Yu dɔktɔ dɔn gi yu spɛshal injɛkshɔn fɔ kɔntrol di blɔd we de kɔmɔt wantɛm wantɛm fɔ yu ɔ yu famili? Yu kin kɔnfyus smɔl wit di nem. Bɔt nɔ wɔri. Wi de tok abaut dat medication tide. Dɛn kin yuse am fɔ kɔntrol blɔd we nɔ kin bɔku we dɛn kɔl Acquired Hemophilia A. Lɛ wi tɔk bɔt am simpul wan ɛn klia wan.
Wetin na Akwyayz Ɛmofilia A?
Fɔ tɔk am simpul wan, dis na prɔblɛm wit di we aw wi bɔdi de klɔt. Nɔmal wan, we wi wund, wi blɔd kin klot ɛn stɔp fɔ blɔd. Dis kin ɛp bay spɛshal prɔtin dɛn we de na wi blɔd, lɛk Factor VIII .
Bɔt insay Acquired Hemophilia A, wi yon imyun sistɛm kin mistek bigin fɔ atak dis protin we dɛn kɔl Factor VIII. Wi kin kɔl dɛn antibodi ya bak . Dis kin mek di blɔd nɔ ebul fɔ klɔt, ɛn sɔntɛnde i kin mek i blɔd pasmak fɔ natin ɔ ivin bikɔs i wund smɔl. Dis nɔr tan lɛk ɛmofilia we dɛn bɔn wit, bɔt na sik we kin apin ɛnitɛm na layf.
So aw dis vaysin (OBIZUR) de wok?
Naw yu ɔndastand se di prɔblɛm na dat wi yon antibodi dɛn de atak wi yon Factor VIII. So dɔktɔ dɛn kin gi dis spɛshal vaysin as sɔlv fɔ dis.
Pan ɔl we dis mɛrɛsin in nem lɔng, wetin i se rili impɔtant:
- Antihemophilic Factor: Dis min sɔntin we de kɔba di sik we de mek pɔsin gɛt ɛmofilia, ɔ we de mek blɔd klɔt.
- Porcine Sequence: Dis na di spɛshal tin. "Porcine" min sɔntin we gɛt fɔ du wit pig. Dɛn mek dis vaysin di kayn we we fiba di sikyud we di blɔd klɔt factor fɔ pig dɛn de du. Wetin mek dɛn kin du am da we de? biכs, pan כl we di antibodi dεm na wi bכdi de no εn atak di mכtalman Fכktכ VIII, dεn nכ de no di strכkchכ we sכm kayn we lεk dis pig fכktכ. So, dɛn kin ɛp di blɔd we de klɔt ɛn nɔ atak am.
- Rikombinεnt: Dis min se dεn nכ de gεt di dכg dairekt frכm animal dεm, bכt dεn de prodyuz am na labכtכri we de yuz bayoteknכlכji (rεkombinεnt DNA tεknכlכji) insay wan we we rili klin εn sef.
Fɔ tɔk am simpul wan, wetin dis vaysin de du na fɔ kɔntrol di blɔd we de kɔmɔt pasmak bay we i de gi yu wan tin we yu bɔdi nid fɔ klɔt we nɔ go afɛkt di antibodi dɛm.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bikɔs dis na spɛshal mɛrɛsin, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt yu kɔmplit mɛdikal istri bifo yu bigin tritmɛnt.
| Wetin yu nid fɔ no | Wetin mek na so i bi? |
|---|---|
| Alɛji dɛn we pɔsin kin gɛt | Mek shɔ se yu tɛl yu dɔktɔ if yu nɔ gɛt alɛji fɔ dis mɛrɛsin, bɔd prɔtin, hamsta prɔtin (we dɛn kin yuz fɔ mek sɔm mɛrɛsin dɛn), ɔ ɛni ɔda mɛrɛsin, it, ɔ day. |
| Bɛlɛ ɔ we yu de gi pikin in bɛlɛ | I rili impɔtant fɔ tɛl yu dɔktɔ if yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu de gi pikin in bɛlɛ. |
Aw yu kin yuz dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu de swɛla lɛk rɛgyula pil. Dis na injɛkshɔn we dɛn kin put insay di bɛlɛ . Bɔku tɛm, na dɔktɔ ɔ nɔs we dɔn tren kin gi dis tritmɛnt na ɔspitul ɔ klinik. Dis na bikɔs yu nid fɔ de wach yu gud gud wan we dɛn de gi yu di tritmɛnt.
Na smɔl tɛm nɔmɔ, dɛn kin tɛl sɔm pasɛnt dɛn fɔ gɛt dis vaysin na os. If na so, dɛn go tɛl yu aw fɔ pripia ɛn injɛkt am fayn fayn wan. Nɔ ɛva tek mɔ pas wetin di dɔktɔ tɛl yu ɔ tek di mɛrɛsin bifo di tɛm we dɛn tɛl yu fɔ tek.
Wetin fɔ du if dɛn ad di mɛrɛsin in doz?
If yu tink se yu dɔn tek mɔ pas di doz we dɛn tɛl yu fɔ tek, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Kɔlɔmbɔ Nashɔnal Ospital ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin a go du if a mis wan doz?
I rili impɔtant fɔ tek di doz di rayt tɛm we yu de du dis tritmɛnt. If yu mis apɔntinmɛnt na ɔspitul, kɔl yu dɔktɔ wantɛm wantɛm fɔ advays. If yu de tek di mɛrɛsin na os, tek di doz we yu mis jɔs lɛk aw yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek di nɛks doz, skip di doz we yu mis ɛn tek di nɛks doz di tɛm we yu dɔn sɛtul. Nɔ tek dabl doz fɔ ɛni rizin.
Tin dɛn we yu fɔ tink bɔt we yu de du tritmɛnt
- Blɔd Tɛst: We yu de tek dis mɛrɛsin, yu dɔktɔ go tɛl yu fɔ du blɔd tɛst ɔltɛm fɔ chɛk if i de wok fayn, aw yu blɔd de klɔt, ɛn if yu bɔdi de mek nyu antibodi dɛn agens di mɛrɛsin. I rili impɔtant fɔ mek yu nɔ skip dɛn tɛst ya.
- Mɛdikal monitarin: We yu de na ɔspitul, di mɛdikal staf go monitar yu gud gud wan. Dɛn go de wach ɔltɛm fɔ sayn dɛm fɔ blɔd ɛn alɛji.
- Mɛdikal ID: If yu gɛt ɛmofilia, i rili impɔtant fɔ kɛr mɛdikal ID kad ɔ breslɛt/chen ɔltɛm we de rayt yu sik, di mɛrɛsin dɛn we yu de tek, di doz, ɛn di tɛm dɛn. I kin ɛp fɔ sev yu layf we ɛnitin apin we nɔ izi fɔ yu.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, dis mɛrɛsin kin mek pɔsin gɛt sayd ɛfɛkt, pan ɔl we nɔto ɔlman kin gɛt am. If yu gɛt ɛni wan pan dɛn sik ya, tɛl yu dɔktɔ ɔ nɔs wantɛm wantɛm.
| Tayp fɔ di sayd ɛfɛkt | Sayn dɛn |
|---|---|
| Siriɔs Alɛji Riakshɔn dɛn | Skin rash, it ɔ ayv, swel na yu fes, lip, tɔŋ ɔ trot, i nɔ izi fɔ blo. Dɛn tin ya kin rili siriɔs ɛn dɛn fɔ ripɔt dɛn wantɛm wantɛm. |
| Inhibitor Divεlכpmεnt | If yu nɔ ebul fɔ kɔntrol di blɔd ivin afta yu dɔn tek di mɛrɛsin, dat min se yu bɔdi kin dɔn bigin fɔ mek antibodies agens dis mɛrɛsin bak. Tɛl yu dɔktɔ bɔt dis. |
If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɔk to yu dɔktɔ bɔt dɛn bak.
Intarakshɔn wit ɔda mɛrɛsin dɛn
Ɔda mɛrɛsin dɛm wae yu de tek kin intarakt wit dis vaysin, mɔr lɛk Factor VIIa.Yu fɔ rili tek tɛm we yu de yuz dis wit ɔda mɛrɛsin dɛn we de mek yu blɔd tan lɛk:
So, gi yu dɔktɔ wan kɔmplit list fɔ ɔl di mɛrɛsin dɛn we yu de tek (di mɛrɛsin dɛn we dɛn kin gi yu, vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn). Dɔn bak, tɛl yu dɔktɔ if yu de smok ɔ drink rɔm.
Mɛsej we dɛn kin kɛr go na os
- Dɛn kin yuz dis vaysin fɔ kɔntrol di blɔd we de kɔmɔt pasmak pan wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl Acquired Hemophilia A.
- Dis na spɛshal tritmɛnt we dɛn kin put insay wan vein, ɛn dɛn kin gi am na ɔspitul.
- Mek shɔ se yu tɛl yu dɔktɔ bɔt ɔl yu alɛji ɛn ɔl di ɔda mɛrɛsin dɛn we yu de tek.
- If yu gɛt siriɔs alɛji (skin rash, swel, at fɔ blo), go to dɔktɔ wantɛm wantɛm.
- Nɔ skip blɔd tɛst ɛn apɔntinmɛnt we yu dɔktɔ tɛl yu fɔ du.
- Dis mɛrɛsin na fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɔda pipul dɛn. If yu gɛt ɛni kwɛstyɔn, tɔk to yu dɔktɔ.
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