Yog tias koj lossis ib tus neeg koj hlub raug mob Beta Thalassemia, tej zaum koj paub tias nws nkees npaum li cas uas yuav tsum tau hloov ntshav ntau zaus. Txawm li cas los xij, nrog rau kev nce qib ntawm kev kho mob, kev cia siab tshiab tau ntxiv rau qhov mob no. Hnub no, peb yuav tham txog ib qho kev kho mob tshiab, zoo heev. Nws lub npe yog Betibeglogene Autotemcel. Nws feem ntau hu ua ZYNTEGLO.
Hais yooj yim xwb, Betibeglogene Autotemcel no yog dab tsi?
Qhov no tsis yog ib lub tshuaj ntsiav lossis tshuaj ntsiav ib txwm muaj. Qhov no yog ib qho kev kho mob tshwj xeeb heev, uas siv cov noob caj noob ces siab heev. Lub hom phiaj tseem ceeb ntawm qhov no yog los pab lub cev ntawm ib tus neeg uas muaj beta thalassemia tsim cov qe ntshav liab noj qab nyob zoo, ua haujlwm tau zoo.
Xav txog seb puas muaj ib qho me me ntawm lub Hoobkas uas tsim cov qe ntshav liab hauv peb lub cev. Qhov ntawd yog qhov tshwm sim rau cov neeg mob thalassemia. Kev kho mob tshiab no pab kho qhov teeb meem ntawd. Yog tias ua tiav, nws yuav txo tau qhov xav tau kev hloov ntshav ntau zaus. Qhov ntawd yuav zoo siab heev, puas yog?
Kev kho mob no muab li cas?
Txoj kev kho mob no nyuaj me ntsis. Yog li ntawd, qhov no tsis yog ib yam dab tsi uas ua tau hauv tsev. Qhov no yuav tsum tau ua hauv tsev kho mob, nyob rau hauv kev saib xyuas ntawm pab pawg kws kho mob tshwj xeeb.
Qhov tseem ceeb tshaj plaws yog tias kev kho mob no yog ua los ntawm koj cov hlwb . Yog lawm, cov hlwb tiv thaiv kab mob uas coj los ntawm koj raug hloov kho hauv chav kuaj mob siv cov txheej txheem tshwj xeeb, vim muaj peev xwm tsim cov hlwb ntshav liab noj qab haus huv, thiab tom qab ntawd rov muab tso rau hauv koj lub cev los ntawm cov hlab ntsha. Qhov no yog ib qho thev naus laus zis zoo kawg nkaus.
Kev kho mob no muab tau rau cov menyuam yaus hnub nyoog tshaj 4 xyoos. Txawm li cas los xij, nws yuav tsum tau npaj tshwj xeeb thiab ceev faj. Koj tus kws kho mob yuav piav qhia qhov no rau koj.
Qhov tseem ceeb tshaj plaws: Qhov no yog kev kho mob uas tsim tshwj xeeb rau koj. Yog li ntawd, tsis pub muab rau lwm tus txawm yog vim li cas los xij.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej pib kho mob
Ua ntej pib kho mob zoo li no, nws yog ib qho tseem ceeb heev uas koj tus kws kho mob paub txog koj keeb kwm kev noj qab haus huv tag nrho. Yog tias ib qho ntawm cov hauv qab no raug rau koj, nco ntsoov qhia rau lawv txog nws.
- Yog koj muaj mob xws li HIV lossis AIDS .
- Yog tias koj nyuam qhuav tau txhaj tshuaj tiv thaiv kab mob , lossis yuav tsum tau txhaj sai sai no (tshwj xeeb tshaj yog cov tshuaj tiv thaiv uas muaj cov kab mob uas muaj sia).
- Yog tias koj muaj kev tsis haum tshuaj rau cov tshuaj no, lwm yam tshuaj, khoom noj, xim, lossis cov tshuaj preservatives.
- Yog tias koj cev xeeb tub lossis tab tom sim cev xeeb tub . (Qhov no tseem ceeb heev!)
- Yog koj yog ib leej niam pub niam mis .
Tej yam yuav tsum tau ceev faj tshwj xeeb thaum lub sijhawm kho mob
Koj pab neeg kho mob yuav saib xyuas koj zoo thaum koj noj cov tshuaj no thiab tom qab ntawd, thiab nws yog ib qho tseem ceeb rau koj kom paub txog cov no.
Kev xeeb tub thiab kev tswj kev yug menyuam
Qhov no yog ib qho teeb meem uas xav tau kev saib xyuas zoo heev.
- Rau cov poj niam: Kev xeeb tub thaum noj cov tshuaj no tuaj yeem ua rau muaj teeb meem loj rau menyuam yug los. Yog li ntawd, yuav muaj kev kuaj mob kom paub tseeb tias koj tsis xeeb tub ua ntej pib kho mob. Koj yuav tsum siv ib hom kev tswj kom tsis txhob xeeb tub, xws li hnab looj tes lossis daim ntaub qhwv caj dab, thaum kho mob thiab rau 6 lub hlis tom qab tsum kho mob.
- Rau cov txiv neej: Ib tug txiv neej uas noj cov tshuaj no yuav tsum siv hnab looj tes yog tias nws muaj kev sib deev nrog ib tug poj niam uas muaj peev xwm xeeb tub tau ib tug me nyuam. Koj yuav tsum txuas ntxiv siv hom kev tiv thaiv no rau 6 lub hlis tom qab tso tseg kev kho mob. Qhov no yog vim tias yog tias koj tus khub cev xeeb tub, muaj kev pheej hmoo ntawm kev raug mob rau tus menyuam hauv plab. Yog tias koj muaj kev xav tias koj tus khub cev xeeb tub, qhia rau koj tus kws kho mob tam sim ntawd.
Lwm cov ntsiab lus tseem ceeb
- Tsis txhob pub ntshav: Tsis txhob pub ntshav thaum noj cov tshuaj no lossis txhua lub sijhawm tom qab tso tseg.
- Kev pheej hmoo ntawm mob qog noj ntshav: Kev kho mob no yuav ua rau koj muaj feem yuav mob qog noj ntshav ntau dua me ntsis. Tsis txhob ntshai qhov no, tab sis qhib siab thiab paub txog qhov kev pheej hmoo no los ntawm kev tham nrog koj pab neeg kho mob.
- Lwm cov tshuaj: Qhia rau koj tus kws kho mob txog txhua yam tshuaj uas koj noj (xws li cov vitamins thiab cov tshuaj ntsuab). Tshwj xeeb, cov tshuaj hauv qab no yuav cuam tshuam nrog kev kho mob no.
- Granulocyte-colony stimulating factor
- Cov tshuaj chelator hlau
- Cov tshuaj tiv thaiv kab mob uas muaj sia nyob
Tej yam tshwm sim tsis zoo li cas?
Ib yam li kev kho mob twg los xij, tej yam tsis zoo yuav tshwm sim tau. Qee yam yuav tsum tau qhia tam sim ntawd, thaum lwm yam feem ntau tsis loj heev. Koj tuaj yeem nkag siab meej txog cov no los ntawm daim ntawv teev lus hauv qab no.
| Kev faib tawm ntawm cov kev mob tshwm sim | |
|---|---|
| 🚨 Tej yam uas yuav tsum tau qhia rau koj pab neeg kho mob tam sim ntawd | |
| Cov tsos mob ntawm kev ua xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj, tus nplaig lossis caj pas. |
| Cov tsos mob ntawm kev los ntshav | Cov quav dub los yog ntshav, ntuav ntshav zoo li cov av kas fes, cov zis liab/xim av tsaus, cov pob me me liab/ntshav ntawm daim tawv nqaij, thiab cov qhov txhab lossis los ntshav uas tsis paub meej. |
| Cov cim qhia txog kev kis kab mob | Kub taub hau, mob khaub thuas, hnoos, mob caj pas. |
| 🙂 Tej yam yuav tsum qhia rau koj tus kws kho mob yog tias feem ntau lawv tsis loj heev, tab sis tseem muaj | |
| Lwm yam kev mob tshwm sim |
|
Yog koj xav tias koj tau noj tshuaj tsis raug, qhia rau chav kho mob ceev (ETU) ntawm tsev kho mob tam sim ntawd. Koj tuaj yeem tiv tauj lub chaw qhia txog tshuaj lom hauv tebchaws ntawm Colombo National Hospital kom tau txais cov lus qhia txog cov xwm txheej zoo li no.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Betibeglogene Autotemcel yog kev kho mob gene siab heev rau beta thalassemia uas tuaj yeem txo qhov xav tau kev hloov ntshav ntau zaus.
- Kev kho mob no yog ua los ntawm koj cov hlwb thiab muab los ntawm pab pawg kws kho mob tshwj xeeb hauv tsev kho mob.
- Ua ntej pib kho mob, koj yuav tsum qhia rau koj tus kws kho mob txog tag nrho koj cov ntaub ntawv kev noj qab haus huv, cov tshuaj uas koj noj, thiab kev ua xua.
- Nws yog ib qho tseem ceeb heev uas cov poj niam thiab cov txiv neej ua raws li cov txheej txheem tswj kev yug me nyuam nruj heev thaum lub sijhawm kho mob thiab rau 6 lub hlis tom qab ntawd.
- Tsis txhob pub ntshav tom qab tau txais kev kho mob no.
- Tsis txhob ntshai tham nrog koj tus kws kho mob txog tej yam kev mob tshwm sim lossis teeb meem.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus