Koj tus menyuam puas feem ntau tsaug zog hauv chav kawm? Tej zaum tus xib fwb hais tias, "Koj tus tub/ntxhais yeej ib txwm tsaug zog hauv chav kawm, nws dhuav heev." Los yog nws puas cia li tsaug zog thaum ua si nrog nws cov phooj ywg? Ib txhia niam txiv xav tias qhov no yog ib yam dab tsi uas lawv ua vim dhuav, lossis lwm yam vim lawv tsis tsaug zog zoo thaum hmo ntuj. Txawm li cas los xij, qhov no qee zaum tuaj yeem yog ib qho mob hnyav dua uas cuam tshuam nrog lub hlwb. Peb tab tom tham txog qhov ntawd niaj hnub no. Peb hu qhov mob no ua Narcolepsy.
Hauv lwm lo lus, narcolepsy yog dab tsi?
Kab mob Narcolepsy yog ib yam mob uas lub hlwb ntawm ib tug me nyuam tsis tuaj yeem tswj tau lawv txoj kev pw tsaug zog thiab kev sawv. Zoo li peb lub cev "lub moos sab hauv" raug cuam tshuam. Qhov no muaj feem cuam tshuam loj tshaj plaws rau tus me nyuam lub peev xwm kom tsaug zog.
Ib qho ntawm thawj cov cim qhia ntawm tus mob neurological no yog kev tsaug zog ntau dhau thaum nruab hnub , uas tuaj yeem cuam tshuam rau tus menyuam txoj kev kawm, kev ua si, thiab kev sib raug zoo nrog cov phooj ywg.
Ib tug me nyuam uas muaj tus mob no yuav xav tias nkees thiab tsaug zog thoob plaws hnub. Qee zaum, lawv yuav muaj "kev pw tsaug zog nres" thiab tsaug zog thaum ua ib yam dab tsi. Xav txog tej yam txaus ntshai uas yuav tshwm sim yog tias lawv tsaug zog thaum taug kev ntawm txoj kev, ua si, lossis noj mov. Yog li ntawd, qhov no yog ib qho mob uas peb yuav tsum tsis txhob saib tsis taus.
Muaj ob hom mob Narcolepsy tseem ceeb:
Yog, qhov xwm txheej no feem ntau muab faib ua ob ntu. Muaj qhov sib txawv me ntsis ntawm ob qho no.
| Hom mob narcolepsy | Tsuas yog piav qhia xwb |
|---|---|
| Hom 1 (Yav tas los hu ua Narcolepsy nrog Cataplexy) | Hauv hom no, tus menyuam kuj tseem yuav tsaug zog ntau dhau thaum nruab hnub thiab muaj tus mob hu ua cataplexy . Qhov no yog thaum lub cev cov leeg nqaij tsis muaj zog thiab xav tias lawv tsis tswj tau lawv tus kheej. Tsis tas li ntawd, qib ntawm cov tshuaj hu ua hypocretin, uas pab lub hlwb kom ceev faj, qis. Hauv hom no, lub cev kuj tseem yuav hnyav zuj zus. |
| Hom 2 (Yav tas los hu ua Narcolepsy tsis muaj Cataplexy) | Hauv hom no, tus menyuam tsuas muaj kev tsaug zog ntau dhau thaum nruab hnub xwb. Qhov mob cataplexy uas tau hais ua ntej tsis tshwm sim. Tsis tas li ntawd, cov theem ntawm hypocretin hauv lub hlwb tsis raug cuam tshuam. |
Qhov tseem ceeb yog tias ob hom kab mob no tuaj yeem cuam tshuam rau tus menyuam lub neej txhua hnub, yog li nws tseem ceeb heev uas yuav tsum paub txog cov tsos mob.
Cov tsos mob ntawm narcolepsy hauv menyuam yaus yog dab tsi?
Tsis yog txhua tus menyuam uas muaj tus kab mob narcolepsy yuav muaj cov tsos mob no ib yam. Tej zaum yuav muaj tej yam tsos mob pib thaum ntxov, tiam sis tej zaum yuav tshwm sim tom qab. Muaj plaub yam tsos mob tseem ceeb.
1. Pw tsaug zog ntau dhau thaum nruab hnub
2. Cataplexy - cov leeg nqaij tsis muaj zog tam sim ntawd
3. Pw tsaug zog tsis taus
4. Pom/hnov ntau yam thaum pw tsaug zog lossis sawv (Kev pom tsis meej)
Tsis tas li ntawd xwb, koj kuj tuaj yeem pom cov tsos mob no:
- Kev pw tsaug zog tsis zoo
- Pw tsaug zog ob peb feeb yam tsis paub tias koj ua dab tsi (Kev coj cwj pwm tsis siv neeg)
- Qhov hnyav nce sai sai
- Kev laus ua ntej lub sijhawm
Tam sim no cia peb saib cov tsos mob tseem ceeb no kom meej.
Kev tsaug zog ntau dhau thaum nruab hnub
Qhov no feem ntau yog thawj lub cim qhia. Nws mus dhau qhov tsuas yog "tsaug zog xwb." Nws cuam tshuam yuav luag txhua yam uas tus menyuam ua hauv tsev, hauv tsev kawm ntawv, thiab nrog phooj ywg.
Saib seb tej no puas tshwm sim rau koj tus menyuam:
- Xav tias nkees heev thoob plaws hnub, tshwj xeeb tshaj yog thaum zaum, nyeem ntawv, lossis caij tsheb.
- "Kev tsaug zog tsis taus" tshwm sim. Qhov ntawd txhais tau tias koj tsaug zog tam sim ntawd, tsis tuaj yeem tswj tau.
- Tom qab muaj 5 xyoos, tseem pw tsaug zog thaum nruab hnub, lossis pw ntev dua li tus menyuam feem ntau (ob txog peb teev).
- Txawm tias koj pw tsaug zog thaum nruab hnub thiab sawv los, koj yuav rov qab tsaug zog dua tom qab ib pliag.
- Lub taub hau xav tias qeeb, tsis nco qab, thiab tsis muaj zog.
- Kev mloog thiab kev tsom ntsoov yooj yim ploj mus.
- Npau taws, chim siab, ua haujlwm ntau dhau, lossis nyuaj siab yam tsis muaj laj thawj.
Cataplexy - cov leeg nqaij tsis muaj zog tam sim ntawd
Qhov no yog ib qho tsos mob tshwj xeeb heev. Cataplexy yog ib qho kev poob zog ntawm cov leeg nqaij hauv lub cev sai sai, luv luv. Qhov no tuaj yeem kav ntev li ob peb vib nas this mus txog ob peb feeb.
Qhov no yuav zoo li koj lub hauv caug yuav loog, lossis koj lub cev tag nrho yuav loog thiab koj yuav ntog rau hauv av.
Koj yuav xub pom cov yam ntxwv no ntawm koj tus menyuam lub ntsej muag:
- Tus nuv tsis muaj sia thiab lub qhov ncauj qhib.
- Cov qhov muag hnyav thiab poob qis.
- Ntxig tus nplaig tawm.
- Cov lus sib xyaw ua ke thaum hais lus.
- Qhia txog kev txav ntawm lub ntsej muag lossis kev qhia tawm txawv txawv.
Qhov tseem ceeb yog tias qhov xwm txheej cataplexy no tshwm sim thaum muaj kev xav zoo li kev zoo siab, luag, npau taws, ntshai, lossis kev zoo siab tshwm sim. Xav txog, thaum koj tus menyuam luag nrov nrov ntawm kev tso dag, nws mam li khoov nws lub hauv caug thiab zaum hauv pem teb. Los yog thaum nws zoo siab tom qab yeej qhov kev ua si, nws poob qhov nws tuav rau hauv pem teb.
Kwv yees li ntawm 70% ntawm cov menyuam yaus uas muaj tus mob narcolepsy muaj tus mob no. Txawm li cas los xij, rau cov menyuam yaus me, nws tuaj yeem yuam kev rau kev tsis mloog zoo, qaug dab peg, tsaus muag, lossis tsuas yog ib txoj hauv kev kom tau mloog zoo xwb .
Kev pw tsaug zog tuag tes tuag taw
Qhov no yog ib yam uas ntau tus neeg tau ntsib dhau los, tab sis nws tuaj yeem ua rau ntshai heev. Kev pw tsaug zog tuag tes tuag taw yog ib qho mob uas koj tsis tuaj yeem txav koj lub cev lossis hais lus thaum koj tab tom yuav tsaug zog, lossis thaum koj sawv thaum sawv ntxov.
Txawm tias qhov no kav li ob peb feeb lossis ob peb feeb xwb ces ploj mus, tus me nyuam ntshai heev, zoo li lawv raug ntes thiab tsis tuaj yeem thov kev pab. Qhov no tuaj yeem muaj kev cuam tshuam loj rau tus me nyuam lub hlwb kev noj qab haus huv. Feem ntau, qhov mob no yuav ploj mus yog tias muaj lwm tus kov lub cev.
Pom/hnov ntau yam (Kev pom tsis meej)
Cov no yog cov kev paub zoo li npau suav uas zoo li muaj tseeb tab sis tsis yog. Lawv tshwm sim thaum koj tab tom yuav tsaug zog (hypnagogic hallucinations) lossis thaum koj sawv los ntawm kev pw tsaug zog (hypnopompic hallucinations).
Feem ntau, cov menyuam yaus pom lossis hnov tej yam uas ua rau lawv ntshai, xws li cov duab ntawm cov tsiaj lossis cov suab ntawm cov tsiaj. Feem ntau, qhov mob no tshwm sim nrog rau qhov pw tsaug zog tuag tes tuag taw uas tau hais ua ntej.
Vim li cas cov menyuam yaus thiaj li muaj mob narcolepsy?
Tsis muaj ib qho laj thawj tseeb rau qhov no, tab sis nws feem ntau xav tias yog vim muaj teeb meem hauv thaj chaw ntawm tus menyuam lub hlwb uas tswj kev pw tsaug zog thiab kev sawv (hypothalamus).
Tshwj xeeb, hom 1 narcolepsy yog tshwm sim los ntawm kev txo qis hauv cov tshuaj hypocretin hauv lub hlwb, uas pab kom peb tsaug zog. Muaj ntau yam ua rau qhov no:
- Kab mob tiv thaiv kab mob (Autoimmune condition): Hais yooj yim xwb, tus menyuam lub cev tiv thaiv kab mob ua yuam kev tawm tsam cov hlwb noj qab haus huv uas tsim cov tshuaj hypocretin, ua rau tsis muaj cov tshuaj ntawd txaus. Qee zaum, tus mob no tuaj yeem tshwm sim tom qab muaj kev kis kab mob yooj yim.
- Keeb kwm tsev neeg:Yog tias muaj ib tug neeg hauv tsev neeg muaj tus mob no, tej zaum yuav muaj qee qhov kev sib txuas caj ces rau tus menyuam uas muaj tus mob no thiab.
- Kev raug mob hlwb lossis qog: Tsis tshua muaj, qhov mob no tuaj yeem tshwm sim vim yog kev puas tsuaj rau thaj chaw uas tswj kev pw tsaug zog vim yog kev raug mob hlwb, qog, lossis lwm yam mob.
Cov teeb meem uas yuav tshwm sim ntawm narcolepsy yog dab tsi?
Tus mob no tuaj yeem cuam tshuam rau ntau yam ntawm tus menyuam lub neej.
- Kev kawm tsis zoo hauv tsev kawm ntawv.
- Nyuaj ntsib cov phooj ywg thiab tswj kev sib raug zoo hauv zej zog.
- Teeb meem ntawm lub hlwb (kev nyuaj siab, kev ntxhov siab).
- Teeb meem kev coj cwj pwm (xws li kev tsis mloog zoo - ADHD).
- Kev raug mob ntawm lub cev vim yog kev pw tsaug zog tam sim ntawd.
Cov kws kho mob kuaj mob li cas?
Yog koj xav tias koj tus menyuam muaj cov tsos mob no, thawj qhov uas yuav tsum ua yog mus ntsib koj tus kws kho mob, tshwj xeeb yog kws kho menyuam yaus.
Tus kws kho mob yuav kuaj tus menyuam thiab nug koj txog cov tsos mob thiab tus cwj pwm pw tsaug zog. Qee zaum tus menyuam tsis nkag siab txog nws cov tsos mob tag nrho, yog li qhov koj pom yog qhov tseem ceeb tshaj plaws.
Tom qab ntawd, koj yuav raug xa mus kuaj ntau zaus kom paub meej tias koj muaj tus kab mob.
| Txoj kev sim | Qhov tshwm sim tsuas yog |
|---|---|
| Khaws Ib Phau Ntawv Sau Txog Kev Pw Tsaug Zog | Ob peb lub lis piam, lawv yuav hais kom koj sau tej yam xws li thaum koj tus menyuam mus pw, thaum lawv sawv, thiab lawv pw ntev npaum li cas thaum nruab hnub. |
| Cov cuab yeej Actigraph | Qhov no yog ib lub cuab yeej me me uas zoo li lub moos ntawm tes. Nws ntsuas tus menyuam txoj kev txav mus los thiab sau cov ntaub ntawv txog thaum twg tus menyuam pw tsaug zog thiab thaum twg nws sawv. |
| Kev kuaj mob pw tsaug zog (PSG) | Qhov no yog kev xeem thaum hmo ntuj ntawm qhov chaw kawm txog kev pw tsaug zog. Thaum tus me nyuam tsaug zog, tej yam xws li cov nthwv dej ntawm lub hlwb, lub plawv dhia, kev ua pa, qhov muag thiab kev txav ntawm ob txhais ceg raug ntsuas tas li. |
| Kev Ntsuas Kev Pw Tsaug Zog Ntau Zaug (MSLT) | Qhov no ua tiav thaum nruab hnub tom qab kev xeem PSG. Thaum lub sijhawm no, tus menyuam raug hais kom pw tsaug zog luv luv txhua ob teev. Tus menyuam tsaug zog sai npaum li cas thiab lawv nkag mus rau hauv kev pw tsaug zog tob (REM pw tsaug zog) sai npaum li cas raug ntsuas. |
Qee zaum, cov tsos mob no zoo ib yam li cov mob ntawm lwm yam kab mob thaum yau (piv txwv li, ADHD, qaug dab peg), uas tuaj yeem ua rau kuaj mob tsis raug . Yog li ntawd, cov kev kuaj no tseem ceeb heev rau kev kuaj mob kom raug.
Puas muaj kev kho mob rau narcolepsy?
Tu siab kawg li, tseem tsis tau muaj tshuaj kho tau tus mob narcolepsy. Txawm li cas los xij, txawm hais tias nws yog ib yam mob uas yuav kho tau mus ib txhis los xij, muaj cov kev kho mob zoo heev uas tuaj yeem pab tswj cov tsos mob thiab pab tus menyuam kom ua neej nyob li qub.
Kev kho mob feem ntau muab faib ua ob ntu:
1. Cov Tshuaj
2. Kev hloov tus cwj pwm thiab kev ua neej
Kev kho mob nrog tshuaj
Koj tus kws kho mob yuav sau ntawv rau ntau yam tshuaj kom txo qhov kev tsaug zog thaum nruab hnub, tswj cataplexy, txo cov tsos mob xws li kev pw tsaug zog tsis zoo thiab kev pom kev tsis tseeb.
Piv txwv li:
- Cov tshuaj txhawb zog
- Cov tshuaj uas ua rau sawv ntxov
- Cov tshuaj uas ua rau lub paj hlwb tsis ua haujlwm zoo
- Cov tshuaj tiv thaiv kev nyuaj siab
Qhov tseem ceeb tshaj plaws yog koj tus kws kho mob yuav txiav txim siab seb yuav siv tshuaj thiab noj ntau npaum li cas rau koj tus menyuam. Qhov no yuav siv sijhawm ob peb lub lis piam. Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum ua raws li tus kws kho mob cov lus qhia kom meej.
Kev hloov pauv tus cwj pwm thiab kev ua neej
Ntxiv rau kev siv tshuaj, kev hloov me me hauv tus menyuam txoj kev ua neej tuaj yeem ua qhov sib txawv loj.
- Tsim ib lub sijhawm teem sijhawm pw tsis tu ncua: Ua kom koj tus menyuam tau siv los mus pw thiab sawv tib lub sijhawm txhua hnub.
- Ua kom koj tus menyuam tau siv rau kev pw tsaug zog luv luv: Muab sijhawm rau koj tus menyuam pw tsaug zog luv luv 20-30 feeb thaum lawv xav tias tsaug zog tshaj plaws.
- Tsim kom muaj ib qho chaw pw tsaug zog zoo: Koj chav pw yuav tsum ntsiag to, tsaus ntuj, txias, thiab xis nyob. Tsis txhob saib TV lossis siv koj lub xov tooj thaum zaum hauv txaj.
- Tsis txhob haus caffeine: Tsis txhob haus dej qab zib, kas fes, tshuaj yej, thiab chocolate ob peb teev ua ntej yuav mus pw.
- Kev Ua Si: Nws yog qhov zoo rau kev ua si tsawg kawg yog 20 feeb hauv ib hnub. Tab sis nws tsis yog qhov zoo rau kev ua si peb teev ua ntej yuav mus pw.
- Tsis txhob ua tej yam txaus ntshai: Cia koj tus menyuam nyob hauv qab kev saib xyuas ntawm cov neeg laus thaum ua tej yam xws li ua luam dej thiab ua noj ua haus uas yuav txaus ntshai yog tias lawv tsaug zog tam sim ntawd.
- Tau kev pab los ntawm lub tsev kawm ntawv: Qhia rau cov xib fwb thiab tus thawj xib fwb txog koj tus menyuam tus mob. Qhov no yuav pab lawv tau txais kev pab tsim nyog (piv txwv li, cia tus menyuam pw tsaug zog thaum nruab hnub).
- Muab kev txhawb nqa kev puas siab puas ntsws: Kev nyob nrog tus mob no tuaj yeem ua rau tus menyuam nyuaj siab, yog li nws yog ib qho tseem ceeb heev uas yuav tsum muab kev txhawb nqa ntawm tus kws tshaj lij kev noj qab haus huv ntawm lub hlwb.
Ua ib tug niam txiv, koj yuav pab tau koj tus menyuam li cas?
Ua ib tug niam txiv, koj yog lub zog loj tshaj plaws rau koj tus menyuam hauv txoj kev taug kev no. Nws yuav siv sijhawm me ntsis kom tau txais kev kuaj mob tseeb thiab nrhiav txoj kev kho mob zoo. Ua siab ntev thaum lub sijhawm ntawd.
Sib txuas lus nrog cov xib fwb hauv tsev kawm ntawv. Piav qhia txog qhov teeb meem ntawm koj tus menyuam rau lawv. Tham nrog lawv txog tej yam uas koj tuaj yeem pab koj tus menyuam kawm.
Nco ntsoov tias, koj tsis yog tib tug uas muaj qhov teeb meem no. Kev ua haujlwm ua pab pawg nrog koj tus kws kho mob, koj tus menyuam cov xib fwb, thiab, yog tias tsim nyog, cov kws tshaj lij kev noj qab haus huv ntawm lub hlwb, tuaj yeem muab lub zog rau koj tus menyuam uas lawv xav tau los daws qhov teeb meem no.
Thaum kawg, yog tias koj tus menyuam tsaug zog ntau dhau thaum nruab hnub, tsis txhob tsuas yog hu nws tias "tub nkeeg," tab sis tham nrog kws kho mob txog qhov ntawd. Qhov sai dua qhov mob tau kuaj pom, qhov zoo dua koj tus menyuam yuav tau txais kev pab kom muaj kev vam meej thaum yau.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Narcolepsy tsis yog kev tub nkeeg, nws yog ib qho mob neurological uas cuam tshuam nrog lub hlwb.
- Cov tsos mob tseem ceeb yog tsaug zog ntau dhau thaum nruab hnub thiab tsis nco qab sai sai (Cataplexy) nrog rau kev xav muaj zog xws li luag.
- Yog koj muaj cov tsos mob no, mus ntsib kws kho mob menyuam yaus.
- Tej zaum yuav xav tau kev tshawb nrhiav tshwj xeeb txog kev pw tsaug zog kom paub tseeb tias yog dab tsi.
- Txawm hais tias tsis muaj kev kho kom zoo tag nrho los xij, kev siv tshuaj thiab kev hloov pauv hauv lub neej tuaj yeem tswj tau cov tsos mob thiab pab tus menyuam kom ua neej nyob li qub.
- Yog tias tus me nyuam muaj kev phom sij vim yog nws tsaug zog taug kev tam sim ntawd, coj lawv mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ze tshaj plaws tam sim ntawd.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus