Yu dɔn ɛva gɛt wan rash we tan lɛk bɔtaflay in wing, ɔ wan rɛd rash, akɔdin to yu chɛst ɛn yu nos? Bɔku pipul dɛn kin tink se na jɔs san bɔn ɔ alɛji. Bɔt sɔntɛnde, i kin bi sayn fɔ sɔntin we rili siriɔs. Tide wi de tɔk bɔt ‘Acute Cutaneous Lupus’, na wan kayn lupus we de afɛkt di skin ɛn gɛt ɛksaktɔli dɛn simptom ya.
Fɔs, lɛ wi si, wetin na Lupus?
Fɔ tɔk am simpul wan, lupus na sik we pɔsin kin gɛt we i de fɛt insɛf. Papa, dat de mek yu fil se i kɔmplikt smɔl? Okay, mek a ɛksplen. Imajin se wi bɔdi gɛt tin we de protɛkt wi. Wi kin kɔl am di imyun sistɛm. Dɛn wok na fɔ no ɛn atak ɛnimi lɛk jem, vayrɔs, ɛn baktri dɛm we de kam insay di bɔdi frɔm ɔdasay, ɛn protɛkt wi frɔm sik.
Bɔt, pan pɔrsin wae gɛt ɔtoimyun sik lɛk lupus, sɔmtin kin rɔng. Dat difεns sistεm de mek mistek εn i nכ kin ebul fכ no di difrεns bitwin fכrin invayda dεm εn wi כwn hεlty sεl εn tisu dεm. So, dɛn kin bigin fɔ atak wi yon wɛlbɔdi sɛl dɛn. Dis kin mek yu swel, pen, ɛn pwɛl difrɛn pat dɛn na di bɔdi.
di kayn lupus we kכmכn εn we kכmכn pas כl na Systemic Lupus Erythematosus (SLE) . insay dis kכndyushכn, di כtoimyun atak nכ de limited to di skin. I kin afɛkt bak di intanɛnt ɔgan dɛm lɛk di kidni, at, lɔng, ɛn jɔyn dɛm. Na lɛk tri pan ɛvri 4 pipul dɛm wae gɛt lupus kin gɛt dis sik.
So wetin na cutaneous lupus?
di wɔd 'cutaneous' min "rilayt to di skin." Cutaneous Lupus Erythematosus (CLE) na wan sik we lupus kin afɛkt di skin mɔ. Dis na we di imyun sistεm de atak di skin sεl dεm dairekt wan. Dis kin mek difrɛn kayn spat, lɛsin, ɛn sɔri na di skin.
Acute Cutaneous Lupus (ACLE) na wan kayn skin lupus. 'Akyu' min "we de apin wantɛm wantɛm." So wetin kin apin pan dis kes na dat di sayn dɛm, mɔ di bɔtaflay rash, kin apia wantɛm wantɛm. Bɔrku tɛm, dis kin apin afta yu dɔn de na di san.
Di impɔtant tin na dat bɔku pipul dɛn we gɛt ACLE gɛt dɛn skin simptom ya wit di systemic lupus erythematosus (SLE) kɔndishɔn we wi bin dɔn tɔk bɔt. Dis min se strɔng kɔnekshɔn de bitwin dɛn tu.
Wetin na di kayn sik we dɛn kɔl cutaneous lupus?
Tri men kayn lupus de we kin afɛkt di skin. Ɛni kayn we gɛt difrɛn rash. Fɔ ɔndastand dis mɔ, luk di tebul we de dɔŋ ya.
| Tayp fɔ di sik we dɛn kɔl lupus | Di kayn we aw di rash de ɛn usay i de apia |
|---|---|
| Diskoid Lupus we gɛt di sik | Sכt dεm we shep lεk kכyn, rawnd, tik, dak rεd/brawn spat dεm de apia. Dɛn tin ya kin gɛt skata as tɛm de go. Dɛn kin si dɛn mɔ na di chɛst, nos, ɛn yes. |
| Subakut Kutan Lupus we de na di bɔdi | Sכt dεm we shep lεk ring, sכkכla כ pat dεm we skel de apia. Bɔku tɛm, dɛn tin ya nɔ kin lɛf skata. Bɔku tɛm, dɛn kin apia na di an, chɛst, bak, ɛn nɛk. |
| Akyu Kutan Lupus (ACLE) . | di fambul "butterfly rash" we wi de tok boht de apin na dis kayn. Di chɛst ɛn di nos dɔn tɔn rɛd, lɛk se dɛn dɔn bɔn dɛn wit san. |
Udat kin gɛt dis ACLE kɔndishɔn?
Dɛn nɔ dɔn no yet di rayt tin we kin mek pɔsin gɛt lupus, bɔt dɛn dɔn si se sɔm pipul dɛn kin gɛt mɔ risk.
- Di tin dɛn we kin mek yu kɔmɔt frɔm yu mama ɛn papa: If pɔsin na yu famili gɛt lupus ɔ ɔda sik dɛn we pɔsin kin gɛt we i de fɛt insɛf, yu kin de pan denja bak.
- Jɛnda: I sɔprayz fɔ no se dis sik kin bɔku pan uman dɛn.
- Ej: Bɔku tɛm, i kin apin to uman dɛn we ol bitwin 20 ɛn 50 ia.
- Ras: Dis sik kin bɔku pan sɔm etnik grup dɛm, fɔ ɛgzampul, pipul dɛm we kɔmɔt na Afrika ɛn Eshia.
Na lɛk tu-tɛd pan pipul dɛm wae gɛt SLE kin gɛt sɔm kayn sik na dɛn skin, lɛk ACLE. Sɔm pipul dɛn kin fɔs no se gɛt lupus afta dis bɔtaflay rash dɔn apia.
Wetin na di sayn dɛm fɔ ACLE?
Di men ɛn klia sayn na di bɔtaflay rash we wi bin tɔk bɔt. Dɛn kin kɔl dis pan mɛrɛsin ‘malar rash’. ‘Malar’ min chɛst. Pan ɔl we i tan lɛk se pɔsin dɔn bɔn wit san, bɔku tɛm i nɔ kin mek pɔsin fil pen. Bɔt sɔntɛnde, i kin it smɔl.
Di gud tin bɔt dis rash na dat i nɔ de lɛf skata as tɛm de go. Bɔt afta di rash dɔn wɛl, di skin kɔlɔ na dɛn say dɛn de kin layt smɔl ɔ dak pas aw i bin de bifo.
Apat frɔm di bɔtaflay rash, ɔda sayn dɛn kin apin.
- Rash na di an ɛn fut afta yu dɔn de na di san.
- Sɔl dɛn we de mek yu fil pen insay di mɔt (Canker sores).
- Blista dɛn we de rayz we de mek yu fil pen (hives).
- Di ia we de lɔs fɔ sɔm tɛm.
Wetin na dis "flare-up"?
Pɔsin wae gɛt ACLE nɔr kin gɛt sɔm kayn sik ɔltɛm. Wan saykl de wae de sho aw pɔrsin kin fil, kin stɔp fɔ sɔm tɛm, dɔn kin kam bak. Dis sɔdɛn inkris pan di simptom dɛm na wetin wi kɔl "flare-up."
sכm patikyula kכz dεm, כ ‘trigεr' dεm de we de mek dεn flay-ap dεm ya.
- San layt (UV rays): Dis na di men tin we kin mek pɔsin gɛt am. Na dat mek di rash kin wɔs we yu go na di san.
- Stress: Tin dɛm lɛk fɔ prɛs pasmak ɛn wɔri kin mek di sik wɔs.
- Sɔm tin dɛn we kin mek pɔsin gɛt sik.
- Nɔ gɛt bɛtɛ slip.
Aw fɔ no bɔt dis sik?
If yu gɛt dɛn sik ya, di fɔs tin we yu fɔ du na fɔ go to yu famili dɔktɔ. I go rifer yu to dɔktɔ we de mɛn yu skin ɔ dɔktɔ we de mɛn yu bɔdi, as nid de.
Yu dɔktɔ go chɛk yu skin. Sɔntɛnde , dɛn kin nid fɔ tek bayɔpsi na di skin fɔ mek dɛn no if pɔsin gɛt di sik . Dis min se yu fɔ tek smɔl pat pan di skin frɔm di say we di rash de ɛn chɛk am ɔnda maykroskɔp. Dis kin ɛp fɔ no if di rash na ACLE ɔ ɔda sik na di skin.
Wetin na di tritmɛnt dɛn?
ACLE nɔto sik we pɔsin kin mɛn ɔltogɛda. Bɔt, dɛn kin kɔntrol di sayn dɛm ɛn di flawa-ap fayn fayn wan if yu gɛt di rayt tritmɛnt. Yu dɔktɔ go gi yu di rayt tritmɛnt fɔ yu dipen pan aw yu sik bad bad wan.
- Tɔpik stɛroyd ɔntmɛnt: Dɛn mɛrɛsin ya we dɛn kin put pan di skin usay di rash de. Fɔ ɛgzampul, fluocinolone acetonide ɔ hydrocortisone butyrate. Dɛn tin ya kin mek pɔsin nɔ swel ɛn i kin mek i rɛd.
- Anti-inflammatory drugs: Drug dɛm lɛk dapsone ɔ low-dose methotrexate kin ridyus pen ɛn swel.
- Drug dɛm fɔ mɛn malaria: Drug dɛm lɛk `hydroxychloroquine` (Plaquenil®) kin rili woke fɔ trit malaria. Dɛn kin mek yu nɔ taya, yu nɔ kin gɛt rɔsh, ɛn yu jɔyn dɛn nɔ kin fil pen.
- Drug dεm we de kכntro di imyun sistεm (Calcineurin inhibitors): Drug dεm lεk tacrolimus כ pimecrolimus de kכntro di aktiviti fכ di imyun sistεm to sכm mak, we de ridyus di atak we i de atak di skin.
Impɔtant: Yu fɔ yuz ɔl dɛn mɛrɛsin ya jɔs lɛk aw yu dɔktɔ tɛl yu. Yu nɔ fɔ ɛva bigin ɔ stɔp fɔ tek dɛn mɛrɛsin ya fɔ yusɛf.
Aw fɔ mek yu nɔ gɛt flawa?
Jɔs lɛk aw i impɔtant fɔ tek mɛrɛsin na fɔ avɔyd tin dɛn we kin mek yu gɛt flawa. Bitwin 40% ɛn 70% pan pipul dɛm wae gɛt lupus kin gɛt flare-up afta dɛn dɔn gɛt UV layt, so di san protɛkshɔn fɔ bi nɔmba wan.
- Yuz sanskrin ɛvride we yu de go na do na di san. Pik wan brayt-spɛktrum sanskrin wit at le SPF 30 ɔ pas dat we de protɛkt frɔm ɔl tu di UVA ɛn UVB rayt.
- Avɔyd di awa dɛn we di san kin wam pas ɔl. Nɔ go na do na di san as yu ebul bitwin 10 oklɔk mɔnin ɛn 4 oklɔk na nɛt.
- Wear klos we kɔba yu fayn fayn wan. Yuz tin dɛn lɛk lɔng sliv, hat we gɛt wayd brim, ɛn sanglas.
- Nɔ yuz atifishal UV layt sɔs lɛk tan bed kɔmplit wan.
- Sɔm fluorescent layt dɛn we dɛn kin yuz insay os kin pul smɔl UV rayt bak. So, minimiz fɔ de pan dɛn fɔ lɔng tɛm bak.
Wetin ɔda tin yu go du apat frɔm fɔ protɛkt yusɛf frɔm di san?
- It tin dɛn we gɛt fayn fayn tin dɛn fɔ it. Put mɔ frut, vɛjitebul, ligɛm, ɛn ɔl di tin dɛn we yu de it.
- Ɛksasayz. Du ɛksɛsayz we nɔ de mek yu strɛs, lɛk fɔ waka ɔ yoga, ɛvride.
- Manej di strɛs. Rilaks yu maynd di we we go fayn fɔ yu, lɛk fɔ tink gud wan ɔ fɔ lisin to myuzik.
- Slip fayn fayn wan. Gɛt at le 7-8 awa fɔ slip insay wan de.
- If yu de smok, stɔp wantɛm wantɛm. Smok kin mek di skin rash wɔs ɛn i kin mek di tritmɛnt mɛrɛsin dɛn nɔ wok fayn.
Mɛsej we dɛn kin kɛr go na os
- Acute Cutaneous Lupus (ACLE) na wan sik wae de kam wae yu de liv yu layf, bɔt if yu trit yu fayn ɛn chenj yu layf, yu kin kɔntrol am fayn fayn wan ɛn yu kin liv nɔrmal layf.
- Bɔtaflay rash we de apin akɔdin to di nos ɛn di chɛst na wan impɔtant sayn fɔ dis sik.
- Di men tin we kin mek yu gɛt dis sik na we yu de na di san (UV rays), so i rili impɔtant fɔ protɛkt yusɛf frɔm di san.
- If yu gɛt dɛn sik ya, nɔr panik ɛn go to dɔktɔ kwik kwik wan fɔ advays.
- Fɔ fala di tritmɛnt we di dɔktɔ tɛl yu fɔ du ɛksaktɔli ɛn fɔ de nia di dɔktɔ ɔltɛm na impɔtant tin fɔ kɔntrol di sik.
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