Wi ɔl no se di wayt blɔd sɛl dɛn we de na wi bɔdi tan lɛk sojaman dɛn we de protɛkt wi frɔm sik dɛn. Bɔt imajin, wetin go apin if dɛn sɛl dɛn ya we de protɛkt wi, we dɛn kɔl histiocytes, gro tumɔs na wi bɔdi? Na da tɛm de di prɔblɛm bigin. dis sεl dεm kin gɛda εn fכm tכmכro εn lεsin dεm na difrεn pat dεm na di bכdi. Tide wi de tɔk bɔt wan sik we nɔ kin apin so ɔltɛm we kin kam lɛk dis.
Wetin na LCH (Langerhans sel histiocytosis)?
Fɔ tɔk am simpul wan, LCH (Langerhans Cell Histiocytosis) na wan sik we nɔ kin apin so ɔltɛm we tan lɛk sɔm kayn kansa. pan dis kכndyushכn, wan kayn imyun sεl we dεn kכl Langerhans de gro we dεn nכ de kכntro εn i de kכlכm na difrεn pat dεm na di bכdi.
Dis sik kin mɔs si pan yɔŋ pikin ɛn bebi dɛm , bɔt i kin apin bak pan big pipul dɛm. Pan ɔl we sɔntɛnde dɛn kin tink se na kansa, i nɔ rili bi kansa. Bɔt na dɔktɔ dɛn we de mɛn kansa kin trit am. So nɔ wɔri. Lɛ wi luk dis mɔ.
Wetin na di sayn dɛm fɔ dis sik?
LCH kin afɛkt ɛni ɔgan na di bɔdi. Fɔ ɛgzampul, i kin afɛkt di lɔng, liva, bren, splin, ɔ limf no dɛm. Bɔt di sayn dɛm wae kin kam pan pɔrsin kin si na di skin ɛn bon dɛm.
Sɔm pipul kin gɛt sɔm kayn sik wae nɔr kin pasmak ɛn dɛn kin wɛl fɔ dɛnsɛf if dɛn nɔr gɛt ɛni tritmɛnt. Bɔt fɔ ɔda pipul dɛn, i kin bi wan sik we kin de fɔ lɔng tɛm ɛn we kin afɛkt bɔku pat dɛn na di bɔdi.
Lɛ wi luk di tebul we de dɔŋ fɔ si us simptom LCH de sho we i afɛkt difrɛn pat dɛn na di bɔdi.
| Di pat na di bɔdi we dɛn afɛkt | Simptom dɛm wae yu kin si |
|---|---|
| Bɔn dɛn | Bɔku tɛm, swɛlin ɔ lumps (granulomas) kin kam na di skel ɛn ɔda bon dɛn we kin mek yu fil pen. Dis kin mek yu bon pen, swel, ɛn sɔntɛnde i kin ivin brok na di an ɛn fut dɛn. |
| Kanda | rεd, skel bכmp dεm na di skin fold dεm (e.g. di armpit dεm, di groin). di pikin dεm kin gεt rεd, skel pat dεm na di sכl. Sɔntɛnde dɛn kin mistek kɔl dis kredul kap, we na wan kɔmɔn kɔndishɔn. |
| Liva | Bɔrku tɛm, di liva kin afɛkt pan pɔrsin wae gɛt dis sik bad bad wan. Di sayn dɛm na we di skin kin yɔlɔ (jaundice) ɛn i kin tek lɔng tɛm fɔ mek blɔd klot. |
| Limf Nod dɛn | di gland dεm we de biεn di yes dεm, na di nεk, εn כda say dεm de swεla. Apat frɔm dat, i kin at fɔ blo ɛn i kin kɔf. |
Aw fɔ no di sik kɔrɛkt wan?
If yu dɔktɔ sɔspɛkt dis sik, dɛn go nid fɔ du bayɔpsi fɔ kɔnfirm di sik. Dis involv fɔ tek wan rili smɔl pat pan di tisu frɔm di say we dɛn de sɔprayz ɛn mek wan dɔktɔ we de stɔdi bɔt sik dɛn chɛk am ɔnda maykroskɔp. dis go luk fכ spεshal protin dεm εn כda mak dεm we spεshal fכ di sik.
Apat frɔm dat, yu dɔktɔ kin ɔda fɔ mek dɛn du ɔda tɛst dɛn dipen pan di sayn dɛn we yu gɛt.
- X-ray tɛst: Chɛk aw yu lɔng ɛn bon dɛn de.
- bon mכro bayopsi: I de chεk fכ LCH sεl dεm na di bon mכro.
- Blɔd kemistri tɛst: Chɛk aw di kidni, liva, tayroyd gland, ɛn di imyun sistɛm de wok.
- MRI, PET, ɛn CT skan: Gɛt ditayla pikchɔ dɛn bɔt di insay pat na di bɔdi.
- Urinalysis: Chek di lεvεl dεm fכ di rεd εn wayt sεl dεm, protin, εn shuga na di urine.
Wetin kin mek pɔsin gɛt LCH?
Wi stil nɔ no bɛtɛ bɛtɛ wan wetin mek sɔm pipul dɛn kin gɛt LCH. Bɔt dɛn dɔn si se lɛk af pan di pipul dɛn we gɛt dis sik gɛt wan jin we nɔ fayn we kin mek di Langerhans sɛl dɛn gro we dɛn nɔ ebul fɔ kɔntrol. di imכtant tin na dat, dis jεnεtik chenj (mכtεshכn) de apin afta dεn bכn am. Dis min se i nɔto sik we mama ɛn papa kin gɛt .
Apat frɔm dat, di wan dɛn we de stɔdi bɔt dis kin tink se bɔku ɔda tin dɛn kin afɛkt dis:
- Fɔ smok.
- Di mama ɛn papa dɛn we de gɛt pɔyzin we de na di envayrɔmɛnt lɛk bɛnzin ɔ wud dɔst.
- Infεkshכn dεm na di nyu bכbi tεm.
- Fɔ gɛt famili histri bɔt tayroyd sik.
Wetin na di tritmɛnt dɛm fɔ dis?
Sɔntɛnde dɛn kin yuz kemotɛrapi fɔ trit LCH, lɛk aw dɛn kin yuz am fɔ trit sɔm kayn kansa. So, bɔrku pipul dɛm wae gɛt dis sik, na ɔnkɔlɔjis ɛn hematɔlɔjis dɛn kin kia fɔ dɛn.
Bɔt mɛmba se, nɔ lɛk kansa, sɔm tɛm dɛn de di smɔl smɔl LCH dɛn kin sɔlv fɔ dɛnsɛf we dɛn nɔ gɛt ɛni tritmɛnt.
Lɛ wi si wetin na di tritmɛnt opshɔn dɛm na di tebul we de dɔŋ ya.
| Di we aw dɛn kin trit am | Wan simpul ɛksplen |
|---|---|
| Kimotɛrapi | Fɔ gi drɔgs fɔ pwɛl di sɛl dɛn we gɛt sik. |
| Redyushɔn tɛrapi | Dɛn kin gi smɔl smɔl raytin to di pat na di bɔdi nɔmɔ we di sik afɛkt. |
| Ɔpreshɔn | כpεrayshכn fכ pul di tכmכro כ lεsin dεm we LCH kכz. |
| Stɛroyd dɛn we dɛn kin yuz | Fɔ gi pɔsin stɛroyd ɔ ɔda mɛrɛsin dɛn we de mek pɔsin nɔ fil bad lɛk prɛdnison. |
| UV layt tɛrapi | Wan tritmɛnt fɔ di skin kɔndishɔn dɛn we yu de yuz spɛshal layt. |
| Stem sɛl we dɛn kin transplant | Wan tritmɛnt we dɛn kin tink bɔt pan kes dɛm we rili siriɔs. |
Bɔrku bɔrku pipul dɛm wae gɛt LCH kin wɛl afta dɛn dɔn trit dɛn. If di sik dɔn afɛkt yu splin, liva, ɔ bon mɛro, dɛn kin kɔl am ‘high-risk LCH’. Ivin pan dis kayn tin, lɛk 80% pan pipul dɛn kin wɛl ful wan . So i impɔtant fɔ mek wi kɔntinyu fɔ gɛt op.
Mɛsej we dɛn kin kɛr go na os
- LCH na sik we nɔ kin apin so ɔltɛm. Nɔto kansa insɛf, bɔt dɛn kin trit am di sem we lɛk kansa.
- Pan ɔl we dɛn kin si dis mɔ pan yɔŋ pikin dɛn, i kin kam pan ɛnibɔdi we ol ɛni ej.
- If yu gɛt sɔm sayn dɛm lɛk skin lɛsin, bon pen, ɔr swel, nɔr ignore dɛm.
- If yu ɔ yu pikin gɛt ɛni dawt bɔt dɛn sik ya, go mɔs go to yu dɔktɔ . Nɔ panik ɛn tray fɔ no yusɛf na di Intanɛt.
- If dɛn trit dɛn fayn, bɔku pan di wan dɛn we gɛt LCH kin wɛl bak. So, i rili impɔtant fɔ fala di kɔrɛkt advays we di dɔktɔ gi yu.
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