Koj lossis ib tug neeg koj paub puas muaj Neuromyelitis Optica Spectrum Disorder (NMOSD)? Yog tias muaj, koj tus kws kho mob tej zaum yuav tau qhia koj txog tshuaj tiv thaiv kab mob hu ua Inebilizumab (hais tias: ee-ne-bi-li-su-mab). Hnov lub npe zoo li ntawd tuaj yeem ua rau ntshai me ntsis. Tab sis tsis txhob txhawj. Hnub no, peb yuav tham txog cov tshuaj no, nws ua dab tsi, thiab koj yuav tsum ceev faj txog dab tsi thaum siv nws.
Yog li, cov tshuaj no hu ua Inebilizumab yog dab tsi?
Hais yooj yim xwb, `Inebilizumab` (lub npe lag luam: UPLIZNA) yog ib hom protein tshwj xeeb. Hauv kev kho mob, peb hu qhov no tias `monoclonal antibody`. Nws lub luag haujlwm tseem ceeb yog tswj tus kab mob `Neuromyelitis Optica Spectrum Disorder (NMOSD)`.
NMOSD yog ib yam mob uas peb lub cev tiv thaiv kab mob tawm tsam nws cov hlab ntsha, tshwj xeeb tshaj yog cov nyob rau hauv lub qhov muag thiab tus txha caj qaum. Yog li ntawd, yam tshuaj no 'Inebilizumab' ua yog tsom rau cov txheej txheem tiv thaiv kab mob uas tsis zoo, nres nws, thiab txo qhov kev puas tsuaj los ntawm tus kab mob.
Cov tshuaj no kuj tseem yuav raug sau los ntawm koj tus kws kho mob rau lwm yam mob, yog li ntawd yog tias koj muaj kev txhawj xeeb, thov nug koj tus kws kho mob txog nws.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej pib noj tshuaj
Ua ntej pib kho mob no, nws yog ib qho tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob txog koj keeb kwm kev noj qab haus huv tag nrho. Qhov tseem ceeb, koj yuav tsum qhia rau nws txog cov ntsiab lus hauv qab no.
| Yam koj yuav tsum paub | Vim li cas? (Tsuas yog) |
|---|---|
| Teeb meem ntawm lub cev tiv thaiv kab mob: Yog tias koj muaj lwm yam kev qaug zog ntawm lub cev tiv thaiv kab mob. | Vim tias cov tshuaj no hloov pauv kev ua haujlwm ntawm lub cev tiv thaiv kab mob, nws yog ib qho tseem ceeb uas yuav tsum paub txog txhua yam teeb meem uas twb muaj lawm. |
| Cov kab mob tam sim no: Yog tias koj kub taub hau, mob khaub thuas, hnoos, lossis kab mob viral xws li mob qaib ntxhw lossis mob herpes. | Cov tshuaj no txo koj lub peev xwm los tawm tsam cov kab mob, yog li ntawd, qhov kev kis kab mob uas twb muaj lawm yuav hnyav zuj zus. |
| Kev Ua Xua: Yog tias koj muaj kev ua xua rau Inebilizumab lossis lwm yam tshuaj, khoom noj, lossis cov xim pleev. | Qhov no yog qhov tseem ceeb kom tiv thaiv kev ua xua hnyav uas yuav tshwm sim thaum noj tshuaj. |
| Cev Xeeb Tub: Yog tias koj cev xeeb tub, tab tom sim cev xeeb tub, lossis pub niam mis. | Cov tshuaj no tuaj yeem ua rau tus menyuam hauv plab puas tsuaj, yog li nws tseem ceeb heev uas yuav tsum tham txog qhov no. |
Kuv yuav muab cov tshuaj no rau koj li cas?
"Inebilizumab" tsis yog tshuaj noj hauv tsev. Nws yog ib qho tshuaj txhaj uas muab los ntawm cov leeg ntshav nrog cov ntsev (infusion) . Kev kho mob no yog muab rau hauv tsev kho mob lossis chaw kho mob uas muaj kev saib xyuas ntawm cov neeg ua haujlwm kho mob uas tau kawm tiav.
Ua ntej kev kho mob, koj yuav tau muab lwm yam tshuaj (piv txwv li, tshuaj kho mob ua xua) kom txo qhov kev pheej hmoo ntawm kev ua xua rau cov tshuaj.
Ua ntej txhua zaus kho mob, koj yuav tau txais daim ntawv qhia tshwj xeeb ('MedGuide') txog cov tshuaj no. Nws yog ib qho tseem ceeb uas yuav tsum nyeem thiab nkag siab zoo txhua zaus.
Yuav ua li cas yog tias qhov ntau npaum li cas ntawm cov tshuaj nce ntxiv?
Qhov no yog muab rau hauv tsev kho mob, yog li qhov muaj feem yuav tshwm sim tsawg heev. Txawm li cas los xij, yog tias koj xav tias koj tau noj tshuaj ntau dhau, qhia rau cov neeg ua haujlwm kho mob tam sim ntawd. Txwv tsis pub, hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Hauv Tebchaws Colombo . Lossis mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm tsev kho mob ze tshaj plaws.
Yog tias kuv tsis tau noj tshuaj hnub ntawd ne?
Kev kho mob no yog muab raws sijhawm teem tseg. Yog li ntawd, nws yog ib qho tseem ceeb heev uas yuav tsum tau txais kev kho mob raws sijhawm. Yog tias muaj qee yam laj thawj uas koj tsis tuaj yeem tuaj koom tau raws li hnub teem tseg, hu rau koj tus kws kho mob lossis tsev kho mob tam sim ntawd thiab qhia rau lawv paub, kom lawv thiaj li teem sijhawm rau hnub tom ntej.
Tej yam koj yuav tsum tau ceev faj tshwj xeeb thaum noj tshuaj
Koj tus kws kho mob yuav saib xyuas koj ze thaum koj noj cov tshuaj no, thiab nws yog ib qho tseem ceeb rau koj kom paub txog cov no.
- Kev Pheej Hmoo ntawm kev kis kab mob: Vim tias cov tshuaj no ua rau koj lub cev tiv thaiv kab mob tsis muaj zog, koj yuav muaj kev pheej hmoo ntawm kev kis kab mob ntau dua . Yog tias koj muaj cov cim qhia txog kev kis kab mob xws li kub taub hau, mob khaub thuas, mob caj pas, hnoos, mob khaub thuas, lossis mob thaum tso zis,Qhia rau koj tus kws kho mob tam sim ntawd. Tsis txhob noj tshuaj rau koj tus kheej. Sim nyob deb ntawm cov neeg mob.
- Kev ua xua hnyav heev: Ib txhia neeg yuav muaj kev ua xua hnyav heev rau cov tshuaj no. Yog tias koj muaj pob khaus ntawm daim tawv nqaij, khaus, o ntawm lub ntsej muag, daim di ncauj, lossis tus nplaig thaum lossis tom qab txhaj tshuaj, qhia rau cov neeg ua haujlwm kho mob tam sim ntawd.
- Tsis txhob xeeb tub: Yog tias koj yog poj niam, tsis txhob xeeb tub thaum noj cov tshuaj no thiab rau 6 lub hlis tom qab tsum tsis txhob kho mob . Cov tshuaj no tuaj yeem ua rau muaj kev phom sij loj rau tus menyuam hauv plab. Yog tias koj tab tom npaj yuav xeeb tub, nrog koj tus kws kho mob tham txog qhov no.
Lus Cim Tshwj Xeeb: Tsis tshua muaj, cov tshuaj no tuaj yeem ua rau muaj kev kis kab mob loj heev rau lub hlwb (hu ua 'Progressive Multifocal Leukoencephalopathy - PML') rau qee tus neeg. Yog li ntawd, yog tias koj muaj teeb meem lossis hloov pauv hauv koj qhov kev pom, kev xav, kev hais lus, kev taug kev, lossis kev sib npaug , qhia rau koj tus kws kho mob tam sim ntawd .
Cov kev mob tshwm sim ntawm cov tshuaj
Ib yam li lwm yam tshuaj, "Inebilizumab" muaj peev xwm ua rau muaj qee yam kev mob tshwm sim. Qee yam ntawm cov no yuav tsum tau tshaj tawm tam sim ntawd, thaum lwm yam tsis loj heev.
| Cov kev mob tshwm sim uas koj yuav tsum qhia rau koj tus kws kho mob tam sim ntawd | |
|---|---|
| Kev ua xua hnyav heev | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj, tus nplaig, ua pa nyuaj. |
| Cov cim qhia txog kev kis kab mob | Kub taub hau, mob khaub thuas, mob caj pas, hnoos, kis kab mob ntawm txoj hlab zis. |
| Feem ntau tsis loj heev (tab sis qhia rau koj tus kws kho mob yog tias nws tseem muaj) | |
| Mob lub cev | Mob nraub qaum, mob pob qij txha. |
| Mob taub hau | Mob taub hau me me mus rau nruab nrab. |
| Tsis xis nyob ntawm qhov chaw txhaj tshuaj | Mob, liab, lossis o ntawm qhov chaw txhaj tshuaj. |
Daim ntawv teev npe no tsis suav nrog txhua yam kev mob tshwm sim uas yuav tshwm sim. Tsis tas li ntawd xwb, yog tias koj ntsib teeb meem txawv txawv, nrog koj tus kws kho mob tham txog qhov ntawd.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- `Inebilizumab` yog ib yam tshuaj tshwj xeeb uas muab los ntawm cov leeg ntshav hauv tsev kho mob rau `Neuromyelitis Optica Spectrum Disorder (NMOSD).`
- Ua ntej pib kho mob, qhia rau koj tus kws kho mob txog tag nrho koj cov mob, kev ua xua, thiab lwm yam tshuaj uas koj noj.
- Yog koj muaj cov tsos mob ntawm kev kis kab mob xws li kub taub hau thiab hnoos thaum noj cov tshuaj no, nrhiav kev pab kho mob tam sim ntawd.
- Tsis txhob xeeb tub thaum lub sijhawm kho mob thiab rau 6 lub hlis tom qab tso tseg nws. Tham nrog koj tus kws kho mob txog qhov no.
- Tsis txhob ntshai nug koj tus kws kho mob kom lawv piav qhia meej txog tej teeb meem lossis tej kev tsis ntseeg uas koj muaj. Lawv yeej npaj txhij los pab koj.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus