Koj tus menyuam puas feem ntau yws tias nws txhais ceg lossis caj npab mob? Tej zaum qhov mob los ntawm kev poob thaum ua si tsis ploj mus txawm tias tom qab ntau lub hlis? Peb feem ntau xav txog cov no ua kev raug mob me me lossis kev raug mob los ntawm kev ua phem rau menyuam yaus. Tab sis qee zaum, cov tsos mob uas pib yooj yim li no tuaj yeem yog lub cim ntawm qee yam loj dua. Hnub no peb yuav tham txog mob qog noj ntshav tsawg, tab sis tseem ceeb uas peb txhua tus yuav tsum paub txog. Ntawd yog Ewing Sarcoma.
Hais yooj yim xwb, Ewing Sarcoma yog dab tsi?
Ewing sarcoma yog ib hom mob qog noj ntshav tsis tshua muaj uas tshwm sim hauv cov pob txha lossis cov nqaij mos uas nyob ib puag ncig lawv . Cov nqaij mos suav nrog peb cov leeg, cov leeg, thiab cov leeg txuas. Cov qog no feem ntau tshwm sim hauv thaj chaw xws li lub duav, tav, xub pwg, ncej puab, lossis pob txha caj dab.
Qhov mob no feem ntau tshwm sim rau cov menyuam yaus thaum lub sijhawm lawv tseem hluas, thaum lawv cov pob txha loj hlob sai. Tshwj xeeb, nws cuam tshuam rau cov neeg hnub nyoog ntawm 10 thiab 20 xyoo. Txawm li cas los xij, nws kuj tuaj yeem cuam tshuam rau cov menyuam yaus thiab cov tub ntxhais hluas hnub nyoog 20 thiab 30 xyoo.
Puas muaj cov hom mob Ewing sarcoma tseem ceeb?
Yog, cov kws kho mob tau txheeb xyuas peb hom tseem ceeb ntawm qhov no. Cia peb saib seb lawv yog dab tsi.
| Hom mob qog noj ntshav | Piav qhia yooj yim |
|---|---|
| Ewing sarcoma ntawm pob txha | Qhov no yog hom mob uas feem ntau tshwm sim. Raws li lub npe qhia, tus mob qog noj ntshav no tshwm sim ncaj qha hauv pob txha. |
| Mob qog nqaij hlav Ewing sab nraud (EOE) | Ntawm no, tus mob qog nqaij hlav loj hlob hauv cov nqaij mos uas nyob ib puag ncig cov pob txha, xws li cov leeg nqaij thiab cov rog. |
| Mob qog nqaij hlav ntawm lub paj hlwb peripheral primitive neuroectodermal (PPNET) | Hom no txawv me ntsis. Nws tuaj yeem pib hauv pob txha lossis hauv cov nqaij mos. Nws pib hauv cov hlab ntsha. |
Cov tsos mob ntawm tus kab mob no yog dab tsi? Tej yam uas kuv yuav tsum paub ua niam txiv
Cov tsos mob ntawm tus kab mob no qee zaum yuav yooj yim to taub nrog lwm yam kab mob uas tshwm sim, yog li nws tseem ceeb heev uas yuav tsum paub txog qhov no.
Xav txog koj tus menyuam tab tom ua si cricket thiab nws pheej hais tias nws lub xub pwg mob. Koj xav tias nws tsuas yog qhov mob uas tshwm sim thaum koj pov pob xwb. Tab sis yog tias qhov mob tau muaj ntau lub hlis, tshwj xeeb tshaj yog thaum hmo ntuj, thiab muaj qhov o me me ntawd, nws tsis yog lub tswv yim zoo uas tsuas yog tsis quav ntsej nws.
Qhov tseem ceeb tshaj plaws yog tias yog ib tug me nyuam pheej yws txog qhov mob, tsis txhob tsis quav ntsej nws. Zoo tshaj plaws mus ntsib kws kho mob, tshwj xeeb tshaj yog tias tsis muaj qhov ua rau mob.
Hauv qab no yog cov tsos mob tseem ceeb uas pom hauv Ewing sarcoma.
| Cov tsos mob | Cov ntaub ntawv ntxiv |
|---|---|
| Mob hauv cov pob txha | Qhov no yog cov tsos mob feem ntau. Qhov mob yuav tuaj thiab mus. Qhov mob yuav hnyav dua thaum hmo ntuj, tshwj xeeb tshaj yog tias nws hnyav txaus kom tsa tus menyuam sawv ntawm kev pw tsaug zog. |
| Ib qho qog los yog o | Tus mob qog nqaij hlav yuav zoo li ib lub pob los yog o. Nws yuav sov thaum kov thiab yuav mob. Cov no tuaj yeem tshwm sim rau ntawm caj npab, ceg, lossis hauv siab. |
| Kub taub hau tsis muaj laj thawj | Tej zaum yuav muaj kub taub hau tas li yam tsis muaj lwm yam ua rau (xws li ntswg ntws, hnoos, lossis mob khaub thuas). |
| Rhuav cov pob txha tsis muaj laj thawj | Mob qog noj ntshav tuaj yeem ua rau pob txha tsis muaj zog, thiab txawm tias nws tsis yog qhov xwm txheej loj (xws li sawv ntawm txaj), nws tuaj yeem tawg. Cov kws kho mob hu qhov no ua 'pathological fracture.' |
| Lwm yam nta | Tej yam xws li poob phaus sai sai thiab nkees tas li tuaj yeem tshwm sim, tab sis cov no feem ntau tsuas pom thaum tus mob qog noj ntshav tau kis mus rau lwm qhov ntawm lub cev. |
Vim li cas hom kab mob no thiaj tshwm sim?
Lo lus nug no los rau ntau tus niam txiv. Tej zaum koj yuav xav tias, "Peb puas tau ua qee yam tsis raug?" Tab sis qhov ntawd tsis yog qhov tseeb.
Ewing sarcoma yog tshwm sim los ntawm kev hloov pauv caj ces uas tshwm sim tom qab ib tug me nyuam yug los . Hais yooj yim xwb, ob lub noob caj ces hauv peb cov hlwb (EWSR1 thiab FLI1) sib koom ua ke los tsim ib lub noob caj ces tshiab uas tsis zoo. Lub noob caj ces tshiab no ua rau cov hlwb faib tsis tau thiab tsim ib lub qog nqaij hlav.
Qhov tseem ceeb yog qhov no tsis yog kab mob uas los ntawm noob caj noob ces. Tsis tas li ntawd, cov kws tshawb fawb tsis tau pom tias nws yog los ntawm cov yam sab nraud, xws li kev haus luam yeeb lossis kev raug tshuaj lom neeg, zoo li lwm hom mob qog noj ntshav. Qhov no yog vim nws feem ntau tshwm sim rau cov menyuam yaus thiab cov tub ntxhais hluas uas tsis muaj lub sijhawm raug rau cov khoom zoo li no ntev. Yog li, qhov no tsis yog ib yam dab tsi uas yog vim leej twg ua txhaum.
Puas muaj tej yam uas ua rau muaj kev pheej hmoo?
Txawm hais tias leej twg los xij tuaj yeem muaj tus kab mob no, qee pawg neeg tau pom tias muaj kev pheej hmoo siab dua me ntsis.
- Hnub nyoog: Cov neeg hnub nyoog ntawm 10 thiab 20 xyoo yog cov muaj feem yuav mob hnyav tshaj plaws.
- Txiv neej: Cov txiv neej muaj feem yuav mob dua li cov poj niam.
- Haiv Neeg: Tus kab mob no feem ntau tshwm sim rau cov neeg dawb dua li cov neeg Esxias lossis cov neeg dub.
Cov kws kho mob kuaj mob no li cas thiaj paub tseeb?
Thaum koj mus ntsib kws kho mob vim koj xav tias koj tus menyuam muaj mob, thawj qhov uas nws ua yog kuaj koj tus menyuam kom zoo zoo. Nws yuav kuaj seb puas muaj mob lossis o, nug koj thiab koj tus menyuam txog cov tsos mob, thiab tom qab ntawd yuav kom lawv kuaj ntau zaus kom paub tseeb tias tus menyuam mob.
1. Kev kuaj duab: Cov no thaij duab ntawm cov pob txha thiab cov nqaij mos hauv lub cev.
- Kev kuaj mob X-ray
- Kev kuaj CT
- Kev kuaj MRI
- Kev luam theej duab PET
- Kev kuaj pob txha
2. Kev kuaj mob: Qhov no yog qhov kev kuaj uas lees paub tus kab mob 100% . Hauv qhov no, ib daim ntaub me me ntawm lub qog raug coj los ntawm lub tshuab kuaj mob thiab kuaj hauv qab lub tshuab kuaj mob. Qhov no yog qhov yuav qhia rau koj paub meej tias nws yog mob qog noj ntshav lossis Ewing's sarcoma.
3.Kev kuaj ntshav: Kev suav cov ntshav tag nrho (CBC) thiab lwm cov qib enzyme tshwj xeeb (xws li LDH) tuaj yeem muab qee lub tswv yim ntawm qhov xwm txheej ntawm tus mob qog noj ntshav thiab seb nws puas tau kis mus rau lwm qhov.
Cov kev kho mob rau qhov no yog dab tsi?
Ewing sarcoma raug kho los ntawm ib pab kws kho mob qog nqaij hlav. Txoj kev npaj kho mob yuav txawv ntawm ib tus neeg mob mus rau ib tus neeg mob. Nws nyob ntawm qhov loj ntawm lub qog, nws qhov chaw nyob, thiab seb nws puas tau kis mus rau lwm qhov chaw.
Cov kev kho mob tseem ceeb yog:
- Kev Kho Mob Siv Tshuaj Tua Kab Mob: Qhov no suav nrog kev muab cov tshuaj tua kab mob rau lub cev uas tua cov hlwb qog noj ntshav. Feem ntau kev kho mob siv tshuaj tua kab mob ua ntej kom lub qog nqaij hlav me dua. Tom qab ntawd kev kho mob siv tshuaj tua kab mob rov qab ua dua tom qab phais kom tua cov hlwb qog noj ntshav uas tseem tshuav.
- Kev Phais Mob: Tom qab lub qog nqaij hlav tau me me nrog kev kho mob chemotherapy, nws raug tshem tawm tag nrho los ntawm kev phais.
- Kev Kho Mob Hluav Taws Xob: Qee zaum, cov hluav taws xob muaj zog heev raug siv los rhuav tshem cov cell uas tseem tshuav tom qab phais lossis yog tias phais tsis tuaj yeem tshem tawm tag nrho cov qog.
Hauv qee lub tebchaws uas muaj kev vam meej lawm, kev kho mob xws li kev hloov hlwb hlwb autologous kuj siv tau yog tias tus mob qog noj ntshav tsis tau kis mus rau cov pob txha. Tej zaum koj kuj tseem yuav koom nrog kev sim tshuaj uas tab tom tshawb nrhiav cov kev kho mob tshiab. Koj tuaj yeem tham nrog koj tus kws kho mob txog qhov no kom paub ntau ntxiv.
Cov kev mob tshwm sim thiab cov kev mob tshwm sim mus sij hawm ntev ntawm kev kho mob
Kev kho mob qog noj ntshav tsis yooj yim. Kev siv tshuaj chemotherapy thiab kev siv tshuaj tua kab mob tuaj yeem ua rau muaj kev phiv rau lub sijhawm luv luv xws li plaub hau poob, ntuav, thiab qaug zog. Kuj tseem yuav muaj kev phiv mus sij hawm ntev (kev phiv lig) uas tuaj yeem tshwm sim ntau lub hlis lossis ntau xyoo tom qab kev kho mob xaus.
- Cov teebmeem rau cov kabmob sab hauv (lub plawv, lub raum)
- Cov teebmeem rau kev loj hlob ntawm tus menyuam
- Teeb meem kev noj qab haus huv ntawm lub hlwb (kev ntxhov siab, kev nyuaj siab)
- Cov teebmeem rau kev kawm thiab kev nco qab
- Cov teebmeem rau kev muaj menyuam yav tom ntej
Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum nyob hauv qab kev saib xyuas ntawm tus kws kho mob, thaum lub sijhawm kho mob thiab tom qab kho mob.
Ua ib tug niam txiv, kuv yuav pab tau kuv tus menyuam li cas?
Thaum ib tug me nyuam raug kuaj pom tias muaj mob qog noj ntshav, tag nrho tsev neeg yuav tawg ua tej daim me me. Qhov ntawd yog ib qho ib txwm muaj. Tab sis thaum lub sijhawm nyuaj no, koj tus me nyuam xav tau koj ntau dua li yav tas los.
Xav txog nws, lub hnub nyoog hluas yog lub sijhawm uas cov menyuam yaus txoj kev xav yeej ib txwm siab thiab qis, thiab lawv xav ntau txog lawv qhov tsos thiab lawv cov phooj ywg. Kev yuav tsum tawm tsam mob qog noj ntshav thaum lub sijhawm zoo li no tuaj yeem yog lub nra hnyav uas lawv tsis tuaj yeem ris.
- Ua siab ntev mloog:Cia lawv qhia lawv tej kev ntshai, kev npau taws, thiab kev tu siab. Zoo dua mloog tej yam uas lawv hais dua li hais tias, "Tsis txhob xav txog qhov ntawd."
- Lub Neej Txhua Hnub: Lawv yuav tu siab heev uas lawv yuav mus kawm ntawv tsis tau lossis ua si nrog cov phooj ywg vim yog kev kho mob. Txhawb kom lawv sib txuas lus nrog cov phooj ywg ntau li ntau tau (xws li hu video) thiab ua tej yam uas lawv nyiam ua hauv tsev.
- Xav txog koj tus kheej thiab: Yuav kom saib xyuas koj tus menyuam, koj yuav tsum ua kom koj lub zog ua ntej. Yog tias koj kuj muaj teeb meem nrog qhov no, nrog ib tus neeg uas koj ntseeg siab tham. Yog tias tsim nyog, nrhiav kev pab tswv yim los ntawm kev puas siab puas ntsws.
- Ua haujlwm nrog pab pawg kho mob: Paub zoo txog koj tus menyuam tus mob, kev kho mob, thiab cov kev mob tshwm sim. Tsis txhob ntshai nug cov lus nug.
Nov yog ib txoj kev taug kev uas peb ntsib ua ke ua ib tsev neeg. Peb tuaj yeem kov yeej qhov teeb meem no los ntawm kev txhawb nqa thiab kev hlub rau ib leeg.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Ewing Sarcoma yog ib hom mob qog noj ntshav tsawg tsawg uas feem ntau cuam tshuam rau cov pob txha thiab cov nqaij mos ntawm cov menyuam yaus thiab cov hluas.
- Yog tias koj mob pob txha tsis paub meej, mob tas li (tshwj xeeb tshaj yog thaum hmo ntuj), o, lossis muaj pob, tsis txhob tsis quav ntsej thiab mus ntsib kws kho mob tam sim ntawd.
- Tus kab mob no yog tshwm sim los ntawm kev hloov pauv ntawm cov noob caj noob ces, tsis yog los ntawm qhov txhaum ntawm niam txiv lossis tus menyuam.
- Txawm hais tias cov kev kho mob (chemotherapy, phais, thiab hluav taws xob) nyuaj heev los, lawv muab cov txiaj ntsig zoo heev.
- Thaum lub sijhawm nyuaj no, tus menyuam xav tau kev kho mob, nrog rau kev hlub, kev saib xyuas, thiab kev txhawb nqa ntawm cov tswv cuab hauv tsev neeg.
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