Koj tus menyuam puas muaj cov tsos mob txawv txawv no? Cia peb kawm txog tus kab mob multiple sclerosis (MS) thaum yau!

Koj tus me nyuam puas muaj teeb meem taug kev tam sim ntawd? Los yog lawv qhov muag tsis pom kev lossis tsis meej? Qee zaum cov no tsuas yog tej yam me me uas tshwm sim xwb. Txawm li cas los xij, qee zaum, cov tsos mob no tuaj yeem yog thawj cov cim qhia ntawm tus kab mob uas peb tsis tham txog ntau, tab sis nws tseem ceeb heev uas yuav tsum paub txog. Hnub no peb yuav tham txog ib qho mob zoo li no, hu ua 'Multiple Sclerosis' lossis 'MS', uas cuam tshuam rau cov menyuam yaus hnub nyoog qis dua 18 xyoo. Tsis txhob txhawj, peb yuav tham txog qhov no yooj yim, hauv txoj kev uas koj tuaj yeem nkag siab.

Cov menyuam yaus no muaj tus kab mob "multiple sclerosis (MS)" li cas?

Hais yooj yim xwb, qhov no yog ib yam kab mob uas tshwm sim los ntawm kev ua haujlwm tsis zoo ntawm lub cev tiv thaiv kab mob. Peb lub cev tiv thaiv kab mob zoo li ib pab tub rog uas tiv thaiv lub tebchaws. Nws txoj haujlwm yog los tiv thaiv peb lub cev los ntawm kev tawm tsam cov kab mob thiab cov kab mob uas los ntawm sab nraud. Txawm li cas los xij, rau ib tug menyuam uas muaj 'MS', lub cev tiv thaiv kab mob no ua yuam kev me me. Nws pib tawm tsam cov hlwb noj qab haus huv ntawm nws lub cev.

Yog hais kom meej meej, qhov kev tawm tsam no tsom mus rau lub paj hlwb ntawm tus menyuam. Uas yog, lub hlwb thiab tus txha caj qaum. Cov hlab ntsha hauv lub hlwb thiab tus txha caj qaum muaj ib daim ntaub thaiv ib puag ncig lawv, zoo li ib lub hnab yas nyob ib puag ncig ib txoj hlua hluav taws xob. Peb hu qhov kev npog no "Myelin." "Myelin" yog qhov uas tso cai rau cov lus mus ncig sai thiab du los ntawm cov hlab ntsha.

Hauv MS, lub cev tiv thaiv kab mob tawm tsam thiab ua puas rau cov hlwb myelin no. Zoo li lub plhaub ntawm cov xov hluav taws xob raug txiav ua tej qhov chaw. Qhov no ua rau cov xov ntawm lub hlwb mus rau lwm qhov ntawm lub cev raug thaiv lossis cuam tshuam.

Qhov kev puas tsuaj rau myelin no ua rau muaj cov tsos mob xws li cov leeg tsis muaj zog, qaug zog, tsis nco qab, nyuaj rau taug kev, thiab hloov pauv qhov muag pom.

Xav txog seb, koj tus menyuam muaj ib tug phooj ywg hu ua Nilanthi. Nilanthi mam li pib mob ib lub qhov muag, thiab nws qhov muag tsis pom kev zoo. Tsuas yog thaum nws qhia rau kws kho mob xwb nws thiaj paub tias qhov ntawd yog ib qho cim qhia ntxov ntawm MS.

Tam sim no tsis muaj tshuaj kho tau MS. Txawm li cas los xij, muaj cov kev kho mob zoo los tswj cov tsos mob thiab txo qhov kev tsis taus mus sij hawm ntev uas tshwm sim los ntawm tus kab mob no. Yog li ntawd, tsis tas yuav txhawj.

Muaj hom mob MS twg tshwm sim rau cov menyuam yaus?

Hom mob MS uas feem ntau tshwm sim rau cov menyuam yaus yog "Relapsing-Remitting MS (RRMS) . Kwv yees li 98% ntawm cov menyuam yaus muaj hom mob no. Hauv qhov no, cov tsos mob tshwm sim sai sai (flare-up/relapse), kav ntev li ib pliag, tom qab ntawd txo qis lossis ploj mus tag (remission). Lawv yuav rov qab los tom qab ib pliag. Ua li no, cov tsos mob tuaj thiab mus thoob plaws hauv tus menyuam lub neej.

Lwm hom yog 'Primary Progressive MS (PPMS)'.Qhov no tsis tshua muaj ntau rau cov menyuam yaus. Qhov tshwm sim yog tias cov tsos mob maj mam zuj zus tuaj raws sijhawm. Tsis muaj kev txhim kho ntau ntxiv rau lub sijhawm sib txawv.

Cov tsos mob thaum ntxov ntawm MS rau cov menyuam yaus yog dab tsi?

Thaum kuaj mob MS, cov kws kho mob yuav tsum ua tib zoo saib xyuas cov cim qhia thaum ntxov no:

• Kab mob qhov muag (Optic Neuritis): Qhov no yog ib yam mob uas ua rau mob ib lossis ob lub qhov muag, nrog rau qhov tsis pom kev. Tshwj xeeb, cov hlab ntsha hauv lub qhov muag yuav o. Ib txhia menyuam yaus kuj tseem yuav muaj kev hloov pauv hauv lawv qhov kev pom xim.
• Kab Mob Pob Txha Transverse Myelitis: Qhov no yog thaum o ntawm ib feem ntawm cov hlab ntsha caj qaum ua rau muaj qhov caws pliav, thaiv cov hlab ntsha. Qhov no tuaj yeem ua rau muaj cov tsos mob xws li qaug zog ntawm ob txhais ceg, loog, thiab tsis muaj peev xwm taug kev.

Xav txog koj tus menyuam, cia peb hais tias nws lub npe yog Kavindu. Muaj ib hnub, thaum Kavindu los tsev los ntawm tsev kawm ntawv, nws hais tias, "Niam, kuv ob txhais ceg xav tias loog." Tom qab ib pliag, nws pom tias nws nyuaj rau taug kev. Qhov no yuav yog vim muaj mob Transverse Myelitis.

Cov tsos mob ntawm MS feem ntau tshwm sim rau cov menyuam yaus yog dab tsi?

Cov tsos mob ntawm MS yuav txawv ntawm ib tus neeg mus rau ib tus neeg. Txawm tias rau tib tus menyuam, cov tsos mob kuj yuav txawv ntawm ib hnub mus rau ib hnub. Tsis yog txhua tus yuav muaj tag nrho cov tsos mob no, tab sis feem ntau tsuas yog ob peb tug xwb thiaj li pom.

• Kev tsis muaj zog, tingling (paresthesia) : Qhov kev xav no tuaj yeem tshwm sim rau thaj chaw xws li tes, taw, thiab lub ntsej muag.
• kiv taub hau
• Nyuaj rau kev taug kev lossis tswj kev sib npaug
• Qaug zog: Qhov no tsis yog tsuas yog qaug zog ib txwm muaj xwb. Nws yog ib qho kev xav tias qaug zog txawm tias koj tau pw tsaug zog npaum li cas los xij.
• Cov leeg tsis muaj zog
• Kev co/kev co
• Teeb meem nrog kev tsom ntsoov lossis kev nco qab
• Teeb meem pom kev: xws li pom tsis meej lossis pom ob sab.

Txawm hais tias koj muaj ib lossis ob yam ntawm cov tsos mob no los xij, tsis txhob xav tias nws yog MS. Txawm li cas los xij, yog tias cov tsos mob no tseem muaj lossis koj tus menyuam muaj teeb meem, nws yog ib qho tseem ceeb uas yuav tsum nrhiav kev pab kho mob.

Dab tsi ua rau cov menyuam yaus muaj MS?

Qhov ua rau MS yog demyelination . Peb tau tham ua ntej txog myelin sheath. Demyelination yog kev puas tsuaj rau myelin sheath.

Peb tus menyuam lub cev tiv thaiv kab mob, vim qee qhov laj thawj, yuam kev qhov chaw noj qab haus huv no hu ua 'Myelin' ua ib yam dab tsi ua rau lub cev puas tsuaj. Tom qab ntawd nws pib tawm tsam nws. Qhov kev tawm tsam no ua rau puas tsuaj rau 'Myelin'. Cov caws pliav (tseem hu ua 'lesions' lossis 'plaques' los ntawm cov kws kho mob) tuaj yeem tsim nyob rau hauv cov chaw puas tsuaj no. Cov caws pliav no tuaj yeem pom nrog kev luam theej duab xws li 'MRI (Magnetic Resonance Imaging)'.

Thaum cov myelin puas lawm, kev xa cov lus los ntawm lub hlwb mus rau ntau qhov ntawm lub cev yuav raug cuam tshuam. Qhov ntawd yog qhov ua rau muaj cov tsos mob ntawm MS.

Cov kws tshawb nrhiav tseem tsis tau paub meej tias vim li cas lub cev tiv thaiv kab mob thiaj ua tsis zoo li no.

Cov yam uas ua rau cov menyuam yaus muaj MS muaj feem yuav mob yog dab tsi?

Tau pom tias muaj tej yam uas cuam tshuam rau leej niam thaum cev xeeb tub yuav ua rau tus menyuam muaj MS ntau ntxiv:

• Kev raug rau cov tshuaj lom: Piv txwv li, kev raug pa luam yeeb, tshuaj tua kab, thiab lwm yam.
• Cov vitamin D hauv cov ntshav qis.
• Kev raug mob los ntawm qee yam kab mob viral: Piv txwv li, Epstein-Barr virus lossis mononucleosis (tseem hu ua kab mob hnia).
• Kev rog dhau.

Yog li ntawd, nws yog ib qho tseem ceeb heev uas yuav tsum noj qab haus huv thaum cev xeeb tub. Kev ua raws li cov lus qhia kho mob tuaj yeem txo cov kev pheej hmoo no.

Cov teeb meem uas yuav muaj tau ntawm MS thaum yau yog dab tsi?

Cov menyuam yaus muaj peev xwm muaj qee yam teeb meem vim yog MS. Feem ntau cov no tsis tshwm sim tam sim ntawd, thiab tsuas yog yuav cuam tshuam rau lawv thaum lawv loj hlob tuaj.

• Nyuaj siab taug kev yam tsis muaj kev pab.
• Kev Nyuaj Siab thiab Kev Ntxhov Siab.
• Nyuaj siab ua haujlwm hauv tsev kawm ntawv.
• Kev sib koom tes tsis zoo.
• Nyuaj siab tswj cov zis los yog quav (incontinence).

Tsis yog txhua yam no cuam tshuam rau txhua tus menyuam, tab sis nws yog ib qho tseem ceeb kom paub txog cov no kom koj thiaj li tau txais kev pab sai sai yog tias xav tau.

Cov kws kho mob kuaj mob MS li cas rau cov menyuam yaus?

Ib tug kws kho mob kuaj mob ib tug me nyuam uas muaj MS los ntawm kev kuaj lub cev, kuaj lub paj hlwb, thiab ntau yam kev kuaj tshwj xeeb . Thaum lub sijhawm kuaj no, tus kws kho mob yuav nug koj cov lus nug txog koj tus menyuam cov tsos mob thiab seb puas muaj leej twg hauv koj tsev neeg tau muaj tus kab mob no.

Kev kuaj mob kuj pab tshem tawm lwm yam mob uas muaj cov tsos mob zoo ib yam li MS. Cov kev kuaj no suav nrog:

• Kev kuaj ntshav thiab kev kuaj zis.
• Kev kuaj duab xws li MRI (Magnetic Resonance Imaging) scans (kuj tseem muaj kev kuaj uas saib cov hlab ntsha ntawm lub qhov muag, xws li Optical Coherence Tomography).
• Kev Txhaws Lub Plab:Hauv qhov no, qee cov kua dej nyob ib puag ncig cov hlab ntsha qaum raug coj mus kuaj thiab kuaj xyuas.
• Kev Ntsuas Peev Xwm (EP): Qhov no ntsuas qhov ceev uas cov lus xa mus los ntawm cov hlab ntsha.

Vim tias cov tsos mob ntawm MS zoo ib yam li lwm yam kab mob, nws yuav siv sijhawm me ntsis los kuaj mob kom paub tseeb. Qhov no yuav ua rau cov niam txiv ntxhov siab me ntsis, thiab yuav xav tau mus ntsib kws kho mob ntau zaus. Txawm li cas los xij, thaum kuaj tau zoo lawm, nws yuav kho tau koj tus menyuam kom zoo thiab pab lawv muaj lub neej thaum yau zoo siab thiab tsis muaj kev cuam tshuam.

Cov menyuam yaus puas paub txog 'MS'?

Cov tsos mob ntawm MS tsis pom thaum yug los. Yog li ntawd, nws tsis zoo li yuav kuaj pom tias tus menyuam muaj MS. Cov tsos mob yuav pom tseeb thaum tus menyuam loj hlob tuaj. Feem ntau tus mob no pib thaum lub sijhawm hluas. Feem ntau, tus kab mob no raug kuaj pom ua ntej hnub nyoog 16 xyoo.

Yuav kho tus mob MS li cas rau cov menyuam yaus?

Txoj kev kho mob tseem ceeb rau tus kab mob rov qab mob dua (RRMS), uas feem ntau tshwm sim rau cov menyuam yaus, yog kev kho mob hloov kho kab mob (DMT). Cov tshuaj DMT no tswj kev loj hlob ntawm tus kab mob thiab txo qhov zaus ntawm cov tsos mob. Ib yam tshuaj uas FDA (Food and Drug Administration) pom zoo yog ib lub tshuaj hu ua fingolimod . Nws raug pom zoo rau cov menyuam yaus hnub nyoog 10 xyoo thiab laus dua. Lwm cov tshuaj DMTs tam sim no tab tom kawm txog kev siv rau cov menyuam yaus.

Tsis tas li ntawd xwb, cov kws kho mob kuj kho cov tsos mob tshwj xeeb ntawm tus menyuam. Cov no yuav suav nrog:

• Kev Kho Mob Ua Haujlwm: Pab nrog cov haujlwm txhua hnub.
• Kev Kho Mob Lub Cev: Pab txhim kho lub cev lub zog thiab kev sib npaug.
• Kev Kho Mob Hais Lus: Yog tias koj muaj teeb meem hais lus lossis nqos.
• Kev kuaj mob thiab kev kho mob hlwb: Pab nrog tej yam xws li kev nco qab, kev mloog zoo, thiab kev kawm.

Yog tias tus kab mob tau cuam tshuam rau tus menyuam txoj kev nco qab thiab kev xav (kev ua haujlwm ntawm lub hlwb), tej zaum yuav xav tau kev txhawb nqa ntxiv ntawm tsev kawm ntawv.

Tej zaum koj yuav muaj lub sijhawm los koom nrog kev sim tshuaj uas sim cov kev kho mob tshiab. Koj tus kws kho mob yuav qhia koj ntxiv txog qhov no.

Kuv yuav tsum mus ntsib kuv tus menyuam tus kws kho mob thaum twg?

Yog koj tus menyuam qhia koj txog qhov tsis muaj zog, kev hloov pauv ntawm qhov muag pom, lossis lwm yam tsos mob txawv txawv, nws yog ib qho tseem ceeb uas yuav tsum nrog koj tus menyuam tus kws kho mob tham tam sim ntawd. Kev kuaj pom MS thaum ntxov yog qhov zoo tshaj plaws. Cov kws kho mob tuaj yeem kuaj koj tus menyuam thiab txiav txim siab txoj hauv kev zoo tshaj plaws los kuaj mob.

Tom qab kuaj pom tias muaj tus kab mob lawm, koj lossis koj tus menyuam yuav tsum qhia rau pab neeg kho mob yog tias muaj cov tsos mob tshiab tshwm sim lossis yog tias cov tsos mob hnyav zuj zus tuaj (ua rau mob hnyav zuj zus).

Yav tom ntej ntawm cov menyuam yaus uas muaj MS thaum yau yuav zoo li cas?

Cov menyuam yaus uas kuaj pom tias muaj MS feem ntau muaj lub zeem muag zoo rau yav tom ntej. Muaj kev kho mob los txo qhov zaus thiab qhov hnyav ntawm cov tsos mob. Txhawm rau tiv thaiv kev tsis taus mus sij hawm ntev, tus kab mob yuav tsum tau tswj hwm thoob plaws hauv lawv lub neej. Koj tus menyuam yuav tsum tau ntsib nrog lawv pab neeg kho mob MS tsis tu ncua thoob plaws hauv lawv lub neej.

Ib txhia menyuam yaus uas muaj tus kab mob MS rov qab mob dua (RRMS) tuaj yeem muaj tus mob hu ua secondary progressive MS (SPMS) thaum lawv laus. Qhov no yog thaum cov tsos mob maj mam zuj zus tuaj. Txawm li cas los xij, kev tshawb fawb tau qhia tias cov neeg uas kuaj pom tias muaj MS thaum lawv tseem yog menyuam yaus muaj tus kab mob qeeb dua li cov neeg uas muaj SPMS thaum lawv laus.

MS puas yuav cuam tshuam rau kuv tus menyuam lub neej kawm ntawv?

Vim tias MS tuaj yeem cuam tshuam rau tus menyuam txoj kev nco thiab kev xav (kev ua haujlwm ntawm lub hlwb), tus menyuam yuav ntsib teeb meem hauv kev ua haujlwm hauv tsev kawm ntawv. Yog li ntawd, nws yog ib lub tswv yim zoo kom muaj tsawg kawg ib qho kev kuaj mob hlwb. Tom qab ntawd, nws yog ib qho tseem ceeb uas yuav tsum tham nrog tus menyuam cov xib fwb tsis tu ncua. Koj tuaj yeem tau txais kev txhawb nqa los pab tus menyuam txav mus tom ntej ntawm lawv tus kheej lub sijhawm thiab mus rau lawv lub hom phiaj kev kawm.

Muaj ntau tus menyuam uas muaj MS sib raug zoo nrog lwm cov menyuam uas muaj hnub nyoog li lawv. Lawv tuaj yeem ua si thiab koom nrog cov dej num ib yam li lwm cov menyuam.

Yog koj muaj lus nug dab tsi, tus kws kho mob yuav qhia koj seb qee yam kev ua ub no puas muaj kev nyab xeeb rau tus menyuam.

Ua ib tug niam txiv, tej zaum koj yuav txhawj heev thaum koj paub tias koj tus menyuam muaj MS. Qhov ntawd yog ib txwm muaj. Tab sis nco ntsoov tias, feem ntau cov mob MS uas cuam tshuam rau cov menyuam yaus yog rov qab mob dua (RRMS). Qhov no txhais tau tias cov tsos mob tuaj thiab mus. Tus kws kho mob tuaj yeem tsim ib txoj kev npaj kho mob kom txo qhov zaus thiab qhov hnyav ntawm cov tsos mob. Txawm hais tias MS yog ib yam kab mob uas kav ntev mus ib txhis uas tsis muaj kev kho, yog tias tswj tau zoo, koj tuaj yeem pab koj tus menyuam ua si thiab kawm nrog tsawg dua kev cuam tshuam.

Cov Lus Qhia Txog Kev Coj Mus Tsev

• MS thaum yau yog ib qho mob uas lub cev tiv thaiv kab mob tawm tsam cov myelin hauv lub paj hlwb.
• Cov tsos mob sib txawv, thiab tej zaum yuav muaj teeb meem pom kev, loog, nyuaj taug kev, thiab qaug zog.
• Tus kab mob no tuaj yeem tswj tau los ntawm kev kuaj pom thaum ntxov thiab kev kho mob zoo li 'DMT'.
• Tus me nyuam yuav xav tau kev pab ntxiv ntawm tsev kawm ntawv thiab hauv lub neej txhua hnub, tab sis feem ntau cov me nyuam tuaj yeem ua neej nyob li qub.
• Yog koj tus menyuam muaj tej yam tsos mob txawv txawv, nrhiav kev pab kho mob tam sim ntawd. Tsis txhob ntshai, nrog cov ntaub ntawv thiab kev txhawb nqa zoo, koj tuaj yeem daws qhov teeb meem no.

`Kab mob MS thaum yau, Multiple Sclerosis, Lub paj hlwb, Myelin, Lub cev tiv thaiv kab mob, Cov tsos mob, Kev kho mob