Koj lossis ib tug neeg koj paub puas muaj tus kab mob Gaucher? Yog tias muaj, tej zaum koj yuav tau hnov txog cov tshuaj tiv thaiv kab mob hu ua 'Imiglucerase'. Cov tshuaj no feem ntau muag raws li lub npe lag luam 'Cerezyme' hauv peb lub tebchaws. Yog li, hnub no peb yuav tham txog hom tshuaj no, yuav ua li cas nrog nws, thiab yuav tsum ceev faj txog dab tsi thaum noj cov tshuaj no.
Imiglucerase yog hom tshuaj dab tsi?
Hais yooj yim xwb, tus kab mob Gaucher yog ib yam mob caj ces uas tshwm sim los ntawm qhov tsis muaj ib qho enzyme uas peb lub cev tsim tawm. Thaum tsis muaj cov enzyme no, cov rog yuav pib sib sau ua ke hauv qee lub hlwb ntawm lub cev. Qhov no tuaj yeem ua rau cov kab mob xws li pob txha, tus po, thiab lub siab puas tsuaj.
Imiglucerase yog ib hom enzyme tsim los hloov cov enzyme uas tsis txaus. Thaum muab cov tshuaj no rau hauv cov hlab ntsha, nws yuav ua haujlwm ntawm cov enzyme ntuj thiab tswj kev sib sau ua ke ntawm cov rog hauv cov hlwb. Qhov no tuaj yeem txo cov tsos mob tau zoo heev.
Tab sis qhov no tseem ceeb heev: Imiglucerase yog ib txoj kev kho mob uas tswj cov tsos mob ntawm tus kab mob Gaucher, tsis yog kev kho rau tus kab mob.
Tej yam yuav tsum qhia rau koj tus kws kho mob ua ntej noj cov tshuaj no
Ua ntej koj pib kho mob no, koj yuav tsum tham txog cov teeb meem no kom meej nrog koj tus kws kho mob.
- Koj puas muaj kev tsis haum tshuaj rau Imiglucerase lossis lwm yam tshuaj, khoom noj, lossis cov tshuaj preservatives?
- Koj puas cev xeeb tub los yog vam tias yuav cev xeeb tub ?
- Koj puas yog ib tug niam uas pub niam mis rau menyuam ?
Raws li cov ntaub ntawv no, tus kws kho mob yuav txiav txim siab seb qhov kev kho mob no puas haum rau koj thiab yuav ua li cas ntxiv mus.
Kev kho mob no muab li cas?
Cov tshuaj no yog muab rau hauv cov hlab ntsha, zoo ib yam li saline. Qhov no tsis yog ib yam dab tsi uas koj ua tau hauv tsev. Nws yog muab rau hauv tsev kho mob lossis chaw kho mob los ntawm tus kws kho mob uas tau kawm tiav. Nws feem ntau yog muab txhua ob lub lis piam.
Cov tshuaj no puas muab tau rau menyuam yaus?
Yog, cov tshuaj no raug pom zoo rau cov menyuam yaus hnub nyoog tshaj 2 xyoos hauv qee kis. Txawm li cas los xij, muaj qee yam uas yuav tsum tau ceev faj thaum muab rau cov menyuam yaus. Yog li ntawd, yog tias koj tus menyuam tau txais kev kho mob no, tham nrog koj tus kws kho mob menyuam yaus txog nws thiab ua kom txhua yam meej.
Yuav ua li cas yog tias qhov koob tshuaj raug nce ntxiv los ntawm kev ua yuam kev?
Vim tias kev kho mob no yog muab rau hauv tsev kho mob, qhov kev pheej hmoo ntawm kev siv tshuaj ntau dhau yog tsawg heev. Txawm li cas los xij, yog tias koj xav tias muaj qee yam tshwm sim, tam sim ntawd hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Colombo National lossis mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm tsev kho mob ze tshaj plaws.
Yog tias kuv tsis tau noj tshuaj ib hnub ces yuav ua li cas?
Nws yog ib qho tseem ceeb heev uas yuav tsum tau txais kev kho mob no raws li hnub thiab lub sijhawm teem tseg. Qhov no yog li cas koj thiaj li tswj tau cov enzyme hauv lub cev rau ib txoj kev twg. Yog tias koj tsis tuaj yeem tau txais kev kho mob raws li hnub teem tseg, qhia rau koj tus kws kho mob tam sim ntawd. Tom qab ntawd nws yuav qhia koj rau hnub tom ntej kom tau txais kev kho mob.
Lwm yam uas yuav cuam tshuam nrog cov tshuaj no
Tej tshuaj yuav muaj kev cuam tshuam nrog cov tshuaj no. Piv txwv li, ib yam tshuaj hu ua miglustat. Txawm li cas los xij, daim ntawv teev npe no tsis tiav.
Yog li ntawd, qhia rau koj tus kws kho mob txog txhua yam tshuaj uas koj noj (xws li cov vitamins, cov tshuaj ntsuab, thiab cov tshuaj noj ntxiv). Koj kuj yuav tsum qhia rau koj tus kws kho mob yog tias koj haus luam yeeb, haus cawv, lossis siv cov tshuaj yeeb tsis raug cai.
Tej yam tshwm sim tsis zoo li cas?
Ib yam li lwm yam tshuaj, Imiglucerase tuaj yeem ua rau muaj kev phiv rau qee tus neeg. Cov no tuaj yeem muab faib ua ob pawg tseem ceeb. Qee qhov ntawm lawv yuav tsum tau qhia rau koj tus kws kho mob tam sim ntawd, thaum lwm tus, txawm tias feem ntau tsis loj heev, yuav tsum tau qhia yog tias lawv tseem muaj.
| Hom kev phiv thiab kev piav qhia |
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| Cov kev mob tshwm sim uas yuav tsum tau qhia rau koj tus kws kho mob tam sim ntawd |
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| Cov kev mob tshwm sim uas yuav tsum tau qhia rau tus kws kho mob yog tias lawv tseem muaj lossis ua rau muaj kev ntxhov siab |
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Yog tias koj muaj lwm yam tsos mob txawv txawv uas tsis tau hais hauv daim ntawv teev npe no, nrog koj tus kws kho mob tham txog lawv thiab.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Imiglucerase yog ib txoj kev kho mob uas tswj cov tsos mob ntawm tus kab mob Gaucher, tab sis nws tsis yog kev kho rau tus kab mob.
- Kev kho mob no yog muab ua ib qho kev txhaj tshuaj rau hauv cov leeg ntshav hauv tsev kho mob lossis chaw kho mob.
- Ua ntej pib kho mob, qhia rau koj tus kws kho mob txog txhua yam kev ua xua uas koj muaj thiab txhua yam tshuaj uas koj noj.
- Yog tias koj muaj tej yam kev mob tshwm sim loj xws li ua pa nyuaj lossis o ntsej muag, nrhiav kev pab kho mob tam sim ntawd.
- Nws yog ib qho tseem ceeb heev uas yuav tsum tau txais kev kho mob raws sijhawm. Yog tias koj tsis tuaj ib hnub twg vim li cas los xij, qhia rau koj tus kws kho mob.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus