Yu pikin gɛt prɔblɛm fɔ muv? Lɛ wi tɔk bɔt Sɛribra Palsi!

Yu kin want fɔ no mɔ, sɔntɛm yu kin ivin fred, bɔt aw yu smɔl pikin de gro ɛn aw i de muv, nɔto so? Sɔm pikin dɛn kin gɛt prɔblɛm wit dɛn mɔsul kɔntrol, aw dɛn kin tinap, ɔ muv. Na di kɔndishɔn we wi go tɔk bɔt tide, Cerebral Palsy. Nɔ fred we yu yɛri dis. Lɛ wi tɔk bɔt am simpul wan, di we we yu go ɔndastand.

Wetin na Sɛribra Palsi?

Fɔ tɔk am simpul wan, sɛribra palsi (CP) na wan sik we de ambɔg di bren . I kin mɔs afɛkt di we aw pikin in mɔsul dɛn de wok, di balans, ɛn di we aw i de muv. I kin kam bikɔs di bren kin pwɛl we kin apin na di bɛlɛ, we dɛn bɔn am, ɔ sɔm tɛm dɛn we i bigin fɔ liv. Dis damej kin afɛkt di bren divɛlɔpmɛnt bak.

Yu fɔ mɛmba se nɔto ɔl pikin dɛn we gɛt sɛribra palsi (CP) gɛt prɔblɛm wit dɛn maynd. Sɔm pikin dɛn kin fayn ɛn nɔ gɛt ɛni prɔblɛm na dis eria. Di sayn dɛm kin difrɛn frɔm wan pikin to ɔda wan. Sɔm pikin dɛn kin gɛt smɔl impak, ɛn ɔda wan dɛn kin gɛt mɔ.

Wetin na di men kayn sɛribra palsi (CP)?

Dɔktɔ dɛn kin sheb di sik we dɛn kɔl sɛribra palsi (CP) to tri men kayn:

1. Spastik tayp: Dis kin bi bay we di mכsul dεm stif εn twitch. I kin tan lɛk se dɛn de pul tayt rɔba band.

2. Dyskinetic type: Insay dis kayn, i at fɔ kɔntrol di mɔsul dɛm. Difrɛn muvmɛnt dɛn kin de we pɔsin nɔ want fɔ muv.

3. Miks tayp: Insay dis kayn, yu kin si di simptom dɛm fɔ ɔl tu di spastik ɛn diskinɛtik tayp dɛm we wi bin dɔn tɔk bɔt togɛda.

Apat frɔm dat, dɛn kin sheb am mɔ akɔdin to us pat dɛn na di bɔdi we dɛn afɛkt. I tan lɛk dis:

• Diplegic: Dis kin afɛkt di leg dɛn pas di an dɛn.
• Kwadriplejik: Ɔl di 4 limb dɛn kin afɛkt.
• Hemiplegic: Na wan say nɔmɔ na di bɔdi (rayt ɔ lɛft) kin afɛkt mɔ.
• Monoplegic: Na wan an ɔ leg nɔmɔ de afɛkt.
• Paraplejik: Na tu leg nɔmɔ de afɛkt.

Aw kɔmɔn tin na di sɛribra palsi (CP)?

Infakt, sɛribra palsi (CP) nɔto wan sik we kin rili kɔmɔn. Fɔ ɛgzampul, na Amɛrika, dɛn kin bɔn bitwin 5,500 ɛn 13,100 pikin dɛn we gɛt dis sik ɛvri ia. Bɔt, risach dɔn sho se di nɔmba fɔ big pipul dɛm wae gɛt dis sik de go ɔp smɔl smɔl.

Wetin na di sayn dɛm wae de sho se yu gɛt sɛribra palsi (CP)?

Sεribra palsi (CP) kin gεt bכku sayn dεm. Sɔm gɛt fɔ du wit muvmɛnt, ɛn ɔda wan dɛn gɛt fɔ du wit ɔda pat dɛn na di bɔdi, aw pɔsin de luk, ɛn aw i de biev.

Sɔm tin dɛn we nɔ gɛt natin fɔ du wit muvmɛnt:

• Difrɛns dɛn we de bitwin di ed saiz:di ed kin bi abnכmal sכm (maykrosεfali) כ big (makrosεfali).
• I nɔ kin rɛst ɔltɛm ɛn i kin vɛks: Bebi dɛn we gɛt CP kin kray bɔku tɛm ɛn sho se dɛn nɔ kin rɛst.
• Nɔr de miks wit ɔda pipul dɛm: Bebi ɛn smɔl pikin dɛm nɔr kin luk ɔr ansa to di wan dɛm wae de arawnd dɛn.
• Hypotonia: Dis kin mek di pat dεm na di bכdi de sho se dεn nכ gεt layf, "fluffy". dis kin si am ali εn leta i kin go bifo to di mכsul dεm we stif (`spasticity`) כ twitching (`dystonia`).
• Divεlכpmεnt dilay: Pikin dεm we gεt CP kin delay fכ rich sכm divεlכpmεnt maylston dεm. Tin dɛn lɛk fɔ ol dɛn nɛk stret, fɔ rɔl, sidɔm, nil dɔŋ, ɛn waka kin delay. Dɛn tin ya kin inklud skil dɛn we gɛt fɔ du wit muvmɛnt, ɛn ɔda tin dɛn we pɔsin kin ebul fɔ du.

Sɔm kwaliti dɛn we gɛt fɔ du wit muvmɛnt:

• Spasticity: Na filin fɔ stiff na di limb dɛm we de mek i nɔ izi fɔ bɛn ɔ yuz dɛm.
• Lak fɔ kɔdineshɔn fɔ di muvmɛnt dɛn.
• Muvmɛnt dɛn we yu nɔ ebul fɔ kɔntrol, lɛk fɔ twis ɛn rɔtin sloslo.
• I tan lɛk se yu de trowe sɔntin, dans, ɛn muv rawnd we yu nɔ de rɛst.
• Dystonia na wan pɔrsin wae de kam wantɛm wantɛm, wae de mek pɔrsin fil pen, ɛn nɔr kin fil fayn wae kin kam wae di mɔsul dɛn kin gɛt tɛnsiɔn ɔr spasm.

Wetin na di tin dɛm wae kin mek pɔrsin gɛt sɛribra palsi (CP)?

Sεribra palsi (CP) kin kam we di pat dεm na di bren we de kכntro di muvmεnt dεm dεm . Dis damej nɔ kin jɔs apin na da pat de, bɔt i kin afɛkt ɔda pat dɛn we de nia de bak. Dis kin mek wi gɛt ɔda prɔblɛm dɛn. Nɔto wan tin nɔmɔ kin mek dis kayn damej, bɔt bɔku tin dɛn kin mek i apin.

Bɔku tɛm de we dis damej kin apin: na di bɛlɛ, we dɛn bɔn am, ɛn afta dɛn bɔn am. bכku tεm, lεk 80% pan di tεm, dis damej de apin we di pikin stil de na di bεlε. lεk 10% pan di tεm, i kin apin afta dεn bכn am.

di tin dεm we kin afekt di mama insay di bεlε εn we i bכn:

• Fɔ bɔn pikin bifo tɛm: Dɛn bɔn am bifo di de we dɛn fɔ bɔn am.
• di malfכmeshכn dεm we dεn bכn wit we de apin di tεm we di pikin in bren de divεlכp.
• Infεkshכn dεm na di sεntri nεv sεstem (bren כ spεnal kכd).
• Strok we de afɛkt di bren we de divɛlɔp.
• jεnεtik prכblεm dεm we de afekt di pikin in divεlכpmεnt.
• di pikin in bren nכ de gεt inof bכdi כ כksijεn.
• Kernicterus: Na di bren de pwɛl bikɔs i gɛt bɔku bɔku kemikal we dɛn kɔl bilirubin, we dɛn kin mek na di liva.
• Meconium aspiration: Fɔ swɛla di pikin in fɔs stɔl (meconium).
• di blכd shuga lεvεl dεm na di nyu bכbi (Newborn hypoglycemia).

Di tin dɛn we kin mek i apin afta dɛn bɔn am:

CP kin divεlכp bak afta dεn bכn di pikin. Pan ɔl we bɔku tɛm na aksidɛnt kin mek i apin, ɔda tin dɛn kin de we kin mek i apin:

• Injuri dɛn we pɔsin kin gɛt we aksidɛnt apin.
• Abiuz wit bɔdi.
• Asfiksiashɔn.
• Infɛkshɔn, strok, ɔ blɔd we de kɔmɔt na di bren ɔ rawnd am.
• Jandis ɛn kernicterus.

Wetin na di tin dɛn we kin mek pɔsin gɛt sɛribra palsi (CP)?

Sɔm tin dɛn de we kin mek pɔsin gɛt ɔr kin mek pɔsin gɛt sɛribra palsi (CP). Sɔm pan dɛn na:

• Fɔ bɔn pikin bifo tɛm: di pikin dɛn we dɛn bɔn bifo 28 wik kin gɛt prɔblɛm mɔ.
• di wet we dεn bכn we dεn bכn lכw: We dεn bכn we i nכ rich 1.5 kilogram (3.3 paund).
• Di we aw mama de yuz drɔgs ɔ rɔm we i gɛt bɛlɛ.
• di kכndishכn dεm we de afekt bεlε, fכ egzampl, prεeklampsia.
• mכltipכl pikin dεm: Lεk twins, triplet dεm.
• Infεkshכn dεm we de afekt di plasεnta כ di amniotic fluid.

Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt sɛribra palsi (CP)?

Bɔku tɛm, sɛribra palsi (CP) kin apin wit ɔda tin dɛn we kin afɛkt di we aw di bren de wok. di sem damej we de mek CP de mek dεn כda kכndyushכn ya bak.

Sɔm ɛgzampul dɛn:

• Seizure ɛn epilepsy.
• Intɛlektual disabiliti.
• Kɔndishɔn dɛn we de afɛkt di ebul fɔ tɔk to pipul dɛn.
• Prɔblɛm fɔ si ɛn yɛri.
• Sik dɛm we gɛt fɔ du wit bon ɛn mɔsul dɛm.
• Prɔblɛm dɛn we gɛt fɔ du wit it ɛn drink.
• Di prɔblɛm dɛn we kin apin we pɔsin de biev.

Aw dɛn kin no se pɔsin gɛt sɛribra palsi (CP)?

Dɔktɔ kin yuz bɔku we dɛn fɔ no if pɔsin gɛt sɛribra palsi (CP). De fכs sayn dεm fכ dis kin tranga fכ di avrej pכsin fכ no. Bɔt dɔktɔ we tren kin no dɛn we dɛn de du klinik ɛgzamin fɔ di pikin ɔltɛm.

Dɔktɔ kin sɔprayz se i gɛt CP as i ol 12 mɔnt. Bɔt bɔku tɛm, na te di pikin ol 18 to 24 mɔnt na in dɛn kin no se i gɛt di sik. Dɔktɔ go no CP bay we i du in bɔdi ɛn nyurolɔjik ɛgzam, yuz spɛshal asɛsmɛnt chɛklist, ɛn du skan lɛk MRI (Magnetic Resonance Imaging). If yu pikin gɛt ɔda sayn dɛn, dɛn kin du ɔda tɛst dɛn. Yu dɔktɔ go ɛksplen wetin na dɛn tɛst ya ɛn wetin mek dɛn de du dɛn.

Wetin na di tritmɛnt fɔ sɛribra palsi (CP)?

Mɛmba se, dɛn nɔ go ebul fɔ mɛn di sik we dɛn kɔl sɛribra palsi (CP) ɔltogɛda.Bɔt dɛn kin trit di sayn dɛm ɛn di ifɛkt dɛm we CP gɛt. De kayn tritmɛnt kin dipen pan sɔm tin dɛm, lɛk aw de sik kin tranga, de sayn dɛm, ɛn aw e kin afɛkt yu. Na wan tim we gɛt pɔblisha dɛn we kɔmɔt na difrɛn say dɛn de trit CP, nɔto jɔs wan spɛshal pɔsin.

Di we aw dɛn kin trit am kin bi dɛn wan ya:

• Mɛrɛsin: Dɛn kin gi mɛrɛsin fɔ bɔku pan di ifɛkt dɛm we CP kin gɛt, lɛk fɔ sik ɛn fɔ mek di mɔsul dɛn stif (spasticity). Dɛn tin ya kin difrɛn bad bad wan dipen pan di sayn dɛm. Dɛn kin gi mɛrɛsin bak fɔ ɔda kɔndishɔn dɛn we kin apin togɛda wit CP, lɛk mental wɛlbɔdi prɔblɛm.
• כpεrayshכn: dεn kin du כpεrayshכn fכ put sכm sכm pכmp dεm (`mεdikeshכn pכmp dεm`) insay di bכdi fכ ridyus di mכsul dεm we de spam כ fכ kכntinyu fכ gi mεdikeshכn. dεn kin du כpεrayshכn bak fכ fiks di jכyn εn spεnal prכblεm dεm, εn fכ put ilektrikal bren stimulatכr dεm (`ilεktrikal bren stimulator dεm`) fכ εp fכ kכntrכl di bren aktiviti.
• Fizik tɛrapi ɛn ɔkupeshɔn tɛrapi: Dɛn tin ya kin ɛp pɔrsin wae gɛt CP fɔ lan aw fɔ du ɛvride wok ɛn fɔ gɛt trɛnk ɛn fɔ muv.
• Spich therapy: Pipul wae gɛt CP kin gɛt prɔblɛm fɔ tɔk to dɛnsɛf. If prɔblɛm dɛn de we kin afɛkt di we aw pɔsin de tɔk, di tritmɛnt we dɛn kin yuz fɔ tɔk kin ɛp.
• Mental hεlth tεrapi: Pipul dεm wae gεt CP kin gεt pwɛl hat εn wɔri. We yu go to dɔktɔ we de mɛn pipul dɛn we gɛt prɔblɛm wit dɛn maynd ɔ pɔsin we de gi yu advays, dat kin ɛp yu fɔ dil wit dɛn kayn tin ya.
• Soshal wok ɛn ɛdyukeshɔn sɔpɔt: Pipul dɛn we gɛt CP kin nid ɛkstra ɛp fɔ du skul wok ɔ ɔda tin dɛn we dɛn kin du ɛvride. Dis kin bi tru soshal woka ɛn ɛdyukeshɔn spɛshal pipul dɛn.

Aw lɔŋ sɛribra palsi (CP) kin las?

Sεribra palsi (CP) kin apin na di bεlε, we dεn bכn am, כ ali afta dεn bכn am. Na tin we pɔsin kin gɛt fɔ ɔl in layf.

Wetin na di lukin-grɔn fɔ sɛribra palsi (CP)?

Dis kin rili dipen pan aw di sik kin tranga. If di CP kɔndishɔn siriɔs, di lukin-grɔn nɔ go fayn ɛn i go mɔs bi se di layf we pɔsin de liv go ridyus. Di mɔr de sik, na di mɔr de chans fɔ mek yu liv shɔt.

Bɔt di tin dɛn we dɔn apin pan mɛdikal sayɛns, sɔpɔtiv kia, ɛn di nyu tin dɛn we dɛn dɔn mek wit tɛknɔlɔji dɔn mek big difrɛns na di layf fɔ pipul dɛn we gɛt CP. Dat min se pipul dɛm wae gɛt mɔdaret to siriɔs CP de liv lɔng naw. So, yu (ɔ yu pikin) dɔktɔ na di bɛst pɔrsin fɔ tɔk to bɔt aw pɔrsin de liv lɔng ɛn de tin wae kin afɛkt am.

Dɛn kin ebul fɔ avɔyd di sik we dɛn kɔl sɛribra palsi (CP) ɔ dɛn kin ridyus di prɔblɛm?

Bɔku tɛm, CP kin apin fɔ rizin dɛn we dɛn nɔ kin ebul fɔ no ɔ we dɛn nɔ kin ebul fɔ avɔyd. Dat mek,Dɛn nɔ go ebul fɔ stɔp dis kpatakpata.

Bɔt sɔm we dɛn de we yu kin ridyus yu pikin in risk fɔ gɛt CP bikɔs ɔf sɔm tin dɛn:

• Magnesium sulfate fכ bכn pikin bifo tεm: Magnesium sulfate de εp fכ ridyus di risk fכ CP pan pikin dεm we dεn bכn bifo 32 wik. Dis kin ɛp fɔ mek di blɔd go fayn fayn wan na di nyu bɔbɔ in bren, ɛn dis kin mek di blɔd ɛn ɔksijɛn nɔ bɔku.
• Kulin tεrapi fכ pikin dεm we de gεt asfiksia: Bebi dεm we dεn nכ bכn bifo tεm kin de pan risk fכ CP bak biכs fכ asfiksia. If yu kol di pikin in bɔdi ɔ in ed lɛk 2 digri sɛlshiɔs (3.6 digri F) i kin mek di bren nɔ pwɛl bikɔs i nɔ gɛt ɔksijɛn.
• Prɛskrishɔn kafin fɔ pikin dɛn we dɛn bɔn bifo tɛm: we dɛn gi am kafin as mɛrɛsin, i kin mek di pikin blo. Risach dɔn sho se dis kin ridyus di risk fɔ gɛt CP.
• di kכtikostεroyd dεm we dεn de bכn bifo tεm: di lכng divεlכpmεnt na di pikin dεm we dεn bכn bifo tεm nכ kin kכmplit. di kכtikostεroyd dεm we dεn gi we dεn de bכn kin mek di lכng divεlכpmεnt kwik. Dis kin ridyus di risk fɔ gɛt CP, bɔt dɛn nid fɔ du mɔ risach fɔ kɔnfɔm dis.

Aw a go kia fɔ misɛf (ɔ mi pikin)?

If yu gɛt CP, bɔku tin kin afɛkt aw yu de kia fɔ yusɛf. If yu gɛt smɔl ɔ mɔdaret CP, yu kin ebul fɔ du sɔm wok. Bɔt if yu gɛt mɔdaret ɔ siriɔs CP, yu nɔ kin ebul fɔ du yu wok, ɛn yu kin nid sɔpɔt ɔ kia fɔ yu layf ɔl.

CP na wan rili individyual kɔndishɔn. So, yu dɔktɔ go advays yu (ɔ di pikin we yu de kia fɔ) di bɛst we bɔt wetin yu go du fɔ kia fɔ yusɛf. Di gayd we dɛn go gi yu go rili impɔtant to yu patikyula sityueshɔn.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

If yu pikin gɛt CP, yu kin aks kwɛstyɔn dɛn lɛk:

• Aw siriɔs di damej de?
• Us abiliti dɛn dis dɔn afɛkt?
• Mi pikin gɛt ɔda mɛrɛsin we kin kam wit ɔ we kin kam wit CP?
• Us tritmɛnt dɛn go ɛp mi pikin insay di nɛks tɛm?
• Us kayn sɔpɔt savis, teknɔlɔji, ɔ ɔda tin dɛn we mi pikin go nid?
• Us sayn dɛn a fɔ luk fɔ we de sho se a gɛt siriɔs prɔblɛm ɔ denja?

If yu na big pɔsin we gɛt CP, yu kin aks yu dɔktɔ bɔt:

• Us sayn dɛn a fɔ luk fɔ we go sho se a gɛt prɔblɛm as a de ol?
• Us prɛvɛntiv kia a nid spɛshal fɔ mi CP kɔndishɔn?
• Nyu tritmɛnt ɔ sɔpɔt de fɔ ɛp mi fɔ mek mi layf bɛtɛ?

Yu tink se sɛribra palsi (CP) kin afɛkt di sɛns ɔltɛm?

Nɔ, sɛribra palsi (CP) nɔ kin afɛkt di sɛns ɔltɛm. Infakt, lɛk af pan di pipul dɛn we gɛt CP nɔ gɛt ɛni intɛlektual disabiliti. Dat min se i nɔ de afɛkt dɛn sɛns atɔl. Bɔrku pipul dɛm wae gɛt CP kin gɛt prɔblɛm fɔ tɔk to dɛnsɛf, bɔt nɔr kin di sem wit intɛlektual disabled.

Yu tink se sɛribra palsi (CP) na wan sik we pɔsin kin gɛt we i kam pan jɛnɛtiks?

Sɔntɛm sɔm tin dɛn de we kin mek pɔsin gɛt sɛribra palsi (CP), bɔt nɔto ɔltɛm dis kin bi. Sɔm pipul dɛm wae nɔr gɛt ɛni jɛnɛtik factor ɔr famili histri fɔ CP kin gɛt dis sik as a rizulta fɔ aksidɛnt ɔr ɔda tin wae apin we dɛn bin smɔl.

Pɔsin we gɛt sɛribra palsi (CP) kin ebul fɔ waka?

Sɔm pipul dɛm wae gɛt CP kin waka wae nɔr gɛt ɛni ɛp. Ɔda pipul dɛn kin nid fɔ yuz stik, tin fɔ waka, ɔ tik. Ɔda pipul dɛn kin nid fɔ yuz tin dɛn we de ɛp dɛn lɛk wilchia. Dis kin difrɛn bad bad wan frɔm wan pɔsin to ɔda pɔsin. Sɔm pipul dɛm wae gɛt CP kin ebul fɔ waka fɔ sɔm tɛm, bɔt dɛn kin nid fɔ yuz krach ɔr wilchia bikɔs dɛn taya ɔr ɔda sayn dɛm fɔ sɔm tɛm.

Fɔ dɔn, wetin fɔ mɛmba (Take-Home Message) .

We yu kam fɔ no se yu pikin gɛt sɛribra palsi (CP), yu kin wɔnda if na yu fɔlt. Bɔt CP kin kam pan we yu nɔ bin de ɛkspɛkt, bɔku tɛm frɔm wan kɔmbayn tin dɛn. Pan ɔl we CP na siriɔs sik ɛn i kin mek pɔsin gɛt disabled, di tin dɛn we dɔn apin na di mɔdan mɛrɛsin dɔn mek dɛn gɛt nyu tritmɛnt dɛn we kin ɛp wit di sayn dɛn ɛn di impak dɛm. Ɛn di tin dɛn we dɔn apin pan ɛp teknɔlɔji de ɛp pipul dɛn we gɛt CP fɔ liv lɔng, layf we go mek dɛn gladi.

If yu pikin gɛt CP, yu pikin in pikin dɔktɔ kin ɛp yu fɔ ɔndastand di sik, gi yu gayd, ɛn sɔpɔt. Dɛn kin ɛp yu bak fɔ fɛn tin dɛm wae go ɛp yu pikin in wɛl bɔdi ɛn wɛl bɔdi. If yu na big pɔsin we gɛt CP, nɔ fred fɔ tɔk to yu dɔktɔ bɔt ɛni prɔblɛm we yu de gɛt. Dɛn kin no bɔt nyu tritmɛnt, tɛknɔlɔji, ɔr savis wae kin ɛp yu.

` Sεribral Palsi, CP, Bren Dizכrd, Muvmεnt Dizכrd, Pikin dεm, Nyurכlכji, Fisiothεrapi