15% o nā keiki me NF1 e loaʻa i kēia mau puʻupuʻu. Akā ʻo ka mea nui ma ʻaneʻi, ʻo ka nui o nā puʻupuʻu e ulu ana ma kēia ʻano e emi a oki paha i ka ulu ʻana ma o lākou iho i ka hala ʻana o ka manawa, me ka ʻole o ka lāʻau lapaʻau. No laila, ʻaʻole pono nā keiki āpau me NF1 i ka lāʻau lapaʻau no kēia.

Pehea e ʻike ʻia ai kēia maʻi?

Inā kānalua kāu kauka he maʻi kou, e hana lākou i kekahi mau hoʻokolohua e hōʻoia iā ia. Ke ʻike ʻia ka maʻi, hāʻawi ʻia ka puʻupuʻu i kahi 'papa', a i ʻole ka hoʻokaʻawale ʻana, ma muli o kona koʻikoʻi. Hāʻawi ʻia kēia papa ma ka lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka puʻupuʻu a nānā iā ia ma lalo o kahi microscope. ʻO nā papa 1 a me 2 he mau puʻupuʻu haʻahaʻa. ʻElua hapakolu o nā glioma optic a pau o nā kamaliʻi no kēia ʻano. ʻO nā papa 3 a me 4 he mau puʻupuʻu kiʻekiʻe.

Eia nā hoʻokolohua nui i hoʻohana ʻia no ka hōʻoia ʻana.

Hiki i kēia mau hoʻokolohua ke komo i nā ʻano loea like ʻole. No ka laʻana, he kauka pediatric, he loea neurologist, a he kauka ʻoki maka. E hui pū lākou a pau, e nānā i nā hopena o ka hoʻokolohua, e hōʻea i kahi hopena hope loa, a e wehewehe iā ʻoe. Inā ua hōʻoia ʻia ka maʻi, ʻo ka hana aʻe, ʻo ke koho ʻana i ke koho lapaʻau maikaʻi loa e pili ana i ke olakino o kāu keiki a me ke koʻikoʻi o ka puʻupuʻu.

He aha nā lāʻau lapaʻau no kēia?

Noʻonoʻo nā kauka i kekahi mau kumu i ke koho ʻana i ke ʻano lapaʻau maikaʻi loa.

• ʻO ka makahiki o ke keiki, ke olakino holoʻokoʻa, a me ka mōʻaukala olakino
• ʻO ke ʻano, ka wahi, a me ka nui o ka puʻupuʻu
• Ka nui o ka maʻi
• Ka pane a ke kino o ke keiki i nā lāʻau lapaʻau, nā lāʻau lapaʻau, a me nā ʻoki kino (he mea nui loa kēia no nā keiki ʻōpio)
• ʻO ka wikiwiki e hiki ai i ka maʻi ke holomua

Kemoterapia

Hoʻomaʻamaʻa pinepine ʻia kēia mau puʻupuʻu me ka chemotherapy, ʻo ia hoʻi ka hāʻawi ʻana i nā lāʻau lapaʻau i ke kino e pepehi i nā hunaola kanesa, hoʻēmi i ka puʻupuʻu, a hoʻihoʻi i ka ʻike.

Lapaʻau Hou (Lapaʻau i Manaʻo ʻia)

He kūleʻa loa nō hoʻi nā lāʻau lapaʻau hou i kapa ʻia ʻo 'molecularly targeted therapies'. Hoʻopaʻa pololei kēia mau mea i nā hunaola kanesa.

Hoʻōla Hormone

Inā ua hoʻopilikia ka puʻupuʻu i ka ʻāpana o ka lolo e kaohi ana i nā hormones, pono paha ka lāʻau hoʻololi hormone e kaohi i nā hōʻailona i loaʻa (e laʻa, ka lohi o ka ulu ʻana).

ʻoki kino

ʻAʻole pono pinepine ke ʻoki kino no kēia mau puʻupuʻu. Manaʻo ʻia ke ʻoki kino inā pilikia nui ka puʻupuʻu i ka ʻike a inā ʻeha nui ke keiki. Inā ʻōlelo kāu kauka i ke ʻoki kino, e kuhikuhi ʻo ia iā ʻoe i kahi neurosurgeon.

Hoʻōla radiation

Inā ʻaʻole pane ka puʻupuʻu i ka chemotherapy, ʻo ke koho aʻe ka radiation therapy. Pili kēia i ka hoʻohana ʻana i kahi mīkini kūikawā e hāʻawi i nā kukuna ikehu kiʻekiʻe i ka puʻupuʻu, e luku ana i nā hunaola kanesa a hoʻemi iā ia.