Koj txhais tes thiab ko taw puas loog lossis kub hnyiab? Qhov no yuav yog Small Fiber Neuropathy!

Koj puas tau muaj ib zaug twg uas koj xav tias koj txhais tes thiab taw loog, lossis koj xav tias koj kub hnyiab zoo li muaj ntsaum nkag mus rau hauv koj txhais tes thiab taw? Tsis txhob xav tias cov tsos mob no tsuas yog ib yam dab tsi uas tshwm sim xwb, puas yog? Vim tias qee zaum tej zaum yuav muaj ib yam mob uas ua rau cov tsos mob no xav tau kev saib xyuas. Hnub no, peb yuav tham txog ib yam mob hu ua Small Fiber Neuropathy (SFN) , uas tshwm sim thaum cov hlab ntsha me me hauv peb lub cev raug puas tsuaj.

Yog li, dab tsi yog Small Fiber Neuropathy?

Hais yooj yim xwb, qhov no yog ib qho mob ntawm cov hlab ntsha uas yog ib feem ntawm pawg mob peripheral neuropathy . Qhov mob no tshwm sim thaum cov hlab ntsha me me hauv peb daim tawv nqaij raug puas tsuaj rau qee qhov laj thawj. Cov hlab ntsha me me no yog cov uas xa cov cim mus rau lub hlwb txog peb lub cev qhov mob thiab qhov kub. Yog li thaum cov no raug puas tsuaj, raws li tau hais ua ntej, qhov mob loog thiab kub hnyiab tuaj yeem tshwm sim hauv tes thiab taw.

Txawm li cas los xij, qhov no tsis yog tsuas yog cuam tshuam rau tes thiab taw xwb. Nws kuj tseem tuaj yeem cuam tshuam rau lwm cov hlab ntsha me me uas tswj cov haujlwm tseem ceeb hauv peb lub cev, xws li ntshav siab thiab lub plawv dhia .

Cov tsos mob SFN no qee zaum yuav hnyav heev, thiab tuaj yeem muaj kev cuam tshuam loj rau koj lub neej . Txawm hais tias qhov no tsis yog ib qho mob hnyav, uas yuav ua rau tuag taus, qee zaum nws tuaj yeem yog ib qho tsos mob ntawm lwm yam mob hnyav. Yog vim li ntawd cov kws kho mob thiaj li sim nrhiav qhov ua rau muaj tus mob no, kho nws, thiab sau tshuaj los tswj cov tsos mob mob no.

Tus mob no feem ntau tshwm sim li cas?

Qhov tseeb, qhov no tsis yog ib qho mob uas pom ntau heev. Raws li ib txoj kev tshawb fawb, kwv yees li 53 tus neeg txhua 100,000 tus neeg thoob ntiaj teb muaj cov kab mob me me hauv lub paj hlwb. Txawm li cas los xij, cov kws tshawb fawb ntseeg tias tus lej yuav ntau dua. Lawv ntseeg tias tsis yog txhua tus neeg uas muaj tus mob no raug kuaj pom zoo. Yog li, tej zaum yuav muaj ntau tus neeg muaj qhov teeb meem no ntau dua li peb xav.

Cov tsos mob ntawm cov kab mob me me (SFN) yog dab tsi?

Cov tsos mob ntawm tus mob no yuav txawv ntawm ib tus neeg mus rau ib tus neeg. Txawm li cas los xij, cov tsos mob thaum ntxov feem ntau yog mob "pins-and-needles" lossis kub hnyiab hauv tes thiab taw. Cov tsos mob no qee zaum tuaj thiab ploj mus, qee zaum lawv tas li, thiab feem ntau lawv hnyav zuj zus tuaj.

Lwm cov tsos mob uas yuav pom muaj xws li:

• Hnov kiv taub hau , lossis zoo li koj yuav tsaus muag.
• Zoo li koj lub plawv dhia ceev dua (lub plawv dhia ceev) .
• Kev tsis muaj zog .
• Qhov tsis muaj peev xwm hnov ​​​​​​mob, kub, lossis txias hauv ib cheeb tsam me me ntawm lub cev.
• Mob plab, mob plab zom mov tsis zoo.
• Tawm hws ntau dua li qub.

Xav txog seb nws yuav ntxhov siab npaum li cas yog tias koj xav tias koj txhais tes thiab koj txhais taw raug chob nrog cov pas nrig, lossis txawm tias kub hnyiab, txawm tias koj tsuas zaum ntawd xwb.

Vim li cas peb thiaj muaj mob hlwb me me (SFN)? Dab tsi yog cov ua rau muaj?

Qhov xav tsis thoob yog, kwv yees li ib nrab ntawm cov neeg mob uas muaj cov kab mob me me hu ua " idiopathic small fiber neuropathy." Qhov ntawd txhais tau tias tsis tuaj yeem nrhiav tau qhov ua rau muaj qhov no.

Txawm li cas los xij, kev tshawb fawb tau pom tias ntau yam kab mob, qee yam mob uas tau los ntawm noob caj noob ces, thiab kev raug qee yam tshuaj lom kuj tuaj yeem ua rau qhov no.

Tus mob no kuj tuaj yeem tshwm sim los ntawm qee yam kab mob.

Kab mob ntshav qab zib yog kab mob tseem ceeb thiab feem ntau uas cuam tshuam rau qhov no. Dua li ntawm qhov ntawd, cov kab mob hauv qab no kuj yuav ua rau SFN:

• Kev siv dej cawv tsis zoo .
• Cov kab mob uas tshwm sim los ntawm lub cev tiv thaiv kab mob tsis muaj zog, piv txwv li , kab mob Celiac , Sarcoidosis , lossis Sjögren's syndrome .
• Kev ua tsis zoo ntawm cov piam thaj hauv cov ntshav (Kev tsis kam rau cov piam thaj hauv cov ntshav) .
• Qee cov kab mob sib kis, piv txwv li Hepatitis C lossis HIV (Human Immunodeficiency Virus) .
• Kab mob metabolic .
• Kab mob thyroid .
• Sepsis yog ib qho kab mob hnyav heev.
• Tsis muaj vitamin B txaus.

Nws kuj tseem yuav yog vim qee yam mob uas tau los ntawm noob caj noob ces.

Cov kev hloov pauv ntawm cov noob caj noob ces hauv cov noob caj noob ces uas pab peb cov hlwb tsim thiab xa cov teeb liab hluav taws xob los ntawm lub paj hlwb kuj tuaj yeem ua rau SFN. Qee cov kab mob uas tau txais los ntawm noob caj noob ces suav nrog:

• Ehlers-Danlos syndrome
• Kab mob Fabry
• Kab mob amyloidosis hauv tsev neeg
• Kab mob Pompe
• Porphyria
• Kab mob Wilson

Qee cov tshuaj thiab cov tshuaj lom ...

Kev pheej hmoo ntawm kev mob me me ntawm cov hlab ntsha hauv lub paj hlwb kuj tseem yuav nce ntxiv thaum siv qee yam tshuaj. Piv txwv li:

• Qee cov tshuaj tua kab mob , piv txwv li , Metronidazole , Nitrofurantointhiab Linezolid .
• Cov tshuaj kho mob qog noj ntshav , xws li Bortezomib , Thalidomide , thiab Vincristine (Oncovin) .
• Cov tshuaj inhibitors ntawm cov qog nqaij hlav necrosis , piv txwv li , etanercept .

Dab tsi yog tej yam uas ua rau cov tsos mob hnyav zuj zus? (Triggers)

Feem ntau, tej yam uas ua rau muaj cov tsos mob no yog cua txias ntaus daim tawv nqaij , lossis ib daim ntaub txhuam rau ntawm daim tawv nqaij . Xav txog, yog tias koj pw tsaug zog thaum hmo ntuj thiab cov ntaub pua chaw pw txhuam rau ntawm koj ob txhais ceg, koj yuav hnov ​​​​​​mob loog thiab mob tsis tuaj yeem ua tau ... Txawm tias ib yam me me li ntawd los kuj tuaj yeem ua rau mob hnyav rau cov neeg no.

Cov teeb meem ntawm tus mob no yog dab tsi? Kuv puas yuav tsum ntshai?

Kab mob me me ntawm cov hlab ntsha hauv lub cev (me me fiber neuropathy) tuaj yeem txo koj lub peev xwm los hnov ​​​​​​mob. Piv txwv li, yog tias koj kov ib yam dab tsi kub, koj yuav raug kub hnyiab yam tsis paub txog. Nws kuj tseem tuaj yeem ua rau koj kiv taub hau thiab cuam tshuam rau koj txoj kev taug kev . Yog li, koj yuav poob ntau dua, puas yog? Yog li koj yuav tsum ceev faj txog cov no thiab.

Tus kws kho mob kuaj qhov no li cas? (Kev kuaj mob)

Tus kws kho mob yuav ua qhov kev kuaj mob lub cev ua ntej thiab nug txog koj keeb kwm kev kho mob . Tsis muaj ib qho kev kuaj mob twg uas tuaj yeem kuaj pom qhov mob me me ntawm cov hlab ntsha hauv lub paj hlwb. Txawm li cas los xij, muaj ntau qhov kev kuaj mob uas feem ntau ua:

• Electromyography (EMG) : Qhov no kuaj xyuas cov haujlwm hluav taws xob ntawm cov hlab ntsha thiab cov leeg.
• Kev kuaj mob caj ces : Tshawb xyuas seb puas muaj tej yam ua rau muaj los ntawm caj ces.
• Kev kuaj duab : Tej yam xws li CT scans lossis MRI scans .
• Kev tshawb nrhiav txog kev xa xov ntawm cov hlab ntsha : Saib qhov ceev uas cov cim qhia mus los ntawm cov hlab ntsha.
• Kev kuaj tawv nqaij - kev kuaj qhov ceev ntawm cov hlab ntsha : Yuav muab ib qho qauv me me ntawm daim tawv nqaij thiab kuaj hauv qab lub tshuab microscope kom pom tias muaj pes tsawg cov hlab ntsha.
• Kev Ntsuas Qhov Ntsuas Sudomotor Axon Reflex (QSART) : Qhov no ntsuas kev ua haujlwm ntawm cov hlab ntsha uas tswj kev tawm hws.

Tsis tas li ntawd xwb, cov kws kho mob kuj tseem yuav kuaj xyuas lwm yam mob, xws li ntshav qab zib, uas yuav ua rau muaj cov kab mob me me hauv lub paj hlwb.

Yuav kho qhov no li cas? Puas kho tau?

Thaum kho tus mob no, cov kws kho mob feem ntau tsom mus rau kev txo qhov mob uas tshwm sim los ntawm nws.Muaj tshuaj thiab lwm yam kev kho mob. Cov kab mob me me ntawm lub paj hlwb feem ntau yog qhov teeb meem ntawm lwm yam mob, yog li nws tseem ceeb heev uas yuav tsum kho qhov mob tseem ceeb thiab .

Cov tshuaj mob

Muaj ntau hom tshuaj uas siv tau los tswj qhov mob:

• Qee cov tshuaj tiv thaiv kev qaug dab peg , xws li Gabapentin , Pregabalin , thiab Topiramate , tuaj yeem pab txo qhov mob ntawm cov hlab ntsha.
• Qee cov tshuaj antidepressants , xws li amitriptyline , nortriptyline , thiab desipramine , kuj zoo rau kev mob hlab ntsha.
• Cov tshuaj loog rau sab nraud : Piv txwv li , cov tshuaj pleev lidocaine lossis cov tshuaj pleev capsaicin . Cov no ua rau mob thaum siv rau ntawm qhov chaw mob.

Nco ntsoov, nws yog ib qho tseem ceeb heev uas yuav tsum siv tshuaj raws nraim li tus kws kho mob tau hais.

Koj tuaj yeem cia siab li cas thaum nyob nrog tus mob no?

Kab mob me me hu ua me me fiber neuropathy yuav tshwm sim qeeb heev . Qee zaum cov tsos mob yuav hnyav zuj zus thiab tom qab ntawd tseem zoo li qub tau ntau xyoo. Ib txoj kev tshawb fawb pom tias ntawm 13% thiab 36% ntawm cov neeg uas muaj kab mob me me fiber neuropathy thaum kawg yuav muaj kab mob loj fiber neuropathy, ib qho mob uas cuam tshuam rau cov hlab ntsha loj . Qhov no tuaj yeem ua rau poob qhov kev xav, xws li kev hnov ​​​​​​kev kov thiab kev co, zoo li koj hnav hnab looj tes.

Koj qhov kev kwv yees tom qab kev kho mob nyob ntawm seb qhov ua rau koj muaj SFN yog dab tsi. Piv txwv li, yog tias koj muaj ntshav qab zib, koj yuav tsum tau noj tshuaj ntshav qab zib rau tas koj lub neej. Yog li, tham nrog koj tus kws kho mob txog koj tus mob thiab kev kho mob yuav pab tswj koj qhov mob thiab lwm yam tsos mob li cas.

Qhov no puas muaj feem cuam tshuam rau lub neej?

Tsis yog, qhov mob me me ntawm cov hlab ntsha hauv lub paj hlwb nws tus kheej yuav tsis ua rau koj lub neej luv dua. Txawm li cas los xij, yog tias muaj ib qho mob uas ua rau nws, xws li ntshav qab zib lossis HIV, nws tuaj yeem cuam tshuam rau koj lub neej ntev npaum li cas.

Kuv yuav saib xyuas kuv tus kheej li cas?

Ib qho tseem ceeb tshaj plaws uas koj ua tau los saib xyuas koj tus kheej yog tswj qhov mob uas tshwm sim los ntawm cov hlab ntsha me me (small fiber neuropathy). Koj tus kws kho mob yuav sau ntawv kom koj noj tshuaj loog mob, tab sis koj kuj tseem yuav xav txog cov kev pab cuam tswj qhov mob . Cov no suav nrog kev sab laj thiab kev kho mob, kev tawm dag zog, thiab kev zaws lossis kev kho lub cev.

Kuv yuav tsum mus ntsib kws kho mob dua thaum twg?

Cov tsos mob ntawm tus kab mob me me ntawm lub paj hlwb (small fiber neuropathy) tuaj yeem hloov pauv thiab zuj zus tuaj raws sijhawm. Yog tias koj muaj SFN, qhia rau koj tus kws kho mob yog tias koj pom cov tsos mob uas pib hauv ib feem ntawm koj lub cev thiab tom qab ntawd tshwm sim hauv lwm qhov. Piv txwv li:

• Yog tias tsuas yog qhov mob "zoo li tus pas" hauv kuv ob txhais ceg tam sim no tuaj yeem hnov ​​​​​​hauv kuv txhais tes thiab.
• Yog tias qhov mob tshwm sim ntau zaus, lossis yog tias qhov mob hnyav dua.
• Yog tias muaj cov tsos mob tshiab tshwm sim, xws li kiv taub hau lossis nyuaj rau taug kev.

Zoo siab uas koj mus ntsib kws kho mob sai sai rau lub sijhawm zoo li no.

Cov lus nug tseem ceeb uas yuav nug tus kws kho mob yog dab tsi?

Thaum koj mus ntsib kws kho mob, nco ntsoov nug cov lus nug no:

• Ua rau kuv cov tsos mob yog dab tsi?
• Kuv cov tsos mob puas yuav hnyav zuj zus?
• Cov kev kho mob twg uas pom zoo rau kuv?
• Kuv puas yuav muaj qhov mob no mus ib txhis?

Kev paub cov lus teb rau cov lus nug no yuav ua rau koj nkag siab zoo heev.

Yog li ntawd, peb yuav tsum nco ntsoov dab tsi ntawm qhov no? (Cov Lus Coj Mus Tsev)

Kab mob me me hu ua small fiber neuropathy (SFN) yog ib yam mob uas ua rau koj tsis muaj zog, kub hnyiab, thiab mob ntawm ob txhais ceg uas ua rau koj lub neej tsis zoo. Feem ntau nws zoo li yog ib yam tsos mob ntawm lwm yam mob uas ua rau koj mob hnyav.

Cov kws kho mob kho SFN los ntawm kev tswj hwm qhov mob tseem ceeb. Kuj tseem muaj kev kho mob thiab cov kev pab cuam los pab tswj qhov mob thiab lwm yam tsos mob uas los nrog nws. Yog tias koj hnov ​​​​​​mob loog lossis kub hnyiab hauv koj txhais tes thiab taw, tsis txhob tsis quav ntsej nws thiab mus ntsib kws kho mob. Cov tsos mob no tuaj yeem yog cov cim qhia ntxov ntawm tus mob hnyav. Tsis txhob txhawj, yog tias koj raug kuaj pom thiab kho thaum ntxov, koj feem ntau tuaj yeem tswj hwm tus mob.

` Kab mob me me ntawm cov hlab ntsha (Small Fiber Neuropathy), SFN, mob hlab ntsha, tingling, loog, ntshav qab zib, neuropathy