Koj puas feem ntau hnov mob loog, tingling, lossis kub hnyiab hauv koj txhais tes thiab taw? Koj puas muaj qee zaum xav tias cov cheeb tsam no yuav loog? Txawm hais tias cov tsos mob no yuav zoo li ib txwm muaj, qee zaum yuav muaj ib qho laj thawj loj tom qab lawv. Hnub no peb tab tom tham txog cov tshuaj uas txhaj los ntawm cov leeg thiab siv los kho cov mob tshwj xeeb no. Ntawd yog Patisiran.
Lub Patisiran no yog dab tsi? Nws txhais li cas?
Hais yooj yim xwb, Patisiran yog ib hom tshuaj tiv thaiv kab mob. Nws yog siv los kho cov teeb meem ntawm lub paj hlwb rau cov neeg uas muaj tus mob caj ces hu ua hereditary transthyretin-mediated amyloidosis (hATTR) .
Tam sim no tej zaum koj yuav xav paub tias hATTR yog dab tsi. Nws yooj yim heev. Peb txhua tus muaj cov protein hauv peb lub cev. Hauv cov neeg uas muaj tus mob hATTR no, cov protein hu ua transthyretin misfolds, sib sau ua ke, thiab tso nws tus kheej zoo li cov nceb. Qhov tso no feem ntau tshwm sim nyob ib puag ncig cov hlab ntsha, lub plawv, thiab lwm yam kabmob. Thaum qhov no tshwm sim, cov kabmob ntawd, tshwj xeeb tshaj yog cov hlab ntsha, pib puas tsuaj. Yog vim li cas cov tsos mob uas tau hais ua ntej, xws li loog, mob, thiab o ntawm ob txhais ceg, tshwm sim.
Cov tshuaj Patisiran ua haujlwm los ntawm kev txo qhov kev tsim cov protein uas tsis raug. Yog li ntawd, thaum cov tshuaj no nkag mus rau hauv lub cev, nws tswj kev tsim cov protein phem ntawd. Tom qab ntawd, qhov kev sib sau ua ke ntawm cov protein ntawd nyob ib puag ncig cov hlab ntsha txo qis, thiab cov tsos mob maj mam raug tswj. Cov tshuaj no muaj nyob rau hauv kev ua lag luam raws li lub npe ONPATTRO .
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej noj cov tshuaj no
Vim tias qhov no yog ib yam tshuaj tshwj xeeb, nws yog ib qho tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob txog koj qhov mob tag nrho ua ntej pib kho mob. Nco ntsoov qhia rau lawv txog cov hauv qab no:
- Kev Ua Xua: Yog tias koj muaj kev ua xua, tsis yog rau Patisiran xwb, tab sis rau lwm yam tshuaj, khoom noj, lossis cov tshuaj preservatives, thov qhia rau peb txog lawv.
- Cev Xeeb Tub: Yog tias koj cev xeeb tub, tab tom sim cev xeeb tub, lossis xav tias koj cev xeeb tub, qhia rau koj tus kws kho mob ua ntej pib kho mob.
- Yog tias koj yog ib leej niam pub niam mis: Yog tias koj yog ib leej niam pub niam mis, koj yuav tsum qhia rau tus kws kho mob paub thiab.
Raws li cov ntaub ntawv no, tus kws kho mob yuav txiav txim siab seb qhov kev kho mob no puas haum rau koj lossis tsis haum thiab yuav ua li cas ntxiv mus.
Yuav muab cov tshuaj no rau koj li cas?
Cov tshuaj no tsis yog ib yam tshuaj uas koj coj mus tsev tau. Patisiran yog ib yam tshuaj uas muab tso rau hauv cov hlab ntshav. Yog li ntawd, nws tsuas yog muab rau hauv tsev kho mob lossis chaw kho mob xwb, nyob rau hauv kev saib xyuas ntawm cov neeg ua haujlwm kho mob uas tau kawm tiav.
Kev kho mob no feem ntau yog muab ib zaug txhua peb lub lis piam. Nws yuav siv sijhawm li ib teev thiab ib nrab los txhaj tshuaj rau hauv lub cev.
Tseem Ceeb: Yog tias koj mus tsis tau rau koj qhov kev kho mob uas tau teem tseg, thov qhia rau koj tus kws kho mob lossis chaw kho mob tam sim ntawd. Nws tsis yog lub tswv yim zoo kom hla dhau cov tshuaj kho mob.
Yog tias kuv noj tshuaj ntau dhau lawm ne?
Qhov no yog muab rau hauv tsev kho mob yog li ntawd qhov muaj feem yuav tshwm sim tsawg heev. Txawm li cas los xij, yog tias koj xav tias muaj qee yam tshwm sim, tam sim ntawd qhia rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Hauv Tebchaws lossis Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ntawm tsev kho mob ze tshaj plaws.
Tej yam yuav tsum nco ntsoov thaum noj tshuaj
Nws yog ib qho tseem ceeb heev uas yuav tsum saib xyuas koj lub cev kom zoo thaum lub sijhawm kho mob.
- Kev Tshwm Sim Thaum Muab Tshuaj Rau Hauv Qhov Ncauj: Tej zaum yuav muaj ib txhia neeg uas muaj kev tsis haum tshuaj thaum muab tshuaj no rau hauv cov hlab ntsha lossis tom qab muab tshuaj tas. Piv txwv li, mob hauv siab, ua pa nyuaj, lossis kiv taub hau. Yuav kom txo qhov kev pheej hmoo no, koj tus kws kho mob yuav muab lwm yam tshuaj rau koj (xws li tshuaj kho mob ua xua) ua ntej koj txhaj tshuaj Patisiran. Yog li ua raws li koj tus kws kho mob cov lus qhia kom meej. Cov neeg ua haujlwm kho mob yuav saib xyuas koj ze thaum muab tshuaj rau.
- Cov Vitamin A Qib: Patisiran tuaj yeem ua rau cov vitamin A hauv lub cev txo qis. Vitamin A yog qhov tseem ceeb rau peb lub zeem muag, kev noj qab haus huv ntawm daim tawv nqaij, thiab kev tiv thaiv kab mob. Yog li ntawd, koj tus kws kho mob yuav pom zoo kom koj noj ib lub tshuaj vitamin A txhua hnub. Nws yog ib qho tseem ceeb heev uas yuav tsum noj raws nraim li tau qhia. Tsis tas li ntawd, tham nrog koj tus kws kho mob txog cov khoom noj uas muaj vitamin A ntau (carrots, qos liab qab zib, spinach, mis nyuj).
- Kev Hloov Pauv ntawm Kev Pom Kev: Yog tias koj muaj kev hloov pauv hauv koj qhov kev pom kev, xws li qhov muag qhuav, qhia rau koj tus kws kho mob tam sim ntawd, vim qhov no yuav yog ib qho cim qhia tias tsis muaj vitamin A txaus.
- Kev kuaj mob tsis tu ncua: Koj tus kws kho mob yuav kuaj koj tsis tu ncua kom pom tias koj cov tsos mob puas zoo dua lossis tsis zoo. Nco ntsoov mus koom cov kev kuaj mob no tsis tu ncua.
Cov kev mob tshwm sim uas yuav tshwm sim los ntawm cov tshuaj no
Ib yam li lwm yam tshuaj, Patisiran tuaj yeem ua rau muaj qee yam kev mob tshwm sim. Txawm hais tias tsis yog txhua tus neeg tau txais lawv, qee qhov mob hnyav thiab qee qhov mob tshwm sim ntau.
| Tej zaum yuav muaj cov kev mob tshwm sim ntawm Patisiran | |
|---|---|
| Cov kev mob tshwm sim loj heev uas yuav tsum tau qhia rau tus kws kho mob tam sim ntawd | |
| Kev Ua Xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj, tus nplaig lossis caj pas. |
| Cov Kev Tshwm Sim ntawm Kev Muab Tshuaj Rau Hauv Qhov Ncauj | Mob hauv siab, ua pa nyuaj, tsaus muag, kiv taub hau. |
| Cov tsos mob ntawm qhov tsis muaj vitamin A | Kev hloov pauv ntawm qhov muag pom kev, qhov muag qhuav, tawv nqaij qhuav, thiab muaj kab mob ntau zaus. |
| Cov kev mob tshwm sim uas yuav tsum tau tshaj tawm rau tus kws kho mob yog tias lawv tseem muaj lossis ua rau koj mob siab. | |
| Kev tsis yooj yim dav dav | Mob pob qij txha, mob nqaij, mob caj pas, tsis xis nyob hauv plab. |
Daim ntawv teev npe no tsis suav nrog txhua yam kev mob tshwm sim uas yuav tshwm sim. Yog tias koj muaj lwm yam tsos mob txawv txawv, nrog koj tus kws kho mob tham txog lawv.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Patisiran yog ib hom tshuaj tiv thaiv uas kho cov kab mob hauv lub paj hlwb uas tshwm sim los ntawm ib qho mob caj ces tshwj xeeb hu ua hATTR.
- Qhov no tsuas yog muab rau hauv tsev kho mob lossis chaw kho mob, nyob rau hauv kev saib xyuas ntawm kws kho mob.
- Ceev faj txog cov tshuaj uas yuav tshwm sim thaum noj tshuaj.
- Cov tshuaj no tuaj yeem txo cov vitamin A hauv lub cev, yog li nco ntsoov noj cov tshuaj vitamin A uas koj tus kws kho mob pom zoo.
- Tsis txhob ntshai tham nrog koj tus kws kho mob txog tej yam tsos mob txawv txawv, tej yam tshwm sim tsis zoo, lossis tej teeb meem uas koj yuav ntsib. Kev sib txuas lus zoo yog qhov tseem ceeb rau kev kho mob kom zoo.
💬 Comments (0)
Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus