Dis inflamɛns we nɔ kin apin so ɔltɛm kin afɛkt yu at? Mek wi lan bɔt Cardiac Sarcoidosis!

Sɔntɛnde, yu kin jɔs fil taya? Ɔ yu gɛt smɔl pen na yu chɛst ɔ yu nɔ kin ebul fɔ blo? Yu go tink se dɛn tin ya na nɔmal tin. Bɔt dɛn tin ya nɔ kin apin so ɔltɛm we kin afɛkt di at. Cardiac Sarcoidosis na wan pan dɛn kayn sik ya, we kin kɔmplikt smɔl, bɔt if dɛn tɛl yu fayn fayn wan, dɛn kin ebul fɔ mɛn am. Tide, wi go tɔk bɔt dis simpul we we yu go ɔndastand.

Wetin na Kadyak Sarkoidosis?

Fɔ tɔk am simpul wan, Sarcoidosis na wan sik we nɔ kin apin so ɔltɛm we kin apin na wi bɔdi. insay dis, sכm sכm inflammatory sεl dεm de kכmכt εn fכm lumps (granulomas) na difrεn כgan dεm na di bכdi, spεshal wan na ples dεm lεk di lכng, limf no dεm, skin, εn yay. Dɛn lumps ya kin ambɔg di nɔmal wok we dɛn ɔgan dɛn de du.

Naw, if dis sarkoidosis kɔndishɔn afɛkt di at, na dat wi kin kɔl kadyak sarkoidosis . Dis na sɔntin we nɔ kin apin so ɔltɛm ivin pan di wan dɛn we gɛt sarkoidosis. Bɔt we dɛn afɛkt di at dis kayn we, skata kin kam na di at mɔsul ɛn di rod dɛn we ilɛktrik signal dɛn kin pas na di at. Tink bɔt am lɛk skata na di skin afta yu wund. Dɛn skata ya kin mek di at nɔ de wok fayn ɛn i kin mek i gɛt prɔblɛm wit di at bit.

Aw dis sik kin kɔmɔn?

Cardiac sarcoidosis na rili nɔto sik we kin rili kɔmɔn. Ɔlsay na di wɔl, dɔktɔ dɛn kin no se na 2% to 5% nɔmɔ pan pipul dɛn we gɛt sarkoidosis ɔdasay na di bɔdi se dɛn gɛt dis sik na dɛn at. Bɔt sɔm stɔdi dɛn dɔn sho se na kɔntri dɛn lɛk Amɛrika, 20% to 30% pan di pipul dɛn we gɛt sarkoidosis kin rili gɛt dis sik na dɛn at, bɔt dɛn nɔ kin no se dɛn gɛt dis sik.

Dis sik kin bɔrku na kɔntri dɛm lɛk Jepan, usai pas af pan pipul dɛm wae gɛt sarkoidosis kin gɛt dis sik bak na dɛn at. Bɔt di kadyak sarkoidosis nɔ kin bɔku we yu kɔmpia am wit sarkoidosis we kin afɛkt ɔda ɔgan dɛn.

Wan ɔda impɔtant tin fɔ no na dat, lɛk wan pat pan tri pipul dɛn we gɛt kadyak sarkoidosis nɔ kin sho sɔm sayn dɛm fɔ sarkoidosis ɛni ɔda say na di bɔdi. Dis min se yu at kin bi di fɔs ɔgan we di sik afɛkt.

Wetin na di sayn dɛm fɔ dis sik?

De sayn dɛm fɔ Cardiac Sarcoidosis kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Sɔm pipul dɛn nɔ kin gɛt ɛni sayn atɔl. Bɔt sɔm sayn dɛn de we kin apin:

• Chɛst pen: I kin tan lɛk se yu de swɛt ɔ swɛt.
• Shot we yu de blo:Yu kin fil se yu nɔ ebul fɔ blo fayn, ilɛksɛf yu jɔs taya smɔl ɔ yu jɔs de rɛst.
• Faint ɔ diziz: Yu kin lɔs kɔnshɛns wantɛm wantɛm ɛn fɔdɔm.
• Taya: Fɔ fil taya ɔltɛm, ilɛk wetin yu du.
• Kɔf: I kin gɛt dray kɔf we nɔ de dɔn.
• Swɛlin na yu leg: Ɛria dɛn lɛk di anklɛ eria kin swel.
• At bit we nɔr de bit / At de bit: Di at rit kin go ɔp wantɛm wantɛm, go dɔŋ, ɔ fil lɛk se i nɔ de bit.

If yu gɛt wan ɔr mɔr pan dɛn sik ya, nɔr ignore dɛm. I bɛtɛ fɔ mek yu go to dɔktɔ fɔ advays.

Wetin mek Cardiac Sarcoidosis kin apin?

Infakt, dɔktɔ dɛn nɔ dɔn fɛn ɛni patikyula tin we kin mek pɔsin gɛt dis sik yet. Bɔt sɔm pipul dɛn we de stɔdi bɔt dis biliv se sɔm pipul dɛn jɛnɛtiks ɛn di tin dɛn we de arawnd dɛn kin ɛp dɛn. Dat min se sɔm pipul dɛn bɔdi kin riak to sɔntin we de na di say we dɛn de (fɔ ɛgzampul, baktri, vayrɔs, ɔ dɔst) we kin mek dɛn gɛt dis inflammatory condition. Bɔt dis stil de na di risach stej.

Aw dɛn kin no dis sik?

If yu sɔspɛkt se yu gɛt kadyak sarkoidosis, yu dɔktɔ go fɔs du yu bɔdi ɛgzam. Dɔn dɛn go aks bɔt yu mɛdikal istri . Dis min tin dɛm lɛk di sik dɛm we yu bin gɛt trade ɛn if ɛnibɔdi na yu famili dɔn gɛt dis kayn sik.

Apat frɔm dat, dɛn go ɔda difrɛn tɛst dɛn fɔ chɛk if di at nɔ de bit ɔltɛm. Di dɔktɔ go chɛk fɔ sayn dɛm fɔ sarkoidosis ɔdasay na yu bɔdi, ɛn fɔ pruf fɔ di sem sayn dɛm na yu at.

Wetin na di tɛst dɛn we dɛn kin du fɔ no if pɔsin gɛt sik?

Bɔku tɛst dɛn de fɔ no if yu gɛt dis sik kɔrɛkt wan:

• Ilektrokardiogram (EKG/ECG): Dis de rikodɔ di ilɛktrik aktiviti na yu at as patɛn. I kin no ɛni abnɔmal tin na yu at ritm.
• Echocardiogram: Dis tan lɛk we dɛn de skan di at. I de yuz sawnd wev fɔ luk aw di at shep ɛn saiz, aw di at in chɛmba ɛn valv dɛn de wok, ɛn ɔda tin dɛn. Sɔntɛnde dɛn kin du wan transthoracic echo.
• Holter monitor: Dis na smɔl tin we yu kin wɛr fɔ 24 to 48 awa. I kin ɛp fɔ kɔntinyu fɔ rayt di tin dɛn we yu de du na yu at we yu de du di tin dɛn we yu de du ɛvride.
• Positron Emishin Tomografi (PET skan): 1.Dis na spɛshal skan. I rili yusful fɔ no di say dɛn we di at gɛt inflamɛns ɛn skata na di at.
• Hat MRI (Cardiac Magnetic Resonance Imaging): Dis kin yuz magnɛtik fil ɛn redio wev fɔ mek di at pikchɔ dɛn. Dis kin ɛp bak fɔ si klia wan se di at mɔsul dɔn pwɛl ɛn skata.

Dɛn kin no bɔt sarkoidosis na ɔda pat dɛn na di bɔdi bay we dɛn tek bayɔpsi (smɔl sampul pan di tisu ɛn chɛk am ɔnda maykroskɔp). Bɔt dis nɔ kin apin so na di at, bikɔs i nɔ kin izi fɔ gɛt sampul frɔm di rayt say na di at usay di prɔblɛm de.

Dɛn imej tɛst ya kin ɛp dɔktɔ dɛn bak fɔ no di stej dɛm we di kadyak sarkoidosis de. I kin kɔmɔt frɔm we i nɔ at to we i kin rili bad. i kin go bifo tru di fכs stej dεm, di stej dεm we de go bifo, εn di aktv stej dεm, we kin mek di mayokardial impεryans εn fibrosis.

Wetin na di tritmɛnt dɛn?

Di gud nyus na dat, tritmɛnt dɛn de fɔ di sik we dɛn kɔl cardiac sarcoidosis. Yu dɔktɔ go pik di tritmɛnt we go fayn fɔ yu sik. Na sɔm pan di tritmɛnt dɛn we dɛn kin yuz mɔ:

• Kɔtikosterɔyd drɔgs: Dɛn wan ya de wok bay we dɛn de ridyus di inflamɛns na di bɔdi. Prednisolone na wan mɛrɛsin we dɛn kin gi na dis grup.
• Ɔda tin dɛn we de mek di bɔdi nɔ ebul fɔ fɛt di sik: Sɔntɛnde, if di kɔtikosterɔyd nɔmɔ nɔ go du, ɔ if dɛn sayd ɛfɛkt dɛn tu bad, dɛn kin gi ɔda mɛrɛsin fɔ kɔntrol di bɔdi in imyun sistɛm fɔ mek i nɔ wok pasmak.
• Anti-arrhythmic drugs: If di at bit nɔ de bit ɔltɛm, spɛshal mɛrɛsin dɛn de fɔ kɔntrol am.
• Pesmɛka: If di at bit tumɔs, dɛn kin put dis smɔl tin na di at fɔ mek i kɔntinyu fɔ bit ɔltɛm.
• Implantable Cardioverter Defibrillator (ICD): Dɛn kin put dis divays we pɔsin kin gɛt prɔblɛm we kin mek pɔsin in layf pan denja. Na dɛn kayn tɛm ya, i kin gi smɔl ilɛktrik shɔk to di at fɔ mek i gɛt nɔmal ritm bak.
• Catheter ablation: Dis na tritmɛnt bak fɔ di at bit we nɔ de bit ɔltɛm. di εria dεm na di at we de mek ilektrikal signal dεm we nכ de rεgulεr dεn de fכnshכn εn dεstroy dεm we dεn de yuz kateshכn.

Na smɔl tɛm nɔmɔ, if di sik so bad dat i kin mek pɔsin in at nɔ wok , i kin nid fɔ mek dɛn transplant di at .

Wetin na di mɛrɛsin ɛn tritmɛnt dɛn we dɛn kin yuz mɔ?

Bɔku tɛm, dɔktɔ dɛn kin bigin wit wan ay doz fɔ wan kɔtikosterɔyd we dɛn kɔl prednisone (brand nem dɛn inklud Sterapred® ɔ Rayos®). Dɛn kin tek dis fɔ sɔm mɔnt. Dɔn dɛn kin ridyus di doz smɔl smɔl. If dɛn no di sik ɛn trit am kwik, dɛn mɛrɛsin ya kin kɔntrol di sayn dɛm bad bad wan.

Ɛni bad tin de we di tritmɛnt kin du?

Kɔtikosterɔyd mɛrɛsin lɛk Prednisone kin mek sɔm sayd ɛfɛkt dɛn we dɛn yuz am fɔ lɔng tɛm. Na dat mek yu dɔktɔ go de wach yu ɔltɛm. Di sayd ɛfɛkt dɛm we kin apin pas ɔl na:

• Ɔstioporosis: Di bon dɛn kin wik.
• Infεkshכn: De risk fכ gεt sik kin bכku as di bכdi in imyuniti de dכn.
• Di ay blɔd prɛshɔn.
• Di blɔd shuga we de go ɔp.
• Di we aw pɔsin de fil kin chenj.
• Nɔ ebul slip.

pan ɔl we di tritmɛnt we dɛn kin yuz fɔ pul di kateshɔn kin wok fayn fɔs, sɔm pipul dɛn, mɔ di wan dɛn we gɛt ventricular tachycardia (wan at bit kwik kwik wan we kin bigin na di lכw chεmba dεm na di at), kin gεt rεkכrshכn insay 86% pan di kes dεm.

di risk fכ kadyak sarkoidosis we de kam bak afta dεn transplant di at sכmtεm sכmtεm sכmtεm 10%.

Yu tink se Cardiac Sarcoidosis na siriɔs sik?

Dis go difrɛn difrɛn wan bay aw yu sik. Dɛn kin gɛt di bɛst rizɔlt if dɛn no di sik kwik kwik wan ɛn bigin fɔ trit am kwik. If di tritmɛnt delay, de sik kin bi mɔr siriɔs.

If yu gɛt tin dɛn lɛk pulmonary hypertension ( prɛshɔn we de go ɔp na di at we de kɛr blɔd go na di lɔng) ɔ ventricular aneurysm (we di wɔl wik na wan pan di ɔda chɛmba dɛn na di at we de bulge lɛk balyɔn), di prɔgnosis nɔ kin fayn.

Aw lɔŋ yu kin liv wit dis sik?

If dɛn bigin fɔ trit am kwik, bɔku pipul dɛn kin liv fayn.

Stɔdi dɔn sho se bitwin 83% ɛn 93% pan di pipul dɛm we de liv wit kadyak sarkoidosis stil de alayv afta 10 ia.

di rεt we de liv afta dεn transplant di at na 80% כ mכr na wan εn fayv ia.

Mɛmba se pan ɔl we dɛn statystik ya de sho di kayn tin dɛn we de apin to yu, di tin dɛn we de apin to yu wan wan kin difrɛn. So tɔk to yu dɔktɔ fɔ ɔndastand yu situeshɔn klia wan.

Yu tink se Cardiac Sarcoidosis kin kil pɔsin?

Yes, kadyak sarkoidosis kin kil sɔm pipul dɛm. Di risk fɔ day kin bɔku, mɔ if di lɛft ventricle na yu at nɔ de pɔmp blɔd fayn fayn wan.

Bɔku tɛm, di at kin day wantɛm wantɛm bikɔs ɔf di ventricular arrhythmias (di at bit we nɔ de bit ɔltɛm na di lכw chεmba dεm na di at). If yu de pan denja, yu dɔktɔ kin tɛl yu fɔ put ICD divays insay yu bɔdi.

Aw a fɔ kia fɔ misɛf?

Bikɔs dis sik kin wɔs insay shɔt tɛm, i impɔtant fɔ tek di mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu fɔ tek am. Yu kin nid fɔ tek mɛrɛsin lɛk Prednisone fɔ te wan ia. If yu gɛt ɛni sayd ɛfɛkt frɔm di mɛrɛsin, tɛl yu dɔktɔ. Bɔt nɔ stɔp fɔ tek di mɛrɛsin we yu nɔ gɛt dɔktɔ advays.

Ustɛm a fɔ go to di dɔktɔ?

Yu go nid fɔ du imej tɛst bak lɛk wan mɔnt ɔ siks mɔnt afta yu bigin fɔ tek stɛroyd (e.g., prɛdnisɔn). Dis kin ɛp yu dɔktɔ fɔ no aw di mɛrɛsin de wok fayn ɛn wetin di doz fɔ go bifo.

Ivin afta dɛn dɔn stɔp fɔ tek stɛroyd ɔ dɛn dɔn ridyus di doz, yu fɔ kɔntinyu fɔ gɛt fɔl-ɔp chɛk-ap wit yu dɔktɔ fɔ at le tri ia. Dis na bikɔs di kadyak sarkoidosis kin kam bak. Na lɛk 40% pan pipul dɛm go gɛt dis sik bak dis we.

Ustɛm a fɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) ?

If yu si ɛni wan pan dɛn sik ya wantɛm wantɛm , go na di ɔspitul imejensi rum we de nia yu wantɛm wantɛm ɔ kɔl 1990:

• Chɛst pen wit prɔblɛm fɔ blo
• Di palpiteshɔn we de kɔntinyu fɔ de
• Diziz ɛn/ɔ fɔdɔm

Dɛn tin ya kin bi sayn dɛm fɔ wan denja at ritm disɔda.

Us kwɛstyɔn dɛn a fɔ aks di dɔktɔ?

Nɔ fɔgɛt fɔ aks dɛn kwɛstyɔn ya we yu go si di dɔktɔ:

• A kin kɔntrol dis sik wit mɛrɛsin nɔmɔ?
• Wetin na di we aw a de si tin, mɔ we wi tink bɔt di tin dɛn we de apin to mi naw?
• Aw mi lɛft ventricle de wok fayn fayn wan?
• Aw lɔng a nid fɔ tek di mɛrɛsin?
• Us chenj dɛn a kin mek na layf?

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Cardiac Sarcoidosis na sɔm kayn wɔd we de mek pɔsin fred, bɔt i rili impɔtant fɔ no bɔt am.

Dɛn kin gɛt di bɛst rizɔlt if dɛn no dis sik kwik kwik wan ɛn bigin fɔ trit am kwik.

So, if yu gɛt dɛn sik ya, nɔ ignore dɛn ɛn go to dɔktɔ. Tek di mɛrɛsin we yu dɔktɔ gi yu di rayt we, di rayt tɛm. Tɔk to yu dɔktɔ bɔt di bad tin dɛn we kin apin to yu. Go fɔ mek dɛn chɛk yu dɔktɔ di rayt tɛm. If yu du dɛn tin ya rayt, yu kin liv fayn wit dis sik. Nɔto yu wan de, ɛn dɔktɔ dɛn de fɔ ɛp yu.

` At sik, sarkoidosis, at inflameshn, shɔt brith, chɛst pen, at bit we nɔ de bit ɔltɛm, kɔtikosterɔyd