Koj lossis ib tug neeg koj paub puas muaj mob qog noj ntshav hu ua multiple myeloma ? Yog tias muaj, qhov no yog hais txog kev kho mob tshwj xeeb heev. Tej zaum koj tus kws kho mob yuav tau qhia koj txog kev kho mob no. Nws tsis zoo li cov tshuaj ntsiav ib txwm muaj. Nws siv koj cov hlwb los cob qhia lawv kom tawm tsam mob qog noj ntshav. Cia peb tham txog nws hauv cov lus yooj yim.
Hais yooj yim xwb, cov tshuaj no hu ua Idecabtagene Vicleucel li cas?
Lwm lub npe rau qhov no yog ABECMA. Qhov no tsis yog ib qho tshuaj ntsiav lossis tshuaj tiv thaiv kab mob. Qhov no yog ib qho kev kho mob tshwj xeeb heev. Yog hais kom meej, qhov no yog ib qho kev kho mob uas siv koj cov hlwb tiv thaiv kab mob, hloov lawv hauv chav kuaj kom lawv thiaj li tawm tsam cov hlwb mob qog noj ntshav , thiab tom qab ntawd muab lawv rov qab rau hauv koj lub cev.
Xav txog nws li no. Peb muaj cov hlwb hauv peb lub cev uas zoo li cov tub rog uas paub thiab tawm tsam cov yeeb ncuab. Peb hu lawv ua cov hlwb tiv thaiv kab mob. Tab sis qee zaum cov hlwb mob qog noj ntshav no ntse heev. Lawv nkaum ntawm cov tub rog no.
Yog li qhov kev kho mob no ua yog, koj coj qee cov tub rog no (cov hlwb tiv thaiv kab mob) tawm ntawm koj lub cev thiab muab "kev cob qhia" tshwj xeeb rau lawv kom lawv thiaj li paub txog cov hlwb qog noj ntshav. Tom qab ntawd koj muab cov tub rog uas tau kawm tiav ntawd rov qab rau hauv koj lub cev. Tam sim no lawv paub yuav ua li cas mus ncaj qha rau cov hlwb qog noj ntshav thiab rhuav tshem lawv. Qhov no tiv thaiv kev kis tus kab mob qog noj ntshav, lossis tsawg kawg qeeb nws ntau heev.
Cov txheej txheem ntawm kev muab kev kho mob no ua haujlwm li cas?
Qhov no tsis yog ib yam uas ua tau hauv ib hnub xwb. Qhov no yog ib qho txheej txheem uas ua ntau kauj ruam.
1. Kev sau koj cov qe ntshav: Thawj qhov koj yuav ua yog sau qee cov qe ntshav tiv thaiv kab mob los ntawm koj cov ntshav. Qhov no ua tiav los ntawm lub tshuab tshwj xeeb. Qhov no ua tiav ob peb lub lis piam ua ntej.
2. Kev hloov kho cov hlwb (kev cob qhia): Cov hlwb uas koj coj los ntawm koj ces raug xa mus rau chav kuaj mob tshwj xeeb. Nyob ntawd, cov hlwb no raug hloov kho caj ces kom lawv thiaj li paub thiab tawm tsam cov hlwb mob qog noj ntshav.
3. Npaj koj lub cev: Ob peb hnub ua ntej koj cov hlwb uas tau kawm tiav lawm raug muab rov qab rau hauv koj lub cev, koj yuav tau txais kev kho mob chemotherapy hauv tsev kho mob. Qhov no yog los npaj koj lub cev kom tau txais cov hlwb tshiab, uas tau kawm tiav lawm.
4. Kev kho mob: Thaum kawg, cov hlwb uas tau kawm tiav lawm raug muab los ntawm txoj hlab ntsha ( infusion) .) raug txhaj rau hauv koj lub cev. Tag nrho cov no tshwm sim hauv tsev kho mob lossis chaw kho mob, nyob rau hauv kev saib xyuas nruj ntawm pab pawg kws kho mob.
Koj yuav tau txais ib phau ntawv tshwj xeeb (MedGuide) txog kev kho mob no. Nws yog ib qho tseem ceeb heev uas yuav tsum nyeem thiab nkag siab zoo. Yog tias muaj dab tsi uas koj tsis nkag siab, tsis txhob ntshai nug tus kws kho mob.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej pib kho mob
Ua ntej koj yuav kho qhov teeb meem no, nws yog ib qho tseem ceeb uas koj yuav tsum qhia rau koj tus kws kho mob txog koj tus mob kom meej. Nco ntsoov qhia rau lawv txog tej yam no.
| Kev noj qab haus huv lossis teeb meem | Vim li cas qhov ntawd thiaj tseem ceeb? |
|---|---|
| Yog tias koj muaj tus kab mob tam sim no | Vim tias kev kho mob cuam tshuam rau lub cev tiv thaiv kab mob, qhov kev kis kab mob uas twb muaj lawm yuav hnyav zuj zus. |
| Yog tias koj muaj teeb meem inflammatory | Vim tias qhov kev kho mob no ua rau lub cev tiv thaiv kab mob ua haujlwm zoo, muaj kev pheej hmoo ntawm kev ua rau cov mob zoo li no hnyav zuj zus. |
| Yog tias koj nyuam qhuav txhaj tshuaj tiv thaiv kab mob lossis tab tom yuav txhaj tshuaj tiv thaiv kab mob | Qee cov tshuaj tiv thaiv kab mob (tshwj xeeb tshaj yog cov tshuaj tiv thaiv kab mob uas muaj sia) yuav muaj kev cuam tshuam nrog cov tshuaj no. |
| Yog tias koj muaj kev tsis haum rau lwm yam tshuaj, khoom noj lossis cov tshuaj | Yog koj muaj keeb kwm ntawm kev ua xua, nws yog ib qho tseem ceeb uas pab pawg kho mob paub txog qhov ntawd. |
| Yog tias koj cev xeeb tub los yog tab tom sim cev xeeb tub | Tsis muaj ntaub ntawv txaus txog seb qhov kev kho mob no puas muaj kev nyab xeeb thaum cev xeeb tub. Yuav tsum kuaj cev xeeb tub ua ntej pib kho mob kom paub tseeb tias koj tsis cev xeeb tub. |
| Yog tias leej niam pub mis rau nws tus menyuam | Tham nrog koj tus kws kho mob seb cov khoom xyaw hauv cov tshuaj puas hla mus rau koj tus menyuam los ntawm mis niam. |
Tej yam yuav tsum tau ceev faj tshwj xeeb thaum lub sijhawm kho mob thiab tom qab kho mob
Tom qab koj tau txais kev kho mob no lawm, koj yuav tsum tau saib xyuas koj tus kheej kom zoo. Pawg kws kho mob kuj yuav saib xyuas koj ze ze.
- Kev Soj Ntsuam Hauv Tsev Kho Mob: Tom qab kho mob tas, koj yuav raug khaws cia hauv tsev kho mob tsawg kawg yog 7 hnub thiab pab pawg kws kho mob yuav kuaj xyuas koj txhua hnub.
- Kev kuaj ntshav : Koj yuav tsum tau kuaj ntshav tas li.
- Tsav tsheb thiab siv tshuab: Qhov no tseem ceeb heev. Koj yuav tsum tsis txhob tsav tsheb lossis siv tshuab hnyav tsawg kawg yog 8 lub lis piam (2 lub hlis) tom qab kho, vim tias cov tshuaj no yuav cuam tshuam rau koj txoj kev tsom ntsoov, kev txiav txim siab, thiab kev sib npaug.
- Daim Npav Rau Tus Neeg Mob: Koj yuav tau txais ib daim npav tshwj xeeb. Khaws cia nrog koj txhua lub sijhawm . Qhia rau txhua tus kws kho mob thiab tus nais maum uas kho koj. Nws muaj cov ntaub ntawv hais txog cov kev mob tshwm sim loj uas koj yuav ntsib.
- Kev Pheej Hmoo ntawm kev kis kab mob: Kev kho mob no ua rau koj muaj kev pheej hmoo ntawm kev kis kab mob. Yog tias koj muaj cov tsos mob xws li kub taub hau, mob khaub thuas, mob caj pas, lossis hnoos , tsis txhob noj tshuaj rau koj tus kheej thiab hu rau koj tus kws kho mob tam sim ntawd . Txo koj txoj kev sib cuag nrog cov neeg mob.
- Tsis txhob pub dab tsi: Koj yeej tsis tuaj yeem pub ntshav, cov kabmob, cov nqaij, lossis cov qe ntshav tom qab tau txais kev kho mob no.
- Kev pheej hmoo ntawm mob qog noj ntshav lwm yam: Cov tshuaj no muaj kev pheej hmoo me me ntawm kev mob qog noj ntshav lwm yam. Tham nrog koj tus kws kho mob txog qhov no.
Yog tias kuv noj tshuaj ntau dhau lawm ne?
Vim tias cov tshuaj no yog muab los ntawm pab pawg kws kho mob hauv tsev kho mob, koj yuav tsis muaj feem ntau yuav tau noj tshuaj ntau dhau. Yog tias muaj teeb meem dab tsi, pab pawg kws kho mob yuav qhia rau ETU (Emergency Treatment Unit) lossis National Poisons Information Center ntawm Colombo National Hospital tam sim ntawd.
Tej yam tshwm sim tsis zoo li cas?
Ib yam li lwm yam tshuaj muaj zog, cov tshuaj no muaj tej yam tshwm sim tsis zoo. Qee yam yuav tsum tau kho mob tam sim ntawd, thaum lwm yam yog ib txwm muaj.
| Cov teebmeem sab nraud | Kev piav qhia |
|---|---|
| Yog koj muaj cov tsos mob no, qhia rau koj tus kws kho mob tam sim ntawd. | |
| Kev ua xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj, tus nplaig lossis caj pas. |
| Cytokine Release Syndrome (CRS) | Kub taub hau, mob khaub thuas, qaug zog heev, xeev siab, mob taub hau, kiv taub hau, ua pa nyuaj, lub plawv dhia ceev. (Qhov no yog vim lub cev tiv thaiv kab mob ua haujlwm ntau dhau) |
| Teeb meem ntawm lub paj hlwb | Tsis meej pem, taug kev nyuaj, tsis muaj zog sib npaug, qaug dab peg, hais lus nyuaj, pom kev tsis meej. |
| Cov cim qhia txog kev kis kab mob | Kub taub hau, mob lub cev, mob caj pas, hnoos, cov qhov txhab tsis zoo, mob thaum tso zis. |
| Kev mob los yog los ntshav txawv txawv | Txawm tias yog ib lub pob me me los kuj tuaj yeem ua rau muaj qhov mob loj, los ntshav ntawm lub qhov ntswg thiab cov pos hniav. |
| Cov qe ntshav liab qis | qaug zog txawv txawv, kiv taub hau, mob taub hau, ua pa nyuaj. |
| Feem ntau cov no tsis yog qhov loj heev, tab sis yog tias lawv tseem nyob, qhia rau koj tus kws kho mob. | |
| Cov kev mob tshwm sim feem ntau | Mob plab, qaug zog, mob taub hau, tsis xav noj mov, mob nqaij, xeev siab, pob luj taws, tes, lossis taw o. |
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Idecabtagene Vicleucel yog ib qho kev kho mob uas siv koj cov hlwb tiv thaiv kab mob los tawm tsam mob qog noj ntshav.
- Qhov no yog kev kho mob uas muab ua ntau kauj ruam, hauv tsev kho mob, nyob rau hauv kev saib xyuas ntawm kws kho mob nruj heev.
- Yuav tsum paub txog tej yam mob hnyav uas yuav tshwm sim tom qab kho mob (CRS, kev puas hlwb). Yog li ntawd, kev soj ntsuam hauv tsev kho mob yog qhov tseem ceeb heev.
- Tsis txhob tsav tsheb lossis siv tshuab kiag li rau tsawg kawg 8 lub lis piam tom qab kev kho mob.
- Nco ntsoov khaws daim npav 'Patient Wallet Card' uas tau muab rau koj nrog koj thiab qhia rau cov kws kho mob.
- Yog koj muaj tej yam cim qhia tias koj muaj kab mob, xws li kub taub hau lossis hnoos, qhia rau koj tus kws kho mob tam sim ntawd.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus