We yu dɔktɔ tɛl yu se yu pikin gɛt wan sik we dɛn kɔl ‘Colpocephaly’, yu kin fil fred, wɔri, ɛn kɔnfyus. Na nɔmal tin fɔ fil da we de bikɔs na strenj nem we yu nɔ sabi. Bɔt nɔ wɔri. Lɛ wi tɔk bɔt wetin na dis sik, aw i kin afɛkt yu pikin, ɛn wetin wi as mama ɛn papa kin du insay wan rili simpul we we yu go ɔndastand.
Wetin na Kɔlpɔsɛfali? Lɛ wi ɔndastand am simpul wan.
Okay, mek wi ɔndastand dis dis we. Imajin se insay wi bren, 4 smɔl smɔl rum dɛn, ɔ spɛshal say dɛn de. Insay mɛrɛsin, wi kin kɔl dɛn ventrikl ya . Insay dɛn chɛmba ya, wan spɛshal wata de we de gi tin fɔ it ɛn protɛkt wi bren ɛn spɛshal kɔd. dis wata dεn kכl am sεribrospεnal fכluid (CSF) .
insay wan kכndyushכn we dεn kכl kolposεfali, pat pan di vεntrikl dεm we de na di bak pat pan di bren (di כksipital hכn fכ di vεntrikl) de big sכm pas aw i fכ bi. di men rizin fכ dis na biכs di bren tisu we de rawnd di vεntrikl dεm nכ de divεlכp lεk aw dεn bin de εkspεkt. di spes we de lεf we di bren tisu dεm nכ de gro de fulכp wit di CSF fכluid we wi bin tכk bכt fכs. dis na we dεn vεntrikl dεm ya de sho big wan pan skan.
Di impɔtant tin na dat, Kɔlpɔsɛfali nɔto wan sik we kin rili kɔmɔn. Ɛn, if na di wangren sik we de de, bɔku tɛm i nɔ kin mek pɔsin in layf de pan denja.
Wetin na di sayn dɛm fɔ pikin we gɛt kɔlposɛfali?
Bɔrku difrɛn sayn dɛm de wae pikin kin gɛt wit dis sik. Sɔntɛm wan pikin nɔ kin gɛt di sem sayn dɛn lɛk ɔda pikin. Sɔm pikin dɛn nɔ kin sho ɛni sayn atɔl. Bɔt sɔm pan de sayn dɛm wae kin kam pan pɔrsin kin de dɔŋ ya.
| Di sayn we de sho se di sik de | Wetin dis min? |
|---|---|
| I nɔ izi fɔ sɔlv prɔblɛm dɛn | I at fɔ sɔlv smɔl prɔblɛm, lɛk fɔ du simpul kɔlkyulɛshɔn, ɔ fɔ ɔndastand nyu tin. |
| Prɔblɛm fɔ pe atɛnshɔn ɛn fɔ du bɔku tin | I nɔ kin izi fɔ pe atɛnshɔn pan wan tin ɛn fɔ de du tin ɔltɛm we nɔ de rɛst ɛn we nɔ de chenj chenj. |
| Di delay fɔ tɔk | Nɔ bigin fɔ tɔk wɔd dɛn di we we fit yu ej ɔ i nɔ izi fɔ tɔk. |
| Intɛlektual disabiliti | Di ebul fɔ lan ɛn du di wok dɛn we pɔsin kin du ɛvride fɔ insɛf. |
| Muvmɛnt ɛn kɔdineshɔn prɔblɛm dɛn | Nɔ balans we yu de waka ɔ rɔn, we yu nɔ ebul fɔ kɔntrol yu an ɛn fut fayn fayn wan. |
| Di sik dɛn we kin mek pɔsin sik | Di bɔdi kin shek wantɛm wantɛm ɛn i nɔ kin no natin. |
| Smɔl ed (Maykrosɛfali) . | Smɔl ed saiz we yu kɔmpia am wit di pikin in ej. |
| I nɔ kin ebul fɔ si ɛn yɛri fayn | Prɔblɛm fɔ si ɔ fɔ yɛri. |
Dipen pan aw dɛn sik ya kin tranga, i kin afɛkt di pikin in ebul fɔ wok fɔ insɛf ɛn fɔ de sef. Bɔt mɛmba se ɔl pikin difrɛn.
Wetin mek pikin kin gɛt Colpocephaly?
Risach pipul dɛn nɔ dɔn no yet wan patikyula tin we kin mek dis apin. Bɔt di men tin we dɛn dɔn no na dat sɔm pat dɛn na di bren, mɔ di kɔpɔs kalɔsɔm, we tan lɛk brij we de kɔnɛkt di rayt ɛn lɛft ɛmisfya na di bren, nɔ de divɛlɔp fayn. Dɔktɔ dɛn kɔl dis agenesis fɔ di kɔpɔs kalɔsɔm . di kכlposεfali de kכz fכ di spεs we dis pat lεf nכ de divεlכp fayn, we fulכp wit CSF fכluid.
So wetin mek di kכpas kכlכs nכ de divεlכp fayn fayn wan? Bɔku rizin dɛn kin de fɔ dis:
- Di tin dɛn we kin mek pɔsin gɛt jɛnɛtiks:Sɔntɛm dis na wan jenɛtik kɔndishɔn we de rɔn na di famili.
- Nyu jεnεtik vεryכnt dεm: Dis kin bi bikoz fכ nyu jεnεtik chenj na di pikin in bכdi, ivin if di mama εn papa nכ de.
Risk factors we yu gɛt bɛlɛ
Sɔm stɔdi dɔn sho se sɔm prɔblɛm dɛn we kin apin we pikin gɛt bɛlɛ kin mek di pikin gɛt kolpɔsɛfali.
- Di we aw mama de drink we i gɛt bɛlɛ.
- di mama gεt infεkshכn (e.g. Toxoplasmosis ) we i bεlε.
- Di mama nɔ de it fayn.
- di bכdi we de go na di plasεnta dεn dכn dכn.
If yu gɛt bɛlɛ ɔ yu de op fɔ bɔn pikin, tɔk to yu dɔktɔ bɔt dis ɛn gɛt di advays we yu nid fɔ gɛt bɛlɛ we gɛt wɛlbɔdi.
Aw dɔktɔ dɛn kin fɛn dis?
Dɔktɔ kin sɔprayz dis we dɛn de du ɔltrasɔund bifo di pikin bɔn , bɔt dɛn kin jɔs no di sik afta dɛn bɔn di pikin bay we dɛn du tɛst dɛn we go mek dɛn si di bren klia wan.
Yu pikin in dɔktɔ go du in bɔdi ɛgzam, in nyurolɔjik ɛgzam, ɛn aks am bɔt yu famili mɛdikal istri. Dɔn dɛn kin tɛl yu fɔ du dɛn tɛst ya fɔ no if yu gɛt di sik:
- CT skan: dis de tek kכros-sekshכnal imej dεm fכ di bren εn de egzamin di sayz fכ di vεntrikl dεm εn כda pat dεm na di bren.
- Magnetic resonance imaging (MRI): Dis na test we de gi mɔ ditayli imej fɔ di bren tisu pas CT skan.
- Jɛnɛtik tɛst: Dɛn tɛst ya kin ɛp fɔ no if ɛni ɔndalayn jenɛtik kɔz de fɔ di sik.
Wetin na di tritmɛnt dɛm fɔ kɔlposɛfali?
di fכs tin fכ se na dat di strכkchכral bren abnכmaliti we dεn kכl kolposεfali nכ kin kכmplit "kכd." dat min se, nכ mεdisin nכ de we go mek di vεntrikl dεm we dεn big bak to nכmal saiz. Bɔt wi kin ɛp di pikin fɔ liv gud ɛn sakrifays layf as wi ebul bay we wi de kɔntrol di sayn dɛm ɛn di diskɔmfɔt we i kin gɛt.
Di tritmɛnt plan go difrɛn frɔm wan pikin to ɔda pikin, i go dipen pan di pikin in sayn dɛm.
| Tritmɛnt/Tɛrapi Mɛtɔd | Dis go ɛp di pikin |
|---|---|
| Tɛrapi fɔ tɔk | I de mek yu ebul fɔ tɔk, kɔl wɔd, ɛn tɔk to ɔda pipul dɛn bɛtɛ. |
| Fizik tɛrapi | I de ɛp fɔ divɛlɔp gros mɔta skil dɛm lɛk fɔ waka, rɔn, ɛn fɔ mek yu bɔdi balans. |
| Ɔkupeshɔn tɛrapi | Dɛn kin gɛt fayn fayn motoka skil dɛn we dɛn nid fɔ du di wok dɛn we dɛn kin du ɛvride fɔ dɛnsɛf, lɛk fɔ drɛs, it, ɛn rayt. |
| Speshal ɛdyukeshɔn program dɛn | Fɔ gi spɛshal sɔpɔt ɛn ɛdyukeshɔn na skul we dɛn mek fɔ di pikin in lanin abiliti. |
| Medikeshɔn fɔ antiseizure | If di pikin de gɛt sik we de mek i sik, gi di mɛrɛsin we di dɔktɔ gi am fɔ kɔntrol am. |
| Glas / Ɛp fɔ yɛri | Fɔ gi di tin dɛn we dɛn nid fɔ di wan dɛn we nɔ de si ɔ yɛri fayn. |
Ustɛm a fɔ go to dɔktɔ?
As mama ɛn papa, na una sabi una pikin pas ɔlman. So if yu notis ɛnitin we nɔ kɔmɔn ɔ we de delay fɔ mek yu pikin biev ɔ divɛlɔp, nɔ ignore am. Si yu dɔktɔ we de mɛn pikin dɛn wantɛm wantɛm.
I rili impɔtant: If yu pikin gɛt sik we nɔ ɛva apin bifo, na imejensi wantɛm wantɛm. Nɔ panik, ɛn kɛr yu pikin go na di ɔspitul we de nia yu in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm .
Bɔrku kwɛstyɔn, frayd, ɛn wɔri kin kam na yu maynd wae yu kam fɔ no se yu pikin gɛt dis sik. Tɔk bɔt ɔl dɛn tin ya opin wan wit yu dɔktɔ. Nɔ shek fɔ aks kwɛstyɔn dɛn lɛk, "Aw a fɔ kia fɔ mi pikin?", "Us simptom a fɔ luk fɔ?", "Us kayn tritmɛnt we bɛtɛ fɔ mi pikin?"
Mɛsej we dɛn kin kɛr go na os
- kכlposεfali na wan kכndyushכn we nכ kin apin we dεn kin bכn we wan pat pan di bren in fכl chεmba dεm (vεntrikul dεm) de big.
- Dis kin apin bikɔs di bren tisu nɔ de divɛlɔp fayn fayn wan. Dis nɔto bikɔs ɔf ɛni fɔlt we di mama ɛn papa gɛt.
- Di sik kin difrɛn frɔm wan pikin to ɔda pikin, ɛn sɔm pikin dɛn nɔ kin sho ɛni sayn atɔl.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn dis sik ɔl, tritmɛnt dɛn lɛk fɔ tɔk, fɔ bɔdi, ɛn fɔ du wok kin ɛp fɔ kɔntrol di sik dɛn ɛn ɛp di pikin fɔ liv gud layf.
- Yu dɔktɔ na di bɛst pɔsin fɔ gɛt di kɔrɛkt infɔmeshɔn bɔt yu pikin in kɔndishɔn ɛn tumara bambay, so tɔk to am bɔt ɛni kwɛstyɔn we yu gɛt.
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