Tej zaum koj lossis ib tug neeg hauv koj tsev neeg tau raug koj tus kws kho mob qhia txog ib yam tshuaj tshiab uas koj tsis paub. Tej zaum nws hu ua Olipudase Alfa (Xenpozyme). Qhov no tsis yog ib yam tshuaj uas peb feem ntau hnov txog. Qhov no yog ib yam tshuaj uas muab rau ib qho mob tshwj xeeb heev. Yog vim li ntawd nws thiaj li ib txwm muaj ntau cov lus nug txog nws. Tej zaum koj kuj yuav muaj cov lus nug xws li "Yuav ua li cas nrog qhov no?", "Qhov no puas muaj kev nyab xeeb?", "Yam twg yuav tsum ceev faj txog?" Tsis txhob txhawj, peb yuav tham kom meej thiab yooj yim txog cov tshuaj no, nws ua dab tsi, thiab yam twg yuav tsum ceev faj txog.
Muaj dab tsi tshwm sim tiag tiag nrog cov tshuaj no?
Cov tshuaj no siv los kho ib qho mob caj ces uas tsis tshua muaj. Hauv kev kho mob, nws hu ua Acid Sphingomyelinase Deficiency , lossis (ASMD) luv.
Hais yooj yim xwb, cov neeg uas muaj ASMD tsis tsim cov enzyme uas lawv lub cev tsim tawm los. Ib qho enzyme yog ib hom protein uas pab nrog ntau yam txheej txheem tshuaj lom neeg hauv peb lub cev. Thaum cov enzyme no tsis txaus, ib hom lipid tshwj xeeb hu ua sphingomyelin yuav pib sib sau ua ke hauv cov kabmob tseem ceeb xws li peb lub siab, lub zais zis, thiab lub ntsws. Xav txog nws zoo li cov kav dej uas raug txhaws nrog av thiab thaum kawg raug txhaws tag.
Nov yog qhov uas tshuaj hu ua Olipudase Alfa los cawm. Yam tshuaj no ua yog muab cov enzyme uas lub cev tsis muaj los ntawm sab nraud. Qhov no hu ua enzyme replacement therapy . Tom qab ntawd cov rog uas tsis tsim nyog yuav maj mam txo qis, kev puas tsuaj rau cov kabmob raug tswj, thiab cov tsos mob tau zoo dua.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej siv cov tshuaj no
Ua ntej koj pib noj cov tshuaj no, nws yog ib qho tseem ceeb uas yuav tsum qhia rau koj tus kws kho mob txog cov hauv qab no. Tsis txhob zais cov no, vim lawv tseem ceeb heev rau koj txoj kev nyab xeeb.
- Yog tias koj ua xua rau cov tshuaj no, Olipudase alfa, lwm yam tshuaj, khoom noj, xim lossis cov tshuaj preservatives uas ntxiv rau hauv khoom noj.
- Yog tias koj cev xeeb tub, lossis tab tom yuav muaj menyuam hauv lub sijhawm luv luv no , qhov no tseem ceeb heev. Cia peb tham txog nws ntxiv.
- Yog koj yog ib tug niam tsev uas pub niam mis .
Yuav muab tshuaj li cas thiab yuav tsum paub dab tsi
Cov tshuaj no yog muab ua ib qho kev txhaj tshuaj rau hauv cov leeg ntshav. Yog hais kom meej, nws raug txhaj rau hauv lub cev los ntawm cov leeg ntshav, ib yam li cov kua ntsev. Cov txheej txheem no feem ntau ua nyob rau hauv tsev kho mob lossis chaw kho mob, nyob rau hauv kev saib xyuas ntawm tus kws kho mob lossis cov neeg ua haujlwm saib xyuas neeg mob uas tau kawm tiav.
Txawm li cas los xij, qee zaum, koj yuav tau txais nws hauv tsev. Yog tias yog, koj yuav tau txais kev cob qhia txog yuav ua li cas npaj nws kom raug thiab yuav ua li cas txhaj tshuaj. Koj yuav tsum ua raws li cov lus qhia raws nraim li tus kws kho mob qhia rau koj.
Kev pov tseg cov koob txhaj tshuaj thiab cov koob txhaj tshuaj
Tsis txhob muab cov koob txhaj tshuaj thiab cov koob txhaj tshuaj uas koj siv hauv tsev pov rau hauv lub thoob khib nyiab ib txwm muaj . Muaj ib lub thawv tshwj xeeb rau cov khoom siv ntse. Yog tias koj tsis muaj, nug koj tus kws kho mob lossis tsev kho mob txog ib qho.
Koj puas muab qhov no rau cov menyuam yaus me?
Yog, cov tshuaj no tuaj yeem muab rau cov menyuam mos thiab cov menyuam yaus rau cov mob tshwj xeeb. Txawm li cas los xij, muaj ob peb yam uas yuav tsum tau ceev faj txog. Yog li ntawd, yog tias koj muab cov tshuaj no rau ib tug menyuam, nrog tus kws kho mob tham txog nws kom meej thiab piav qhia txhua yam.
Yuav ua li cas yog tias cov tshuaj ntau ntxiv?
Yog koj xav tias koj tau noj tshuaj ntau dhau lawm, tsis txhob ntshai thiab hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws tam sim ntawd ntawm Tsev Kho Mob Hauv Tebchaws , lossis mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm tsev kho mob ze tshaj plaws.
Tej yam tshwj xeeb uas yuav tsum tau saib xyuas thiab cov kev phiv
Thaum koj noj cov tshuaj no, koj tus kws kho mob yuav hais kom koj tuaj kuaj xyuas koj tus mob tsis tu ncua. Lawv kuj yuav tsum tau ua tej yam xws li kev ntsuas ntshav. Tej zaum yuav siv sijhawm me ntsis rau koj kom hnov cov txiaj ntsig tag nrho ntawm cov tshuaj no, yog li nws yog ib qho tseem ceeb uas yuav tsum ua siab ntev rau koj txoj kev kho mob.
Tej zaum ib txhia neeg yuav muaj kev tsis haum tshuaj hnyav lossis kev tsis haum tshuaj thaum muab cov tshuaj no. Yuav kom txo qhov kev pheej hmoo no, koj tus kws kho mob yuav muab lwm yam tshuaj rau koj (xws li piritan) ua ntej muab cov tshuaj no rau koj. Ua raws li cov lus qhia kom meej.
Kev cev xeeb tub thiab kev tswj kom tsis txhob muaj menyuam: Qhov no yog ib qho tseem ceeb heev. Kev noj cov tshuaj no thaum cev xeeb tub tuaj yeem ua rau muaj teeb meem loj rau tus menyuam hauv plab. Yog li ntawd, nws yog ib qho tseem ceeb uas yuav tsum siv hom kev tswj kom tsis txhob muaj menyuam thaum noj cov tshuaj no thiab rau 14 hnub tom qab tso tseg cov tshuaj. Tham nrog koj tus kws kho mob txog qhov no thiab xaiv txoj kev uas zoo tshaj plaws rau koj.
Lub rooj hauv qab no qhia txog cov kev mob tshwm sim tseem ceeb uas tuaj yeem tshwm sim nrog cov tshuaj no.
| Cov Kev Mob Tshwm Sim ntawm Olipudase Alfa Vaccine | |
|---|---|
| Cov kev mob tshwm sim loj heev uas koj yuav tsum qhia rau koj tus kws kho mob tam sim ntawd | |
| Kev ua xua lossis Angioedema | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, qhov muag, daim di ncauj, tus nplaig, tes lossis taw, nyuaj nqos lossis ua pa. |
| Cov tshuaj tiv thaiv kab mob | Mob hauv siab, ua pa nyuaj, tsaus muag, kiv taub hau. |
| Cov tsos mob ntawm kev raug mob siab | Mob plab sab xis saum toj, tsis xav noj mov, xeev siab, quav xim dawb, zis daj tsaus lossis xim av, qhov muag lossis daim tawv nqaij daj, qaug zog txawv txawv. |
| Cov kev mob tshwm sim uas feem ntau tsis loj heev, tab sis yuav tsum tau qhia rau tus kws kho mob yog tias lawv tseem muaj | |
| Lwm yam nta | Hnoos, raws plab (ntuav), kub taub hau, mob taub hau, mob pob qij txha, xeev siab, ntuav. |
Puas muaj teeb meem dab tsi nrog lwm cov tshuaj?
Raws li peb paub, cov tshuaj no tsis tau muaj lus tshaj tawm tias ua rau muaj kev sib cuam tshuam loj nrog lwm cov tshuaj. Txawm li cas los xij, tsis txhob xav tias qhov no yog qhov tseeb. Muab rau koj tus kws kho mob daim ntawv teev tag nrho ntawm txhua yam tshuaj uas koj noj (xws li cov vitamins, tshuaj ntsuab, thiab cov tshuaj ntxiv). Tsis tas li ntawd, nco ntsoov qhia rau koj tus kws kho mob yog tias koj haus luam yeeb lossis haus cawv.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Olipudase Alfa yog ib qho kev kho mob hloov pauv enzyme tshwj xeeb rau ib qho mob caj ces tsawg tsawg hu ua ASMD.
- Qhov no yog muab ua ib qho kev txhaj tshuaj rau hauv cov leeg ntshav, feem ntau yog nyob rau hauv tsev kho mob.
- Ua ntej pib kho mob, qhia rau koj tus kws kho mob txog koj cov kev ua xua, cov phiaj xwm cev xeeb tub, thiab lwm yam tshuaj uas koj noj.
- Thaum noj cov tshuaj no, ceev faj txog cov cim qhia tias muaj kev tsis haum tshuaj hnyav, kev txhaj tshuaj, lossis kev puas tsuaj rau daim siab (piv txwv li, daim tawv nqaij daj, zis tsaus). Qhia rau koj tus kws kho mob tam sim ntawd yog tias koj pom ib qho ntawm cov cim no.
- Tsis txhob cev xeeb tub thaum noj cov tshuaj no. Tham nrog koj tus kws kho mob txog kev tswj kom yug me nyuam kom zoo.
- Ua raws li koj tus kws kho mob cov lus qhia kom meej thiab mus ntsib txhua lub sijhawm teem tseg rau kev kho mob.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus